The role of community advisory boards in health research: Divergent views in the South African experience

Sahara J

Volumn 7, Issue 3, 2010, Pages 2-8

  Reddy, Priscilla ^a   Sifunda, Sibusiso ^a   James, Shamagonam ^a   Naidoo, Nasheen ^a   Buchanan, David ^b,c  

^a SOUTH AFRICAN MEDICAL RESEARCH COUNCIL   (South Africa)

^b UNIVERSITY OF MASSACHUSETTS   (United States)

^c Doctors for Global Health   (United States)

Author keywords

Community advisory boards; HIV vaccine trials; Qualitative study; SAAVI; South Africa; South African AIDS Vaccine Initiative

Indexed keywords

HUMAN IMMUNODEFICIENCY VIRUS VACCINE;

ADVISORY COMMITTEE; ARTICLE; BEHAVIOR; CLINICAL TRIAL (TOPIC); CONFLICT; CONSUMER; HEALTH SERVICES RESEARCH; HUMAN; INFORMATION DISSEMINATION; INFORMATION PROCESSING; MANAGEMENT; METHODOLOGY; MOTIVATION; ORGANIZATION AND MANAGEMENT; PATIENT SELECTION; PUBLIC RELATIONS; ROLE PLAYING; SOCIAL BEHAVIOR; SOUTH AFRICA;

ADVISORY COMMITTEES; AIDS VACCINES; CLINICAL TRIALS AS TOPIC; COMMITTEE MEMBERSHIP; COMMUNITY-INSTITUTIONAL RELATIONS; CONSUMER PARTICIPATION; DISSENT AND DISPUTES; FOCUS GROUPS; GOALS; HEALTH SERVICES RESEARCH; HUMANS; INFORMATION DISSEMINATION; PATIENT SELECTION; POLICY MAKING; POWER (PSYCHOLOGY); ROLE; SOCIAL RESPONSIBILITY; SOUTH AFRICA;

EID: 78649402961     PISSN: 17290376     EISSN: 18134424     Source Type: Journal    
DOI: 10.1080/17290376.2010.9724963     Document Type: Article

References (18)

1. Brody, B. A., McCullough, L. B., & Sharp, R. R. (2005). Consensus and controversy in clinical research ethics. JAMA: The Journal of the American Medical Association, 294 (11), 1411-1414.
2. Buchanan, D., Sifunda, S., Naidoo, N, Reddy, P., & James, S. (2008). Assuring adequate protections in international health research: A principled justification and practical recommendations for the role of community oversight. Public Health Ethics, 1(3), 246-257.
3. Community Program for Clinical Research on AIDS (CPCRA) (1996). (full text: http://www. cpcra. org/; last accessed, November 21, 2008.)
4. CPCRA (1996). Community Program for Clinical Research on AIDS (CPCRA) [Online]. Available: http://www. cpcra. org; [Accessed November 21 2008].
5. Cox, L. E., Rouff, J. R., Svendsen, K. H., Markowitz, M., & Abrams, D. I. (1998). Community advisory boards: Their role in AIDS clinical trials. Health and Social Work, 23(4), 290-297.
6. Curran, W. J. (1973). The Tuskegee syphilis study. New England Journal of Medicine, 289(14), 730-1.
7. Emanuel, E. J., Wendler, D., Killen, J., & Grady, C. (2004). What makes clinical research in developing countries ethical? The benchmarks of ethical research. Journal of Infectious Diseases, 189(5), 930-937.
8. Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: an expanded sourcebook, Thousand Oaks: Sage Publications.
9. Minkler, M., & Wallerstein, N. (2003). Community based participatory research for health. San Francisco: Jossey-Bass.
10. Morin, S. F., Maiorana, A., Koester, K. A., Sheon, N. M., & Richards, T. A. (2003) Community consultation in HIV prevention research. Journal of Acquired Immune Deficiency Syndromes. 33(4), 513-20.
11. Morin, S. F., Morfit, S., Maiorana, A., Aramrattana, A., Goicochea, P., Mutsambi, J. M., Robbins J. L., & Richards, T. A. (2008). Building community partnerships: Case studies of community advisory boards at research sites in Peru, Zimbabwe, and Thailand. Clinical Trials. 5(2), 147-56.
12. National Institute of Allergy and Infectious Disease (NIAID) (2005). Add your voice! Opportunities for community participation in HIV/AIDS research. [Online]. Bethesda: NIAID. Available: www. niaid. nih. gov/healthscience/ healthtopics/HIVAIDS/PDF/ HVAD2005_addyourvoiceeng. htm [Accessed November 21 2008].
13. National Institute of General Medical Sciences (NIGMS) (2000). Report of the first community consultation on the responsible collections and use of samples for genetic research. [Online]. Available: www. nigms. nih. gov/news/reports/ community consultation. html [Accessed June 23, 2009]
14. Sharp, R. R., & Foster, M. W. (2002). Community involvement in the ethical review of genetic research: Lessons from American Indian and Alaska Native populations. Environmental Health Perspectives, 110 Suppl 2, 145-8.
15. South African Government (1953). Bantu Education Act of 1953 (No. 47), Department of Education: Pretoria.
16. Strauss, R. P, Sengupta, S., Quinn, S. C., Goeppinger, J., Spaulding, C., Kegeles, S. M., & Millett, G. (2001). The role of community advisory boards: Involving communities in the IC process. American Journal of Public Health. 91(12), 1938-43.
17. Weijer, C., & Emanuel, E. (2000). Ethics: Protecting communities in biomedical research. Science, 289(5482), 142-1144.
18. Wertheimer, A. (1996). Exploitation. Princeton: Princeton University Press.