The Family Education Diabetes Series (FEDS): Community-based participatory research with a midwestern American Indian community

Nursing Inquiry

Volumn 17, Issue 4, 2010, Pages 359-372

  Mendenhall, Tai J ^a   Berge, Jerica M ^a   Harper, Peter ^a   GreenCrow, Betty ^b   LittleWalker, Nan ^b   WhiteEagle, Sheila ^b   BrownOwl, Steve ^b  

^a UNIVERSITY OF MINNESOTA MEDICAL SCHOOL   (United States)

^b St Paul Area Council of Churches   (United States)

Author keywords

Action research; American Indians; Community based participatory research; Diabetes; Indigenous people; Obesity

Indexed keywords

ADULT; AGED; AMERICAN INDIAN; ARTICLE; DEMOGRAPHY; DIABETES MELLITUS; ETHNOLOGY; FAMILY HEALTH; FEMALE; HEALTH CARE QUALITY; HUMAN; MALE; METHODOLOGY; MIDDLE AGED; OBESITY; PARTICIPATORY RESEARCH; PATIENT EDUCATION; PILOT STUDY; PROGRAM DEVELOPMENT; SOCIAL PSYCHOLOGY; STATISTICS; UNITED STATES;

ADULT; AGED; AGED, 80 AND OVER; COMMUNITY-BASED PARTICIPATORY RESEARCH; DIABETES MELLITUS; FAMILY HEALTH; FEMALE; HUMANS; INDIANS, NORTH AMERICAN; MALE; MIDDLE AGED; MIDWESTERN UNITED STATES; OBESITY; PATIENT EDUCATION AS TOPIC; PILOT PROJECTS; PREJUDICE; PROGRAM DEVELOPMENT; PROGRAM EVALUATION; RESIDENCE CHARACTERISTICS; STATISTICS AS TOPIC; YOUNG ADULT;

EID: 78149379718     PISSN: 13207881     EISSN: 14401800     Source Type: Journal    
DOI: 10.1111/j.1440-1800.2010.00508.x     Document Type: Article

References (85)

1. Agency for Healthcare Research and Quality. 2004. Community-based participatory research: Assessing the evidence. Rockville, MD: AHRC.
2. American Indian Policy Center. 2010. Introductory data on American Indians. St Paul, MN: Center for Urban and Regional Affairs, University of Minnesota.
3. Baum Fran, Colin MacDougall and Danielle Smith 2006. Participatory action research. Journal of Epidemiology and Community Health 60: 854-7.
4. Bell John, Gail Cheney, Cindy Hoots, Elaine Kohrman, Jesse Schubert, Lisa Stidham and Scott Traynor 2004. Comparative similarities and differences between action research, participative research, and participatory action research. Seattle, WA: Antioch University Seattle.
5. Berge Jerica, Tai Mendenhall and William Doherty 2009. Using community-based participatory research to target health disparities. Family Relations 58: 475-88.
6. Bindon James and Paul Baker 1997. Bergmann's rule and the thrifty genotype. American Journal of Physical Anthropology 104: 201-10.
7. Bogart Laura and Kimberly Uyeda 2009. Community-based participatory research: Partnering with communities for effective and sustainable behavioral health interventions. Health Psychology 28: 391-3.
8. Bradbury Hilary and Peter Reason 2003. Action research: An opportunity for revitalizing research purpose and practices. Qualitative Social Work 2: 155-75.
9. Braithwaite Rhonda, Sarah Cockwill, Martin O'Neill and Deanne Rebane 2007. Insider participatory action research in disadvantaged post-industrial areas: The experiences of community members as they become community based action researchers. Action Research 5: 61-74.
10. Brugge Doug, Edna Rivera-Carrasco, Jean Zotter and Alice Leung 2010. Community-based participatory research in Boston's neighborhoods: A review of asthma case examples. Archives of Environmental and Occupational Health 65: 38-44.
11. Burhansstipanov Linda, Suzanne Christopher and Ann Schumacher Sr. 2005. Lessons learned from community-based participatory research in Indian country. Cancer Control: Cancer, Culture and Literacy 12 (Supplement 2) 70-6.
12. Byrne Elaine and Sundeep Sahay 2006. Participatory design for social development: A South African case study on community-based health information systems. Information Technology for Development 13: 71-94.
13. Cammarota Julio and Michelle Fine 2008. Revolutionizing education: Youth participatory action research in motion. New York: Routledge.
14. Carter Janette, Susan Gilliland, Georgia Perez, Sarah Levin, Brenda Broussard, Lorraine Valdez, Leslie Cunningham-Sabo and Sally Davis 1997. Native American Diabetes Project: Designing culturally relevant education materials. The Diabetes Educator 23: 133-4.
15. Castro Sarah, Mary O'Toole, Carol Brownson, Kimberly Plessel and Laura Schauben 2009. A diabetes self-management program designed for urban American Indians. Public Health Research, Practice, and Policy 6: 1-8.
16. Centers for Disease Control and Prevention. 2009. Diabetes data and trends. (accessed on September 13, 2010).
17. Centers for Disease Control and Prevention. 2009. Men's health. (accessed on September 13, 2010).
18. Chateau-Degat Marie-Ludivine, Daria Pereg, Grace Egeland, Evert Nieboer, Yv Bonnier-Viger, Elhadji Laouan-Sidi, David Dannenbaum and Eric Dewailly 2009. Diabetes and related metabolic conditions in an aboriginal Cree community of Quebec, Canada. Canadian Journal of Diabetes 33: 156-62.
19. Chavez Vivian, Bonnie Duran, Quniton Baker, Magdalena Avila and Nina Wallerstein 2003. The dance of race and privilege in community-based participatory research. In Community based participatory research for health, eds Meredith Minkler and Nina Wallerstein, 81-97. San Francisco, CA: Jossey-Bass.
20. Classen Lauren, Sally Humphries, John Fitzsimons, Susan Kaaria, Jose Jimenez, Fredy Sierra and Omar Gallardo 2008. Opening participatory spaces for the most marginal: Learning from collective action in the Honduran hillsides. World Development 36: 2402-20.
21. Cohen Jacob. 1988. Statistical power analysis for the behavioral sciences, 2nd edn. Hillsdale, NJ: Erlbaum.
22. Cornwall Andrea and Rachel Jewkes 1995. What is participatory research? Social Science Medicine 41: 1667-76.
23. Davis Sally and Raymond Reid 1999. Practicing participatory research in American Indian communities. American Journal of Clinical Nutrition 69: 755S-9S.
24. Doherty William and Tai Mendenhall 2006. Citizen health care: A model for engaging patients, families, and communities as co-producers of health. Families, Systems & Health 24: 357-62.
25. Doherty William, Tai Mendenhall and Jerica Berge In press. The families & democracy and Citizen Health Care Project. Journal of Marital and Family Therapy.
26. Edwards Karen, Carrielynn Lund, Steven Mitchell and Neil Anderson 2008. Trust the process: Community-based research partnerships. Journal of Aboriginal and Indigenous Community Health 6: 187-99.
27. Garwick Ann and Sally Auger 2003. Participatory action research: The Indian Family Stories Project. Nursing Outlook 51: 261-6.
28. Gilliland Susan, Stanley Azen, Georgia Perez and Janet Carter 2002. Strong in body and spirit: Lifestyle intervention for Native American adults with diabetes in New Mexico. Diabetes Care 25: 78-83.
29. Gone Joseph. 2006. Researching reservations: Response and responsibility in an American Indian community. American Journal of Community Psychology 37: 333-40.
30. Gracey Michael and Malcolm King 2009. Indigenous health part 1: Determinants and disease patterns. The Lancet 374: 65-75.
31. Hampshire Amanda, Mitch Blair, Nicola Crown, Anthony Avery and Idris Williams 1999. Action research: A useful method of promoting change in primary care? Family Practice 16: 305-11.
32. Heron John and Peter Reason 2001. The practice of co-operative inquiry: Research 'with' rather than 'on' people. In Handbook of action research: Participative inquiry and practice, eds Peter Reason and Hillary Bradbury, 179-88. London: Sage.
33. Hood Virgina, Kelly Benson, Charlene Martinez and Roger Secker-Walker 1997. A Native American community initiative to prevent diabetes. Ethnicity and Health 4: 277-88.
34. Indian Health Service. 2005. Trends in Indian health. Rockville, MD: US Department of Health and Human Services.
35. Jiang Luohua, Yvette Roubideaux, Jeanette Beals, Spero Manson and Nancy Witesell 2008. Stress burden and diabetes in two American Indian reservation communities. Diabetes Care 31: 427-9.
36. Kahn Wasqas and Imran Khan 2009. Solutions to issues of equity in primary healthcare for Aboriginal people living in Canada. Hypothesis 8: 1-6.
37. Kelly James, Lynne Mock and Darius Tandon 2001. Collaborative inquiry with African American community leaders: Comments on a participatory action research process. In Handbook of action research, eds Peter Reason and Hilary Bradury, 348-55. London: Sage.
38. Keltner Bette, Francis Kelley and Debra Smith 2004. Leadership to reduce health disparities: A model for nursing leadership in American Indian communities. Nursing Administration Quarterly 28: 181-90.
39. Kemmis Stephen and Robin McTaggart 2000. Participatory action research. In Handbook of qualitative research, eds Norman Denzin and Yvonna Lincoln, 567-605. Thousand Oaks, CA: Sage.
40. King Gail. 2004. Type II diabetes: The modern epidemic of American Indians in the United States. (accessed on September 13, 2010).
41. King Malcolm, Alexandra Smith and Michael Gracey 2009. Indigenous health part 2: The underlying causes of the health gap. The Lancet 374: 76-85.
42. Kramer Josea. 1992. Health and aging of urban American Indians. Western Journal of Medicine 157: 281-5.
43. LaVeauz Deborah and Suzanne Christopher 2009. Contextualizing CBPR: Key principles of CBPR meet the indigenous research context. Journal of Aboriginal and Indigenous Community Health 7: 1-25.
44. LeMaster Pamela and Cathleen Connell 1994. Health education interventions among Native Americans: A review and analysis. Health Education Quarterly 21: 521-38.
45. Lewin Kurt. 1946. Action research and minority problems. Journal of Social Issues 2: 34-46.
46. Lewis Kristi, David Sallee, Judith Trumbo and Kathryn Janousek 2010. Use of community-based participatory research methods in adults' health assessment. Journal of Applied Psychology 40: 195-211.
47. Lindsey Elizabeth and Liza McGuinness 1998. Significant elements of community involvement in participatory action research: Evidence from a community project. Journal of Advanced Nursing 28: 1106-14.
48. Ludema James, David Cooperrider and Frank Barrett 2001. Appreciative inquiry: The power of the unconditional positive question. In Handbook of action research, eds Peter Reason and Hilary Bradury, 189-99. London: Sage.
49. Mendenhall Tai. 2002. Partners in diabetes: The process and evolution of a democratic citizenship initiative in a medical context. PhD diss., University of Minnesota.
50. Mendenhall Tai and William Doherty 2005. Action research methods in family therapy. In Research methods in family therapy, 2nd edn, eds Fred Piercy and Douglas Sprenkle, 100-17. New York, NY: Guilford Publications.
51. Mendenhall Tai and William Doherty 2007. The ANGELS (A Neighbor Giving Encouragement, Love and Support): A collaborative project for teens with diabetes. In The therapist's notebook for family healthcare, eds Deanna Linville and Katherine Hertlein, 56-70. New York: Apex Press.
52. Meyer Julienne. 2000. Using qualitative methods in health related action research. British Medical Journal 320: 178-81.
53. Minkler Meredith. 2002. Introduction and overview. In Community organizing and community building for health, ed. Meredith Minkler, 3-19. New Brunswick, NJ: Rutgers University Press.
54. Minkler Meredith and Nina Wallerstein 2003. Introduction to community-based participatory research. In Community-based participatory research for health, eds Meredith Minkler and Nina Wallerstein, 3-26. San Francisco, CA: Jossey Bass.
55. Minkler Meredith, Angela Blackwell, Mildred Thompson and Heather Tamir 2003. Community-based participatory research: Implications for public health funding. American Journal of Public Health 93: 1210-3.
56. National Diabetes Information Clearing House. 2002. Diabetes in American Indians and Alaska Natives. (accessed on September 13, 2010).
57. National Heart Lung and Blood Institute. 2004. National high blood pressure education program (NHBPEP). (accessed on September 13, 2010).
58. National Institute of Diabetes and Digestive and Kidney Diseases. 2007. National diabetes statistics. (accessed on September 13, 2010).
59. National Institutes for Health. 2010. Health promotion among racial and ethnic minority males (R01). (accessed on September 13, 2010).
60. Oster Richard and Ellen Toth 2009. Differences in the prevalence of diabetes risk-factors among First Nation, Metis and non-Aboriginal adults attending screening clinics in rural Alberta, Canada. Rural and Remote Health 9, June 1. (accessed on September 13, 2010).
61. Pan American Health Organization. 2004. Participatory evaluation of healthy municipalities: A practical resource kit for action (field-testing version). Washington, DC: Pan American Health Organization.
62. Ponchilla Susan. 1993. The effect of cultural beliefs on the treatment of native peoples with diabetes and visual impairment. Journal of Visual Impairment and Blindness 93: 333-7.
63. Potvin Louise, Margaret Cargo, Alex McComber, Treena Delormier and Ann Macaulay 2003. Implementing participatory intervention and research in communities: Lessons from the Kahnawake Schools Diabetes Prevention Project in Canada. Social Science Medicine 56: 1295-305.
64. Pyrch Timothy. 2007. Participatory action research and the culture of fear: Resistance, community, hope and courage. Action Research 5: 199-216.
65. Pyrch Timothy and Maria Castillo 2001. The sights and sounds of Indigenous knowledge. In Handbook of action research, eds Peter Reason and Hilary Bradury, 379-85. London: Sage.
66. Rahman Anisor and Orlando Fals-Borda 1991. A self-review of PAR in action and knowledge: Breaking the monopoly with participatory action research. London: Intermediate Technology Publications.
67. Rhoades Dorothy and Dedra Buchwald 2003. Hypertension in older urban Native-American primary care patients. Journal of the American Geriatrics Society 51: 774-81.
68. Roberts Henry, Ruth Jiles, Ali Mokdad, Gloria Beckles and Nilka Rios-Burrows 2009. Trend analysis of diagnosed diabetes prevalence among American Indian/Alaska Native young adults - United States, 1994-2007. Ethnicity & Disease 19: 276-9.
69. Rosenthal R. 1984. Meta-analytic procedures for social research. Beverly Hills, CA: Sage.
70. Sahmoun Abe, Mary Markland and Steven Helgerson 2007. Mental health status and diabetes among Whites and Native Americans: Is race an effect modifier? Journal of Health Care for the Poor and Underserved 18: 599-608.
71. Scharff Darcell and Katherine Mathews 2008. Working with communities to translate research into practice. Journal of Public Health Management Practice 14: 94-8.
72. Schulz Amy, Barbara Israel, Edith Parker, Murlisa Lockett, Yolanda Hill and Rochelle Wills 2003. Engaging women in community-based participatory research for health: The east side village health worker partnership. In Community based participatory research for health, eds Meredith Minkler and Nina Wallerstein, 293-315. San Francisco, CA: Jossey-Bass.
73. Statistical Package for the Social Sciences (SPSS/PASW). 2009. Statistical Package for the Social Sciences.
74. Steckler Allan, Becky Ethelbah, Catherine Martin, Dawn Stewart, Marla Pardilla, Joel Gittelsohn, Elaine Stone, David Fenn, Mary Smyth and Maihan Vu 2002. Lessons learned from the Pathways process evaluation. In Process evaluation for public health interventions and research, eds Allan Steckler and Laura Linnan, 268-87. San Francisco, CA: Jossey-Bass.
75. Strickland CJune. 2006. Challenges in community-based participatory research implementation: Experiences in cancer prevention with Pacific Northwest American Indian tribes. Cancer Control 13: 230-6.
76. Taylor Timothy. 1988. Health problems and use of services at two urban American Indian clinics. US Department of Health and Human Services/Public Health Reports 103: 88-95.
77. Tobin Michael. 2000. Developing mental health rehabilitation services in a culturally appropriate context: An action research project involving Arabic-speaking clients. Australian Health Review 23: 177-84.
78. Torre Maria and Michelle Fine 2005. Don't die with your work balled up in your fists: Contesting social injustice through participatory research. In Urban girls revisited: Building strengths, eds Bonnie Ross Leadbeater and Niobe Way, 221-40. New York: New York University Press.
79. United States Census Bureau. 2010. American Indian and Alaska Native data and links. (accessed on September 13, 2010).
80. Urban Indian Health Commission. 2007. Invisible tribes: Urban Indians and their health in a changing world. (accessed on September 13, 2010).
81. Urban Indian Health Institute. 2004. The health status of urban American Indians and Alaska Natives: An analysis of select vital records and census data sources. Seattle, WA: Urban Indian Health Institute.
82. Wallerstein Nina and Bonnie Duran 2006. Using community-based participatory research to address health disparities. Health Promotion Practice 7: 312-23.
83. Ward Karen and JordanS Trigler 2001. Reflections on participatory action research with people who have developmental disabilities. Mental Retardation 39: 57-9.
84. WhiteEagle Shelia. 2005. Greater twin-cities united way: Addressing gaps in service. St Paul, MN: Saint Paul Area Council of Churches/Department of Indian Work.
85. Wilson Val, Aileen Ho and Raelene Walsh 2007. Participatory action research and action learning: Changing clinical practice in nursing handover and communication. Journal of Children's and Young People's Nursing 1: 85-92.