AIDS Exceptionalism: On the Social Psychology of HIV Prevention Research

Social Issues and Policy Review

Volumn 3, Issue 1, 2009, Pages 45-77

  Fisher, William A ^a   Kohut, Taylor ^a   Fisher, Jeffrey D ^b  

^a UNIVERSITY OF WESTERN ONTARIO   (Canada)

^b UNIVERSITY OF CONNECTICUT   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 78649354941     PISSN: 17512395     EISSN: 17512409     Source Type: Journal    
DOI: 10.1111/j.1751-2409.2009.01010.x     Document Type: Article

References (114)

1. ACT UP. AIDS Coalition to Unleash Power. (2008). ACT UP/New York. Available: Accessed November 8, 2008.
2. Ajzen, I. (1985). From intentions to actions. A theory of planned behavior. In J. Kuhl & J. Beckman (Eds.), Action control from cognition to behavior (pp. 11-39). New York Springer-Verlag.
3. Albarracin, D., Gillette, J. C., Earl, A. N., Glasman, L. R., Durantini, M. R., & Ho, M. (2005). A test of major assumptions about behaviour change: A comprehensive look at the effects of passive and active HIV-prevention interventions since the beginning of the epidemic. Psychological Bulletin, 131, 856-897.
4. Albarracin, D., Johnson, B. T., & Fishbein, M. (2001). Theories of reasoned action and planned behavior as models of condom use: A meta-analysis. Psychological Bulletin, 127, 142-161.
5. Allport, G. W. (1954). The nature of prejudice. Reading, MA Addison-Wesley.
6. American Psychologist. (1988). Special issue on AIDS. American Psychologist, 43(11), 835-987.
7. Aral, S. O., Douglas, J. M., & Lipshutz, J. A. (2007). Behavioral interventions for prevention and control of sexually transmitted diseases. New York Springer.
8. Bandura, A. (1986). Social foundations of thought and action. A social cognitive theory. Englewood Cliffs, NJ Prentice-Hall.
9. Bandura, A. (1989). Perceived self-efficacy in the exercise of control over AIDS infection. In V. E. Mays, G. W. Albee, & S. F. Schneider (Eds.), Primary prevention of AIDS. Psychological approaches. Primary prevention of psychopathology. Vol XIII (pp. 128-141). Thousand Oaks, CA Sage.
10. Bangsberg, D. R., Moss, A. R., & Deeks, S. G. (2004). Paradoxes of adherence and drug resistance to HIV antiretroviral therapy. Journal of Antimicrobial Chemotherapy, 53, 696-699.
11. Bangsberg, D. R., Perry, S., Charlebois, E. D., Clark, R. A., Robertson, M., Zolopa, A. R., & Moss, A. (2001). Non-adherence to highly active antiretroviral therapy predits progression to AIDS. AIDS, 15, 1181-1183.
12. Batson, C. D. (1990). How social an animal? The human capacity for caring. American Psychologist, March, 336-346.
13. Batson, C. D., Polycarpou, M. P., Harmon-Jones, E., Imhoff, H. J., Mitchener, E. C., Bednar, L., Klein, T. R., & Highberger, L. (1997). Empathy and attitudes: Can feeling for a member of a stigmatized group improve feelings toward the group Journal of Personality and Social Psychology, 72, 105-118.
14. Bay Area Physicians for Human Rights. (2008). BAPHR. Available: Accessed November 8, 2008.
15. Bayer, R. (1989). Private acts, social consequences. AIDS and the politics of public health. New York The Free Press.
16. Bayer, R. (1991). Public health policy and the AIDS epidemic. An end to HIV exceptionalism New England Journal of Medicine, 234, 1500-1504.
17. Bayer, R., & Fairchild, A. L. (2006). Changing the paradigm for HIV testing-The end of exceptionalism. New England Journal of Medicine, 355, 647-649.
18. Bayer, R., & Oppenheimer, G. M. (2000). AIDS doctors: Voices from the epidemic. Oxford Oxford University Press.
19. Bersoff, D. M. (1999). Why good people sometimes do bad things: Motivated reasoning and unethical behavior. Personality and Social Psychology Bulletin, 25, 28-39.
20. Brehm, S. S., & Brehm, J. W. (1981). Psychological reactance: A theory of freedom and control. New York Academic Press.
21. Byrne, D. (1983). Sex without contraception. In D. Byrne & W. A. Fisher (Eds.), Adolescents, sex, and contraception (pp. 3-32). Hillsdale, NJ Lawrence Erlbaum Associates.
22. Catania, J. A., Kegeles, S. M., & Coates, T. J. (1990). Towards an understanding of risk behavior. An AIDS risk reduction model (AARM). Health Education Quarterly, 17, 53-72.
23. Centers for Disease Control and Prevention. (2001). AIDS cases and deaths, by year and age group, through December 2001. Available: Accessed November 8, 2008.
24. Centers for Disease Control and Prevention. (2003). Incorporating HIV prevention into the medical care of persons living with HIV: Recommendation of the CDC, the Health Resources and Service Administration, the National Institutes of Health, and the HIV Medicine Association of the Infectious Diseases Society of America. Morbidity and Mortality Weekly Report, 52 (No. RR-12).
25. Centers for Disease Control and Prevention. (2008a). HIV Incidence. Available: Accessed November 8, 2008.
26. Centers for Disease Control and Prevention. (2008b). New Evidence of U.S. HIV Prevalence, 2006. Available: Accessed November 8, 2008.
27. Centers for Disease Control and Prevention. (2008c). Compendium of HIV Prevention Interventions with Evidence of Effectiveness. Available: Accessed November 8, 2008.
28. Centers for Disease Control and Prevention. (2008d). Best-Evidence Interventions. Available: Accessed November 8, 2008.
29. Centers for Disease Control and Prevention. (2008e). Promising-Evidence Interventions. Available: Accessed November 8, 2008.
30. Centers for Disease Control and Prevention. (2008f). HIV and AIDS in the United States: A picture of today's epidemic. Available: Accessed November 8, 2008.
31. Centers for Disease Control and Prevention. (2009a). Best Evidence Interventions. Available: Accessed July 24, 2008.
32. Centers for Disease Control and Prevention. (2009b). Promising Evidence Interventions. Available: Accessed July 24, 2008.
33. Chesney, M. A. (2000). Factors affecting adherence to antiretroviral therapy. Clinical Infectious Diseases, 30, S171-S176.
34. Chin, J. (2007). The AIDS pandemic. The collision of epidemiology with political correctness. Oxford Radcliffe Publishing.
35. Coates, T. J., Morin, S. F., & McKusick, L. (1987). Behavioral consequences of AIDS antibody testing among gay men. Journal of the American Medical Association, 258, 1989.
36. Cornman, D. (2008). Personal communication, November 8, 2008.
37. Cornman, D. H., Kiene, S. M., Christie, S., Fisher, W. A., Shuper, P. A., Pillay, S., Freidland, G. H., & Fisher, J. D. (2008). Clinic-based intervention reduces unprotected sexual behavior among HIV-infected patients in KwaZulu-Natal, South Africa: Results of a pilot study. Journal of Acquire Immune Deficiency Syndromes, 48, 553-560.
38. Crandall, C. S., & Eshleman, A. (2003). A justification-suppression model of the expression and experience of prejudice. Psychological Bulletin, 129, 414-446.
39. Crawford, A. M. (1996). Stigman associated with AIDS: A meta-analysis. Journal of Applied Social Psychology, 26, 398-416.
40. Crepaz, N. (2008). Personal communication, January 31, 2008.
41. Crepaz, N., Lyles, C. M., Wolitski, R. J., Passin, W. F., Rama, S. M., Herbst, J. H.. Purcell, D. W., Malow, D. W., & Stall, R. M. for the HIV/AIDS Prevention Research Synthesis (PRS) Team. (2006). Do prevention interventions reduce HIV risk behaviours among people living with HIV? A meta-analytic review of controlled trials. AIDS, 20, 143-157.
42. Darrow, W. W. (2004, April 4). Public health and HIV prevention. Old, new, and not. Paper presented at the Center for Health, Intervention, and Prevention, University of Connecticut, Storrs, CT.
43. Des Jarlais, D., & Friedman, S. R. (1988, November). The psychology of preventing AIDS among intravenous drug users. A social learning conceptualization. American Psychologist, 865-870.
44. Devine, P. G., Monteith, M. J., Zuwerink, J. R., & Elliot, A. J. (1991). Prejudice with and without compunction. Journal of Personality and Social Psychology, 60, 817-830.
45. Elliot, A. J., & Devine, P. G. (1994). On the motivational nature of cognitive dissonance. Dissonance as psychological discomfort. Journal of Personality and Social Psychology, 67, 382-398.
46. Emmons, C., Joseph, J. G., Kessler, R. C., Wortman, C. B., Montgomery, S. B., & Ostrow, D. G. (1986). Psychosocial predictors of reported behavior change in homosexual men at risk for AIDS. Health Education Quarterly, 13, 331-345.
47. Festinger, L. (1957). A theory of cognitive dissonance. Evanston, IL Row Peterson.
48. Fischl, M. A., Dickinson, G. M., Scott, G. B., Kimas, N., Fletcher, M. A., & Parks, W. (1987). Evaluation of heterosexual partners, children, and household contacts of adults with AIDS. Journal of the American Medical Association, 257, 640-644.
49. Fishbein, M., & Ajzen, I. (1975). Belief, attitude, intention, and behavior. An introduction to theory and research. Reading, MA Addison-Wesley.
50. Fishbein, M., & Middlestadt, S. E. (1989). Using the Theory of Reasoned Action as a framework for understanding and changing AIDS-related behaviors. In V. E. Mays, G. W. Albee & S. F. Schneider (Eds.), Primary prevention of AIDS. Psychological approaches. Primary prevention of psychopathology (Vol. XIII, pp. 93-110). Thousand Oaks, CA Sage.
51. Fisher, J. D. (1988). Possible effects of reference group-based social influence on AIDS-risk behavior and AIDS prevention. American Psychologist, 43, 914-920.
52. Fisher, J. D., Cornman, D. H., Norton, W. E., & Fisher, W. A. (2006a). Involving behavioral scientists, health care providers, and HIV-infected patients as collaborators in theory-based HIV prevention and antiretroviral adherence interventions. Journal of Acquired Immune Deficiency Syndromes, 43, 10-17.
53. Fisher, J. D., Cornman, D. H., Osborn, C. Y., Amico, K. R., Fisher, W. A., & Friedland, G. A. (2004). Clinician-initiated risk reduction intervneton for HIV-positive persons. Formative research, acceptability, and fidelity of the Options Project. Journal of Acquired Immune Deficiency Syndromes, 37, S78-S87.
54. Fisher, J. D., & Fisher, W. A. (1992). Changing AIDS risk behavior. Psychological Bulletin, 111, 455-474.
55. Fisher, W. A., & Fisher, J. D. (1993). A general social psychological model for changing AIDS risk behavior. In J. Pryor & G. Reeder (Eds.), The social psychology of HIV infection (pp. 127-153). Hillsdale, NJ Erlbaum.
56. Fisher, J. D., & Fisher, W. A. (2000). Theoretical approaches to individual-level change in HIV risk behavior. In J. L. Peterson & R. J. DiClemente (Eds.), Handbook of HIV prevention (pp. 3-55). New York Kluwer Academic.
57. Fisher, J. D., Fisher, W. A., Amico, K. R., & Harman, J. J. (2006). An Information-Motivation-Behavioral Skills Model of adherence to antiretroviral therapy. Health Psychology, 25, 462-473.
58. Fisher, J. D., Fisher, W. A., Cornman, D. H., Amico, K. R., Bryan, A., & Friedland, G. H. (2006b). Clinician-delivered intervention during routine clinical care reduces unprotected sexual behavior among HIV-infected patients. Journal of Immune Deficiency Syndromes, 41, 44-52.
59. Frieden, T. R., Das-Douglas, M., Kellerman, S. E., & Henning, K. J. (2005). Applying public health principles to the HIV epidemic. New England Journal of Medicine, 353, 2397-2402.
60. Gay Men's Health Crisis. (2008). GMHC: Gay Men's Health Crisis. Available: Accessed November 8, 2008.
61. Global HIV Prevention Working Group. (2004). HIV prevention in the era of expanded treatment access. Available: Accessed November 8, 2008.
62. Globe and Mail (October 22, 2008). The Globe and Mail, p. A5.
63. God's Love We Deliver. (2008). God's Love We Deliver. Available: Accessed November 8, 2008.
64. Gottlieb, M. S. (2001). AIDS-past and future. New England Journal of Medicine, 344, 1788-1791.
65. Hahn, B. H., Shaw, G. M., De Cock, K. M., & Sharp, P. M. (2000). AIDS as a zoonosis: Scientific and public health implications. Science, 287, 607-614.
66. Hall, H. I., Song, R., Rhodes, P., Prejean, J., An, Q., Lee, L. M., Karon, J., Brookmeyer, R., Kaplan, E. H., McKenna, M. T., & Janssen, R. S. for the HIV Incidence Surveillance Group. (2008). Estimation of HIV incidence in the United States. Journal of the American Medical Association, 30, 520-529.
67. Herek, G. M., & Capitano, J. P. (1999). AIDS stigma and sexual prejudice. American Behavioral Scientist, 42, 1130-1137.
68. Hyde, J. S., DeLamater, J. D., & Byers, E. S. (2001). Human sexuality. Canadian edition. Toronto McGraw Hill Ryerson.
69. International AIDS Vaccine Initiative. (2008). IAVI.ORG Homepage. Available: Accessed November 8, 2008.
70. Jaccard, J. J., & Davidson, A. R. (1972). Towards an understanding of family planning behaviour: An initial investigation. Journal of Applied Social Psychology, 2, 228-235.
71. Janssen, R. S., Holtgrave, D. R., Valdeisseri, R. O., Shephard, M., Gayle, H. D., & De Cock, K. M. The Serostatus approach to fighting the AIDS epidemic: Prevention strategies for infected individuals. (2001). American Journal of Public Health, 91, 1019-1024.
72. Johnson, B. T., Carey, M. P., Chaudoir, S. R., & Reid, A. E. (2006). Sexual risk reduction for persons living with HIV. Research synthesis of randomized controlled trials, 1993-2005. Journal of Acquired Immune Deficiency Syndromes, 41, 642-650.
73. Johnson, W. D., Hedges, L. V., Ramirez, G., Semaan, S., Norman, L. R., Sogolow, E., Sweat, M. D., & Diaz, R. M. (2002). HIV prevention research for men who have sex with men: A systematic review and meta-analysis. Journal of Acquired Immune Deficiency Syndromes, 30, S118-S129.
74. Kalichman, S. C. (Ed.), (2005). Positive prevention. Reducing HIV transmission among people living with HIV/AIDS. New York Kluwer.
75. Kalichman, S. C., Rompa, D., Cage, M., DiFonzo, K., Simpson, D., Austin, J., Luke, W., Buckles, J., Kyomugisha, F., Benotsch, E., Pinkerton, S., & Graham, J. (2001). Effectiveness of an intervention to reduce HIV transmission risks in HIV-positive people. American Journal of Preventive Medicine, 21, 84-92.
76. Karon, J. M., Fleming, P. L., Steketee, R. W., & De Cock, K. M. (2001). HIV in the United States at the turn of the century: An epidemic in transition. American Journal of Public Health, 91, 1060-1068.
77. Kelley, J. A., & St. Lawrence, J. S. (1986). Behavioral intervention and AIDS. The Behavior Therapist, 6, 121-125.
78. Kelly, J. A., St. Lawrence, J. S., Diaz, Y. E., Stevenson, L. Y., Hauth, A. C., Brasfield, T. L., Kalichman, S. C., Smith, J. K., & Andrew, M. E. (1991). HIV risk behavior reduction following intervention by key opinion leaders in population: An experimental analysis. American Journal of Public Health, 81, 168-171.
79. Korber, B., Muldoon, B., Theiler, J., Gao, F., Gupta, R., Lapedes, A., Hahn, B. H., Wolinsky, S., & Bhattacharya, T. (2000). Timing the ancestor of the HIV-1 pandemic strains Science, 288, 1789-1796.
80. Kozol, M. J., Amico, R., Chiarella, C., Cornoman, D., Fisher, W. A., Fisher, J. D., et al. (2006). A population-based and longitudinal study of sexual behavior and multidrug resistant HIV among patients in clinical care. MedGenMed 8, 72-82.
81. Kunda, Z. (1990). The case for motivated reasoning. Psychological Bulletin, 108, 480-498.
82. Lerner, M. (1980). The belief in a just world. The fundamental delusion. New York Plennum.
83. Maes, J. (1994). Blaming the victim: Belief in control or belief in justice. Social Justice Research, 7, 69-90.
84. Mann, J. M., Tarantola, D. J. M., & Netter, T. W. (Eds.), (1992). AIDS in the world. New York Oxford University Press.
85. Mann, J. M., & Tarantola, D. J. M. (Eds.), (1996). AIDS in the world II. Global dimensions, social roots, and responses. New York Oxford University Press.
86. Marks, G., Crepaz, N., & Janssen, R. S. (2006). Estimating sexual transmission of HIV from persons aware and unaware that they are infected with the virus in the USA. AIDS, 20, 1447-1450.
87. Marks, G., Crepaz, N., Senterfitt, J. W., & Janssen, R. S. (2005). Meta-analysis of high-risk sexual behavior in persons aware and unaware the are infected with HIV in the United States: Implications for HIV prevention programs. Journal of Acquired Immune Deficiency Syndromes, 39, 446-453.
88. Meyer, I. H. (2003). Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations. Conceptual issues and research evidence. Psychological Bulletin, 129, 674-697.
89. Moatti, J.-P., & Souteyrand, Y. (2000). Editorial: HIV/AIDS social and behavioural research: Past advances and thoughts about the future. Social Science and Medicine, 50, 1519-1532.
90. Morbidity and Mortality Weekly Report. CDC.Pneumocystis pneumonia-Los Angeles (June 15, 1981). Morbidity and Mortality Weekly Report, 30, pp. 250-252.
91. Nahmias, A. J., Weiss, J., Yao, X., Lee, F., Kodsi, R., Schanfield, M., Mathews, T., Bolognesi, D., Durack, A., Motulsky, P., Kanki, P, & Essex, M. (1986). Evidence for human infection with an HTLV III/LAV-like virus in Central Africa, 1959. Lancet, 31, 1279-1280.
92. National Institutes of Health. (1997). National Institutes of Health Consensus Development Statement on Interventions to Prevention HIV Risk Behaviors. Bethesda, MD NIH Office of Medical Applications Research.
93. National Institutes of Health. (2008). AIDS history website. Available: Accessed November 8, 2008.
94. Noar, S. (2008). Behavioral interventions to reduce HIV-related sexual risk behavior: Review and synthesis of meta-analytic evidence. AIDS and Behavior, 12, 335-353.
95. Porco, T. C., Martin, J. N., Page-Shafer, K. A., Cheng, A., Charlebois, E., Grant, R. M., & Osmond, D. H. (2004). Decline in HIV infectivity following the introduction of highly active antiretroviral therapy. AIDS, 18, 81-88.
96. President's Emergency Plan for AIDS Relief. (2008). Reauthorizing PEPFAR. Available: Accessed November 8, 2008.
97. Prochaska, J. O., & DiClemente, C. C. (1983). Stages and processes of self-change of smoking: Toward an integrative model of change. Journal of Consulting and Clinical Psychology, 51, 390-395.
98. Rollnick, S., Mason, P., & Butler, C. (1999). Health behavior change. A guide for practitioners. London Churchill Livingstone.
99. Rosenbrock, R., Dubois-Arber, F., Moers, M., Pinell, P., Schaeffer, D., & Setbon, M. (2000). The normalization of AIDS in Western European countries. Social Science and Medicine, 50, 1607-1629.
100. Rotter, J., Chance, J. E., & Phares, E. J. (1972). Applications of a social learning theory of personality. New York Holt, Rinehart & Winston.
101. Schiltz, M. A., & Sandfort, Th. G. M. (2000). HIV-positive people, risk, and sexual behavior. Social Science and Medicine, 50, 1607-1629.
102. Semaan, S., Kay, L., Strouse, D., Sogolow, E., Mullen, P. D., Neumann, M. S., Flores, S. A., Peersman, G., Johnson, W. D., Lipman, P. D., Eke, A., & Des Jarlais, D. C. (2002). A profile of U.S.-based trials of behavioral and social interventions for HIV risk reduction. Journal of Acquired Immune Deficiency Syndromes, 30, S30-S50.
103. Sepkowitz, K. A. (2001). AIDS-the first 20 years. New England Journal of Medicine, 344, 1764-1772.
104. Shilts, R. (1987). And the band played on. People, politics, and the AIDS epidemic. New York St. Martin's Press.
105. Slater, P. (1994). Sutton's law and AIDS prevention in Israel. Public Health Review, 21, 285-291.
106. Stall, R., & Mills, T. C. (2006). Editorial. A quarter century of AIDS. American Journal of Public Health, 96, 959-961.
107. Stall, R. (2007, November). Prevention with positives. A critical literature review. Paper presented at the New York HIV Consortium, New York.
108. The Body. The Complete HIV/AIDS Resource. (2009). Available: Accessed July 24, 2009.
109. UNAIDS. (2008a). Global Summary of the AIDS Epidemic, December 2007. Available: Accessed November 8, 2008.
110. UNAIDS. (2008b). Substantial increases in HIV prevention efforts producing results, but not enough to turn back the epidemic. Available: Accessed November 8, 2008.
111. UNAIDS. (2008c). Practical Guidelines for Intensifying HIV Prevention. Towards Universal Access. Available: Accessed November 8, 2008.
112. Wainberg, M. A., & Friedland, G. (1998). Public health implications of antiretroviral therapy and HIV drug resistance. Journal of the American Medical Association, 379, 1977-1983.
113. Wolitski, R. J., Bailey, C., O'Leary, A., Gomez, C., Parsons, J., & Seropositive Urban Men's Study Gourp. (2003). Self-perceived responsibility of HIV-seropositive men for preventing HIV transmission to sex partners. AIDS and Behavior, 7, 363-372.
114. Wolitski, R. J., Flores, S. A., O'Leary, A., Bimbi, D. S., & Gomez, C. A. (2006). Beliefs about personal and social responsibility among HIV-seropositive men who have sex with men: Measurement and association with transmission risk behavior. AIDS and Behavior, 11, 676-686.