Involving patients in research: The challenge of patient-centredness

International Journal of Social Psychiatry

Volumn 56, Issue 6, 2010, Pages 623-633

  Tischler, Victoria ^a   D'Silva, Karen ^b   Cheetham, Anna ^c   Goring, Mervin ^d   Calton, Tim ^e  

^a QUEEN S MEDICAL CENTRE   (United Kingdom)

^b RAMPTON HOSPITAL   (United Kingdom)

^c NOTTINGHAMSHIRE HEALTHCARE NHS TRUST   (United Kingdom)

^d Mental Health Consultant Experts by Experience Ltd   (United Kingdom)

^e INSTITUTE OF MENTAL HEALTH   (United Kingdom)

Author keywords

collaborative research; operational definition; patient centred research; patient centredness; schizophrenia

Indexed keywords

ARTICLE; COOPERATION; FEMALE; HUMAN; INFORMATION PROCESSING; INTERVIEW; MALE; PATIENT CARE; PATIENT PARTICIPATION; RESEARCH; SCHIZOPHRENIA; UNITED KINGDOM;

COOPERATIVE BEHAVIOR; FEMALE; FOCUS GROUPS; GREAT BRITAIN; HUMANS; INTERVIEWS AS TOPIC; MALE; PATIENT PARTICIPATION; PATIENT-CENTERED CARE; RESEARCH; SCHIZOPHRENIA;

EID: 77958587553     PISSN: 00207640     EISSN: 17412854     Source Type: Journal    
DOI: 10.1177/0020764009104281     Document Type: Article

References (40)

1. Baarts, C., Tulinius, C. & Reventlow, S. (2000) Reflexivity-A strategy for a patient-centred approach in general practice. Family Practice, 17, 430-434.
2. Bem, C., Lee, C., Dawson, R. & Watkinson, J. (2004) Is Clinical Otolaryngology publishing patient-centred research ? Clinical Otolaryngology, 29 (1). 84-93.
3. Bhugra, D. & Holsgrove, G. (2005) Patient-centred psychiatry. Training and assessment: The way forward. Psychiatric Bulletin, 29 (2). 49-52.
4. Boyatzis, R.E. (1998) Transforming Qualitative Information. London: Sage.
5. Calton, T., Cheetham, A., D'Silva, K. & Glazebrook, C. (2006) Breaking the covenant: International schizophrenia research and the concept of patient-centredness 1988-2004. In The History of the International Society for the Psychological Treatment of Schizophrenia and Other Psychoses (ISPS) (eds M. Chavez, Y. Alanen & A.L. Silver) (pp. 303-320). Madrid: Paradox.
6. Cornwall, A. & Jewkes, R. (1995) What is participatory research ? Social Science & Medicine, 41 (12). 1667-1676.
7. Department of Health (1996 a) Encouraging User Involvement in Commissioning a Resource for Commissioners. London: Department of Health.
8. Department of Health (1996 b) Patient Partnership Building a Collaborative Strategy NHS Executive. London: Department of Health.
9. Department of Health (2005) Creating a Patient-Led NHS: Delivering the NHS Improvement Plan. London: Department of Health.
10. Department of Health (2006) Best Research for Best Health: A New National Health Research Strategy. London: Department of Health.
11. Darzi, L. (2008) High Quality Care for All: NHS Next Stage Review Final Report. London: Department of Health. http://www.dh.gov.uk/en/ publicationsandstatistics/publications/publicationspolicyandguidance/DH-085825
12. Davies, S. (2005) A patient-centred approach to research and development. British Journal of Hospital Medicine, 66 (10). 556-557.
13. Farsides, T. (2004) Cognitive mapping. In Doing Social Psychology Research (ed M. Breakwell). Oxford: BPS Blackwell.
14. Fulford, K. (1996) Concepts of disease: The meaning of patient-centred care. In Essential Practice in Patient-Centred Care (eds K.W.M. Fulford, S. Ersser & T. Hope). Oxford: Blackwell Science Ltd.
15. Goodare, H. & Lockwood, S. (1999) Involving patients in clinical research. British Medical Journal, 319 (7212). 724-725.
16. Hanley, B. (2005) Research as Empowerment? Report of a Series of Seminars organized by the Toronto Seminar Group. York: Joseph Rowntree Foundation.
17. Hewlett, S., Wit, M., Richards, P., Quest, E., Hughes, R., Heiberg, T. & Kirwin, J. (2006) Patients and professionals as research partners: Challenges, practicalities, and benefits. Arthritis & Rheumatism (Arthritis Care & Research), 55 (4). 676-680.
18. Holman, H. & Lorig, K. (2000) Patients as partners in managing chronic disease-Partnership is a prerequisite for effective and efficient healthcare. British Medical Journal, 320 (7234). 526-527.
19. Jarvis, S. (1998) Adorno: A Critical Introduction. Cambridge: Polity Press.
20. Jenkins, C.R., Thien, F.C.K., Wheatley, J.R. & Reddel, H.K. (2005) Traditional and patient-centred outcomes with three classes of asthma medication. European Respiratory Journal, 26 (1). 36-44.
21. Joffe, H. & Yardley, L. (2004) Content and Thematic Analysis. In Research Methods for Clinical and Health Psychology (eds D. Marks & L. Yardley). London: Sage.
22. Kinmonth, A.L., Woodcock, A., Griffin, S., Spiegal, N. & Campbell, M.J. (1998) Randomized controlled trial of patient-centred care of diabetes in general practice: Impact on current well-being and future disease risk. British Medical Journal, 317 (7167). 1202-1208.
23. Mason, S. & Miller, R. (2003) Disseminating schizophrenia research findings to patients. Schizophrenia Research, 60 (1 supplement).
24. Mead, N. & Bower, P. (2000) Patient-centredness: A conceptual framework and review of the empirical literature. Social Science & Medicine, 51 (7). 1087-1110.
25. Morgan, L. (2006) Brief Guide to Involving Mental Health Service Users in Research. London: Service User Research Group for England.
26. Nicholls, Wright, S., Waters, R. & Wells, S. (2003) Surviving User-Led Research. London: The Mental Health Foundation.
27. Oliver, S., Clarke-Jones, L., Rees, R., Milne, R., Buchanan, P., Gabbay, J., Gyte, G., Oakley, A. & Stein, K. (2004) Involving consumers in research and development agenda setting for the NHS: Developing an evidence-based approach. Health Technology Assessment, 8 (15). 1-148.
28. Phillips, W.R. & Grams, G.D. (2003) Involving patients in a primary care research meeting worked well. British Medical Journal, 326 (7402). 1329-1329.
29. Redman, R.W. & Lynn, M.R. (2004) Advancing patient-centred care through knowledge development. Canadian Journal of Nursing Research, 36 (3). 116-129.
30. Rose, D. (2008 a) Madness strikes back. Journal of Community & Applied Social Psychology, 18 (6). 638-644.
31. Rose, D. (2008 b) Service user produced knowledge. Journal of Mental Health, 17 (5). 447-451.
32. Rose, D., Fleischman, P. & Wykes, T. (2008) What are mental health service users' priorities for research in the UK ? Journal of Mental Health, 17 (5). 520-530.
33. Rose, D., Wykes, T., Leese, M., Bindman, J. & Fleischmann, P. (2003) Patients' perspectives on electroconvulsive therapy: Systematic review. British Medical Journal, 326 (7403). 1363-1365.
34. Simpson, E.L. & House, A.O. (2002) Involving users in the delivery and evaluation of mental health services: Systematic review. British Medical Journal, 325 (7375). 1265-1268.
35. Stewart, M.A. (1995) Effective physician-patient communication and health outcomes: A review. Canadian Medical Association Journal, 152 (9). 1423-1433.
36. Stewart, M.A. (2001) Towards a global definition of patient-centred care: The patient should be the judge of patient-centred care. British Medical Journal, 322 (7284). 444-445.
37. Stewart, M., Brown, J.B., Weston, W.W., McWhinney, I.R., McWilliam, C.L. & Freeman, T.R. (2003) Patient-Centred Medicine. Transforming the Clinical Method (2 nd ed). Abingdon: Radcliffe Medical Press.
38. Trivedi, P. & Wykes, T. (2002) From passive subjects to equal partners-Qualitative review of user involvement in research. British Journal of Psychiatry, 181, 468-472.
39. Vlieland, T. (2002) Managing chronic disease: Evidence-based medicine or patient-centred medicine ? Health Care Analysis, 10 (3). 289-298.
40. White, M. & Verhoef, M.J. (2005) Toward a patient-centred approach: Incorporating principles of participatory action research into clinical studies. Integrative Cancer Therapies, 4 (1). 21-25.