A GP caregiver needs toolkit versus usual care in the management of the needs of caregivers of patients with advanced cancer: A randomized controlled trial

Trials

Volumn 11, Issue , 2010, Pages

  Mitchell, Geoffrey ^a   Girgis, Afaf ^b   Jiwa, Moyez ^c   Sibbritt, David ^d   Burridge, Letitia ^a  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b CANCER RESEARCH DIVISION   (Australia)

^c CURTIN UNIVERSITY   (Australia)

^d UNIVERSITY OF NEWCASTLE   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ADVANCED CANCER; ARTICLE; CANCER MORTALITY; CANCER PATIENT; CAREGIVER; GENERAL PRACTICE; HEALTH SURVEY; HUMAN; INFORMATION SERVICE; INTERVIEW; ONCOLOGY; OUTPATIENT DEPARTMENT; RANDOMIZED CONTROLLED TRIAL; TERTIARY HEALTH CARE; CLINICAL PROTOCOL; CLINICAL TRIAL; COMPARATIVE STUDY; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; GENERAL PRACTITIONER; HEALTH SERVICE; METHODOLOGY; NEOPLASM; QUALITY OF LIFE; QUESTIONNAIRE;

CLINICAL PROTOCOLS; GENERAL PRACTITIONERS; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; NEOPLASMS; QUALITY OF LIFE; QUESTIONNAIRES; RESEARCH DESIGN;

EID: 78649384215     PISSN: 17456215     EISSN: 17456215     Source Type: Journal    
DOI: 10.1186/1745-6215-11-115     Document Type: Article

References (34)

1. Australian Institute of Health and Welfare Older Australia at a glance. AIHW Cat AGE 25 2002, Canberra: AIHW and DOHA, 3, Australian Institute of Health and Welfare.
2. Higginson IJ, Sen-Gupta GJ. Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. J Palliat Med 2000, 3:287-300. 10.1089/jpm.2000.3.287, 15859670.
3. Hinton J. Can home care maintain an acceptable quality of life for patients with terminal cancer and their relatives?. Palliat Med 1994, 8:183-196. 10.1177/026921639400800302, 7952369.
4. Aoun S. The hardest thing we have ever done: Full report of the national inquiry into the social impact of caring for terminally ill people. 2004, Canberra: Palliative Care Australia.
5. Hayman JA, Langa KM, Kabeto MU, Katz SJ, DeMonner SM, Chernew ME, Slavin MB, Fendrick AM. Estimating the cost of informal caregiving for elderly patients with cancer. J Clin Oncol 2001, 19:3219-3225.
6. Weitzner MA, McMillan SC, Jacobsen PB. Family caregiver quality of life: differences between curative and palliative cancer treatment settings. J Pain Sympt Management 1999, 17:418-428.
7. Grunfeld E, Coyle D, Whelan T, Clinch J, Reyno L, Earle CC, Willan A, Viola R, Coristine M, Janz T, Glossop R. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. Can Med Assoc J 2004, 170:1795-1801.
8. Aoun S, Kristjanson L, Currow D, Hudson P. Caregiving for the terminally ill: at what cost?. Palliative Medicine 2005, 19:551-555. 10.1191/0269216305pm1053oa, 16295288.
9. Kristjanson LJ, White K. Clinical support for families in the palliative care phase of hematologic or oncologic illness. Hematol Oncol Clin North Am 2002, 16:745-762. xi, 10.1016/S0889-8588(02)00023-0, 12170579.
10. Sepulveda C, Marlin A, Yoshida T, Ullrich A. Palliative care; the World Health Organistion's global perspective. Journal of Pain Management 2002, 24:91-96.
11. Butler LD, Field NP, Busch AL, Seplaki JE, Hastings TA, Spiegel D. Anticipating loss and other temporal stressors predict traumatic stress symptoms among partners of metastatic/recurrent breast cancer patients. Psychooncology 2005, 14:492-502. 10.1002/pon.948, 15452896.
12. Masso M, Dodds S, Fildes D, Yeatman H, Eagar K. Ethical research in palliative care: a guide through the Human Research Ethics Committee process. 2004, Canberra: Australian Government Department of Health and Ageing.
13. Hudson P, Aranda S, Kristjanson L. Meeting the supportive needs of family caregivers in palliative care: challenges for health professionals. J Palliat Med 2004, 7:19-25. 10.1089/109662104322737214, 15008126.
14. Britt H, Sayer GC, Miller GC, Charles J, Scahill S, Horn F, Bhasale A, McGeechan K. General Practice activity in Australia 1998-99. AIHW Cat no GEP 2 1999, Canberra: Australian Institute of Health and Welfare.
15. Barclay S, Wyatt P, Shore S, Finlay I, Grande G, Todd C. Caring for the dying: how well prepared are general practitioners? A questionnaire study in Wales. Palliat Med 2003, 17:27-39. 10.1191/0269216303pm665oa, 12597463.
16. Burge F, Lawson B, Johnston G. Family physician continuity of care and emergency department use in end-of-life cancer care. Med Care 2003, 41:992-1001. 10.1097/00005650-200308000-00012, 12886178.
17. Burge F, Lawson B, Johnston G, Cummings I. Primary care continuity and location of death for those with cancer. J Palliat Med 2003, 6:911-918. 10.1089/109662103322654794, 14733683.
18. Harding R, Higginson IJ. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med 2003, 17:63-74. 10.1191/0269216303pm667oa, 12597468.
19. Bielby J, Furler J. Chapter four. General Practitioner services in Australia. General Practice in Australia 2005, 128-213. Canberra: Commonwealth of Australia, Pegram R.
20. Australian Government Department of health and Ageing Enhanced Primary Care Program (EPC). 2008, Canberra: DoHA, Australian Government Department of health and Ageing.
21. Mitchell G, Del Mar C, O'Rourke P, Clavarino A. Do case conferences between general practitioners and specialist palliative care services improve quality of life? A randomised controlled trial. Palliat Med 2008, 22:904-912. 10.1177/0269216308096721, 18772208.
22. Mitchell G. The effect of case conferences involving general practitioners and palliative care specialists on the health outcomes of palliative care patients. 2005, University of Queensland, School of Population Health.
23. Waller A, Girgis A, Currow D, Lacathelinais C. Development and pilot testing of the Palliative Care Needs Assessment Tool (PC-NAT) for use by multi-disciplinary health professionals. Palliat Med 2008, 22:956-964. 10.1177/0269216308098797, 18952754.
24. Waller A, Girgis A, Scott W, Foot L, Lecathelinais C, Sibbritt D, Currow D. Validity, reliability and clinical feasibility of a Needs Assessment Tool for use in people with progressive cancer. Psycho-Oncology 2009,
25. Girgis A, Johnson C, Currow D, Waller A, Kristjanson L, Mitchell G, Yates P, Neil A, Kelly B, Tattersall M, Bowman D. Palliative Care Needs Assessment Guidelines. 2006, Newcastle, NSW: The Centre for Health Research & Psycho-oncology, Accessed 14 October 2010., http://www.newcastle.edu.au/research-centre/cherp/professional-resources/needs-assessment.html
26. Girgis A, Lambert S, Lacathelinais C. The Supportive Care Needs Survey for Partners and Caregivers of Cancer Survivors: Development and Psychometric Evaluation. Psycho-Oncology 2010, April 5 2010.
27. Zigmond AS, Snaith RP. The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica 1983, 67:361-370. 10.1111/j.1600-0447.1983.tb09716.x, 6880820.
28. Ware JEJ. SF-12® Health Survey© 1988 IQOLA SF-12 Standard Australia/New Zealand Version 1.0 - 7/94. 2002, MOT, Health Assessment Lab,QualityMetric Incorporated.
29. Carver CS. You want to measure coping but your protocol's too long: consider the brief COPE. Int J Behav Med 1997, 4:92-100. 10.1207/s15327558ijbm0401_6, 16250744.
30. McElduff P, Boyes A, Zucca A, Girgis A. Supportive Care Needs Survey: A guide to administration, scoring and analysis. 2004, Newcastle: Centre for Health Research & Psycho-oncology.
31. Bonevski B, Sanson-Fisher R, Girgis A, Burton L, Cook P, Boyes A. Evaluation of an instrument to assess the needs of patients with cancer. Supportive Care Review Group. Cancer 2000, 88:217-225. 10.1002/(SICI)1097-0142(20000101)88:1<217::AID-CNCR29>3.0.CO;2-Y, 10618626.
32. Boyes A, Girgis A, Lecathelinais C. Brief assessment of adult cancer patients' perceived needs: Development and validation of the 34-item Supportive Care Needs Survey (SCNS-SF34). Journal of Evaluation in Clinical Practice 2009, 15:602-606. 10.1111/j.1365-2753.2008.01057.x, 19522727.
33. Twisk JR. Applied longitudinal data analysis for epidemiology. 2003, Cambridge, UK: Cambridge University Press.
34. Boyes A, Newell S, Girgis A, McElduff P, Sanson-Fisher R. Does routine assessment and real-time feedback improve cancer patients' psychosocial well-being?. Eur J Cancer Care 2006, 15:163-171.