Biobank governance: Property, privacy and consent

Ethics and Law of Intellectual Property: Current Problems in Politics, Science and Technology

Volumn , Issue , 2008, Pages 11-25

  Brownsword, Roger ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

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EID: 79251543727     PISSN: None     EISSN: None     Source Type: Book    
DOI: None     Document Type: Chapter

References (35)

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2. L. Schulz, "Genetic Data Banks" Jahrbuch für Recht und Ethik 9 (2001): 43
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4. D. Beyleveld, R. Brownsword, Human Dignity in Bioethics and Biolaw (Oxford: Oxford University Press, 2001), Chapter 8.
5. McHale, "Regulating Genetic Databases", especially pp. 72-73.
6. UK Biobank Ethics and Governance Framework (Version 1.0, September 24, 2003), pp. 13-14.
7. UK Biobank Ethics and Governance Framework (Version 1.0, September 24, 2003), p. 13.
8. UK Biobank Ethics and Governance Framework, p. 9.
9. UK Biobank Ethics and Governance Framework, p. 14.
10. UK Biobank Ethics and Governance Framework, p. 18.
11. McHale, "Regulating Genetic Databases", p. 79.
12. UK Biobank Ethics and Governance Framework, p. 16.
13. Roger Brownsword, "Bioethics Today, Bioethics Tomorrow: Stem Cell Research and the 'Dignitarian Alliance'", Notre Dame Journal of Law, Ethics and Public Policy 17 (2003): 15.
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19. Beyleveld, Brownsword, Human Dignity, Chapter 8.
20. G. Laurie, Genetic Privacy (Cambridge: Cambridge University Press, 2002), pp. 322-323
21. F. Bellivier, C. Noiville, "The Commercialisation of Human Biomaterials: What are the Rights of Donors of Biological Material?", paper presented at workshop on "Property in Human Tissue", University of Tübingen, January 21- 22, 2005.
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28. Bristol Inquiry Interim Report, Removal and Retention of Human Material (2000), http://www.bristol-inquiry.org.uk
29. Royal Liverpool Children's Hospital (Alder Hey) (Report of the Inquiry into the Royal Liverpool Children's Hospital (Alder Hey) (2001), http://www.rclinquiry.org.uk.
30. O. O'Neill, Autonomy and Trust in Bioethics (Cambridge: Cambridge University Press, 2002).
31. Beyleveld, Brownsword, Consent in the Law.
32. D.F. Partlett, "Misuse of Genetic Information: The Common Law and Professionals' Liability" Washburn Law Journal 42 (2003): 489.
33. J.M. Zekan Makdisi, "Commercial Use of Protected Information Under HIPAA's Privacy Rule: Reasonable Disclosure of Disguised Marketing?" Nebraska Law Review 82 (2004): 741-782, see especially pp. 757-758.
34. McHale, "Regulating Genetic Databases", p. 81.
35. J. Boyle, Shamans, Software, and Spleens (Cambridge, MA: Harvard University Press, 1996).