Prospective evaluation of legal difficulties and quality of life in adult survivors of childhood cancer

Pediatric Blood and Cancer

Volumn 56, Issue 3, 2011, Pages 439-443

  Olson, Robert ^a,b   Hung, Gabe ^a   Bobinski, Mary Anne ^a   Goddard, Karen ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b HARVARD SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

Brain tumors; Legal difficulties; Pediatric cancer; Quality of life; Survivors; Workplace discrimination

Indexed keywords

ADULT; ARTICLE; CANCER SURVIVOR; CENTRAL NERVOUS SYSTEM TUMOR; CHILD; CHILDHOOD CANCER; CLINICAL EVALUATION; CONTROLLED STUDY; EMPLOYMENT DISCRIMINATION; FEMALE; GENERAL PRACTITIONER; HEALTH SURVEY; HUMAN; LEGAL ASPECT; LEGAL DIFFICULTY; LEUKEMIA; LYMPHOMA; MAJOR CLINICAL STUDY; MALE; PATIENT INFORMATION; PRESCHOOL CHILD; PREVALENCE; PRIORITY JOURNAL; QUALITY OF LIFE; SARCOMA; SCHOOL CHILD;

ADULT; CHILD; CHILD, PRESCHOOL; EDUCATIONAL STATUS; EMPLOYMENT; FEMALE; HEALTH SURVEYS; HUMANS; INSURANCE COVERAGE; MALE; NEOPLASMS; PROSPECTIVE STUDIES; QUALITY OF LIFE; SOCIAL PROBLEMS; SURVIVORS;

EID: 78651070208     PISSN: 15455009     EISSN: 15455017     Source Type: Journal    
DOI: 10.1002/pbc.22777     Document Type: Article

References (30)

1. Smith M, Hare ML. An overview of progress in childhood cancer survival. J Pediatr Oncol Nurs 2004; 21: 160-164.
2. Wallace H, Green D, editors. Late effects of childhood cancer. London: Hodder Arnold; 2004. p. 416.
3. Bhatia S, Landier W. Evaluating survivors of pediatric cancer. Cancer J 2005; 11: 340-354.
4. Bhatia S, Meadows AT. Long-term follow-up of childhood cancer survivors: Future directions for clinical care and research. Pediatr Blood Cancer 2006; 46: 143-148.
5. Geenen MM, CardousUbbink MC, Kremer LCM, et al. Medical assessment of adverse health outcomes in long-term survivors of childhood cancer. JAMA 2007; 297: 2705-2715.
6. Maunsell E, Pogany L, Barrera M, et al. Quality of life among long-term adolescent and adult survivors of childhood cancer. J Clin Oncol 2006; 24: 2527-2535.
7. Alvarez JA, Scully RE, Miller TL, et al. Long-term effects of treatments for childhood cancers. Curr Opin Pediatr 2007; 19: 23-31.
8. Ness KK, Gurney JG, Zeltzer LK, et al. The impact of limitations in physical, executive, and emotional function on health-related quality of life among adult survivors of childhood cancer: A report from the childhood cancer survivor study. Arch Phys Med Rehabil 2008; 89: 128-136.
9. Anderson DM, Rennie KM, Ziegler RS, et al. Medical and neurocognitive late effects among survivors of childhood central nervous system tumors. Cancer 2001; 92: 2709-2719.
10. Blaauwbroek R, Groenier KH, Kamps WA, et al. Late effects in adult survivors of childhood cancer: The need for life-long follow-up. Ann Oncol 2007; 18: 1898-1902.
11. Barrera M, Shaw AK, Speechley KN, et al. Educational and social late effects of childhood cancer and related clinical, personal, and familial characteristics. Cancer 2005; 104: 1751-1760.
12. Monaco GP, Fiduccia D, Smith G. Legal and societal issues facing survivors of childhood cancer. Pediatr Clin North Am 1997; 44: 1043-1058.
13. Crom DB, Lensing SY, Rai SN, et al. Marriage, employment, and health insurance in adult survivors of childhood cancer. J Cancer Surviv 2007; 1: 237-245.
14. Hoffman B. Employment discrimination: Another hurdle for cancer survivors. Cancer Invest 1991; 9: 589-595.
15. Ehrmann-Feldmann D, Spitzer WO, Del Greco L, et al. Perceived discrimination against cured cancer patients in the work force. Can Med Assoc J 1987; 136: 719-723.
16. Cella DF, Tulsky DS, Gray G, et al. The functional assessment of cancer therapy scale: Development and validation of the general measure. J Clin Oncol 1993; 11: 570-579.
17. Weitzner M, Meyers C, Gelke C, et al. The functional assessment of cancer therapy (FACT) scale. Development of a brain subscale and revalidation of the general version (FACT-G) in patients with primary brain tumors. Cancer 1995; 75: 1151-1161.
18. Olson RA, Iverson G, Parkinson M, et al. Investigation of cognitive screening measures in patients with brain tumors: Diagnostic accuracy and correlation with quality of life. J Clin Oncol (Meet Abstr) 2009; 27: e13000.
19. Landier W, Wallace WH, Hudson MM. Long-term follow-up of pediatric cancer survivors: Education, surveillance, and screening. Pediatr Blood Cancer 2006; 46: 149-158.
20. Oeffinger KC, Mertens AC, Sklar CA, et al. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 2006; 355: 1572-1582.
21. Trotti A, Colevas AD, Setser A, et al. CTCAE v3.0: Development of a comprehensive grading system for the adverse effects of cancer treatment. Semin Radiat Oncol 2003; 13: 176-181.
22. Cepeda MS, Boston R, Farrar JT, et al. Comparison of logistic regression versus propensity score when the number of events is low and there are multiple confounders. Am J Epidemiol 2003; 158: 280-287.
23. Maunsell E, Drolet M, Brisson J, et al. Work situation after breast cancer: Results from a population-based study. J Natl Cancer Inst 2004; 96: 1813-1822.
24. Rothstein MA, Kennedy K, Ritchie KJ, et al. Are cancer patients subject to employment discrimination? Oncology (Williston) 1995; 9: 1303-1306.
25. Glauser TA, Packer RJ. Cognitive deficits in long-term survivors of childhood brain tumors. Childs Nerv Syst 1991; 7: 2-12.
26. Roman DD, Sperduto PW. Neuropsychological effects of cranial radiation: Current knowledge and future directions. Int J Radiat Oncol Biol Phys 1995; 31: 983-998.
27. Evans AS. Causation and disease: The Henle-Koch postulates revisited. Yale J Biol Med 1976; 49: 175-195.
28. Olson R, Parkinson M, McKenzie M. Selection bias introduced by neuropsychological assessments. Can J Neurol Sci 2010; 37: 264-268.
29. Landier W, Bhatia S, Eshelman DA, et al. Development of risk-based guidelines for pediatric cancer survivors: The Children's Oncology Group long-term follow-up guidelines from the Children's Oncology Group late effects committee and nursing discipline. J Clin Oncol 2004; 22: 4979-4990.
30. Ness KK, Leisenring W, Goodman P, et al. Assessment of selection bias in clinic-based populations of childhood cancer survivors: A report from the childhood cancer survivor study. Pediatr Blood Cancer 2009; 52: 379-386.