Agreement between proxy and adolescent assessment of disability, pain, and well-being in juvenile idiopathic arthritis

Journal of Pediatrics

Volumn 158, Issue 2, 2011, Pages 307-312

  Lal, Sham D ^a   McDonagh, Janet ^b   Baildam, Eileen ^c   Wedderburn, Lucy R ^d   Gardner Medwin, Janet ^e   Foster, Helen E ^f   Chieng, Alice ^g   Davidson, Joyce ^e   Adib, Navid ^a   Thomson, Wendy ^a   Hyrich, Kimme L ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b BIRMINGHAM CHILDREN S HOSPITAL   (United Kingdom)

^c ALDER HEY CHILDREN'S NHS FOUNDATION TRUST   (United Kingdom)

^d UNIVERSITY COLLEGE LONDON   (United Kingdom)

^e UNIVERSITY OF GLASGOW   (United Kingdom)

^f NEWCASTLE UNIVERSITY   (United Kingdom)

^g ROYAL MANCHESTER CHILDREN S HOSPITAL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ARTICLE; DISABILITY; DISEASE DURATION; FEMALE; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MAJOR CLINICAL STUDY; MALE; PAIN; PRIORITY JOURNAL; QUESTIONNAIRE; VISUAL ANALOG SCALE; WELLBEING;

ADOLESCENT; ARTHRALGIA; ARTHRITIS, JUVENILE RHEUMATOID; COHORT STUDIES; DISABILITY EVALUATION; FEMALE; GREAT BRITAIN; HUMANS; LOGISTIC MODELS; MALE; PAIN MEASUREMENT; PERSONAL SATISFACTION; PROXY; QUALITY OF LIFE; QUESTIONNAIRES; REGRESSION ANALYSIS; SELF-ASSESSMENT; SENSITIVITY AND SPECIFICITY; SEVERITY OF ILLNESS INDEX;

EID: 78651520139     PISSN: 00223476     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpeds.2010.08.003     Document Type: Article

References (32)

1. C. Eiser, and M. Jenney Measuring quality of life Arch Dis Child 92 2007 348 350
2. P. Upton, J. Lawford, and C. Eiser Parent-child agreement across child health-related quality of life instruments: a review of the literature Qual Life Res 17 2008 895 913
3. P. Garcia-Munitis, M. Bandeira, A. Pistorio, S. Magni-Manzoni, N. Ruperto, and A. Schivo Level of agreement between children, parents, and physicians in rating pain intensity in juvenile idiopathic arthritis Arthritis Rheum 55 2006 177 183
4. K.L. Shaw, T.R. Southwood, and J.E. McDonagh Growing up and moving on in rheumatology: parents as proxies of adolescents with juvenile idiopathic arthritis Arthritis Rheum 55 2006 189 198
5. T.M. Palermo, K. Zebracki, S. Cox, A.J. Newman, and N.G. Singer Juvenile idiopathic arthritis: parent-child discrepancy on reports of pain and disability J Rheumatol 31 2004 1840 1846
6. M. White-Koning, C. Arnaud, H.O. Dickinson, U. Thyen, E. Beckung, and J. Fauconnier Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy Pediatrics 120 2007 e804 e814
7. K.L. Hyrich, S.D. Lal, H.E. Foster, J. Thornton, N. Adib, and E. Baildam Disease activity and disability in children with juvenile idiopathic arthritis one year following presentation to paediatric rheumatology. results from the Childhood Arthritis Prospective Study Rheumatology (Oxford) 49 2010 116 122
8. R.E. Petty, T.R. Southwood, P. Manners, J. Baum, D.N. Glass, and J. Goldenberg International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001 J Rheumatol 31 2004 390 392
9. E.H. Giannini, N. Ruperto, A. Ravelli, D.J. Lovell, D.T. Felson, and A. Martini Preliminary definition of improvement in juvenile arthritis Arthritis Rheum 40 1997 1202 1209
10. J. Nugent, N. Ruperto, J. Grainger, C. Machado, S. Sawhney, and E. Baildam The British version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) Clin Exp Rheumatol 19 2001 S163 S167
11. K.L. Shaw, T.R. Southwood, and J.E. McDonagh British Society of Paediatric and Adolescent Rheumatology. Growing up and moving on in rheumatology: a multicentre cohort of adolescents with juvenile idiopathic arthritis Rheumatology (Oxford) 44 2005 806 812
12. D. Goldberg Manual of the General Health Questionnaire 1978 NFER Publishing Windsor, England
13. J. Whittington, and F.A. Huppert Creating invariant subscales of the GHQ-30 Soc Sci Med 46 1998 1429 1440
14. D.P. Goldberg The Detection of Psychiatric Illness by Questionnaire 1972 University Press London
15. S. Messer, A. Angold, E. Costello, R. Loeber, W. Van Kammen, and M. Loeber Development of a short questionnaire for use in epidemiologic studies of depression in children and adolescents: factor composition and structure across development Int J Methods Psychiatr Res 5 1995 237 249
16. A. Wood, L. Kroll, A. Moore, and R. Harrington Properties of the mood and feelings questionnaire in adolescent psychiatric outpatients: a research note J Child Psychol Psychiatry 36 1995 327 334
17. W.B. Daviss, B. Birmaher, N.A. Melhem, D.A. Axelson, S.M. Michaels, and D.A. Brent Criterion validity of the Mood and Feelings Questionnaire for depressive episodes in clinic and non-clinic subjects J Child Psychol Psychiatry 47 2006 927 934
18. H.I. Brunner, M.S. Klein-Gitelman, M.J. Miller, A. Barron, N. Baldwin, and M. Trombley Minimal clinically important differences of the childhood health assessment questionnaire J Rheumatol 32 2005 150 161
19. G.R. Norman, J.A. Sloan, and K.W. Wyrwich Interpretation of changes in health-related quality of life: the remarkable universality of half a standard deviation Med Care 41 2003 582 592
20. J.M. Bland, and D.G. Altman Statistical methods for assessing agreement between two methods of clinical measurement Lancet 1 1986 307 310
21. J.M. Bland, and D.G. Altman Measuring agreement in method comparison studies Stat Methods Med Res 8 1999 135 160
22. G. Singh, B.H. Athreya, J.F. Fries, and D.P. Goldsmith Measurement of health status in children with juvenile rheumatoid arthritis Arthritis Rheum 37 1994 1761 1769
23. A.G. Billings, R.H. Moos, J.J. Miller III, and J.E. Gottlieb Psychosocial adaptation in juvenile rheumatic disease: a controlled evaluation Health Psychol 6 1987 343 359
24. E. Doherty, G. Yanni, R.M. Conroy, and B. Bresnihan A comparison of child and parent ratings of disability and pain in juvenile chronic arthritis J Rheumatol 20 1993 1563 1566
25. E. Waters, S. Stewart-Brown, and R. Fitzpatrick Agreement between adolescent self-report and parent reports of health and well-being: results of an epidemiological study Child Care Health Dev 29 2003 501 509
26. K.T. April, D.E. Feldman, R.W. Platt, and C.M. Duffy Comparison between Children with Juvenile Idiopathic Arthritis (JIA) and their parents concerning perceived Quality of Life Qual Life Res 15 2006 655 661
27. S.L. Manne, and A.J. Zautra Coping with arthritis: current status and critique Arthritis Rheum 35 1992 1273 1280
28. D. Meyer, H. Leventhal, and M. Gutmann Common-sense models of illness: the example of hypertension Health Psychol 4 1985 115 135
29. M.G. Magnussen Characteristics of depressed and non-depressed children and their parents Child Psychiatry Hum Dev 21 1991 185 191
30. K. Mulligan, A. Etheridge, L. Kassoumeri, L.R. Wedderburn, and S. Newman Do mothers and fathers hold similar views about their child's arthritis? Arthritis Rheum 61 2009 1712 1718
31. E. Waters, S. Stewart-Brown, and R. Fitzpatrick Agreement between adolescent self-report and parent reports of health and well-being: results of an epidemiological study Child Care Health Dev 29 2003 501 509
32. A. Ravelli, S. Viola, D. Migliavacca, A. Pistorio, N. Ruperto, and A. Martini Discordance between proxy-reported and observed assessment of functional ability of children with juvenile idiopathic arthritis Rheumatology (Oxford) 40 2001 914 919