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Volumn 29, Issue 4, 2010, Pages 477-493

Privacy, health insurance, and medical research: Tensions raised by European data protection law

Author keywords

biobanking; data protection; genetic information; insurance; medical research; privacy; solidarity

Indexed keywords

ARTICLE; DATA PROTECTION LAW; FUNDING; HEALTH CARE ACCESS; HEALTH CARE POLICY; HEALTH INSURANCE; HUMAN; INFORMATION PROCESSING; LAW; MEDICAL INFORMATION; MEDICAL RESEARCH; PRIORITY JOURNAL; PRIVACY;

EID: 78650426561     PISSN: 14636778     EISSN: 14699915     Source Type: Journal    
DOI: 10.1080/14636778.2010.528194     Document Type: Article
Times cited : (6)

References (21)
  • 1
    • 0002954773 scopus 로고    scopus 로고
    • Genetic privacy: Emerging concepts values
    • M.A. Rothstein, ed New Haven, CT: Yale University Press
    • Allen, A.L., 1997. Genetic privacy: emerging concepts values. In: M.A. Rothstein, ed. Genetic secrets: protecting privacy confidentiality in the genetic era. New Haven, CT: Yale University Press, 31-60.
    • (1997) Genetic Secrets: Protecting Privacy Confidentiality in the Genetic Era , pp. 31-60
    • Allen, A.L.1
  • 2
    • 34250376147 scopus 로고    scopus 로고
    • Should genetic information be disclosed to insurers?
    • Ashcroft, R., 2007. Should genetic information be disclosed to insurers? No. British Medical Journal, 334, 1197. (Pubitemid 46954581)
    • (2007) British Medical Journal , vol.334 , Issue.7605 , pp. 1196-1197
    • Holm, S.1    Ashcroft, R.2
  • 3
    • 85082445333 scopus 로고    scopus 로고
    • An overview of Directive 95/46/EC in relation to medical research
    • D. Beyleveld, et al., eds. Aldershot: Ashgate
    • Beyleveld, D., 2004a. An overview of Directive 95/46/EC in relation to medical research. In: D. Beyleveld, et al., eds. The Data Protection Directive medical research across Europe. Aldershot: Ashgate, 5-21.
    • (2004) The Data Protection Directive Medical Research Across Europe , pp. 5-21
    • Beyleveld, D.1
  • 4
    • 85082452612 scopus 로고    scopus 로고
    • The Duty to Provide Information to the Data Subject: Articles 10 11 of Directive 95/46/EC
    • D. Beyleveld, et al., eds. Aldershot: Ashgate
    • Beyleveld, D., 2004b. The duty to provide information to the data subject: Articles 10 11 of Directive 95/46/EC. In: D. Beyleveld, et al., eds. The Data Protection Directive medical research across Europe. Aldershot: Ashgate, 69-87.
    • (2004) The Data Protection Directive Medical Research Across Europe , pp. 69-87
    • Beyleveld, D.1
  • 7
    • 78650498753 scopus 로고    scopus 로고
    • Social values, science technology
    • European Commission [online] [Accessed 2 November 2010]
    • European Commission, 2005, Social values, science technology. Special Eurobarometer 225/Wave 63.1. [online].http://ec.europa.eu/public-opinion/ archives/ebs/ebs-225- report-en.pdf. [Accessed 2 November 2010].
    • (2005) Special Eurobarometer 225/Wave 63.1
  • 8
    • 47649086748 scopus 로고    scopus 로고
    • Europeans biotechnology in 2005: Patterns trends
    • [online] [Accessed 2 November 2010]
    • Gaskell, G., et al., 2006. Europeans biotechnology in 2005: patterns trends. Final report on Eurobarometer 64.3 [online]. Available from: http://ec.europa.eu/public-opinion/archives/ebs/ebs-244b-en.pdf [Accessed 2 November 2010].
    • (2006) Final Report on Eurobarometer 64.3
    • Gaskell, G.1
  • 11
    • 3543141747 scopus 로고    scopus 로고
    • Informed consent biobanks: A population-based survey of attitudes towards tissue donation for genetic research
    • Hoeyer, K., et al., 2004. Informed consent biobanks: a population-based survey of attitudes towards tissue donation for genetic research. Scandinavian Journal of Public Health, 32 (3), 224-229.
    • (2004) Scandinavian Journal of Public Health , vol.32 , Issue.3 , pp. 224-229
    • Hoeyer, K.1
  • 12
    • 34250376147 scopus 로고    scopus 로고
    • Should genetic information be disclosed to insurers?
    • Holm, S., 2007. Should genetic information be disclosed to insurers? Yes. British Medical Journal, 334, 1196. (Pubitemid 46954581)
    • (2007) British Medical Journal , vol.334 , Issue.7605 , pp. 1196-1197
    • Holm, S.1    Ashcroft, R.2
  • 14
    • 33846080089 scopus 로고    scopus 로고
    • Perceived genetic knowledge, attitudes towards genetic testing, and the relationship between these among patients with a chronic disease
    • DOI 10.1016/j.pec.2006.07.005, PII S0738399106002308
    • Morren, M., et al., 2007. Perceived genetic knowledge, attitudes towards genetic testing, the relationship between these among patients with a chronic disease. Patient Education Counseling, 65, 197-204. (Pubitemid 46073559)
    • (2007) Patient Education and Counseling , vol.65 , Issue.2 , pp. 197-204
    • Morren, M.1    Rijken, M.2    Baanders, A.N.3    Bensing, J.4
  • 16
    • 0037397542 scopus 로고    scopus 로고
    • Issues of consent and feedback in a genetic epidemiological study of women with breast cancer
    • DOI 10.1136/jme.29.2.93
    • Richards, M., et al., 2003. Issues of consent feedback in a genetic epidemiological study of women with breast cancer. Journal of Medical Ethics, 29, 93-96. (Pubitemid 36504104)
    • (2003) Journal of Medical Ethics , vol.29 , Issue.2 , pp. 93-96
    • Richards, M.P.M.1    Ponder, M.2    Pharoah, P.3    Everest, S.4    Mackay, J.5
  • 17
    • 33644831867 scopus 로고    scopus 로고
    • Not worth the paper it's written on? Informed consent and biobank research in a Norwegian context
    • DOI 10.1080/09581590500523319, PII Q64600568354
    • Skolbekken, J., et al., 2005. Not worth the paper its written on? Informed consent biobank research in a Norwegian context. Critical Public Health, 15 (4), 335-347. (Pubitemid 43354870)
    • (2005) Critical Public Health , vol.15 , Issue.4 , pp. 335-347
    • Skolbekken, J.-A.1    Ursin, L.O.2    Solberg, B.3    Christensen, E.4    Ytterhus, B.5
  • 18
    • 78650506705 scopus 로고    scopus 로고
    • Privacy interests in biobanking: A preliminary view on a European perspective
    • J. Kaye M. Stranger, eds. Farnham: Ashgate
    • Townend, D., et al., 2009. Privacy interests in biobanking: a preliminary view on a European perspective. In: J. Kaye M. Stranger, eds. Principles practice in biobank governance. Farnham: Ashgate, 137-159.
    • (2009) Principles Practice in Biobank Governance , pp. 137-159
    • Townend, D.1
  • 19
    • 0029855639 scopus 로고    scopus 로고
    • Informed consent in human experimentation before the Nuremberg code
    • Vollmann, J. Winau, R., 1996. Informed consent in human experimentation before the Nuremberg code. British Medical Journal, 313, 1445-1449. (Pubitemid 26408033)
    • (1996) British Medical Journal , vol.313 , Issue.7070 , pp. 1445-1449
    • Vollmann, J.1    Winau, R.2
  • 20
    • 78650479754 scopus 로고    scopus 로고
    • Patient professional responsibilities in genetic counseling
    • H.-M. Sass P. Schröder, eds. Münster: Lit-Verlag
    • Wertz, D., et al., 2003. Patient professional responsibilities in genetic counseling. In: H.-M. Sass P. Schröder, eds. Patienten-und Bürgerau fklärung über genetische Risikofaktoren. Münster: Lit-Verlag, 79-92.
    • (2003) Patienten-und Bürgerau Fklärung Über Genetische Risikofaktoren , pp. 79-92
    • Wertz, D.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.