Inclusion of caregiver supports and services in home-and community-based service programs: Recent reports from state units on aging

Journal of Aging and Social Policy

Volumn 23, Issue 1, 2011, Pages 19-33

  Castora Binkley, Melissa ^a   Noelker, Linda S ^a   Ejaz, Farida K ^a   Rose, Miriam ^a  

^a Benjamin Rose Institute   (United States)

Author keywords

Aging Strategic Alignment Project; Caregiver services; Home and community based services; Informal caregiver; Rebalancing

Indexed keywords

ELDERLY CARE; HEALTH CARE; HEALTH POLICY; HEALTH SERVICES; HEALTH WORKER; SERVICE PROVISION; SOCIAL POLICY;

AGED; ATTITUDE TO HEALTH; CAREGIVER; ELDERLY CARE; FRAIL ELDERLY; HEALTH CARE PLANNING; HEALTH SERVICES RESEARCH; HOME CARE; HUMAN; ORGANIZATION AND MANAGEMENT; OUTCOME ASSESSMENT; QUALITY OF LIFE; REVIEW; SOCIAL SUPPORT; UNITED STATES;

AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; CAREGIVERS; FRAIL ELDERLY; HEALTH SERVICES FOR THE AGED; HOME NURSING; HUMANS; ORGANIZATIONAL CASE STUDIES; OUTCOME ASSESSMENT (HEALTH CARE); QUALITY OF LIFE; SOCIAL SUPPORT; STATE HEALTH PLANS; UNITED STATES;

EID: 78650792461     PISSN: 08959420     EISSN: 15450821     Source Type: Journal    
DOI: 10.1080/08959420.2011.532001     Document Type: Review

References (33)

1. Administration on Aging. (2009). National Family Caregiver Support Program (OAA Title IIIE). Retrieved October 14, 2009, from http://www.aoa.gov/AoARoot/AoA_Programs/HCLTC/Caregiver/index.aspx
2. Brazil, K., Bedard, M., Krueger, P., Abernathy, T., Lohfeld, L., & Willison, K. (2005). Service preferences among family caregivers of the terminally ill. Journal of Palliative Medicine, 8(1), 69-78.
3. Burgio, L. D., Collins, I. B., Schmid, B., Wharton, T., McCallum, D., & DeCoster, J. (2009). Translating the REACH caregiver intervention for use by Area Agency on Aging personnel: The REACH OUT Program. The Gerontologist, 49(1), 103-116.
4. Carlson, B. L., Foster, L., Dale, S. B., & Brown, R. (2007). Effects of Cash and Counseling on personal care and well-being. Health Services Research, 42(1P2), 467-487.
5. Casado, B. L. (2008). Sense of need for financial support and respite services among informal caregivers of older Americans. Journal of Human Behavior in the Social Environment, 18(3), 269-287.
6. Cash & Counseling. (2007). C & C FAQ. Retrieved March 26, 2010, from http://www.cashandcounseling.org/about/FAQ.
7. Dellasega, C. (1991). Caregiving stress among community caregivers for the elderly: Does institutionalization make a difference? Journal of Community Health Nursing, 8(4), 197.
8. Department of Health and Human Services. (2002). Delivering on the promise: Report of federal agencies' actions to eliminate barriers and promote community living. Retrieved October 16, 2009, from http://www.hhs.gov/news/ press/2002pres/20020325.html.
9. Department of Health and Human Services, Office on Disability. (2010). Caregiving initiative: Fact sheet. Retrieved on February 25, 2010, from http://www.hhs. gov/od/about/fact_sheets/fs4_caregiving.html.
10. Doty, P. (2004). Consumer directed home care: Effects on family caregivers. San Francisco, CA: Family Caregiver Alliance.
11. Family Caregiver Alliance. (2009). Federal and state family caregiving legislation: Trends in 2007-2008. San Francisco, CA: Family Caregiver Alliance.
12. Feinberg, L. F., & Newman, S. L. (2005). Medicaid and family caregiving: Services, supports and strategies among aged/disabled HCBS waiver programs in the U.S. New York: Rutgers Center for State Health Policy.
13. Feinberg, L. F., Newman, S., & Fox-Grage, W. (2005). Family caregiver support services: Sustaining unpaid family and friends in a time of public fiscal restraint. Washington, DC: AARP Public Policy Institute and National Center on Caregiving at the Family Caregiver Alliance.
14. Foster, L., Brown, R., Phillips, B., & Carlson, B. L. (2003). Easing the burden of caregiving: The impact of consumer direction on primary informal caregivers in Arkansas: Executive summary. Princeton, NJ: Mathematica Policy Research, Inc.
15. Foster, L., Brown, R., Phillips, B., & Carlson, B. L. (2005). How Cash and Counseling affects informal caregivers: Findings from Arkansas, Florida, and New Jersey. Washington, DC: U.S. Department of Health and Human Services; Princeton, NJ: Mathematica Policy Research, Inc.
16. Giovannetti, E. R., Wolff, J. L., Frick, K. D., & Boult, C. (2009). Construct validity of the work productivity and activity impairment questionnaire across informal caregivers of chronically ill older patients. Value in Health, 12(6), 1011-1017.
17. Houser, A., & Gibson, M. J. (2008). Valuing the invaluable: The economic value of family caregiving, 2008 update. AARP Public Policy Institute: Washington, DC.
18. H.R. 1105, 111 Cong. (2009). Making omnibus appropriations for the fiscal year ending September 30, 2009, and for other purposes.
19. Korn, L., Logsdon, R. G., Polissar, N. L., Gomez-Beloz, A., Waters, T., & Ryser, R. (2009). A randomized trial of a CAM therapy for stress reduction in American Indian and Alaskan Native family caregivers. The Gerontologist, 49(3), 368-377.
20. McFall, S. & Miller, B. H. (1992). Caregiver burden and nursing home admission of frail elderly persons. The Journal of Gerontology, 47(2), S73-S79.
21. Miller, E. A., Allen, S. A., & Mor, V. (2009). Commentary: Navigating the labyrinth of long-term care: Shoring up informal caregiving in a home-and communitybased world. Journal of Aging & Social Policy, 21, 1-16.
22. Mittelman, M. S., Haley, W. E., Clay, O. J., & Roth, D. L. (2006). Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology, 67, 1592-1599.
23. Mollica, R., & Reinhard, S. (2005). Establishing "nursing home level of care:" How states vary. Community Living Exchange, Issue Brief. New York: Rutgers Center for State Health Policy.
24. Moscovice, I., Davidson, G., & McCaffrey, D. (1988). Substitution of formal and informal care for the community-based elderly. Medical Care, 26(10), 971-981.
25. Muramatsu, N., Yin, H., Campbell, R. T., Hoyem, R. L., Jacob, M. A., & Ross, C. O. (2007). Risk of nursing home admission among older Americans: Does states' spending on home-and community-based services matter? Journal of Gerontology: Social Sciences, 62B(3), S169-S178.
26. National Alliance for Caregiving & AARP. (2009). Caregiving in the U.S. 2009. Retrieved February 25, 2010, from http://www.caregiving.org/data/Caregiving_ in_the_US_2009_full_report.pdf
27. National Association of State Units on Aging. (2009). Economic crisis and its impact on state aging programs: Results of All-State Survey. Washington, DC: Author.
28. Simon-Rusinowitz, L., Mahoney, K. J., Loughlin, D. M., & Sadler, M. D. (2005). Paying family caregivers: An effective policy option in the Arkansas Cash and Counseling demonstration and evaluation. Marriage & Family Review, 37(1/2), 83-105.
29. Whitlatch, C. J., & Feinberg., L. F. (2007). Family care and decision making. In C. Cox (Ed.), Dementia and social work practice (p. 144). New York: Springer Publishing Co.
30. Winslow, B. W. (2003). Family caregivers' experiences with community services: A qualitative analysis. Public Health Nursing, 20(5), 341-348.
31. Wolff, J. L., Rand-Giovannetti, E., Palmer, S., Wegener, S., Reider, L., Frey, K., et al. (2009). Caregiving and chronic care: The guided care program for families and friends. Journals of Gerontology Series A: Biological Sciences & Medical Sciences, 64A(7), 785-791.
32. Yaffe, K., Fox, P., Newcomer, R., Sands, L., Lindquist, K., Dane, K., et al. (2002). Patient and caregiver characteristics and nursing home placement in patients with dementia. The Journal of the American Medical Association, 287(16), 2090-2097.
33. Zarit, S. H., Gaugler, J. E., & Jarrott, S. E. (1999). Useful services for families: Research findings and directions. International Journal of Geriatric Psychiatry, 14, 165-181.