Outcomes and causes of death in children on home mechanical ventilation via tracheostomy: An institutional and literature review

Journal of Pediatrics

Volumn 157, Issue 6, 2010, Pages

  Edwards, Jeffrey D ^a   Kun, Sheila S ^b   Keens, Thomas G ^b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b CHILDREN S HOSPITAL LOS ANGELES   (United States)

Author keywords

Central hypoventilation syndromes; Children's Hospital Los Angeles; CHLA; Chronic pulmonary diseases; Chronic respiratory failure; CHS; CI; Confidence interval; CPD; CRF; Hazard ratio; HMV; Home mechanical ventilation; HR; Positive pressure ventilation; PPV; VMW

Indexed keywords

ARTICLE; ARTIFICIAL VENTILATION; CAUSE OF DEATH; CHILD; CHRONIC LUNG DISEASE; COHORT ANALYSIS; CONTROLLED STUDY; FEMALE; HOME CARE; HUMAN; KAPLAN MEIER METHOD; MAJOR CLINICAL STUDY; MALE; OBSERVATIONAL STUDY; OUTCOME ASSESSMENT; POSITIVE END EXPIRATORY PRESSURE; PRESCHOOL CHILD; PRIORITY JOURNAL; PROPORTIONAL HAZARDS MODEL; RETROSPECTIVE STUDY; SCHOOL CHILD; SURVIVAL; TRACHEOSTOMY;

EID: 78449301115     PISSN: 00223476     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpeds.2010.06.012     Document Type: Article

References (28)

1. B.J. Make, N.S. Hill, A.I. Goldberg, J.R. Bach, G.J. Criner, and P.E. Dunne Mechanical ventilation beyond the intensive care unit. Report of a consensus conference of the American College of Chest Physicians Chest 113 1998 289 344S
2. R.C. Frates Jr., M.L. Splaingard, E.O. Smith, and G.M. Harrison Outcome of home mechanical ventilation in children J Pediatr 106 1985 850 856
3. M.S. Schreiner, J.J. Downes, R.G. Kettrick, C. Ise, and R. Voit Chronic respiratory failure in infants with prolonged ventilator dependency JAMA 258 1987 3398 3404
4. J. Oren, D.H. Kelly, and D.C. Shannon Long-term follow-up of children with congenital central hypoventilation syndrome Pediatrics 80 1987 375 380
5. S.T. Iannaccone, and T. Guilfoile Long-term mechanical ventilation in infants with neuromuscular disease J Child Neurol 3 1988 30 32
6. I.S. Gilgoff, E. Kahlstrom, E. MacLaughlin, and T.G. Keens Long-term ventilatory support in spinal muscular atrophy J Pediatr 115 1989 904 909
7. R.O. Robinson Ventilator dependency in the United Kingdom Arch Dis Child 65 1990 1235 1236
8. A.I. Fields, D.H. Coble, M.M. Pollack, and J. Kaufman Outcome of home care for technology-dependent children: success of an independent, community-based case management model Pediatr Pulmonol 11 1991 310 317
9. G.B. Mallory Jr., and P.C. Stillwell The ventilator-dependent child: issues in diagnosis and management Arch Phys Med Rehabil 72 1991 43 55
10. C.L. Marcus, M.T. Jansen, M.K. Poulsen, S.E. Keens, T.A. Nield, and L.E. Lipsker Medical and psychosocial outcome of children with congenital central hypoventilation syndrome J Pediatr 119 1991 888 895
11. M. Canlas-Yamsuan, I. Sanchez, M. Kesselman, and V. Chernick Morbidity and mortality patterns of ventilator-dependent children in a home care program Clin Pediatr (Phila) 32 1993 706 713
12. W.B. Wheeler, E.L. Maguire, S.C. Kurachek, J.G. Lobas, J.H. Fugate, and J.J. McNamara Chronic respiratory failure of infancy and childhood: clinical outcomes based on underlying etiology Pediatr Pulmonol 17 1994 1 5
13. M. Sasaki, K. Sugai, M. Fukumizu, S. Hanaoka, and M. Kaga Mechanical ventilation in severe childhood neurological disorders Brain Dev 23 2001 796 800
14. L. Appierto, M. Cori, R. Bianchi, A. Onofri, S. Catena, and M. Ferrari Home care for chronic respiratory failure in children: 15 years experience Paediatr Anaesth 12 2002 345 350
15. J.E. O'Brien, H.M. Dumas, S.M. Haley, M.E. O'Neil, M. Renn, and T.E. Bartolacci Clinical findings and resource use of infants and toddlers dependent on oxygen and ventilators Clin Pediatr (Phila) 41 2002 155 162
16. R.L. Gilgoff, and I.S. Gilgoff Long-term follow-up of home mechanical ventilation in young children with spinal cord injury and neuromuscular conditions J Pediatr 142 2003 476 480
17. V.S. Nelson, P.J. Dixon, and S.A. Warschausky Long-term outcome of children with high tetraplegia and ventilator dependence J Spinal Cord Med 27 Suppl. 1 2004 S93 S97
18. E.A. Edwards, M. O'Toole, and C. Wallis Sending children home on tracheostomy dependent ventilation: pitfalls and outcomes Arch Dis Child 89 2004 251 255
19. M. Gowans, H.T. Keenan, and S.L. Bratton The population prevalence of children receiving invasive home ventilation in Utah Pediatr Pulmonol 42 2007 231 236
20. S. Oktem, R. Ersu, Z.S. Uyan, E. Cakir, F. Karakoc, and B. Karadag Home ventilation for children with chronic respiratory failure in Istanbul Respiration 76 2008 76 81
21. R.S. Amin, and C.M. Fitton Tracheostomy and home ventilation in children Semin Neonatol 8 2003 127 135
22. J.D. Edwards, S.S. Kun, T.G. Keens, R.G. Khemani, and D.Y. Moromisato Children with corrected or palliated congenital heart disease on home mechanical ventilation Pediatr Pulmonol 45 2010 645 649
23. J.R. Serwint, and M.E. Nellis Deaths of pediatric patients: relevance to their medical home, an urban primary care clinic Pediatrics 115 2005 57 63
24. M.L. Chen, M.A. Tablizo, S. Kun, and T.G. Keens Diaphragm pacers as a treatment for congenital central hypoventilation syndrome Expert Rev Med Devices 2 2005 577 585
25. V.S. Kharasch, S.M. Haley, H.M. Dumas, L.H. Ludlow, and J.E. O'Brien Oxygen and ventilator weaning during inpatient pediatric pulmonary rehabilitation Pediatr Pulmonol 35 2003 280 287
26. J.E. O'Brien, H.M. Dumas, S.M. Haley, B. Ladenheim, J. Mast, and S.A. Burke Ventilator weaning outcomes in chronic respiratory failure in children Int J Rehabil Res 30 2007 171 174
27. S. Srinivasan, S.M. Doty, T.R. White, V.H. Segura, M.T. Jansen, and S.L. Davidson Ward Frequency, causes, and outcome of home ventilator failure Chest 114 1998 1363 1367
28. R.J. Graham, E.W. Fleegler, and W.M. Robinson Chronic ventilator need in the community: a 2005 pediatric census of Massachusetts Pediatrics 119 2007 e1280 e1287