Factors influencing the health related quality of life in patients with systemic lupus erythematosus: Long-term results (2001-2005) of patients in the German Lupus Erythematosus Self-Help Organization (LULA Study)

Lupus

Volumn 19, Issue 14, 2010, Pages 1606-1613

  Tamayo, T ^a,b   Fischer Betz, R ^a   Beer, S ^a   Winkler Rohlfing, B ^c   Schneider, M ^a  

^a UNIVERSITY HOSPITAL DÜSSELDORF   (Germany)

^b HEINRICH HEINE UNIVERSITY   (Germany)

^c German Lupus Erythematosus Self Help Organization   (Germany)

Author keywords

longitudinal study; quality of life; SF 12; systemic lupus erythematosus

Indexed keywords

ANTIRHEUMATIC AGENT; AZATHIOPRINE; CYCLOPHOSPHAMIDE; CYCLOSPORIN A; GLUCOCORTICOID; HYDROXYCHLOROQUINE; METHOTREXATE; MYCOPHENOLIC ACID 2 MORPHOLINOETHYL ESTER;

ADOLESCENT; ADULT; AGED; ARTICLE; CHILD; COMORBIDITY; DISEASE ACTIVITY; DISEASE DURATION; FEMALE; HUMAN; LOW DRUG DOSE; MAJOR CLINICAL STUDY; MALE; MARRIAGE; MONOTHERAPY; PRIORITY JOURNAL; QUALITY OF LIFE; SCHOOL CHILD; SCORING SYSTEM; SOCIAL SUPPORT; STRUCTURED QUESTIONNAIRE; SYSTEMIC LUPUS ERYTHEMATOSUS;

ADOLESCENT; ADULT; AGED; CHILD; EDUCATIONAL STATUS; FEMALE; GERMANY; HUMANS; LONGITUDINAL STUDIES; LUPUS ERYTHEMATOSUS, SYSTEMIC; MALE; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; REGRESSION ANALYSIS; SOCIAL SUPPORT; TIME FACTORS; YOUNG ADULT;

EID: 78649651055     PISSN: 09612033     EISSN: None     Source Type: Journal    
DOI: 10.1177/0961203310377090     Document Type: Article

References (26)

1. Lawrence RC, Helmick CG, Arnett FC, et al. Estimates of the prevalence of arthritis and selected musculoskeletal disorders in the United States. Arthritis Rheum 1998 ; 41: 778-799.
2. Thumboo J., Strand V. Health-related quality of life in patients with systemic lupus erythematosus. Ann Acad Med Singapore 2007 ; 36: 115-122.
3. Fischer-Betz R., Wessel E., Richter J., Winkler-Rohlfing B., Willers R., Schneider M. [Lupus in Germany: analysis within the German lupus self-help organization (LULA)]. Z Rheumatol 2005 ; 64: 111-122.
4. Ware Jr JE, Sherbourne CD The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992 ; 30: 473-483.
5. Jenkinson C., Layte R. Development and testing of the UK SF-12 (short form health survey). J Health Serv Res Policy 1997 ; 2: 14-18.
6. McHorney CA, Ware Jr JE, Raczek AE The MOS 36-item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care 1993 ; 31: 247-263.
7. Gandek B., Ware JE, Aaronson NK, et al. Cross-validation of item selection and scoring for the SF-12 Health Survey in nine countries: results from the IQOLA project. J Clin Epidemiol 1998 ; 51: 1171-1178.
8. Bullinger M., Kirchberger I. Der SF-36 Fragebogen zum Gesundheitszustand. Handbuch für die deutschsprachige Fragebogenversion. Göttingen: Hogrefe, Verlag für Psychologie; 1998.
9. Spertus JA, Winder JA, Dewhurst TA, Deyo RA, Fihn SD Monitoring the quality of life in patients with coronary artery disease. Am J Cardiol 1994 ; 74: 1240-1244.
10. Karlson EW, Daltroy LH, Rivest C., et al. Validation of a Systemic Lupus Activity Questionnaire (SLAQ) for population studies. Lupus 2003 ; 12: 280-286.
11. Yazdany J., Yelin EH, Panopalis P., Trupin L., Julian L., Katz PP Validation of the systemic lupus erythematosus activity questionnaire in a large observational cohort. Arthritis Rheum 2008 ; 59: 136-143.
12. Barr SG, Zonana-Nacach A., Magder LS, Petri M. Patterns of disease activity in systemic lupus erythematosus. Arthritis Rheum 1999 ; 42: 2682-2688.
13. Rugiene R., Dadoniene J., Venalis A. [Adaptation of health-related quality of life (''SF-36'') questionnaire, its validation and assessment of performance for control group and patients with rheumatoid arthritis]. Medicina (Kaunas) 2005 ; 41: 232-239.
14. Zheng Y., Ye DQ, Pan HF, et al. Influence of social support on health-related quality of life in patients with systemic lupus erythematosus. Clin Rheumatol 2009 ; 28: 265-269.
15. Sanchez ML, McGwin Jr G., Durán S., et al. Factors predictive of overall health over the course of the disease in patients with systemic lupus erythematosus from the LUMINA cohort (LXII): use of the SF-6D. Clin Exp Rheumatol 2009 ; 27: 67-71.
16. Swaak AJ, Bronsveld W., Nieuwenhuys EJ, Nossent JC, Smeenk RJ Systemic lupus erythematosus - changing disease patterns in the disease course. Dutch experience with 110 patients studied prospectively. Rheumatol Int 1991 ; 10: 241-244.
17. Dobkin PL, Fortin PR, Joseph L., Esdaile JM, Danoff DS, Clarke AE Psychosocial contributors to mental and physical health in patients with systemic lupus erythematosus. Arthritis Care Res 1998 ; 11: 23-31.
18. Swaak AJ, van den Brink HG, Smeenk RJ, et al. Systemic lupus erythematosus. Disease outcome in patients with a disease duration of at least 10 years: second evaluation. Lupus 2001 ; 10: 51-58.
19. Bachen EA, Chesney MA, Criswell LA Prevalence of mood and anxiety disorders in women with systemic lupus erythematosus. Arthritis Rheum 2009 ; 61: 822-829.
20. Maurischat C., Ehlebracht-König I., Kühn A., Bullinger M. [Structural validity of the Short Form 36 (SF-36) in patients with rheumatic diseases]. Z Rheumatol 2005 ; 64: 255-264.
21. Mok CC, Ho LY, Cheung MY, Yu KL, To CH Effect of disease activity and damage on quality of life in patients with systemic lupus erythematosus: a 2-year prospective study. Scand J Rheumatol 2009 ; 38: 121-127.
22. Perkins AJ, Stump TE, Monahan PO, McHorney CA Assessment of differential item functioning for demographic comparisons in the MOS SF-36 health survey. Qual Life Res 2006 ; 15: 331-348.
23. Mau W., Listing J., Huscher D., Zeidler H., Zink A. Employment across chronic inflammatory rheumatic diseases and comparison with the general population. J Rheumatol 2005 ; 32: 721-728.
24. Bultink IE, Turkstra F., Dijkmans BA, Voskuyl AE High prevalence of unemployment in patients with systemic lupus erythematosus: association with organ damage and health-related quality of life. J Rheumatol 2008 ; 35: 1053-1057.
25. Yee CS, McElhone K., Teh LS, Gordon C. Assessment of disease activity and quality of life in systemic lupus erythematosus - New aspects. Best Pract Res Clin Rheumatol 2009 ; 23: 457-467.
26. Hurst NP, Ruta DA, Kind P. Comparison of the MOS short form-12 (SF-12) health status questionnaire with the SF-36 in patients with rheumatoid arthritis. Br J Rheumatol 1998 ; 37: 862-869.