Patient reported outcomes in head and neck cancer: Selecting instruments for quality of life integration in clinical protocols

Head and Neck Oncology

Volumn 2, Issue 1, 2010, Pages

  Silveira, Augusta P ^a,b,c   Gonçalves, Joaquim ^d   Sequeira, Teresa ^a,e   Ribeiro, Cludia ^f,g   Lopes, Carlos ^b   Monteiro, Eurico ^a,h   Pimentel, Francisco L ^i,j  

^a UNIVERSIDADE FERNANDO PESSOA   (Portugal)

^b UNIVERSITY OF PORTO   (Portugal)

^c UNIVERSITY OF COIMBRA   (Portugal)

^d Instituto Politcnico do Cvado e do Ave   (Portugal)

^e UNIVERSITY OF PORTO   (Portugal)

^f Portuguese Catholic University Viseu   (Portugal)

^g UNIVERSITY OF SANTIAGO DE COMPOSTELA   (Spain)

^h PORTUGUESE ONCOLOGY INSTITUTE   (Portugal)

ⁱ UNIVERSITY OF AVEIRO   (Portugal)

^j Hospital Infante D Pedro EPE   (Portugal)

more..

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CANCER LOCALIZATION; CANCER STAGING; CLINICAL ASSESSMENT TOOL; CLINICAL PROTOCOL; CONSTRUCT VALIDITY; CONTROLLED STUDY; EUROPEAN ORGANIZATION FOR RESEARCH AND TREATMENT OF CANCER QUALITY OF LIFE QUESTIONNAIRE; FEMALE; FUNCTIONAL ASSESSMENT OF CANCER THERAPY SCALE; HEAD AND NECK CANCER; HUMAN; INSTRUMENT VALIDATION; INTERMETHOD COMPARISON; INTERNAL CONSISTENCY; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PATIENT ASSESSMENT; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; QUALITY OF LIFE QUESTIONNAIRE HEAD AND NECK 35; QUESTIONNAIRE; RATING SCALE; SENSITIVITY ANALYSIS; SYMPTOMATOLOGY; TUMOR VOLUME; CARCINOMA; DECISION MAKING; DIAGNOSTIC PROCEDURE; HEAD AND NECK TUMOR; METHODOLOGY; MIDDLE AGED; PROGNOSIS; SELF REPORT; TREATMENT OUTCOME; VALIDATION STUDY;

ADULT; AGED; AGED, 80 AND OVER; CARCINOMA; CHOICE BEHAVIOR; CLINICAL PROTOCOLS; DIAGNOSTIC TECHNIQUES AND PROCEDURES; FEMALE; HEAD AND NECK NEOPLASMS; HUMANS; MALE; MIDDLE AGED; PROGNOSIS; QUALITY OF LIFE; QUESTIONNAIRES; RESEARCH DESIGN; SELF REPORT; TREATMENT OUTCOME;

EID: 77958519680     PISSN: None     EISSN: 17583284     Source Type: Journal    
DOI: 10.1186/1758-3284-2-32     Document Type: Article

References (40)

1. Assessment of quality of life in oral cancer. E Torres-Carranza P Infante-Cossío JM Hernndez-Guisado E Hens-Aumente JL Gutierrez- Pérez, Med Oral Patol Oral Cir Bucal 2008 13 11 735 41 18978717
2. Head and Neck Cancer in the Elderly: A Retrospective Study over 10 Years (1999 - 2008). AL Kruse M Bredell HT Luebbers KW Gratz, Head & Neck Oncology 2010 2 2
3. Quality of life: a deconstruction for clinicians. M Koller W Lorenz, J R Soc Med 2002 95 481 488 10.1258/jrsm.95.10.481 12356967
4. The quality of life in head and neck cancer patients: description of randomized examination formula based on standardized questionnaires EORTC QLQ C-30, EORTC QTQ-H-N35 and Kiel Questionnaire. M Wierzbicka M Kunierkiewicz JG Wájtowicz S Maune W Szyfter, Otolaryngol Pol 2001 55 287 92 11765444
5. A structured review and theme analysis of papers published on 'quality of life' in head and neck cancer: 2000-2005. SN Rogers SA Ahad AP Murphy, Oral Oncol 2007 43 843 68 10.1016/j.oraloncology.2007.02.006 17600755
6. On behalf of the EORTC Quality o Life Group. EORTC QLQ-C30 Scoring Manual. PM Fayers NK Aaronson K Bjordal M Groenvold DA Curran A Bottomley, Guidelines for assessing Quality of Life in EORTC Clinical Trials Brussels, EORTC 3 2001
7. Clinical predictors of quality of life in patients with head and neck cancer. JE Terrell DL Ronis KE Fowler CR Bradford DB Chepeha ME Prince TN Teknos GT Wolf SA Duffy, Arch Otolaryngol Head Neck Surgery 2004 130 401 408 10.1001/archotol.130.4.401 (Pubitemid 38456313)
8. Quality of life scores predict survival among patients with head and neck cancer. CA Karvonen-Gutierrez DL Ronis KE Fowler JE Terrell SB Gruber SA Duffy, J Clin Oncol 2008 26 2754 60 10.1200/JCO.2007.12.9510 18509185
9. Quality of life is predictive of survival in patients with unresectable hepatocellular carcinoma. W Yeo FK Mo J Koh AT Chan T Leung P Hui L Chan A Tang JJ Lee TS Mok PB Lai PJ Johnson B Zee, Ann Oncol 2006 1083 1089 10.1093/annonc/mdl065 16600982
10. Prognostic value of quality of life scores for time to progression (TTP) and overall survival time (OS) in advanced breast cancer. ML Luoma L Hakamies-Blomqvist J Sjöström A Pluzanska S Ottoson H Mouridsen NO Bengtsson J Bergh P Malmström V Valvere L Tennvall C Blomqvist, Eur J Cancer 2003 39 1370 1376 10.1016/S0959-8049(02)00775-X 12826039
11. Patients' views on the utility of quality of life questionnaires in head and neck cancer: a randomised trial. HM Mehanna RP Morton, Clin Otolaryngol 2006 31 310 316 10.1111/j.1749-4486.2006.01256.x 16911650
12. Cost-effectiveness of post-diagnosis treatment in dementia coordinated by Multidisciplinary Memory Clinics in comparison to treatment coordinated by general practitioners: an example of a pragmatic trial. EJ Meeuwsen P German RJ Melis EM Adang GA Golüke-Willemse PF Krabbe BJ de Leest FH van Raak CJ Schölzel-Dorenbos MC Visser CA Wolfs S Vliek MG Rikkert, J Nutr Health Aging 2009 13 242 248 10.1007/s12603-009-0066-1 19262961
13. Molecular pathology of head-and-neck cancer. MM Kim JA Califano, Int J Cancer 2004 112 545 553 10.1002/ijc.20379 15382034
14. Use of health-related quality-of-life assessments in daily clinical oncology nursing practice: a community hospital-based intervention study. DL Hilarius CM Gundy NK Aaronson, Cancer 2008 113 628 37 10.1002/cncr.23623 18543317
15. Internal consistency of the traditional Chinese character version of the Functional Assessment of Cancer Therapy-Head and Neck (FACT-H&N). JT Chang YY Juang JC Hsiao CY Lin SF Huang YC Huang KH Kuan CT Liao HM Wang IH Chen, Chang Gung Med J 2008 31 384 394 18935797
16. Qualidade de Vida - reviso bibliogrfica. FL Pimentel, Qualidade de Vida do Doente Oncolágico, Ediço: De autor 2003
17. Impact of treatment on quality of life for oral and oropharyngeal carcinoma. P Infante-Cossio E Torres-Carranza A Cayuela E Hens-Aumente P Pastor-Gaitan JL Gutierrez-Perez, Int J Oral Maxillofac Surg 2009 38 1052 8 10.1016/j.ijom.2009.06.008 19596557
18. Interpreting clinically significant changes in patient-reported outcomes. J Ringash B O'Sullivan A Bezjak DA Redelmeier, Cancer 2007 110 196 202 10.1002/cncr.22799 17546575
19. Quality of life scores differed according to mode of administration in a review of three major oncology questionnaires. YB Cheung C Goh J Thumboo K Khoo J Wee, Journal of Clinical Epidemiology 2006 59 185 191 10.1016/j.jclinepi.2005. 06.011 16426954
20. Equating EORTC QLQ-C30 and FACT-G scores and its use in oncological research. B Holzner RK Bode EA Hahn D Cella M Kopp B Sperner-Unterweger G Kemmler, Eur J Cancer 2006 42 3169 77 10.1016/j.ejca.2006.08.016 17045472
21. A structured review and theme analysis of papers published on 'quality of life' in head and neck cancer:2000-2005. SN Rogers SA Ahad AP Murphy, Oral Oncology 2007 43 843 868 10.1016/j.oraloncology.2007.02.006 17600755
22. Comparison of two quality-of-life instruments for cancer patients: The Functional Assessment of Cancer Therapy. G Kemmler B Holzner M Kopp M Dunser R Margreiter R Greil B Sperner-Unterweger, General and the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-C30 1999 17 2932 2940
23. A comparision between the University of Washington head and neck disease-specific measure and the Medical Short form 36, EORTC QLQ-C33 and EORTC-H&N35. SN Rogers D Lowe JS Brown ED Vaughan, Oral Oncology 1998 34 361 372 10.1016/S1368-8375(98)00031-1 9861341
24. Touch screen computer-assisted health-related quality of life and distress data collection in head and neck cancer patients. R de Bree IM Verdonck-de Leeuw AL Keizer A Houffelaar CR Leemans, Clinical Otolaryngology 2008 33 138 10.1111/j.1749-4486.2008.01676.x 18429869
25. Quality of life and outcomes research in head and neck cancer: A review of the state of the discipline and likely future directions. SI Sayed B Elmiyeh P Rhys-Evans KN Syrigos CM Nutting KJ Harrington R Kazi, Cancer Treatment Reviews 2009 35 397 402 10.1016/j.ctrv.2009.03.001 19375235
26. Other paradigms: health-related quality of life as a measure in cancer treatment: its importance and relevance. PC Trask MA Hsu R McQuellon, Cancer 2009 15 435 40 10.1097/PPO.0b013e3181b9c5b9
27. Emotional well-being does not predict survival in head and neck cancer patients: a Radiation Therapy Oncology Group. JC Coyne TF Pajak J Harris A Konski B Movsas K Ang D Watkins Bruner, Cancer 2008 112 2326 7 10.1002/cncr.23436 18338746
28. The minimal clinically important difference in allergic rhinitis. ML Barnes PA Williamson BJ Lipworth, Clin Exp Allergy 2010 40 242 50 10.1111/j.1365-2222.2009.03381.x 19895590
29. R159: Minimal Clinically Important Differences in Rhinology. S Vaidyanathan M Barnes B Lipworth, Otolaryngolog -Head and Neck Surgery 2007 137 206 10.1016/j.otohns.2007.06.496
30. Socio-economic factors and stage at presentation of head and neck cancer patients in Ottawa, Canada: A logistic regression analysis. S Johnson MJ Corsten JT McDonald J Chun, Oral Oncology 2010 46 366 368 10.1016/j.oraloncology.2010. 02.010 20308010
31. Cancer in Portugal/Cancro em Portugal. PS Pinheiro JE Tyczynski F Bray J Amado E Matos AC Miranda E Limbert, IARC Technical Publication 2002 38
32. Epidermal growth factor receptor targeted therapy in stages III and IV head and neck cancer. C Cripps E Winquist MC Devries D Stys-Norman R Gilbert, Curr Oncol 2010 17 37 48 20567625
33. Surgical Management of Head and Neck Carcinoma. R Scarpa, Seminars in Oncology Nursing 2009 25 172 182 10.1016/j.soncn.2009.05.007 19635396
34. Cancer statistics, 2005, CA. A Jemal T Murray E Ward A Samuels RC Tiwari A Ghafoor, Cancer J Clin 2005 55 10 30 10.3322/canjclin.55.1.10
35. Quality of Life Assessments in Clinical Practice. CG Varricchio CE Ferran, Seminars in Oncology Nursing 2010 26 12 17 10.1016/j.soncn.2009.11.003 20152574
36. Quality of life: patients and doctors don't always agree: a meta-analysis. AJ Janse BJ Gemke PM Uiterwaal I van der Tweel LL Kimpen G Sinnema, Journal of Clinical Epidemiology 2004 57 653 661 10.1016/j.jclinepi. 2003.11.013 15358393
37. French version of FACT-G: Validation and comparison with other cancer-specific instruments. T Conroy M Mercier J Bonneterre E Luporsi JL Lefevre M Lapeyre M Puyraveau S Schraub, European Journal of Cancer 2004 40 2243 2252 10.1016/j.ejca.2004.06.010 15454249
38. A 12 country field study of the EORTC QLQ-C30 (version 3.0) and the head and neck cancer specific module (EORTC QLQ-H&N35) in head and neck patients. EORTC Quality of Life Group. K Bjordal A de Graeff PM Fayers C Hammerlid van Posttelsberhge D Curran M Ahlner-Elmqvist EJ Maher JW Meyza A Bredart AL Soderholm JJ Arraras JS Feine H Abendstein RP Morton T Pignon P Huguenin A Bottomly S Kaasa, Eur J Cancer 2000 36 1796 1807 10.1016/S0959-8049(00)00186-6 10974628
39. Choosing the "Correct" Assessment Tool. DJ Smith J Huntington JA Sloan, Current Problems in Cancer 2006 30 272 282 10.1016/j.currproblcancer. 2006.08.005 17123879
40. Quality of life measurement in concology-a matter of the assessment instrument? B Holzner G Kemmler B Sperner-Unterweger M Kopp M Dunser R Margreiter I Marschitz D Nachbaur WW Fleischhacker R Greil, European Journal of Cancer 2001 37 2349 2356 10.1016/S0959-8049(01)00307-0 11720827