Beyond the 'embryo question': Human embryonic stem cell ethics in the context of biomaterial donation in the UK

Reproductive BioMedicine Online

Volumn 21, Issue 7, 2010, Pages 868-874

  Bahadur, G ^a   Morrison, M ^b   MacHin, L ^b  

^a NORTH MIDDLESEX UNIVERSITY HOSPITAL NHS TRUST   (United Kingdom)

^b UNIVERSITY OF YORK   (United Kingdom)

Author keywords

Embryo; Embryonic stem cells; Ethics; Legislation; Regulation

Indexed keywords

BIOMATERIAL;

BONE MARROW; EMBRYO (ANATOMY); EMBRYONAL TISSUE; EMBRYONIC STEM CELL; FETUS (ANATOMY); GAMETE; MEDICAL ETHICS; MORALITY; ORGAN DONOR; REVIEW; STEM CELL TRANSPLANTATION; UNITED KINGDOM;

EID: 78649684173     PISSN: 14726483     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.rbmo.2010.10.001     Document Type: Article

References (55)

1. L.C. Alencar, and E.M. Seidl Breast milk donation: women's donor experience Rev. Saude Publica 2009 70 77
2. F. Andersen, A. Glasier, J. Ross, and D.T. Baird Attitudes of women to foetal tissue research J. Med. Ethics 1994 36 40
3. R.E. Axler, R. Irvine, W. Lipworth, B. Morrell, and I.H. Kerridge Why might people donate tissue for cancer research? Insights from organ/tissue/blood donation and clinical research Pathobiology 2008 323 329
4. G. Bahadur, M. Iqbal, S. Malik, A. Sanyal, R. Wafa, and R. Noble Admixed human embryos and stem cells: legislative, ethical and scientific advances Reprod. Biomed. Online 2008 25 32
5. M. Barr 'I'm not really read up on genetics': biobanks and the social context of informed consent Biosocieties 2006 12
6. C.L. Bosk Professional ethicist available: logical, secular, friendly Daedalus 1999 47 68
7. H. Busby The meanings of consent to the donation of cord blood stem cells: perspectives from an interview-based study of a public cord blood bank in England Clin. Ethics 2010 1 6
8. H. Busby Biobanks, bioethics and concepts of donated blood in the UK Sociol. Health Illn. 2006 850 865
9. D. Callahan The puzzle of profound respect Hastings Cent. Rep. 1995 39 40
10. O. Corrigan Empty ethics: the problem with informed consent Sociol. Health Illn. 2003 768 792
11. N. Darlington, and P. Matson The fate of cryopreserved human embryos approaching their legal limit of storage within a West Australian in-vitro fertilisation clinic Hum. Reprod. 1994 2343 2344
12. G. Davies The sacred and the profane: biotechnology, rationality, and public debate Environ. Plan. A 2006 423 443
13. O. Decker, M. Winter, E. Brahler, and M. Beutel Between commodification and altruism: gender imbalance and attitudes towards organ donation. A representative survey of the German community J. Gend. Stud. 2008 251 255
14. C.V. Fernandez, K. Gordon, M. Van den Hof, S. Taweel, and F. Baylis Knowledge and attitudes of pregnant women with regard to collection, testing and banking of cord blood stem cells CMAJ 2003 695 698
15. S. Franklin, C. Hunt, and G. Cornwell HESCCO: development of good practice models for hES cell derivation Regen. Med. 2008 105 116
16. S. Franklin Making representations: the parliamentary debate on the Human Fertilisation and Embryology Act J.e.a. Edwards, Technologies of Procreation: Kinship in the Age of Assisted Conception 1999 Routledge London
17. G. Fuscaldo, S. Russell, and L. Gillam How to facilitate decisions about surplus embryos: patients' views Hum. Reprod. 2007 3129 3138
18. M.I. Goodson, and B.G. Vernon A study of public opinion on the use of tissue samples from living subjects for clinical research J. Clin. Pathol. 2004 4
19. E. Haimes, and K. Taylor Fresh embryo donation for human embryonic stem cell (hESC) research: the experiences and values of IVF couples asked to be embryo donors Hum. Reprod. 2009 2142 2150
20. S.H.E. Harmon Governing reproductive treatment and research: from the moral to the political to the legal and back again? Or 'there and back again, a regulator's (Hobbit's) Odyssey (holiday)' C. Lyall, T. Papaioannou, J. Smith, The Limits to Governance: The Challenge of Policy-Making for the New Life Sciences 2009 Ashgate Farnham 79 104
21. A.M. Hedgecoe Critical bioethics: beyond the social sciences critique of applied ethics Bioethics 2004 120 143
22. N. Hudson, L. Culley, F. Rapport, M. Johnson, and A. Bharadwaj 'Public' perceptions of gamete donation: a research review Public Understand. Sci. 2009 61 77
23. Human Fertilisation and Embryology Authority Hybrids and Chimeras: A Consultation on the Ethical and Social Implications of Creating Animal/Human Embryos in Research 2007 HFEA London
24. Human Fertilisation and Embryology Authority Donating Eggs for Research: Safeguarding Donors 2006 HFEA London
25. M.K. Hyde, and K.M. White Exploring donation decisions: beliefs and preferences for organ donation in Australia Death Stud. 2010 172 185
26. A. Irwin The politics of talk: coming to terms with the 'new' scientific governance Soc. Stud. Sci. 2006 299 320
27. M.H. Johnson The medical ethics of paid egg sharing in the UK Hum. Reprod. 1999 1912 1918
28. J.W. Joseph, A.B. Neidich, C. Ober, and L.F. Ross Empirical data about women's attitudes toward a biobank focused on pregnancy outcomes Am. J. Med. Genet. A 2008 305 311 (Pubitemid 351212829)
29. J. Kent, and N. Pfeffer Regulating the collection and use of foetal stem cells Br. Med. J. 2006 866 867
30. A. Kettis-Lindblad, L. Ring, E. Viberth, and M.G. Hansson Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Eur. J. Public Health 2006 433 440
31. M. Kirkman Egg and embryo donation and the meaning of motherhood Women Health 2003 1 18
32. G. Laurie, A. Bruce, and C. Lyall The roles of values and interests in the governance of the life sciences: learning lessons from the 'ethics +' approach of UK Biobank C. Lyall, T. Papaioannou, J. Smith, The Limits to Governance: The Challenge of Policy-Making for the New Life Sciences 2009 Ashgate Farnham 51 77
33. L. Levidow, and S. Carr How biotechnology regulation separates ethics from risk Outlook Agric. 1997 145 150
34. J. McHale Waste, ownership and bodily products Health Care Anal. 2000 123 135
35. C.A. McMahon, F. Gibson, G. Leslie, J. Cohen, C. Tenant, and D. Saunders Mothers conceiving through in vitro fertilization: siblings, setbacks, and embryo dilemmas after five years Reprod. Technol. 2001 131
36. N. Mocan, and E. Tekin The determinants of the willingness to donate an organ among young adults: evidence from the United States and the European Union Soc. Sci. Med. 2007 2527 2538
37. M. Mulkay The Embryo Research Debate: Science and the Politics of Reproduction 1997 University Press Cambridge
38. Office for Public Management, 2007. Stem Cell Public Dialogue: Desk Research. Final Report for BBSRC and MRC, July 2007. Office for Public Management, London.
39. S. Parry Stem cell scientists' discursive strategies for cognitive authority Sci. Cult. 2009 89 114
40. S. Parry (Re)constructing embryos in stem cell research: exploring the meaning of embryos for people involved in fertility treatments Soc. Sci. Med. 2006 2349 2359
41. S. Parry The politics of cloning: mapping the rhetorical convergence of embryos and stem cells in parliamentary debates New Genet. Soc. 2003 145 168
42. V.L. Peddie, M. Porter, C. Counsell, L. Caie, D. Pearson, and S. Bhattacharya 'Not taken in by media hype': how potential donors, recipients and members of the general public perceive stem cell research Hum. Reprod. 2009 1106 1113
43. N. Pfeffer How work reconfigures an 'unwanted' pregnancy into 'the right tool for the job' in stem cell research Sociol. Health Illn. 2009 98 111
44. N. Pfeffer What British women say matters to them about donating an aborted fetus to stem cell research: a focus group study Soc. Sci. Med. 2008 2544 2554
45. N. Pfeffer, and S. Laws 'It's only a blood test': what people know and think about venepuncture and blood Soc. Sci. Med. 2006 3011 3023
46. V. Provoost, G. Pennings, P. De Sutter, J. Gerris, A. Van de Velde, and M. Dhont Reflections by patients who undergo IVF on the use of their supernumerary embryos for science Reprod. Biomed. Online 2010 880 891
47. M.A. Sanner Exchanging spare parts or becoming a new person? People's attitudes toward receiving and donating organs Soc. Sci. Med. 2001 1491 1499
48. N. Scheper-Hughes The tyranny of the gift: sacrificial violence in living donor transplants Am. J. Transplant. 2007 507 511
49. M. Schweda, and S. Schicktanz Public ideas and values concerning the commercialization of organ donation in four European countries Soc. Sci. Med. 2009 1129 1136
50. R. Streiffer Informed consent and federal funding for stem cell research Hastings Cent. Rep. 2008 40 47
51. P.L. Taylor Retroactive ethics in rapidly developing scientific fields Cell Stem Cell 2009 479 482
52. R.M. Titmuss The Gift Relationship: From Human Blood to Social Policy 1970 Allen and Unwin London
53. R.M. Warwick, D. Fehily, S.A. Brubaker, T. Eastlund, Tissue and Blood Donation: An Essential Guide 2009 Wiley-Blackwell Chichester
54. M. Weed Discourse on embryo science and human cloning in the United States and Great Britain: 1984-2002 J. Law Med. Ethics 2005 802 810
55. B. Wynne Risk and environment as legitimatory discourses of technology: reflexivity inside out? Curr. Sociol. 2002 459 477