Pediatric nurses' perceptions of obstacles and supportive behaviors in end-of-life care

American Journal of Critical Care

Volumn 19, Issue 6, 2010, Pages 543-552

  Beckstrand, Renea L ^a   Rawle, Nicole L ^a   Callister, Lynn ^a   Mandleco, Barbara L ^a  

^a BRIGHAM YOUNG UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; FEMALE; HEALTH CARE SURVEY; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; MALE; MIDDLE AGED; NURSE; PEDIATRIC NURSING; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT; TERMINAL CARE; UNITED STATES;

ADULT; AGED; ATTITUDE OF HEALTH PERSONNEL; FEMALE; HEALTH CARE SURVEYS; HUMANS; MALE; MIDDLE AGED; NURSES; PEDIATRIC NURSING; PROFESSIONAL-FAMILY RELATIONS; SOCIAL SUPPORT; TERMINAL CARE; UNITED STATES; YOUNG ADULT;

EID: 78249249594     PISSN: 10623264     EISSN: None     Source Type: Journal    
DOI: 10.4037/ajcc2009497     Document Type: Article

References (43)

1. About children's hospice, palliative and end-of-life care. Childrens Hospice International Web site: http://www.chionline.org/resources/about.php. Accessed November 17, 2009.
2. IPPC's focus. Initiative for Pediatric Palliative Care Web site. http://www.ippcweb.org/about.asp. Accessed November 25, 2009.
3. Field MJ, Behrman RE, eds. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: National Academy Press; 2003.
4. Davies B, Sehring SA, Partridge JC, et al. Barriers to palliative care for children: perceptions of pediatric health care providers. Pediatrics. 2008; 121(2):282-288.
5. Contro NA, Larson J, Scofield S, Sourkes B, Cohen HJ. Hospital staff and family perspectives regarding quality of pediatric palliative care. Pediatrics. 2004; 114(5):1248-1252.
6. Lee KJ, Dupree CY. Staff experiences with end-of-life care in the pediatric intensive care unit. J Palliat Med. 2008;11(7): 986-990.
7. Burns J P, Mitchell C, Griffith JL, Truog RD. End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses. Crit Care Med. 2001; 29(3):658-664.
8. Rushton CH, Reder E, Hall B, Comello K, Sellers DE, Hutton N. Interdisciplinary interventions to improve pediatric palliative care and reduce health care professional suffering. J Palliat Med. 2006; 9(4):922-933.
9. Beckstrand RL, Kirchhoff KT. Providing end-of-life care to patients: critical nurses' perceived obstacles and supportive behaviors. Am J Crit Care. 2005;14(5):395-403.
10. Solomon MZ, Sellers DE, Heller KS, et al. New and lingering controversies in pediatric end-of-life care. Pediatrics. 2005; 116(4):872-883.
11. Beckstrand RL, Smith MD, Heaston S, Bond AE. Emergency nurses' perceptions of size, frequency, and magnitude of obstacles and supportive behaviors in end-of-life care. J Emerg Nurs. 2008;34(4):290-300.
12. Beckstrand RL, Moore J F, Callister LC, Bond AE. Oncology nurses' perceptions of obstacles and supportive behaviors at the end of life. Oncol Nurs Forum. 2009;36(4):446-453.
13. Kirchhoff KT. Design of questionnaires and structured interviews. In: Matea MA, Kirchhoff K T, eds. Using and Conducting Nursing Research in the Clinical Setting. 2nd ed. Philadelphia, PA: WB Saunders Co; 1999:229-239.
14. Sawatzky JA. Stress in critical care nurses: actual and perceived. Heart Lung. 1996;25(5):409-417.
15. Ferrell B, Virani R, Grant M, Coyne P, Uman G. Beyond the Supreme Court decision: nursing perspectives on end-of-life care. Oncol Nurs Forum. 2000;27(3):445-455.
16. Contro N, Larson J, Scofield S, Sourkes B, Cohen H. Family perspectives on the quality of pediatric palliative care. Arch Pediatr Adolesc Med. 2002;156(1):14-19.
17. Engler AJ, Cusson RM, Brockett RT, et al. Neonatal staff and advanced practice nurses' perceptions of bereavement/end-of-life care of families of critically ill and/or dying infants. Am J Crit Care. 2004;13(6):489-498.
18. Terhune CP. "Can we talk?" Using critical self-reflection and dialogue to build diversity and change organizational culture in nursing schools. J Cult Divers. 2006;13(3):141-145.
19. Curtis JR, Patrick DL. How to discuss dying and death in the ICU. In: Curtis JR, Rubenfeld GD, eds. Managing Death in the ICU: The Transition From Cure to Comfort. New York, NY: Oxford University Press; 2001:85-102.
20. Rushton CH. A framework for integrated pediatric palliative care: being with dying. J Pediatr Nurs. 2005;20(5):311-325.
21. Davies B, Connaughty S. Pediatric end-of-life care: lessons learned from parents. J Nurs Adm. 2002;32(1):5-6.
22. Mack JW, Hilden JM, Watterson J, et al. Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol. 2005;23(36):9155-9161.
23. Kaufman SR. Intensive care, old age, and the problem of death in America. Gerontologist. 1998;38:715-725.
24. Robichaux CM, Clark AP. Practice of expert critical care nurses in situations of prognostic conflict at the end of life. Am J Crit Care. 2006;15(5):480-491.
25. Prendergast TJ, Puntillo KA. Withdrawal of life support: intensive caring at the end of life. JAMA. 2002;288(21):2732-2740.
26. Solomon MZ, O'Donnell L, Jennings B, et al. Decisions near the end of life: professional views on life-sustaining treatments. Am J Public Health. 1993;83(1):14-23.
27. Beckstrand RL, Calllister LC, Kirchhoff K T. Providing a "good death": critical care nurses' suggestions for improving end-of-life care. Am J Crit Care. 2006;15:38-45.
28. Brandon D, Docherty SL, Thorpe J. Infant and child deaths in acute care settings: implications for palliative care. J Palliat Med. 2007;10(4):910-918.
29. Wiegand DM. Withdrawal of life-sustaining therapy after sudden, unexpected, life-threatening illness or injury: interactions between patients' families, healthcare providers, and the healthcare system. Am J Crit Care. 2006;15:178-187.
30. Vats TS, Reynolds PD. Pediatric hospital dying trajectories: what we learned and can share. Pediatr Nurs. 2006;32(4):386-392.
31. American Academy of Pediatrics, Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics. 2000;106(2, pt 1):351-357.
32. Sahler OJ, Frager G, Levetown M, Cohn FG, Lipson MA. Medical education about end-of-life care in the pediatric setting: principles, challenges, and opportunities. Pediatrics. 2000; 105(3, pt 1):575-584.
33. Miller PA, Forbes S, Boyle DK. End-of-life care in the intensive care unit: a challenge for nurses. Am J Crit Care. 2001;10(4): 230-237.
34. Feudtner C, Santucci G, Feinstein JA, Snyder CR, Rourke M T, Kang TI. Hopeful thinking and level of comfort regarding providing pediatric palliative care: a survey of hospital nurses. Pediatrics. 2007;119(1):e186-e192.
35. Sentinel event alert: medication errors related to potentially dangerous abbreviations. Joint Commission Web site. http://www.jointcommission.org/SentinelEvents/SentinelEventAlert/sea_23.htm. Issue 23. Published September 1, 2001. Accessed November 19, 2009.
36. Andresen EM, Seecharan GA, Toce SS. Provider perceptions of child deaths. Arch Pediatr Adolesc Med. 2004;158(5):430-435.
37. Meyer E, Burns J P, Griffith JL, Truog RD. Parental perspectives on end-of-life care in the pediatric intensive care unit. Crit Care Med. 2002;30(1):226-231.
38. Dussel V, Kreicbergs U, Hilden JM, et al. Looking beyond where children die: determinants and effects of planning a child's location of death. J Pain Symptom Manage. 2009;37(1):33-43.
39. Himelstein B P, Hilden JM, Boldt AM, Weissman D. Pediatric palliative care. N Engl J Med. 2004; 350(17):1753-1762.
40. Definition of palliative. Dictionary.com Web site. http://dictionary.reference.com/browse/palliative. Accessed November 19, 2009.
41. Rollins JA. New initiatives in end-of-life care. Pediatr Nurs. 2002;28(3):292-293.
42. Wolfe J, Klar N, Grier HE, et al. Understanding of prognosis among parents of children who died of cancer: impact on treatment goals and integration of palliative care. JAMA. 2000;284(19):2469-2475.
43. Kane J, Barber R, Jordan M, Tichenor K T, Camp K. Supportive/palliative care of children suffering from life-threatening and terminal illness. Am J Hosp Palliat Care. 2000;17(3):165-172.