Strategies and Innovative Models for Delivering Palliative Care in Nursing Homes

Journal of the American Medical Directors Association

Volumn 12, Issue 2, 2011, Pages 91-98

  Carlson, Melissa D A ^a   Lim, Betty ^a   Meier, Diane E ^a  

^a MOUNT SINAI SCHOOL OF MEDICINE   (United States)

Author keywords

Models of care; Pallative care

Indexed keywords

ARTICLE; CAREGIVER SUPPORT; HEALTH CARE DELIVERY; HOSPICE; HOSPICE CARE; HUMAN; LONG TERM CARE; MOTIVATION; NURSING HOME; PALLIATIVE THERAPY; PROGNOSIS; REIMBURSEMENT;

EID: 78751704309     PISSN: 15258610     EISSN: 15389375     Source Type: Journal    
DOI: 10.1016/j.jamda.2010.07.016     Document Type: Article

References (56)

1. Jones A.L., Dwyer L.L., Bercovitz A.R., Strahan G.W. The national nursing home survey: 2004 overview. National Center for Health Statistics. Vital Health Statistics 2009, 13:167.
2. Banaszak-Holl J., Zinn J.S., Brannon D., et al. Specialization and diversification in the nursing home industry. Health Care Manag 1997, 3:91-99.
3. Magaziner J., German P., Zimmerman S.I., et al. The prevalence of dementia in a statewide sample of new nursing home admissions aged 65 and older: diagnosis by expert panel. Epidemiology of Dementia in Nursing Homes Research Group. Gerontologist 2000, 40:663-672.
4. van Dijk P.T., Mehr D.R., Ooms M.E., et al. Comorbidity and 1-year mortality risks in nursing home residents. J Am Geriatr Soc 2005, 53:660-665.
5. Furman C.D., Pirkle R., O'Brien J.G., Miles T. Barriers to the implementation of palliative care in the nursing home. J Am Med Dir Assoc 2007, 8:e45-e48.
6. Teno J.M., Weitzen S., Wetle T., Mor V. Persistent pain in nursing home residents. JAMA 2001, 285:2081.
7. Ferrell B.A., Ferrell B.R., Osterweil D. Pain in the nursing home. J Am Geriatr Soc 1990, 38:409-414.
8. Bernabei R., Gambassi G., Lapane K., et al. Systematic Assessment of Geriatric Drug Use via Epidemiology. JAMA 1998, 279:1877-1882. Management of pain in elderly patients with cancer. SAGE Study Group.
9. Miller S.C., Mor V., Wu N., et al. Does receipt of hospice care in nursing homes improve the management of pain at the end of life?. J Am Geriatr Soc 2002, 50:507-515.
10. Painter K. Nurse dispenses dignity to dying. USA Today. Available at: Accessed September 7, 2010. http://www.usatoday.com/life/people/2003-12-30-hospice-nurse-main_x.htm.
11. Teno J.M., Kabumoto G., Wetle T., et al. Daily pain that was excruciating at some time in the previous week: Prevalence, characteristics, and outcomes in nursing home residents. J Am Geriatr Soc 2004, 52:762-767.
12. Mitchell S.L., Teno J.M., Roy J., et al. Clinical and organizational factors associated with feeding tube use among nursing home residents with advanced cognitive impairment. JAMA 2003, 290:73-80.
13. Teno J.M., Mitchell S.L., Skinner J., et al. Churning: The association between health care transitions and feeding tube insertion for nursing home residents with advanced cognitive impairment. J Palliat Med 2009, 12:359-362.
14. Bradley E.H., Wetle T., Horwitz S.M. The patient self-determination act and advance directive completion in nursing homes. Arch Fam Med 1998, 7:417-423.
15. Castle N.G., Mor V., Banaszak-Holl J. Special care hospice units in nursing homes. Hosp J 1997, 12:59-69.
16. Bradley E.H., Walker C.W. Education and advance care planning in nursing homes: The impact of ownership type. Nonprofit and Voluntary Sector Quarterly 1998, 27:339-357.
17. Bradley E., Walker L., Blechner B., Wetle T. Assessing capacity to participate in discussions of advance directives in nursing homes: Findings from a study of the Patient Self Determination Act. J Am Geriatr Soc 1997, 45:79-83.
18. Bradley E.H., Blechner B.B., Walker L.C., Wetle T.T. Institutional efforts to promote advance care planning in nursing homes: Challenges and opportunities. J Law Med Ethics 1997, 25:150-159. 183.
19. Jones B., Nackerud L., Boyle D. Differential utilization of hospice services in nursing homes. Hosp J 1997, 12:41-57.
20. Miller S.C., Gozalo P., Mor V. Hospice enrollment and hospitalization of dying nursing home patients. Am J Med 2001, 111:38-44.
21. Castle N.G., Mor V. Hospitalization of nursing home residents: A review of the literature, 1980-1995. Med Care Res Rev 1996, 53:123-148.
22. Boockvar K., Fishman E., Kyriacou C.K., et al. Adverse events due to discontinuations in drug use and dose changes in patients transferred between acute and long-term care facilities. Arch Intern Med 2004, 164:545-550.
23. Gillick M.R., Serrell N.A., Gillick L.S. Adverse consequences of hospitalization in the elderly. Soc Sci Med 1982, 16:1033-1038.
24. Bourbonniere M., Teno J., Roy J., Mor V. Transitions at the end of life: Quality of care and information continuity [abstract]. J Am Geriatr Soc 2003, 51:S40-S41.
25. Center to Advance Palliative Care. Improving Palliative Care in Nursing Homes; 2008. Available at: Accessed May 15, 2010. http://www.capc.org/support-from-capc/capc_publications/nursing_home_report.pdf.
26. Teno J.M., Clarridge B.R., Casey V., et al. Family perspectives on end-of-life care at the last place of care. JAMA 2004, 291:88-93.
27. Steinhauser K.E., Christakis N.A., Clipp E.C., et al. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000, 284:2476-2482.
28. Zerzan J., Stearns S., Hanson L. Access to palliative care and hospice in nursing homes. JAMA 2000, 284:2489-2494.
29. Hanson L.C. Creating excellent palliative care in nursing homes. J Palliat Med 2003, 6:7-9.
30. Grabowski D.C. Medicare and Medicaid: Conflicting incentives for long-term care. Milbank Q 2007, 85:579-610.
31. Saliba D., Kington R., Buchanan J., et al. Appropriateness of the decision to transfer nursing facility residents to the hospital. J Am Geriatr Soc 2000, 48:154-163.
32. Ersek M., Wilson S.A. The challenges and opportunities in providing end-of-life care in nursing homes. J Palliat Med 2003, 6:45-57.
33. Pear R. 9 of 10 nursing homes lack adequate staff, study finds. New York Times on the Web. February 18, 2002. Available at: Accessed: June 8, 2009. http://www.nytimes.com/2002/02/18/national/18NURS.html.
34. Centers for Medicare & Medicaid Services. Appropriateness of minimum staffing ratios in nursing homes. Baltimore: ABT Associates; 2002.
35. Fulmer T., Mezey M. Contemporary geriatric nursing. Principles of Geriatric Medicine and Gerontology 1999, McGraw-Hill, New York. 4th ed. W. Hazzard, J. Blass, W. Ettinger (Eds.).
36. Hostetter M, Issue of the month: Changing the culture of nursing homes. Quality Matters: Nursing Home Improvement, a Newsletter from the Commonwealth Fund. 2007;Vol January/February.
37. Ersek M., Grant M.M., Kraybill B.M. Enhancing end-of-life care in nursing homes: Palliative Care Educational Resource Team (PERT) program. J Palliat Med 2005, 8:556-566.
38. Ersek M., Kraybill B.M., Hansberry J. Assessing the educational needs and concerns of nursing home staff regarding end-of-life care. J Gerontol Nurs 2000, 26:16-26.
39. Miller S.C., Teno J.M., Mor V. Hospice and palliative care in nursing homes. Clin Geriatr Med 2004, 20:717-734. vii.
40. Four Seasons. Home page. Available at: Accessed June 15, 2009. http://www.fourseasonscfl.org/what-we-offer.php%3Fseasons%3Dpalliative-care-services.
41. Meier D.E., Beresford L. POLST offers next stage in honoring patient preferences. J Palliat Med 2009, 12:291-295.
42. Bomba P.A., Vermilyea D. Integrating POLST into palliative care guidelines: A paradigm shift in advance care planning in oncology. J Natl Compr Canc Netw 2006, 4:819-829.
43. Cantor M.D. Improving advance care planning: Lessons from POLST. Physician Orders for Life-Sustaining Treatment. J Am Geriatr Soc 2000, 48:1343-1344.
44. Morningside House. Home page. Available at: Accessed June 15, 2009. http://www.allcarenet.org/memdir/mornings.html.
45. Aging in America. Morningside House Nursing Home & Rehabilitation Service Care. Available at: Accessed June 15, 2009. http://www.aiamsh.org/rehabilitation/.
46. Kane R.L., Keckhafer G., Flood S., et al. The effect of Evercare on hospital use. J Am Geriatr Soc 2003, 51:1427-1434.
47. Welch L.C., Miller S.C., Martin E.W., Nanda A. Referral and timing of referral to hospice care in nursing homes: The significant role of staff members. Gerontologist 2008, 48:477-484.
48. Levy C., Morris M., Kramer A. Improving end-of-life outcomes in nursing homes by targeting residents at high-risk of mortality for palliative care: Program description and evaluation. J Palliat Med 2008, 11:217-225.
49. Gozalo P.L., Miller S.C., Intrator O., et al. Hospice effect on government expenditures among nursing home residents. Health Serv Res 2008, 43:134-153.
50. Miller S.C., Han B. End-of-life care in U.S. nursing homes: Nursing homes with special programs and trained staff for hospice or palliative/end-of-life care. J Palliat Med 2008, 11:866-877.
51. Gozalo P.L., Miller S.C. Hospice enrollment and evaluation of its causal effect on hospitalization of dying nursing home patients. Health Serv Res 2007, 42:587-610.
52. Porock D., Oliver D.P., Zweig S., et al. Predicting death in the nursing home: Development and validation of the 6-month Minimum Data Set mortality risk index. J Gerontol A Biol Sci Med Sci 2005, 60:491-498.
53. Penrod J.D., Deb P., Luhrs C., et al. Cost and utilization outcomes of patients receiving hospital-based palliative care consultation. J Palliat Med 2006, 9:855-860.
54. Bruera E., Neumann C.M., Gagnon B., et al. The impact of a regional palliative care program on the cost of palliative care delivery. J Palliat Med 2000, 3:181-186.
55. Fromme E.K., Bascom P.B., Smith M.D., et al. Survival, mortality, and location of death for patients seen by a hospital-based palliative care team. J Palliat Med 2006, 9:903-911.
56. Medicare and Medicaid Programs: Hospice Conditions of Participation; Final Rule. 73 Federal Register 2008, 109. Centers for Medicare & Medicaid Services, (codified at 42 CFR Part 418).