Growing up with the families of β-thalassaemia major using an accelerated longitudinal design

Indian Journal of Medical Research

Volumn 132, Issue 10, 2010, Pages 428-437

  Khairkar, Praveen ^a,b   Malhotra, Savita ^a   Marwaha, Ramkumar ^a  

^a POSTGRADUATE INSTITUTE OF MEDICAL EDUCATION AND RESEARCH   (India)

^b DATTA MEGHE INSTITUTE OF MEDICAL SCIENCES   (India)

Author keywords

thalassaemia; Accelerated longitudinal design; Developmental epidemiology; Psychosocial aspects; Reaction to illness

Indexed keywords

ADJUSTMENT DISORDER; ADULT; ANXIETY DISORDER; ARTICLE; BETA THALASSEMIA; CHILD; DEPRESSION; FAMILIAL DISEASE; FEMALE; GENETIC EPIDEMIOLOGY; HOPELESSNESS; HUMAN; INDIA; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MEMORY DISORDER; MENTAL DISEASE; MENTAL HEALTH; PRESCHOOL CHILD; PROSPECTIVE STUDY; QUALITY OF LIFE; SCHOOL CHILD; SEPARATION ANXIETY; SOCIAL PSYCHOLOGY; SOMATOFORM DISORDER; TERTIARY HEALTH CARE; THALASSEMIA MAJOR; ATTITUDE TO HEALTH; FAMILY; INFORMATION PROCESSING; METHODOLOGY; NONPARAMETRIC TEST; PARENT; PSYCHOLOGICAL ASPECT; PSYCHOLOGY;

ADJUSTMENT DISORDERS; ADULT; ANXIETY DISORDERS; ATTITUDE TO HEALTH; BETA-THALASSEMIA; CHILD; DATA COLLECTION; DEPRESSIVE DISORDER; FAMILY; HUMANS; INDIA; LONGITUDINAL STUDIES; PARENTS; PSYCHOLOGY; QUALITY OF LIFE; SOMATOFORM DISORDERS; STATISTICS, NONPARAMETRIC;

EID: 78049472245     PISSN: 09715916     EISSN: 09715916     Source Type: Journal    
DOI: None     Document Type: Article

References (33)

1. Rao P, Pradhan PV, Shah H. Psychopathology and coping in parents of chronically ill children. Indian J Pediatr 2004; 71: 695-699.
2. Shaligram D, Girimaji SC, Chaturvedi SK. Quality of life issues in caregivers of youngsters with thalassemia. Indian J Pediatr 2007; 74: 275-278.
3. Moorjani JD, Issac C. Neurotic manifestations in adolescent with thalassemia. Indian J Pediatr 2006; 73: 603-607.
4. Olivieri NF. The beta thalassemia. N Engl J Med 1999; 341: 99-109.
5. Kellam SG, Van Horn YV. Life course development, community epidemiology, and preventive trials: A scientific structure for prevention and research. Am J Commun Psychol 1997; 25: 725-731.
6. Miyazaki Y, Raudenbush SW. Tests for linkage of multiple groups in an accelerated longitudinal design. J Res Crime Delinquency 2000; 5: 44-63.
7. Spirito A, Stark LJ, Williams C. Development of a brief checklist to assess coping in pediatric patients. J Pediatr Psychol 1988; 13: 555-574.
8. World Health Organization. International classification of diseases: 10th ed. Diagnostic guidelines and clinical description. Geneva, Switzerland: World Health Organization; 1992.
9. Asberg M, Montgomery SA, Perris C, Schalling D, Sedvall G. A comprehensive psychopathological rating scale. Acta Psychiatr Scand 1978; 271 (Suppl): 5-27.
10. Malhotra S, Varma VK, Varma SK, Malhotra A. Childhood Psychopathology Measurement Schedule: Development and Standardization. Indian J Psychiatry 1988; 30: 325-331.
11. Malin AJ. Manual for Malin's intelligence scale for Indian children. Nagpur: Child Guidance Centre; 1969.
12. Wechsler D. Manual for Wechsler intelligence scale for children (Revised). New York: The Psychological Corporation; 1974.
13. Varni JW, Katz ER, Coegrove RC. Family functioning predictors of adjustment in children with newly diagnosed cancer. J Child Psychol Psychiatry 1996; 37: 321-328.
14. Folkman S. Lazarus RS. Manual of ways of coping questionnaire. Palo Alto, CA: Consulting Psychology Press; 1988.
15. WHOQOL Group. The World Health Organization Quality of Life Assessment: Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585.
16. Zani B, DiPalma A, Vullo C. Psychological aspects of chronic illness in adolescents with thalassemia major. J Adolesc 1995; 18: 387-402.
17. Masaglia P, Pozzan MT, Piga A. Psychosocial aspects of thalassemia. Pediatr Med Chir 1986; 8: 27-31.
18. Politis CA, Di Palma A, Fisfeis M. Social integration of the older thalassemic patient. Arch Dis Child 1990; 65: 984-986.
19. Loupthrenoo O, Sittipreechacharn S, Thanarattanakorn P. Psychosocial problems in children with Thalassemia and their siblings. J Med Assoc Thai 2002; 85: 881-885.
20. Goldbeck L, Baving A, Kohne E. Psychosocial aspects of beta thalassemia: distress, loping and adherence. Klin Pediatr 2000; 212: 254-259.
21. Canatan D, Ratip S, Kaptan S. Psychosocial burden of beta thalassemia major in Antalya, South Turkey. Soc Sci Med 2003; 56: 815-819.
22. Tsiantis J, Dragonas TH, Richardson C, Anastasopoulous D, Masera G, Spinetta J. Psychosocial problems and adjustment of children with beta-thalassemia and their families. Eur Child Adolesc Psychiatry 1996; 5: 193-203.
23. Di Palma A, Vullo C, Zani B. Psychosocial integration of adolescents and young adults with thalassemia major. Ann NY Acad Sci 1998; 30: 355-360.
24. Beratis S. Psychosocial status in pre-adolescent children with beta Thalassenua. J Psychosom Res 1993; 37: 271-279.
25. Hoch C, Gobel H, Janssen G. Psychosocial support of patients with homozygous beta thalassemia. Klin Pediatr 2002; 212: 216-219.
26. Bush S, Mandel RS, Giardina PJ. Future orientation and life expectations of adolescents and young adults with thalassemia major. Ann NY Acad Sci 1998; 30: 361-369.
27. Cheuk DK, Mok AS, Lee AC, Chiang AK, Ha SY, Lau YL, et al. Quality of life in patients with transfusion-dependent thalassemia after hematopoietic SCT. Bone Marrow Transplant 2008; 42: 319-327.
28. Ismile A, Campbell MJ, Ibrahim HM, Jones GL. Health related quality of life in Malaysian children with thalassemia. Health Qual Life Outcomes 2006; 4: 1-8.
29. Logathetis J, Haritos-Fatouros M, Constantoulakis M, Economidou J, Augoustaki O, Loewenson RB. Intelligence and behavioral patterns in patients with cooley's anemia (Homozygous beta thalassemia); a study based on 138 consecutive sample. Pediatrics 1973; 48: 740-744.
30. Olsson CA, Bond L, Johnson MW, Forer DL, Boyce MF, Sawyer SM. Adolescent chronic illness: a qualitative study of psychosocial adjustment. Ann Acad Med Singapore 2003; 32: 43-50.
31. Anthony S, Lori JS. Coping with everyday and disease related stressors by chronically ill children and adolescents. J Am Acad Child Adolesc Psychiatry 1995; 71: 134-143.
32. Stuber ML. Psychiatric sequelae in seriously ill children and their families. Psychiatr Clin North Am 1996; 19: 481-493.
33. Ratip S, Modell B. Psychological and sociological aspects of the thalassemias. Sem Hematol 1996; 33: 53-65.