Stress and burden among caregivers of patients with lewy body dementia

Gerontologist

Volumn 51, Issue 1, 2011, Pages 76-85

  Leggett, Amanda N ^a   Zarit, Steven ^a   Taylor, Angela ^b   Galvin, James E ^c  

^a PENNSYLVANIA STATE UNIVERSITY   (United States)

^b Lewy Body Dementia Association   (United States)

^c NEW YORK UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Behavioral and emotional problems; Burden; Caregiving; Lewy body dementia

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; CAREGIVER; COST OF ILLNESS; DAILY LIFE ACTIVITY; DEMENTIA; DEPRESSION; DIFFUSE LEWY BODY DISEASE; FACTORIAL ANALYSIS; FEMALE; HUMAN; INFORMATION PROCESSING; INTERNET; INTERVIEW; MALE; MENTAL STRESS; MIDDLE AGED; NURSING; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL RATING SCALE; SOCIAL SUPPORT; SOCIOECONOMICS; STATISTICS;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; COST OF ILLNESS; DATA COLLECTION; DEMENTIA; DEPRESSION; FACTOR ANALYSIS, STATISTICAL; FEMALE; HUMANS; INTERNET; INTERVIEWS AS TOPIC; LEWY BODY DISEASE; MALE; MIDDLE AGED; PSYCHIATRIC STATUS RATING SCALES; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS; STRESS, PSYCHOLOGICAL;

EID: 78751481319     PISSN: 00169013     EISSN: 17585341     Source Type: Journal    
DOI: 10.1093/geront/gnq055     Document Type: Article

References (37)

1. Aneshensel, C., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. (1995). Profiles in caregiving: The unexpected career. New York: Academic Press.
2. Ankri, J., Andrieu, S., Beaufils, B., Grand, A., & Henrard, J. C. (2005). Beyond the global score of the Zarit Burden Interview: Useful dimensions for clinicians. International Journal of Geriatric Psychiatry, 20, 254-260.
3. Bachner, Y. G., & O'Rourke, N. (2007). Reliability generalization of responses by care providers to the Zarit burden interview. Aging and Mental Health, 11, 678-685.
4. Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O'Donnell, M. (2001). The Zarit burden interview: A new short version and screening version. The Gerontologist, 41, 652-657.
5. Bédard, M., Pedlar, D., Martin, N. J., Malott, O., & Stones, M. J. (2000). Burden in caregivers of cognitively impaired older adults living in the community: Methodological issues and determinants. International Psychogeriatrics, 12, 307-332.
6. Beeber, A. S., Thorpe, J. M., & Clipp, E. C. (2008). Community-based service use by elders with dementia and their caregivers: A latent class analysis. Nursing Research, 57, 312-321.
7. Biegel, D., Sales, E., & Schulz, R. (1991). Family caregiving in chronic illness. Newbury Park, CA: Sage Publications.
8. Braungart, E. R., Zarit, S. H., Femia, E. E., Hofer, S. M., & Stephens, M. A. P. (2006). Behavioral and psychological symptoms of dementia and caregivers' stress appraisals: Intra-individual stability and change over short-term observations. Aging and Mental Health, 10, 563-573.
9. Devanand, D. P., Jacobs, D. M., Tang, M. X., Del Castillo-Castaneda, C., Sano, M., Marder, K., et al. (1997). The course of psychopathologic features in mild to moderate Alzheimer's disease. Archives of General Psychiatry, 54, 257-263.
10. Elashoff, J. D. (1969). Analysis of covariance: A delicate instrument. American Education Research Journal, 6, 383.
11. Femia, E. E., Zarit, S. H., Stephens, M. P., & Greene, R. (2007). Impact of adult day services on behavioral and psychological symptoms of dementia. The Gerontologist, 47, 775-788.
12. Ferman, T. J., Smith, G. E., Boeve, B. F., Ivnik, R. J., Petersen, R. C., Knopman, D., et al. (2004). DLB fluctuations: Specific features that reliably differentiate DLB from AD and normal aging. Neurology, 62, 181-187.
13. Galvin, J. E., Duda, J. E., Kaufer, D. I., Lippa, C. F., Taylor, A., & Zarit, S. H. (in press). Lewy body dementia: The caregiver experience of clinical care. Parkinsonism and Related Disorders.
14. Gaugler, J. E., Davey, A., Pearlin, L. I., & Zarit, S. H. (2000). Modeling caregiver adaptation over time: The longitudinal impact of behavior problems. Psychology and Aging, 15, 437-450.
15. Gerpen, J. V. (Speaker). (2007). The many faces of Lewy body dementia (Video Recording). Coral Springs, FL: The Lewy Body Dementia Association.
16. Lawton, M. P., & Brody, E. M. (1969). Assessment of older people: Self maintaining and instrumental activities of daily living. The Gerontologist, 9, 179-186.
17. Lawton, M. P., Rajagopal, D., Brody, E., & Kleban, M. H. (1992). The dynamics of caregiving for a demented elder among black and white families. Journal of Gerontology, 47, 156-164.
18. Lewy Body Dementia Association. (2008). An introduction to Lewy Body dementia [Brochure]. Atlanta, GA: Author.
19. McKeith, I., Mintzer, J., Aarsland, D., Burn, D., Chiu, H., & Cohen-Mansfield, J. (2004). Dementia with Lewy bodies. Lancet Neurology, 3, 19-28.
20. McKeith, I. G., Rowan, E., Askew, K., Naidu, A., Allan, L., Barnett, N., et al. (2006). More severe functional impairment in dementia with Lewy bodies than Alzheimer disease is related to extrapyramidal motor dysfunction. American Journal of Geriatric Psychiatry, 14, 582-588.
21. Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583-594.
22. Ricci, M., Guidoni, S. V., Sepe-Monti, M., Bomboi, G., Antonini, G., & Blundo, C. (2009). Clinical findings, functional abilities and caregiver distress in the early stage of dementia with Lewy bodies (DLB) and Alzheimer's disease (AD). Archives of Gerontology and Geriatrics, 49, 101-104.
23. Robillard, A. (2007). Clinical diagnosis of dementia. Alzheimer's and Dementia, 3, 292-298.
24. Stavitsky, K., Brickman, A. M., Scarmeas, N., Torgan, R. L., Tang, M. X., Albert, M., et al. (2006). The progression of cognition, psychiatric symptoms, and functional abilities in dementia with Lewy bodies and Alzheimer's disease. Archives of Neurology, 63, 1450-1456.
25. Stewart, J. (Speaker). (2007). The many faces of Lewy body dementia (Video Recording). Coral Springs, FL: The Lewy Body Dementia Association.
26. Tarawneh, R., & Galvin, J. E. (2007). Distinguishing Lewy body dementias from Alzheimer's disease. Expert Review of Neurotherapeutics, 7, 1499-1516.
27. Weiner, M. F., Teri, L., & Williams, B. T. (1996). Psychological and behavioral management. In M. F. Weiner (Ed.), The dementias: Diagnosis, management, and research (2nd ed., pp. 139-173). Washington, DC: American Psychiatric Association.
28. Williams, M. M., Xiong, C., Morris, J. C., & Galvin, J. E. (2006). Survival and mortality differences between dementia with Lewy bodies vs Alzheimer disease. Neurology, 67, 1935-1941.
29. Yee, J. L., & Schulz, R. (2000). Gender differences in psychiatric morbidity among family caregivers: A review and analysis. The Gerontologist, 40, 147-164.
30. Zarit, S. H. (1989). Issues and directions in family intervention research. In E. Light, & B. Lebowitz (Eds.), Alzheimer's disease, treatment, and family stress: Directions for research (pp. 458-486). Washington, DC: U.S. Government Printing Office.
31. Zarit, S. H. (2008). Diagnosis and management of caregiver burden in dementia. In C. Duyckaerts, & I. Litvan (Eds.), Handbook of clinical neurology: Dementias (Vol. 89, 3rd series, pp. 905-910). New York: Elsevier.
32. Zarit, S. H. (2010). The burden interview. Retrieved July 6, 2010, from http://www.mapi-research.fr/t-03-serv-dist-ReviewZBI.htm
33. Zarit, S. H., & Eggebeen, D. J. (2002). Parent-child relationships in adulthood and later years. In M. H. Bornstein (Ed.), Handbook on parenting: Children and parents (Vol. 1, 2nd ed., pp. 135-164). Mahwah, NJ: Lawrence Erlbaum Associates.
34. Zarit, S. H., Stephens, M. P., Townsend, A., & Greene, R. (1998). Stress reduction for family caregivers: Effects of adult day care use. Journal of Gerontology: Psychological Sciences and Social Sciences, 53B, 267-277.
35. Zarit, S. H., Johansson, B., & Berg, S. (1993). Functional impairment and co-disability in the oldest old. Journal of Aging and Health, 5, 291-305.
36. Zarit, S. H., & Zarit, J. M. (1982). Families under stress: Interventions for caregivers of senile dementia patients. Psychotherapy: Theory, Research and Practice, 19, 461-471.
37. Zarit, S. H., & Zarit, J. M. (2008). Flexibility and change: The fundamentals for families coping with dementia. In M. Downs, & B. Bowers (Eds.), Excellence in dementia care (pp. 85-102). New York: Open University Press.