A comparison of quality of life in children with cerebral palsy and neuromuscular diseases

Fizyoterapi Rehabilitasyon

Volumn 21, Issue 1, 2010, Pages 3-10

  Karaduman, Ayşe ^a   Yilmaz, Öznur ^a   Tüzün, Emine H ^b   Kerem Günel, Mintaze ^a   Aras, Bahar ^c   Mutlu, Akmer ^d   Tarsuslu, Tülay ^d   Aras, Özgen ^c  

^a HACETTEPE UNIVERSITY   (Turkey)

^b BASKENT UNIVERSITY   (Turkey)

^c DUMLUPINAR UNIVERSITY   (Turkey)

^d NONE

Author keywords

Cerebral palsy; Child; Disability evaluation; Neuromuscular diseases; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATAXIA; BARTHEL INDEX; CEREBRAL PALSY; CHILD; CHILDHOOD DISEASE; COMPARATIVE STUDY; CONTROLLED STUDY; DUCHENNE MUSCULAR DYSTROPHY; DYSKINESIA; FEMALE; FUNCTIONAL ASSESSMENT; GENERAL HEALTH QUESTIONNAIRE; HEALTH ASSESSMENT QUESTIONNAIRE; HUMAN; LIMB GIRDLE MUSCULAR DYSTROPHY; MAJOR CLINICAL STUDY; MALE; MUSCLE HYPOTONIA; MUSCULAR DYSTROPHY; MYOPATHY; NEUROMUSCULAR DISEASE; NEUROPATHY; PARENTAL STRESS; PRESCHOOL CHILD; QUALITY OF LIFE; SCHOOL CHILD; SPASTICITY;

EID: 78049391640     PISSN: 13008757     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (29)

1. Pharoah PO, Cooke T, Rosenbloom I, et al. Trends in birth prevalence of cerebral palsy. Arch Dis Child. 1987; 62: 379-384.
2. Boyle CA, Yeargin-Allsopp M, Doernberg NS, et al. Prevalence of selected developmental disabilities in children 3-10 years of age: the Metropolitan Adanta Developmental Disabilities Surveillance Program 1991. MMWR CDC Surveill Summ. 1996;45:1-14.
3. Dubowitz W. The Muscular Dystrophies. In: Muscle Disorders in Childhood. Second Edition. WB Saunders Company. London; 1994:34-134.
4. Drougia A, Giapros V, Krallis N, et al. Incidence and risk factors for cerebral palsy in infants with perinatal problems: a 15-year review. Early Hum. Dev. 2007; 83: 541-547.
5. Tangsrud SE, Halvorsen S. Child neuromuscular disease in southern Norway. Prevalence, age and distribution of diagnosis with special reference to non-Duchenne muscular dystrophy. Clin Genet. 1988;34:145-152.
6. Ahlström G, Gunnarsson LG, Leissner P, et al. Epidemiology of neuromuscular diseases, including the postpolio sequelae, in a Swedish county. Neuroepidemiology. 1993;12:262-269. (Pubitemid 24019431)
7. Merlini L, Stagni SB, Marri E, et al. Epidemiology of neuromuscular disorders in the under-20 population in Bologna Province, Italy. Neuromuscul Disord. 1992;2:197-200.
8. Serdaroǧlu A, Cansu A, Ozkan S, et al. Prevalence of cerebral palsy in Turkish children between the ages of 2 and 16 years. Dev Med Child Neurol. 2006;48:413-416.
9. Tunca O, Karaduman A, Aras O. Nöromusküler hastaliklarda fizyoterapi rehabilitasyonun aile ve çocuk üzerindeki etkileri. Fizyoter Rehabil. 1996;8:7-12.
10. Livingston MH, Rosenbaum PL, Russell DJ, et al. Quality of life among adolescents with cerebral palsy: what does the, literature tell us? Dev Med Child Neurol. 2007;49:225-231.
11. Piccininni M, Falsini C, Pizzi A. Quality of life in hereditary neuromuscular diseases. Acta Neurol Scand. 2004;109:113-119.
12. Uchikawa K, Liu M, Hanayama K, et al. Fuctional status and muscle strength in people with Duchenne muscular dystrophy living in the community. J Rehabil Med. 2004;36:124-129.
13. Colver A. SPARCLE group. Study protocol: SPARCLE- a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy. BMC Public Health. 2006;6:105.
14. WHOQOL Assesment Group. Development and general psychometric properties. Soc Sci Med. 1998;46:1569-1855.
15. World Health Organization. Preamble to the Constitution of the World Health Organization. International Health Conference. New York, 19-22 June, 1946. (Official Records of the World Health Organization,no2,p 100) http://www.who.int/about/definition/en/print.html, 2003.
16. Landgraft JM, Abetz L, Ware JE. In The CHQ User's Manual. Boston: The Health Institute, New England Medical Center; 1996.
17. Ozdogan H, Ruperto N, Kasapçopur O, et al. The Turkish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol. 2001; 19(4 Suppl 23):158-162.
18. Küçükdeveci AA, Yavuzer G, Tennant BA, et al. Adaptation of the modified Barthel index for use in physical medicine and rehabilitation in Turkey. Scand J Rehabil Med. 2000;32:87-92.
19. Raina P, O'Donnell, Rosenbaum P, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115:e626-636.
20. Nereo NE, Fee RJ, Hinton VJ. Parental stress in mothers of boys with duchenne muscular dystrophy. J Pediatr Psychol. 2003;28:473-484.
21. Natterlund B, Ahlstrom G. Activities of daily living and quality of life in persons with muscular dystrophy. J Rehabil Med. 2001;33:206-211.
22. Hinton VJ, Fee RJ, Goldstein EM, et al. Verbal and memory skills in males with Duchenne muscular dystrophy. Dev Med Child Neurol. 2007;49:123-128.
23. Dickinson H, Parkinson K, McManus V, et al. Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy. BMC Public Health. 2006;6: 273.
24. Rosenbaum PL, Livingston MH, Palisano RJ, et al. Quality of life and health-related quality of life of adolescents with cerebral palsy. Dev Med Child Neurol. 2007;49:516-521.
25. Schneider JW, Gurucharri LM, Gutierrez AL, et al. Health related quality of life and functional outcome measures for children with cerebral palsy. Dev Med Child Neurol. 2001;43:601-608.
26. Wake M, Salmon L, Reddihough D. Health status of Australian children with mild to severe cerebral palsy: cross-sectional survey using the Child Health Questionnaire. Dev Med Child Neurol. 2003;45:194-199.
27. Bakker JP, De Groot IJ, Beelen A, et al. Predictive factors of cessation of ambulation in patients with Duchenne Muscular Dystrophy. Am J Phys Med Rehabil. 2002;81:906-912.
28. Wiley R, Renk K. Psychological correlates of quality of life in children with cerebral palsy. J Dev Phys Disabil. 2007;19:427-447.
29. Curran AL, Sharpies PM, White C, et al. Time costs of caring for children with severe disabilities compared with caring for children without disabilities. Dev Med Child Neurol. 2001;43:529-533.