Advance care planning for cancer patients in primary care: A feasibility study

British Journal of General Practice

Volumn 60, Issue 581, 2010, Pages

  Boyd, Kirsty ^b   Mason, Bruce ^b   Kendall, Marilyn ^a   Barclay, Stephen ^d   Chinn, David ^e   Thomas, Keri ^f   Sheikh, Aziz ^b   Murray, Scott A ^c  

^a Primary Palliative Care Research Group   (United Kingdom)

^b Department of Primary Care Research and Development ^*

^c UNIVERSITY OF EDINBURGH   (United Kingdom)

^d UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^e Lynebank Hospital   (United Kingdom)

^f UNIVERSITY OF BIRMINGHAM   (United Kingdom)

Author keywords

Advance care planning; Cancer; Palliative care; Primary health care

Indexed keywords

ARTICLE; CANCER PATIENT; CONTINUING EDUCATION; EVALUATION; FEASIBILITY STUDY; GENERAL PRACTITIONER; HEALTH CARE DELIVERY; HEALTH CARE POLICY; HUMAN; KNOWLEDGE; NEOPLASM; NORMAL HUMAN; NURSE; PALLIATIVE THERAPY; PATIENT CARE; PRIMARY HEALTH CARE; PRIMARY MEDICAL CARE; SKILL; TERMINAL CARE; UNITED KINGDOM;

ADVANCE CARE PLANNING; ATTITUDE OF HEALTH PERSONNEL; FEASIBILITY STUDIES; GENERAL PRACTICE; HUMANS; TERMINAL CARE;

EID: 78650550528     PISSN: 09601643     EISSN: None     Source Type: Journal    
DOI: 10.3399/bjgp10X544032     Document Type: Article

References (35)

1. Fried TR, Drickamer M. Garnering support for advance care planning. JAMA 2010; 303(3): 269-270.
2. Perkins H. Controlling death: the false promise of advance directives. Ann Intern Med 2007; 147(1): 51-57. (Pubitemid 351688342)
3. Kass-Bartelmes BL, Hughes R, Rutherford MK. Advance care planning: preferences for care at the end of life. Research in action Issue 12. AHRQ Publications 03-0018. Rockville (MD): Agency for Healthcare Research and Quality, 2003. http://www.ahrq.gov/research/endliferia/endria.pdf (accessed 1 Sep 2010).
4. Department of Health, NHS national end of life care programme. http://www.endoflifecareforadults.nhs.uk/eolc/ (accessed 1 Sep 2010).
5. Gundersen Lutheran Medical Foundation, Wisconsin. Respecting Choices®: an advance care planning system that works. http://www. respectingchoices.org/ (accessed 1 Sep 2010).
6. Austin Health, Melbourne, Australia. Respecting patient choices: advance care planning. http://www.respectingpatientchoices.org.au/ (accessed 1 Sep 2010).
7. The Scottish Government. Living and dying well -a national action plan for palliative and end of life care. Edinburgh: The Scottish Government Health Department, 2008. http://www.scotland.gov.uk/Topics/Health/NHSScotland/ LivingandDyingWell (accessed 1 Sep 2010).
8. Department of Health. Advance care planning: a guide for health and social care staff. London: Department of Health, 2008, http://www. endoflifecareforadults.nhs.uk/publications/pubacpguide (accessed 29 Oct 2010).
9. PPC National Review Group. Preferred priorities for care: version 2. London: Department of Health, 2007. http://www.endoflifecareforadults.nhs.uk/ tools/coretools/preferredprioritiesforcare (accessed 29 Oct 2010).
10. Royal College of Physicians. Advance care planning: concise evidence based guidelines. London: Royal College of Physicians, 2008.
11. Royal College of General Practitioners. End of life strategy document, 2009. London: Royal College of General Practitioners, 2009. http://www.rcgp.org. uk/pdt/CIRC-RCGP%20End%20of%20Life%2 0Care%20Strategy%20Document.pdf (accessed 1 Sep 2010).
12. Hancock K, Clayton JM, Parker SM, et al. Discrepant perceptions about end of life communication: a systematic review. J Pain Symptom Manage 2006; 34(20): 190-200.
13. Parker SM, Clayton JM, Hancock K, et al. A systematic review of prognostic/end of life communication with adults in the advanced stages of a life limiting illness: patient/caregiver preferences for the content, style and timing of information. J Pain Symptom Manage 2007; 34(1): 81-93. (Pubitemid 46970885)
14. Wright AA, Zhang B, Ray A, et al. Associations between end of life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 2008; 300(14): 1665-1673.
15. Caplan GA, Meller A, Squires B, et al. Advance care planning and hospital in the nursing home. Age Ageing 2006; 35(6): 581-585. (Pubitemid 44614152)
16. Thompson-Hill J, Hookey C, Salt E, O'Neill T. The supportive care plan: a tool to improve communication in end of life care. Int J Palliat Nurs 2009; 15(5): 250-255.
17. Barnes K, Jones L, Tookman A, King M. Acceptability of an advance care planning interview schedule: a focus group study. Palliat Med 2007; 21(1): 23-28. (Pubitemid 47161278)
18. Munday D, Petrova M, Dale J. Exploring preferences for place of death with terminally ill patients: qualitative study of experiences of general practitioners and community nurses in England. BMJ 2009; 338: b2391.
19. Gold Standards Framework Scotland (GSFS). http://www.gsfs.scot.nhs.uk (accessed 1 September 2010).
20. National Gold Standards Framework Centre. Advance care planning. http://www.goldstandardsframewofk.nhs.uk/AdvanceCarePlanning/ (accessed 1 Sep 2010).
21. Clayton JM, Hancock KM, Butow PN, et al. Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers. Med J Aust 2007; 186(12 Suppl): S77-108. http://www.mja.com.au/public/issues/186-12-180607/da11246-fm.h tm1#0-i1092495 (accessed 1 Sep 2010).
22. The Scottish Government Health Improvement Team. Long term conditions collaborative: improving complex care. Edinburgh: The Scottish Government, 2009. http://www.scotland.gov.uk/Publications/2009/03/06140257/0 (accessed 1 Sep 2010).
23. Davison S, Simpson C. Hope and advance care planning in patients with end stage renal disease: qualitative interview study. BMJ 2006; 333(7574): 886-889. (Pubitemid 44683508)
24. Seymour J, Almack K, Kennedy S. Implementing advance care planning: a qualitative study of community nurses' views and experiences. BMC Palliat Care 2010; 9: 4. http://www.biomedcentral.eom/1472-684X/9/4 (accessed 1 Sep 2010).
25. Hancock K, Clayton M, Parker SM, et al. Truth-telling in discussing prognosis in advanced life-limiting illnesses: a systematic review. Palliat Med 2007; 21(6): 507-517. (Pubitemid 47616606)
26. Maguire P, Pitceathly C. Key communication skills and how to acquire them. BMJ 2002; 325(7366): 697-700.
27. Weiner JS, Cole SA. Three principles to improve clinician communication for advance care planning: overcoming emotional, cognitive and skill barriers. J Palliat Med 2004; 7(6): 817-829.
28. Keating NL, Landrum BM, Rogers SO, et al. Physician factors associated with discussions about end of life care. Cancer 2010: 116(4): 998-1006.
29. Schickedanz AD, Schillinger D, Landetefeld CS, et al. A clinical framework for improving the advance care planning process: start with patients' self-identified barriers. J Am Geriatr Soc 2008; 57(1): 31-39.
30. Association for Palliative Medicine. Position statement on advance care planning. APM Newsletter June 2009; 31: 3.
31. Kennedy S, Seymour J, Almack K, Cox K. Key stakeholders' experiences and views of the NHS End of Life Care Programme: findings from a national evaluation. Palliat Med 2009; 23(4): 283-294.
32. Innes S, Payne S. Advanced cancer patients' prognostic information preferences: a review. Palliat Med 2009; 23(1): 29-39.
33. Tulsky JA. Beyond advance directives: importance of communication skills at the end of life. JAMA 2005; 294(3): 359-365. (Pubitemid 41043780)
34. Murphy B. What has happened to clinical leadership in futile care discussions? Med J Aust 2008; 188(7): 418-119.
35. General Medical Council. Treatment and care towards the end of life: good practice in decision making GMC Guidelines in palliative care. London: General Medical Council, 2010.