Self-management strategies used during flares of rheumatoid arthritis in an ethnically diverse population

Musculoskeletal Care

Volumn 8, Issue 4, 2010, Pages 204-214

  Kett, Charlotte ^a   Flint, Julia ^a   Openshaw, Mark ^a   Raza, Karim ^b   Kumar, Kanta ^a,b  

^a SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST   (United Kingdom)

^b UNIVERSITY OF BIRMINGHAM   (United Kingdom)

Author keywords

Ethnicity; Flare, causal attribution; Patient education; Patient recommendations; Rheumatoid Arthritis; Self management

Indexed keywords

ADULT; AGED; ARTICLE; DISEASE COURSE; ETHNIC GROUP; ETHNOLOGY; EXERCISE; FEMALE; HEALTH BEHAVIOR; HEAT; HUMAN; INFORMATION PROCESSING; JOINT; MALE; METHODOLOGY; MIDDLE AGED; PAIN; PATHOLOGY; PATHOPHYSIOLOGY; RECURRENT DISEASE; REST; RHEUMATOID ARTHRITIS; SELF CARE; UNITED KINGDOM;

ADULT; AGED; ARTHRITIS, RHEUMATOID; DATA COLLECTION; DISEASE PROGRESSION; ETHNIC GROUPS; EXERCISE; FEMALE; GREAT BRITAIN; HEALTH BEHAVIOR; HOT TEMPERATURE; HUMANS; JOINTS; MALE; MIDDLE AGED; PAIN; RECURRENCE; REST; SELF CARE; YOUNG ADULT;

EID: 78649458009     PISSN: 14782189     EISSN: 15570681     Source Type: Journal    
DOI: 10.1002/msc.185     Document Type: Article

References (47)

1. Abu-Skakra M, Toker R, Flusser D, Flusser G, Friger M, Sukenik S, Buskila D (1998). Clinical and radiographical outcomes of rheumatoid arthritis patients not treated with disease-modifying drugs. Arthritis and Rheumatism 41: 1190-5.
2. Airhihenbuwa CO, DiClemente RJ, Wingood GM, Lowe A (1992). HIV/AIDS education and prevention among African-Americans: A focus on culture. AIDS Education and Prevention. 4: 267-76.
3. Arnett FC, Edworthy SM, Bloch DA, McShane DJ, Fries JF, Cooper NS, Healey LA, Kaplan SR, Liang MH, Luthra HS, Medsger Jr TA, Mitchell DM, Neustadt DH, Pinals RS, Schaller JG, Sharp JT, Wilder RL, Hunder GG (1988). The American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritis. Arthritis and Rheumatism 31: 315-24.
4. Bhopal R (2009). Chronic diseases in Europe's migrant and ethnic minorities: Challenges, solutions and a vision. European Journal of Public Health 19: 140-3.
5. Bingham CO, Pohl C, Alten R, Christensen R, Choy EH, Hewlett S, May J, Strand V, Woodworth TG, Furst DE (2009). 'Flare' and disease worsening in rheumatoid arthritis: Time for a definition. International Journal of Advances in Rheumatology 7: 85-91.
6. Chen SL, Tsai JC, Lee WL (2009). The impact of illness perception on adherence to therapeutic regimens of patients with hypertension in Taiwan. Journal of Clinical Nursing 18: 2234-44.
7. Coulton CJ, Milligan S, Chow J, Haug M (1990). Ethnicity, self-care, and use of medical care among the elderly with joint symptoms. Arthritis Care and Research 3: 19-28.
8. Cronan TA, Kaplan RM, Posner L, Blumberg E, Kozin F (1989). Prevalence of the use of unconventional remedies for arthritis in a metropolitan community. Arthritis and Rheumatism 32: 1604-7.
9. Darr A, Astin F, Atkin K (2008). Causal attributions, lifestyle change, and coronary heart disease: Illness beliefs of patients of South Asian and European origin living in the United Kingdom. Heart and Lung 37: 91-104.
10. Davis GC, Cortex C, Rubin BR (1990). Pain management in the older adult with rheumatoid arthritis or osteoarthritis. Arthritis Care and Research 3: 127-31.
11. Department of Health (2004). From ideas to action: Improving chronic disease management. Available at [Accessed 1 December 2009].
12. Department of Health (2009). The expert patient: A new approach to chronic disease management for the 21st century. Available at [Accessed 1 December 2009].
13. Donovan JL, Blake DR, Fleming WG (1989). The patient is not a blank sheet: Lay beliefs and their relevance to patient education. British Journal of Rheumatology 28: 58-61.
14. Emery P (2002). Evidence supporting the benefit of early intervention in rheumatoid arthritis. Journal of Rheumatology 29: 3-8.
15. Ersek M, Turner JA, Kemp CA (2006). Use of the chronic pain coping inventory to assess older adults' pain coping strategies. Journal of Pain 7: 833-42.
16. Farooqi A, Nagra D, Edgar T, Khunti K (2000). Attitudes to lifestyle risk factors for coronary heart disease amongst South Asians in Leicester: A focus group study. Family Practice 17: 293-7.
17. Folkman S, Lazarus RS, Gruen RJ, DeLongis A (1986). Appraisal, coping, health status, and psychological symptoms. Journal of Personality and Social Psychology 50: 571-9.
18. Fries JF, Williams CA, Morfeld D, Singh G, Sibley J (1996). Reduction in long-term disability in patients with rheumatoid arthritis by disease-modifying antirheumatic drug-based treatment strategies. Arthritis and Rheumatism 39: 616-22.
19. Glaser B, Strauss A (1967). The Discovery of Grounded Theory. Hawthorne, NY: Aldine Publishing Company.
20. Greenhalgh T, Taylor R (1997). Papers that go beyond numbers (qualitative research). British Medical Journal 315: 740-3.
21. Greenhalgh T, Helman C, Chowdhury AM (1998). Health beliefs and folk models of diabetes in British Bangladeshis: A qualitative study. British Medical Journal 316: 978-83.
22. Griffiths B, Situnayake RD, Clark B, Tennant A, Salmon M, Emery P (2000). Racial origin and its effect on disease expression and HLA-DRB1 types in patients with rheumatoid arthritis: A matched cross-sectional study. Rheumatology 39: 857-64.
23. Hammond A (1998). The use of self-management strategies by people with rheumatoid arthritis. Clinical Rehabilitation 12: 81-7.
24. Hipwell A, Turner A, Barlow J (2008). 'We're not fully aware of their cultural needs': Tutors' experience of delivering the Expert Patients Programme to South Asian attendees. Diversity in Health and Social Care 5: 281-90.
25. Horne R, Weinman J (1999). Patients' beliefs about prescribed medicines and their role in adherence to treatment in chronic physical illness. Journal of Psychosomatic Research 47: 555-67.
26. Jessop D, Rutter D (2003). Adherence to asthma medication: The role of illness representation. Psychology and Health 18: 595-612.
27. Kay EA, Punchak SS (1988). Patient understanding of the causes and medical treatments of rheumatoid arthritis. British Journal of Rheumatology 27: 396-8.
28. King's Fund Report (2009). Perceptions of patients and professional on rheumatoid arthritis care. Available at [Accessed 1 December 2009].
29. Klareskog L, Catrina AI, Paget S (2009). Rheumatoid arthritis. Lancet 373: 659-72.
30. Kumar K, Carruthers DM, Situnayake D, Buckley CD, Gould E, Butler S, Gordon, Raza K (2006). Patient education - What do patients want to know and how do they want this information delivered? Rheumatology 45 (Suppl. 1): i 174.
31. Kumar K, Deeming A, Gordon C, Nightingale P, Raza K (2009). Experience with a Punjabi, Urdu and Hindi rheumatology telephone helpline. Musculoskeletal Care 7: 210-18.
32. Kumar K, Gordon C, Toescu V, Buckley CD, Horne R, Nightingale PG, Raza K (2008). Beliefs about medicines in patients with rheumatoid arthritis and systemic lupus erythematosus: A comparison between patients of South Asian and White British origin. Rheumatology 47: 690-7.
33. Lip GY, Kamath S, Jafri M, Mohammed A, Bareford D (2002). Ethnic differences in patient perceptions of atrial fibrillation and anticoagulation therapy: The West Birmingham Atrial Fibrillation Project. Stroke 33: 238-42.
34. Lip GY, Luscombe C, McCarry M, Malik I, Beevers G (1996). Ethnic differences in public health awareness, health perceptions and physical exercise: Implications for heart disease prevention. Ethnicity and Health 1: 47-53.
35. Lowery BJ, Jacobsen BS, Murphy BB (1983). An exploratory investigation of causal thinking of arthritics. Nursing Research 32: 157-62.
36. Maravic M, Berge C, Daures JP, Boissier MC (2005). Practices for managing a flare of long-standing rheumatoid arthritis: Survey among French rheumatologists. Clinical and Experimental Rheumatology 23: 36-42.
37. Markson EW (1971). Patient semeiology of a chronic disease. Rheumatoid arthritis. Social Science and Medicine 5: 159-67.
38. National Audit Office (2009). Services for people with rheumatoid arthritis. Available at [Accessed 1 December 2009].
39. Neame R, Hammond A (2005). Beliefs about medications: A questionnaire survey of people with rheumatoid arthritis. Rheumatology (Oxford) 44: 762-7.
40. Price JH, Hillman KS, Toral ME, Newell S (1983). The public's perceptions and misperceptions of arthritis. Arthritis and Rheumatism 26: 1023-8.
41. Raza K, Buckley CE, Salmon M, Buckley CD (2006). Treating very early rheumatoid arthritis. Best Practice and Research Clinical Rheumatology 20: 849-63.
42. Ross S, Walker A, Macleod M (2004). Patient compliance in hypertension: Role of illness perceptions and treatment beliefs. Journal of Human Hypertension 18: 607-13.
43. Skinner T, Tantam l, Purchon A, John M (2002). Do illness beliefs explain poorer outcomes for ethnic minority populations: A pilot study. Diabetic Medicine 19: 1-115.
44. Treharne GJ, Lyons AC, Hale ED, Douglas KM, Kitas GD (2006). 'Compliance' is futile but is 'concordance' between rheumatology patients and health professionals attainable? Rheumatology.(Oxford) 45: 1-5.
45. Verbrugge LM, Ascione FJ (1987). Exploring the iceberg. Common symptoms and how people care for them. Medical Care 25: 539-69.
46. Webster RA, Thompson DR, Mayou RA (2002). The experiences and needs of Gujarati Hindu patients and partners in the first month after a myocardial infarction. European Journal of Cardiovascular Nursing 1: 69-76.
47. World Health Organization (2005). Preventing chronic diseases: A vital investment. Available at [Accessed 1 December 2009].