Parental decision making regarding treatment of hypoplastic left heart syndrome

Advances in Neonatal Care

Volumn 10, Issue 6, 2010, Pages 316-322

  Ellinger, Marcia K ^a   Rempel, Gwen R ^b  

^a ALBERTA HEALTH SERVICES   (Canada)

^b UNIVERSITY OF ALBERTA   (Canada)

Author keywords

Decision making; Hypoplastic left heart syndrome; Norwood surgical approach; Parent; Qualitative research

Indexed keywords

ADULT; AORTA VALVE; ARTICLE; CHILD PARENT RELATION; DECISION MAKING; FEMALE; HEART VALVE REPLACEMENT; HUMAN; HYPOPLASTIC LEFT HEART SYNDROME; MALE; NEWBORN; PARENT; PERICARDIUM; PSYCHOLOGICAL ASPECT; PULMONARY ARTERY; QUESTIONNAIRE; TRANSPLANTATION;

ADULT; AORTIC VALVE; DECISION MAKING; FEMALE; HEART VALVE PROSTHESIS IMPLANTATION; HUMANS; HYPOPLASTIC LEFT HEART SYNDROME; INFANT, NEWBORN; MALE; PARENT-CHILD RELATIONS; PARENTS; PERICARDIUM; PULMONARY ARTERY; QUESTIONNAIRES; YOUNG ADULT;

EID: 78649925434     PISSN: 15360903     EISSN: None     Source Type: Journal    
DOI: 10.1097/ANC.0b013e3181fc7c5d     Document Type: Article

References (7)

1. Ferry PC. Neurologic squeal of open-heart surgery in children. An 'Irritating Question' Am J Dis Child.1990;144(3):369-373.
2. National Institutes of Health. Neurocognitive Changes Following Cardiac Surgery. Bethesda, MD: Cloister Mary Woodward Lasker Center; April 4-5, 2002.
3. Kon AA. Discussing nonsurgical care with parents of newborns with hypoplastic left heart syndrome. Neonatal Infant Nurs Rev. 2005;5(2):60-68.
4. Kon AA. Ethics of cardiac transplantation in hypoplastic left heart syndrome. Pediatr Cardiol. 2009;30(6):725-728.
5. Carter BS, Levetown M. Palliative Care for Infants, Children, and Adolescents. 2nd ed. Baltimore, MD: The Johns Hopkins University Press; 2010.
6. Leuthner S, Jones EL. Fetal concerns program: a model for perinatal palliative care. Am J Matern Child Nurs. 2007;32(5):272-278.
7. Keubelbeck A. Waiting With Gabriel: A Story of Cherishing a Baby's Brief Life. Chicago, IL: Loyola Press; 2003.