Using the Extended Health Belief Model to understand siblings' perceptions of risk for hereditary hemochromatosis

Patient Education and Counseling

Volumn 82, Issue 1, 2011, Pages 36-41

  Bylund, Carma L ^a   Galvin, Kathleen M ^b   Dunet, Diane O ^c   Reyes, Michele ^c  

^a MEMORIAL SLOAN KETTERING CANCER CENTER   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

^c CENTERS FOR DISEASE CONTROL AND PREVENTION   (United States)

Author keywords

Family communication; Genetics; Health Belief Model; Hereditary Hemochromatosis; Risk perceptions

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO ILLNESS; CONCEPTUAL FRAMEWORK; CONTROLLED STUDY; DIAGNOSTIC TEST; DISEASE SEVERITY; FEMALE; GENETIC SUSCEPTIBILITY; HEALTH BELIEF MODEL; HEMOCHROMATOSIS; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; MEDICAL INFORMATION; PRIORITY JOURNAL; RISK ASSESSMENT; RISK FACTOR; SELF REPORT; SIBLING;

ADULT; FEMALE; GENETIC PREDISPOSITION TO DISEASE; GENETIC TESTING; HEALTH BEHAVIOR; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; PERCEPTION; QUESTIONNAIRES; RISK; SEVERITY OF ILLNESS INDEX; SIBLINGS;

EID: 78650513429     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2010.03.009     Document Type: Article

References (33)

1. Peterson S.K. The role of the family in genetic testing: theoretical perspectives, current knowledge, and future directions. Health Educ Behav 2005, 32:627-639.
2. Gaff C.L., Clarke A.J., Atkinson P., Sivell S., Elwyn G., Iredale R., et al. Process and outcome in communication of genetic information with families: a systematic review. Eur J Hum Genet 2007, 15:999-1011.
3. Galvin K.M., Grill L.H. Opening up the conversation on genetics in families: the space for communication scholars. Communication yearbook 33 2009, Taylor & Francis. C.S. Beck (Ed.).
4. Olney R.S., Yoon P.W. Role of family medical history information in pediatric primary care and public health: introduction. Pediatrics 2007, 120(Suppl. 2):S57-S59.
5. Imperatore G., Pinsky L.E., Motulsky A., Reyes M., Bradley L.A., Burke W. Hereditary hemochromatosis: perspectives of public health, medical genetics, and primary care. Genet Med: Off J Am College Med Genet 2004, 5:1-8.
6. Reyes M., Dunet D.O., Isenberg K.B., Trisolini M., Wagener D.K. Family-based detection for hereditary hemochromatosis. J Genet Couns 2008, 17:92-100.
7. Schmitt B., Golub R.M., Green R. Screening primary care patients for hereditary hemochromatosis with transferrin saturation and serum ferritin level: systematic review for the American College of Physicians. Ann Intern Med 2005, 143:522-536.
8. Claes E., Evers-Kiebooms G., Boogaerts A., Decruyenaere M., Denayer L., Legius E. Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients. Am J Med Genet A 2003, 116A:11-19.
9. Hughes C., Lerman C., Schwartz M., Peshkin B.N., Wenzel L., Narod S., et al. All in the family: evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results. Am J Med Genet 2002, 107:143-150.
10. Gaff C.L., Collins V., Symes T., Halliday J. Facilitating family communication about predictive genetic testing: probands' perceptions. J Genet Couns 2005, 14:133-140.
11. Koehly L.M., Peterson S.K., Watts B.G., Kempf K.K., Vernon S.W., Gritz E.R. A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning. Cancer Epidemiol Biomarkers Prev 2003, 12:304-313.
12. Gregory M., Boddington P., Dimond R., Atkinson P., Clarke A., Collins P. Communicating about haemophilia within the family: the importance of context and of experience. Haemophilia 2007, 13:189-198.
13. Etchegary H. Discovering the family history of Huntington disease (HD). J Genet Couns 2006, 15:105-117.
14. Forrest K., Simpson S.A., Wilson B.J., van Teijlingen E.R., McKee L., Haites N., et al. To tell or not to tell: barriers and facilitators in family communication about genetic risk. Clin Genet 2003, 64:317-326.
15. Daly M.B., Barsevick A., Miller S.M., Buckman R., Costalas J., Montgomery S., et al. Communicating genetic test results to the family: a six-step, skills-building strategy. Fam Community Health 2001, 24:13-26.
16. d'Agincourt-Canning L. Experiences of genetic risk: disclosure and the gendering of responsibility. Bioethics 2001, 15:231-247.
17. Rosenstock I.M. What research in motivation suggests for public health. Am J Public Health Nations Health 1960, 50:295-302.
18. Rosenstock I.M. Historical origins of the health belief model. The health belief model and personal health behavior 1974, Charles B. Stack, Thorofare, NJ. M.H. Becker (Ed.).
19. Maiman L.A., Becker M.H. The health belief model: origins and correlates in psychological theory. Health Educ Monogr 1974, 2:336-353.
20. Rosenstock I.M., Strecher V.J., Becker M.H. Social learning theory and the Health Belief Model. Health Educ Q 1988, 15:175-183.
21. Norman P., Brain K. An application of an extended health belief model to the prediction of breast self-examination among women with a family history of breast cancer. Br J Health Psychol 2005, 10(Pt 1):1-16.
22. Stein J.A., Fox S.A., Murata P.J., Morisky D.E. Mammography usage and the health belief model. Health Educ Q 1992, 19:447-462.
23. Yarbrough S.S., Braden C.J. Utility of health belief model as a guide for explaining or predicting breast cancer screening behaviours. J Adv Nurs 2001, 33:677-688.
24. Plowden K.O. Using the health belief model in understanding prostate cancer in African American men. ABNF J 1999, 10:4-8.
25. Nisselle A.E., Delatycki M.B., Collins V., Metcalfe S., Aitken M.A., du Sart D., et al. Implementation of HaemScreen, a workplace-based genetic screening program for hemochromatosis. Clinical Genetics 2004, 65:358-367.
26. Jacobs L.A. Health beliefs of first-degree relatives of individuals with colorectal cancer and participation in health maintenance visits: a population-based survey. Cancer Nurs 2002, 25:251-265.
27. Baxter L.A., Babbie E. The basics of communication research 2004, Wadsworth, Belmont, CA.
28. Lindolf T.R. Qualitative communication research methods 1995, Sage, Thousand Oaks, CA.
29. Austin L.T., Ahmad F., McNally M.J., Stewart D.E. Breast and cervical cancer screening in Hispanic women: a literature review using the health belief model. Womens Health Issues 2002, 12:122-128.
30. Becker M.H., Maiman L.A., Kirscht J.P., Haefner D.P., Drachman R.H. The Health Belief Model and prediction of dietary compliance: a field experiment. J Health Soc Behav 1977, 18:348-366.
31. Burak L.J., Meyer M. Using the Health Belief Model to examine and predict college women's cervical cancer screening beliefs and behavior. Health Care Women Int 1997, 18:251-262.
32. Janz N.K., Becker M.H. The health belief model: a decade later. Health Educ Behav 1984, 11:1-47.
33. Acton R.T., Barton J.C., Casebeer L., Talley L. Survey of physician knowledge about hemochromatosis. Genet Med 2002, 4:136-141.