Divergences of perspective between people with aphasia and their family caregivers

Aphasiology

Volumn 24, Issue 12, 2010, Pages 1559-1575

  Gillespie, Alex ^a   Murphy, Joan ^a   Place, Morag ^a  

^a UNIVERSITY OF STIRLING   (United Kingdom)

Author keywords

Aphasia; Disagreement; Family care; Identity; Misunderstanding; Role; UK

Indexed keywords

ADULT; APHASIA; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CLINICAL ARTICLE; DISABILITY; FAMILY; FEMALE; HUMAN; INDEPENDENCE; INTERPERSONAL COMMUNICATION; MALE; QUESTIONNAIRE; SHAME; UNITED KINGDOM;

EID: 78649480300     PISSN: 02687038     EISSN: 14645041     Source Type: Journal    
DOI: 10.1080/02687038.2010.500810     Document Type: Article

References (40)

1. Bar-Tal, Y., Barnoy, S., & Zisser, B. (2005). Whose informational needs are considered? A comparison between cancer patients and their spouses' perceptions of their own and their partners' knowledge and informational needs. Social Science & Medicine, 60, 1459-1465.
2. Bolger, N., Zuckerman, A., & Kessler, R. C. (2000). Invisible support and adjustment to stress. Journal of Personality and Social Psychology, 79, 953-961.
3. Booth, S., & Swabey, D. (1999). Group training in communication skills for carers of adults with aphasia. International Journal of Language & Communication Disorders, 34, 291-309.
4. Brereton, L., & Nolan, M. (2002). 'Seeking': A key activity for new family carers of stroke survivors. Journal of Clinical Nursing, 11, 22-31.
5. Croteau C., & Le Dorze G. (1999). Overprotection in couples with aphasia. Disability and Rehabilitation, 21, 432-437.
6. Croteau C., & Le Dorze G. (2001). Spouses' perceptions of persons with aphasia. Aphasiology, 15, 811-825.
7. Croteau, C., & Le Dorze, G. (2006). Overprotection,"speaking for", and conversational participation: A study of couples with aphasia. Aphasiology, 20, 327-336.
8. Croteau, C., Vychytil, A., Larfeuil, C., & Le Dorze, G. (2004). "Speaking for" behaviours in spouses of people with aphasia: A descriptive study of six couples in an interview situation. Aphasiology, 18, 291-312.
9. Cruice, M., Worrall, L., Hickson, L., & Murison, R. (2005). Measuring quality of life: Comparing family members' and friends' ratings with those of their aphasic partners. Aphasiology, 19, 111-129.
10. Emslie, C., Browne, S., MacLeod, U., Rozmovits, L., Mitchell, E., & Ziebland, S. (2009). 'Getting through' not 'going under': A qualitative study of gender and spousal support after diagnosis with colorectal cancer. Social Science & Medicine, 68, 1169-1175.
11. Gillespie, A., & Cornish, F. (2010). Intersubjectivity: Towards a dialogical analysis. Journal for the Theory of Social Behaviour, 40, 19-46.
12. Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. London: Penguin.
13. Goodwin, C. (1995). Co-constructing meaning in conversations with an aphasic man. Research on Language and Social Interaction, 28, 233-260.
14. Heyman, B., & Huckle, S. (1993). Not worth the risk? Attitudes of adults with learning difficulties, and their informal and formal carers to the hazards of everyday life. Social Science & Medicine, 37, 1557-1564.
15. Hinckley, J. (2006). Finding messages in bottles: Living successfully with stroke and aphasia. Topics in Stroke Rehabilitation, 13, 25-35.
16. Hirst, M. (2005). Carer distress: A prospective, population-based study. Social Science & Medicine, 61, 697-708.
17. Horowitz, A., Goodman, C. R., & Reinhardt, J. P. (2004). Congruence between disabled elders and their primary caregivers. Gerontologist, 44, 532-542.
18. James, W. (1890). Principles of psychology. Cambridge, MA: Harvard University Press.
19. Laing, R. D., Phillipson, H., & Lee, A. R. (1966). Interpersonal perception: A theory and method of research. London: Tavistock Publications.
20. LaPlante, M., Harrington, C., & Kang, T. (2002). Estimating paid and unpaid hours of personal assistance services in activities of daily living provided to adults living at home. Health Services Research, 37, 397-415.
21. Le Dorze, G., & Brassard, C. (1995). A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology, 9, 239-255.
22. Luck, A., & Rose, M. (2007). Interviewing people with aphasia: Insights into method adjustments from a pilot study. Aphasiology, 21, 208-224.
23. Martin, J., & Gillespie, A. (2010). A neo-Meadian approach to human agency: Relating the social and the psychological in the ontogenesis of perspective-coordinating persons. Integrative Psychological and Behavioral Science, 44, 252-272.
24. Mead, G. H. (1932). The philosophy of the present. La Salle, IL: Open Court Publishing Company.
25. Murphy, J. (2000). Enabling people with aphasia to discuss quality of life. British Journal of Therapy and Rehabilitation, 7, 454-457.
26. Murphy, J. (2006). Perceptions of communication between people with communication disability and general practice staff. Health Expectations, 9, 49-59.
27. Newsom, J. T., & Schulz, R. (1998). Caregiving from the recipient's perspective: Negative reactions to being helped, Health Psychology, 17, 172-181.
28. Parr, S., Byng, S., & Gilpin, S. (1997). Taking about aphasia. Buckingham, UK: Open University Press.
29. Power, A. (2008). Caring for independent lives: Geographies of caring for young adults with intellectual disabilities. Social Science & Medicine, 67, 834-843.
30. Robinson, L., Hutchings, D., Corner, L., Finch, T., Hughes, J., Brittain, K., et al. (2007). Balancing rights and risks: Conflicting perspectives in the management of wandering in dementia. Health, Risk & Society, 9, 389-406.
31. Shadden, B. B., & Agan, J. P. (2004). Renegotiation of identity: The social context of aphasia support groups. Topics in Language Disorders, 24, 174-186.
32. Sillars, A., Koerner, A., & Fitzpatrick, M. A. (2005). Communication and understanding in parent- adolescent relationships. Human Communication, 31, 102-128.
33. Simmons-Mackie, N., & Damico, J. (2007). Access and social inclusion in aphasia: Interactional principles and applications. Aphasiology, 17, 81-97.
34. Simmons-Mackie, N., Kingston, D., & Schultz, M. (2004). Speaking for another: The management of participant frames in aphasia. American Journal of Speech and Language Pathology, 13, 114-127.
35. Strauss, A. L., & Corbin, J. (1997). Grounded theory in practice. London: Sage.
36. Thomas, C., Morris, S. M., & Harman, J. C. (2002). Companions through cancer: The care given by informal carers in cancer contexts. Social Science & Medicine, 54, 529-544.
37. Thompson, S., Galbraith, M., Thomas, C., Swan, J., & Vrungos, S. (2002). Caregivers of stroke patient family members: Behavioral and attitudinal indicators of overprotective care. Psychology and Health, 17, 297-312.
38. Walters, K., Iliffe, S., Tai, S. S., & Orrell, M. (2000). Assessing needs from patient, carer and professional perspectives: The Camberwell Assessment of Need for Elderly people in primary care. Age and Ageing, 29, 505-510.
39. World Health Organisation (2001). ICF: International Classification of Functioning, Disability and Health. Geneva: World Health Organisation.
40. Zraick, R. I., & Boone, D. R. (1991). Spouse attitudes toward the person with aphasia. Journal of Speech and Hearing Research, 34, 123-128.