Patients' and surrogates' decision-making characteristics: Withdrawing, withholding, and continuing life-sustaining treatments

Journal of Hospice and Palliative Nursing

Volumn 13, Issue 1, 2011, Pages 16-28

  Melhado, Lolita W ^a   Byers, Jacqueline Fowler ^a  

^a UNIVERSITY OF CENTRAL FLORIDA   (United States)

Author keywords

advance planning; end of life decision making and communication; medical futility; withdrawing or withholding life sustaining treatment

Indexed keywords

EID: 78651445339     PISSN: 15222179     EISSN: 15390705     Source Type: Journal    
DOI: 10.1097/NJH.0b013e3182018f09     Document Type: Article

References (41)

1. Institute of Medicine. Retooling for an Aging America: Building the Health Care Workforce. Washington, DC: The National Academies Press; 2008.
2. Lunney JR, Lynn J, Hogan C. Profiles of olderMedicare decedents. J Am Geriatr Soc. 2002;50:1108-1112.
3. Spillman BC, Lubitz J. The effects of longevity on spending for acute and long term are. NEJM. 2000;342(19):1409-1415.
4. Beckstrand RL, Callister LC, Kirchhoff KT. Providing a "good death": critical care nurses' suggestions for improving end-oflife care. Am J of Crit Care. 2006;15(1):38-46.
5. Detering KM, Hancock AD, Reade MC, et al. The impact of advance care planning on end of life care in elderly patients: randomized controlled trial. BMJ. 2010;340:1-9.
6. Hebert RS, Schulz R, Copeland V, et al. What questions do family caregivers want to discuss with health care providers in order to prepare for the death of a loved one? An ethnographic study of caregivers of patients at end of life. J Palliat Med. 2008; 11(3):476-483.
7. Simon-Lorda P, Barrio-Cantalejo IM, Garcia-Gutierrez JF, et al. Interventions for promoting the use of advance directives for end-of-life decisions in adults (protocol). Cochrane Database Syst Rev. 2008;4:1-13.
8. American Academy of Nursing Task Force on End-of-Life Conversations. Policy brief: advance care planning as an urgent public health concern. 2010. http://www.aannet.org/ files/public/AAN-Policy-Brief-Advance-Care-Planning.pdf. Accessed July 16, 2010.
9. Satcher D, Pamies RJ. Multicultural Medicine and Health Disparities. New York: McGraw-Hill Companies Inc; 2006.
10. Boissy AR, Ford PJ, Edgell RC, et al. Ethics consultations in stroke and neurological disease: a 7-year retrospective review. Neurocrit Care Soc. 2008;9:394-399.
11. Wiegand DL. Withdrawal of life-sustaining therapy after sudden, unexpected life-threatening illness or injury: interactions between patients' families, healthcare providers, and the healthcare system. J Am Crit Care. 2006;15(2):178-187.
12. Belkin GS. Brain death and historical understanding of bioethics. J Hist Med Allied Sci. 2003;58(3):325-361.
13. SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients: the Study to Understand Prognoses and P for Outcomes and Risks of Treatments (SUPPORT). JAMA. 1995;274(20):1591-1598.
14. Atkinson S, Bihari D, Smithies M, et al. Identification of futility in intensive care. Lancet. 1994;344(8931):1203-1206.
15. Happ MB, Swigart VA, Tate JA, et al. Patient involvement in health-related decisions during prolonged critical illness. Res Nurs Health. 2007;30(4):361-372.
16. Rodriguez KL, Young AJ. Perceptions of patients on the utility or futility of end-of-life treatment. J Med Ethics. 2006;32(8): 444-449.
17. Downey L, Engleberg RA, Shannon SE, et al. Measuring intensive care nurses' perspectives on family-centered end-of-life care: evaluation of 3 questionnaires. J Am Crit Care. 2006;15(6): 568-579.
18. Gruenberg DA, Shelton W, Rose SL, et al. Factors influencing length of stay in the intensive care unit. J Am Crit Care. 2006; 15:502-509.
19. Lee KF. Postoperative futile care: stopping the train when the family says "keep going." Thorac Surg Clin. 2005;15:481-491.
20. HenigNR, Faul JL, Raffin TA. Biomedical ethics and thewithdrawal of advanced life support. Annu Rev Med. 2001;52:79-92.
21. Sibbald R, Downar J, Hawryluck L. Perceptions of "futile care" among caregivers in intensive care units. CMAJ Can Med Assoc J. 2007;177(10):1201-1208.
22. KasmanDL.When ismedical treatment futile?A guide for students, residents, and physicians. J Gen Intern Med. 2004;19:1053-1056.
23. Abbott KH, Sago JG, Breen CM, et al. Families looking back: one year after discussion of withdrawal or withholding of lifesustaining support. Crit Care Med. 2001;29(1):197-201.
24. Bratcher JR. How do critical care nurses define a "good death" in the intensive care unit? Crit Care Nurs Quart. 2010;33(1):87-99.
25. Covinsky KE, Landefeld CS, Teno J, et al. Is economic hardship on the families of the seriously ill associatedwith patient and surrogate care preference? Arch Intern Med. 1996;156(15):1737-1741.
26. Covinsky KE, Fuller JD, Yaffe K, et al. Communication and decision making in seriously ill patients: findings of the SUPPORT project. J Am Geriatr Soc. 2000;48(5):187-193.
27. DiringerMN, EdwardsDF, Aiyagari V, et al. Factors associated with withdrawal ofmechanical ventilation in a neurology/neurosurgery intensive care unit. Crit Care Med. 2001;29(9):1792-1797.
28. Gerstel E, Engelberg RA, Koepsell T, et al. Duration of withdrawal of life support in the intensive care unit and associationwith family satisfaction. Am J Respir Crit Care Med. 2008;178(8):798-804.
29. Gries CJ, Curtis JR, Wall RJ, et al. Family member satisfaction with end-of-life decision-making in the intensive care unit. Chest. 2008;133(3):704-712.
30. Keenan SP, Mawdsley C, Plotkin D, et al. Withdrawal of life support: how the family feels, and why. J Palliat Care. 2000;16 suppl:S40-S44.
31. Lautrette A, Darmon M, Megarbane B, et al. A communication strategy and brochure for relatives of patients dying in the ICU. NEJM. 2007;356:469-478.
32. Larouchelle MR, Rodriguez KL, Arnold RM, et al. Hospital staff attributions of the causes of physician variation in end-of-life treatment intensity. Palliat Med. 2009;23:460-470.
33. Limerick MH. The process used by surrogate decision makers to withhold and withdraw life-sustaining measures in an intensive care environment. Oncol Nurs Forum. 2007;34(2):331-339.
34. Rivera S, Kim D, Garone S, et al. Motivating factors in futile clinical interventions. Chest. 2001;119(6):1944-1947.
35. Swigart V, Lidz C, Butterworth V, et al. Letting go: family willingness to forgo life support. Heart Lung. 1996;25(6):483-494.
36. Tilden VP, Tolle SW, Nelson CA, et al. Family decision-making to withdraw life-sustaining treatments from hospitalized patients. Nurs Res. 2001;50(2):105-115.
37. Vig EK, Taylor JS, Starks H, et al. Beyond substitute judgment: how surrogates navigate end-of-life decision-making. J Am Geriatr. 2006;54:1688-1693.
38. Heyland DK, Rocke GM, O'Callaghan CJ, et al. Dying in the ICU: perspectives of family members. Chest. 2003;124:392-397.
39. White DB, Braddock CH, Bereknyei S, et al. Toward shared decision making at the end of life in intensive care units. Arch Intern Med. 2007;167:461-467.
40. Hudson PL, Remedios C, Thomas K. A systematic review of psychosocial interventions for family carers of palliative care patients. BMC Palliat Care. 2010;9:17.
41. Morrison RS, Meier DE. Palliative care. NEJM. 2004;350(25): 2582-2590.