Family perspectives on the hospice experience in adult family homes

Journal of Gerontological Social Work

Volumn 54, Issue 2, 2011, Pages 159-174

  Washington, Karla T ^a   Oliver, Debra Parker ^b   Demiris, George ^c   Wittenberg Lyles, Elaine ^d   Shaunfield, Sara ^d  

^a UNIVERSITY OF LOUISVILLE   (United States)

^b University of Missouri   (United States)

^c UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^d UNIVERSITY OF NORTH TEXAS   (United States)

Author keywords

Adult family home; Family; Hospices; Long term care

Indexed keywords

ADULT; AGED; ARTICLE; CONSUMER; FAMILY; FEMALE; HEALTH CARE QUALITY; HOSPICE CARE; HUMAN; INTERVIEW; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; TERMINALLY ILL PATIENT; UNITED STATES;

ADULT; AGED; AGED, 80 AND OVER; CONSUMER SATISFACTION; FAMILY; FEMALE; HOSPICE CARE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; QUALITY OF HEALTH CARE; TERMINALLY ILL; WASHINGTON;

EID: 78651500747     PISSN: 01634372     EISSN: 15404048     Source Type: Journal    
DOI: 10.1080/01634372.2010.536833     Document Type: Article

References (30)

1. Assisted Living Federation of America. (n.d.). Guide to choosing an assisted living community. Retrieved from http://www.alfa.org/images/alfa/PDFs/ PublicationsResources/Guide_to_Choosing_Assisted_Living_Community.pdf
2. Berens, M. J. (2010, January 30). How the aged and frail are exploited in Washington's adult family homes. Seattle Times. Retrieved from http:// seattletimes.nwsource.com/html/seniorsforsale/2010939195_seniors31.html
3. Blanchette, K. (1997). New directions for state long-term care systems, Vol. 3: Supportive housing. Washington, DC: American Association of Retired Persons Public Policy Institute.
4. Casarett, D., Karlawish, J., Morales, K., Crowley, R., Mirsch, T., & Asch, D. A. (2005). Improving the use of hospice services in nursing homes: A randomized controlled trial. Journal of the American Medical Association, 294, 211-217.
5. Christ, G. H., & Sormanti, M. (2000). Advancing social work practice in end-of-life care. Social Work in Health Care, 30(2), 81-99.
6. Curtis, M. P., Kiyak, A., & Hedrick, S. (2000). Resident and facility characteristics of adult family home, adult residential care, and assisted living settings in Washington State. Journal of Gerontological Social Work, 34(1), 25-41.
7. Demiris, G., Parker Oliver, D., Washington, K., Thomas Fruehling, L., Haggarty-Robbins, D., Doorenbos, A., . . . Berry, D. (2010). A problem solving intervention for hospice caregivers: A pilot study. Journal of Palliative Medicine, 13, 1005-1011.
8. Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures, and measures to achieve trustworthiness. Nurse Education Today, 24, 105-112.
9. Hedrick, S. C., Sales, A. E. B., Sullivan, J. H., Gray, S. L., Tornatore, J., Curtis, M., & Zhou, X. H. (2003). Resident outcomes of Medicaid-funded community residential care. Gerontologist, 43, 473-482.
10. Hedrick, S. C., Sullivan, J. H., Sales, A. E. B., & Gray, S. L. (2009). Mom and pop versus the big boys: Adult family homes as providers of Medicaid-funded residential care. Journal of Aging & Social Policy, 21, 31-51.
11. Hooyman, N. R., & Kiyak, H. A. (2008). The growth of social gerontology. Social gerontology: A multidisciplinary perspective (pp. 3-42). Boston, MA: Pearson.
12. Hooyman, N. R., & Kiyak, H. A. (2011). Living arrangements and social interactions. Social gerontology (pp. 446-492). Boston, MA: Allyn & Bacon.
13. Hsieh, H.-F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15, 1277-1288.
14. Kane, R. A. (2006). A social worker's historical and future perspective on residential care. In B. Berkman (Ed.), Handbook of social work in health and aging (pp. 591-600). New York, NY: Oxford University Press.
15. Keay, T. J., & Schonwetter, R. S. (1998). Hospice care in the nursing home. American Family Physician, 57, 491-494.
16. Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: An expanded sourcebook (2nd ed.). Thousand Oaks, CA: Sage.
17. Miller, S. C., & Mor, V. (2002). The role of hospice care in the nursing home setting. Journal of Palliative Medicine, 5, 271-277.
18. Mollica, R. L., Simms-Kastelein, K., Cheek, M., Baldwin, C., Farnham, J., Reinhard, S., & Accius, J. (2009). Building adult foster care: What states can do. Washington, DC.: American Association of Retired Persons Public Policy Institute. Retrieved from http://assets.aarp.org/rgcenter/ppi/ltc/ 2009_13_building_adult_foster_care.pdf
19. National Association of Social Workers. (1999). Code of ethics. Retrieved from http://www.naswdc.org/pubs/code/code.asp
20. National Hospice and Palliative Care Organization. (2009). NHPCO facts and figures: Hospice care in America Retrieved from http://www.nhpco. org/files/public/Statistics_Research/NHPCO_facts_and_figures.pdf
21. Oliver, D. P., Porock, D., & Zweig, S. (2004). End-of-life care in U.S. nursing homes: A review of the evidence. Journal of the American Medical Directors Association, 5, 147-155.
22. Parker Oliver, D., Washington, K. T., Wittenberg-Lyles, E. M., Demiris, G., & Porock, D. (2009). "They're part of the team": Participant evaluation of the ACTIVE intervention. Palliative Medicine, 23, 549-555.
23. Prosper, V. (2006). Adult foster care and adult family care. In B. Berkman (Ed.), Handbook of social work in health and aging (pp. 685-692). New York, NY: Oxford University Press.
24. Revised Code of Washington Chapter 70.245. The Washington death with dignity act. Retrieved from http://apps.leg.wa.gov/RCW/default.aspx?cite=70.245
25. Ryan, A. A., & Scullion, N. F. (2000). Nursing home placement: An exploration of the experiences of family carers. Journal of Advanced Nursing, 32, 1187-1195.
26. Teno, J. M., Clarridge, B. R., Casey, V., Welch, L. C., Wetle, T., Shield, R., & Mor, V. (2004). Family perspectives on end-of-life care at the last place of care. Journal of the American Medical Association, 291(1), 88-93.
27. Medicare Conditions of Participation for Hospice Care 42CFR418 (2008). Washington Administrative Code Section 388-76-10000. Adult family homes. Definitions. Retrieved from http://apps.leg.wa.gov/wac/default.aspx?cite=388-76-10000
28. Washington Administrative Code Section 388-76-10020. Adult family homes. License-Ability to provide care and services. Retrieved from http://apps.leg.wa.gov/wac/default.aspx?cite=388-76-10020
29. Washington Administrative Code Section 388-76-10135. Adult family homes. Qualifications-caregiver. Retrieved from http://apps.leg.wa.gov/wac/default. aspx?cite=388-76-10135
30. Zimmerman, S., Munn, J., & Koenig, T. (2006). Assisted living settings. In B. Berkman (Ed.), Handbook of social work in health and aging (pp. 677-684). New York, NY: Oxford University Press.