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Volumn 86, Issue 11, 2010, Pages 723-728

The how (and why) of disease registers

Author keywords

Audit; Database; Outcome; Rare disease; Register design; Screening

Indexed keywords

ARTICLE; CYSTIC FIBROSIS; DISEASE REGISTRY; EUROPE; HUMAN; INFORMATION PROCESSING; MEDICAL AUDIT; MEDICAL SPECIALIST; NEWBORN SCREENING; OUTCOME ASSESSMENT; PATIENT REFERRAL; STANDARD; UNITED KINGDOM;

EID: 78049259974     PISSN: 03783782     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.earlhumdev.2010.08.006     Document Type: Article
Times cited : (21)

References (12)
  • 1
    • 77949728437 scopus 로고    scopus 로고
    • Comparative demographics of the European cystic fibrosis population: a cross-sectional database analysis
    • McCormick J., Mehta G., Olesen H.V., Viviani L., Macek M., Mehta A. Comparative demographics of the European cystic fibrosis population: a cross-sectional database analysis. Lancet 2010, 375(9719):1007-1013.
    • (2010) Lancet , vol.375 , Issue.9719 , pp. 1007-1013
    • McCormick, J.1    Mehta, G.2    Olesen, H.V.3    Viviani, L.4    Macek, M.5    Mehta, A.6
  • 2
    • 33847711906 scopus 로고    scopus 로고
    • Cystic fibrosis mortality and survival in the UK: 1947-2003
    • Dodge J.A., Lewis P.A., Stanton M., Wilsher J. Cystic fibrosis mortality and survival in the UK: 1947-2003. Eur Respir J 2007, 29(3):522-526.
    • (2007) Eur Respir J , vol.29 , Issue.3 , pp. 522-526
    • Dodge, J.A.1    Lewis, P.A.2    Stanton, M.3    Wilsher, J.4
  • 3
    • 0036801803 scopus 로고    scopus 로고
    • Demographics of the UK cystic fibrosis population: implications for neonatal screening
    • McCormick J., Green M.W., Mehta G., Culross F., Mehta A. Demographics of the UK cystic fibrosis population: implications for neonatal screening. Eur J Hum Genet 2002, 10(10):583-590.
    • (2002) Eur J Hum Genet , vol.10 , Issue.10 , pp. 583-590
    • McCormick, J.1    Green, M.W.2    Mehta, G.3    Culross, F.4    Mehta, A.5
  • 4
    • 2542493405 scopus 로고    scopus 로고
    • Potential benefits of the UK Cystic Fibrosis Database
    • Mehta G., Sims E.J., Culross F., McCormick J.D., Mehta A. Potential benefits of the UK Cystic Fibrosis Database. J R Soc Med 2004, 97(Suppl 44):60-71.
    • (2004) J R Soc Med , vol.97 , Issue.SUPPL. 44 , pp. 60-71
    • Mehta, G.1    Sims, E.J.2    Culross, F.3    McCormick, J.D.4    Mehta, A.5
  • 5
    • 0033541555 scopus 로고    scopus 로고
    • High-quality clinical databases: breaking down barriers
    • Black N. High-quality clinical databases: breaking down barriers. Lancet 1999, 353(9160):1205-1206.
    • (1999) Lancet , vol.353 , Issue.9160 , pp. 1205-1206
    • Black, N.1
  • 6
    • 21544459045 scopus 로고    scopus 로고
    • Decreased lung function in female but not male subjects with established cystic fibrosis-related diabetes
    • Sims E.J., Green M.W., Mehta A. Decreased lung function in female but not male subjects with established cystic fibrosis-related diabetes. Diab Care 2005, 28(7):1581-1587.
    • (2005) Diab Care , vol.28 , Issue.7 , pp. 1581-1587
    • Sims, E.J.1    Green, M.W.2    Mehta, A.3
  • 7
    • 1542267792 scopus 로고    scopus 로고
    • Association between initial disease presentation, lung disease outcomes, and survival in patients with cystic fibrosis
    • Lai H.J., Cheng Y., Cho H., Kosorok M.R., Farrell P.M. Association between initial disease presentation, lung disease outcomes, and survival in patients with cystic fibrosis. Am J Epidemiol 2004, 159(6):537-546.
    • (2004) Am J Epidemiol , vol.159 , Issue.6 , pp. 537-546
    • Lai, H.J.1    Cheng, Y.2    Cho, H.3    Kosorok, M.R.4    Farrell, P.M.5
  • 8
    • 0031916045 scopus 로고    scopus 로고
    • Relationship between socioeconomic status and disease severity in cystic fibrosis
    • Schechter M.S., Margolis P.A. Relationship between socioeconomic status and disease severity in cystic fibrosis. J Pediatr 1998, 132(2):260-264.
    • (1998) J Pediatr , vol.132 , Issue.2 , pp. 260-264
    • Schechter, M.S.1    Margolis, P.A.2
  • 9
    • 71749105530 scopus 로고    scopus 로고
    • Association of socioeconomic status with the use of chronic therapies and healthcare utilization in children with cystic fibrosis
    • Schechter M.S., McColley S.A., Silva S., Haselkorn T., Konstan M.W., Wagener J.S. Association of socioeconomic status with the use of chronic therapies and healthcare utilization in children with cystic fibrosis. J Pediatr 2009, 155(5):634-639.
    • (2009) J Pediatr , vol.155 , Issue.5 , pp. 634-639
    • Schechter, M.S.1    McColley, S.A.2    Silva, S.3    Haselkorn, T.4    Konstan, M.W.5    Wagener, J.S.6
  • 10
    • 33846924392 scopus 로고    scopus 로고
    • The meaning of "early" diagnosis in a new era of cystic fibrosis care
    • Farrell P.M. The meaning of "early" diagnosis in a new era of cystic fibrosis care. Pediatrics 2007, 119(1):156-157.
    • (2007) Pediatrics , vol.119 , Issue.1 , pp. 156-157
    • Farrell, P.M.1
  • 11
    • 34047269755 scopus 로고    scopus 로고
    • Economic implications of newborn screening for cystic fibrosis: a cost of illness retrospective cohort study
    • Sims E.J., Mugford M., Clark A., Aitken D., McCormick J., Mehta G., et al. Economic implications of newborn screening for cystic fibrosis: a cost of illness retrospective cohort study. Lancet 2007, 369(9568):1187-1195.
    • (2007) Lancet , vol.369 , Issue.9568 , pp. 1187-1195
    • Sims, E.J.1    Mugford, M.2    Clark, A.3    Aitken, D.4    McCormick, J.5    Mehta, G.6
  • 12
    • 20944443515 scopus 로고    scopus 로고
    • Comparative analysis of Cystic Fibrosis Registry data from the UK with USA, France and Australasia
    • McCormick J., Sims E.J., Green M.W., Mehta G., Culross F., Mehta A. Comparative analysis of Cystic Fibrosis Registry data from the UK with USA, France and Australasia. J Cyst Fibros 2005, 4(2):115-122.
    • (2005) J Cyst Fibros , vol.4 , Issue.2 , pp. 115-122
    • McCormick, J.1    Sims, E.J.2    Green, M.W.3    Mehta, G.4    Culross, F.5    Mehta, A.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.