End-of-life decisions as bedside rationing. An ethical analysis of life support restrictions in an Indian neonatal unit

Journal of Medical Ethics

Volumn 36, Issue 8, 2010, Pages 473-478

  Miljeteig, I ^a   Johansson, K A ^a   Sayeed, S A ^b   Norheim, O F ^a  

^a UNIVERSITY OF BERGEN   (Norway)

^b HARVARD MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BIRTH WEIGHT; CULTURAL FACTOR; DECISION MAKING; ECONOMICS; ETHICS; FEMALE; GESTATIONAL AGE; HEALTH CARE ORGANIZATION; HUMAN; INDIA; LONG TERM CARE; MALE; MEDICAL ETHICS; NEWBORN; NEWBORN INTENSIVE CARE; PASSIVE EUTHANASIA; PATIENT SELECTION; PREMATURITY; PROGNOSIS; SOCIOECONOMICS; TERMINAL CARE;

BIRTH WEIGHT; CROSS-CULTURAL COMPARISON; DECISION MAKING; ETHICS, MEDICAL; EUTHANASIA, PASSIVE; FEMALE; GESTATIONAL AGE; HEALTH CARE RATIONING; HUMANS; INDIA; INFANT, NEWBORN; INFANT, PREMATURE; INTENSIVE CARE UNITS, NEONATAL; LIFE SUPPORT CARE; MALE; PATIENT SELECTION; PROGNOSIS; SOCIOECONOMIC FACTORS; TERMINAL CARE;

EID: 77958102585     PISSN: 03066800     EISSN: 14734257     Source Type: Journal    
DOI: 10.1136/jme.2010.035535     Document Type: Article

References (35)

1. Ubel PA, Goold S. Recognizing bedside rationing: clear cases and tough calls. Ann Intern Med 1997;126:74-80.
2. Strech D, Synofzik M, Marckmann G. How physicians allocate scarce resources at the bedside: a systematic review of qualitative studies. J Med Philos 2008;33:80-99.
3. Darmstadt GL, Bhutta ZA, Cousens S, et al. Evidence-based, cost-effective interventions: how many newborn babies can we save? Lancet 2005;365:977-88.
4. National Neonatal Forum NNPD Network India. National neonatal perinatal database human reproduction research centre network report 2002-2003. NNPD Nodal Center at Department of Pediatrics, WHO Collaborationg Centre Newborn Training and Research, All India Insititute of Medical Sciences, New Delhi, India 2004. http://www.newbornwhocc.org/pdf/nnpd_report_2002-03.PDF.
5. World Health Organization. Managing newborn problems: a guide for doctors, nurses and midwives integrated management of pregnancy and childbirth. Geneva: World Health Organization, 2003.
6. The Lancet. Child survival: India and China's challenges. Lancet 2008;372:508.
7. United Nations Children's Fund. State of Asia-Pasific's Children 2008. 2008. http://www.unicef.org/sapc08/docs/SAPC_Full_Report.pdf.
8. Miljetig I, Norheim OF. My job is to keep him alive, but what about his brother and sister? How Indian doctors experience ethical dilemmas in neonatal medicine. Dev world Bioeth 2006;6:23-32.
9. Miljeteig I, Sayeed SA, Jesani A, et al. Impact of ethics and economics on end-oflife decisions in an Indian neonatal unit. Pediatrics 2009;124:e322-8.
10. Kymlicka W. Moral philosophy and public policy: The case of NRT's. Bioethics 1993;7:1-26.
11. Norheim OF. The role of evidence in health policy making: a normative perspective. Health Care Anal 2002;10:309-17.
12. Clements KM, Barfield WD, Ayadi MF, et al. Preterm birth-associated cost of early intervention services: an analysis by gestational age. Pediatrics 2007;119:E866-74.
13. Russell RB, Green NS, Steiner CA, et al. Cost of hospitalization for preterm and low birth weight infants in the United States. Pediatrics 2007;120:e1-9.
14. Korvenranta E, Lehtonen L, Peltola M, et al. Morbidities and hospital resource use during the first 3 years of life among very preterm infants. Pediatrics 2009;124:128-34.
15. National Institute of Social Defence, Ministry of Social Justice and Empoverment. The juvenile justice (are and protection of children) act 2000. In: Government of India, ed. 2001. http://www.socialjustice.nic.in/pdf/ar05-ng.pdf.
16. Balakrishnan S, Mani R. The constitutional and legal provisions in Indian law for limiting life support. Indian J Crit Care Med April-June 2005;9:2.
17. Aggarwal R, Paul VK, Deorari AK. Latest guidelines on neonatal resuscitation. Indian J Pediatr 2003;70:51-5.
18. Kuhse H, Singer P. Should the baby live?: the problem of handicapped infants. Oxford: Oxford University Press, 1985.
19. Human Development Unit South Asia Region The World Bank. July 2009. http://siteresources.worldbank.org/INDIAEXTN/Resources/295583-1171456325808/Chapter02.pdf
20. Chakravarti U. Burden of caring: families of the disabled in urban India. Indian J Gend Stud 2008;15:341-63.
21. Dror D, Putten-Rademaker O, Koren R. Cost of illness: evidence from a study in five resource-poor locations in India. Indian J Med Res 2008;127:347-61.
22. Kruk ME, Goldmann E, Galea S. Borrowing and selling to pay for health care in lowand middle-income countries. Health Aff (Millwood) 2009;28:1056-66.
23. McIntyre D, Thiede M, Dahlgren G, et al. What are the economic consequences for households of illness and of paying for health care in low- and middle-income country contexts? Social Sci Med 2006;62:858-65.
24. Adhikari SR, Maskay NM, Sharma BP. Paying for hospital-based care of Kala-azar in Nepal: assessing catastrophic, impoverishment and economic consequences. Health Policy Plan 2009;24:129-39.
25. Srivastava N, Awasthi S, Agarwal G. Care-seeking behavior and out-of-pocket expenditure for sick newborns among urban poor in Lucknow, northern India: a prospective follow-up study. BMC Health Serv Res 2009;9:61.
26. Nussbaum M, Women C. Human development. The capabilites approach. Cambridge: Cambridge University Press, 2000.
27. Sharma BR HD, Gupta M, Singh VP. Dowrye-a deep-rooted cause of violence against women in India. Med Sci Law 2005;45:161-8.
28. Haws RA, Thomas AL, Bhutta ZA, et al. Impact of packaged interventions on neonatal health: a review of evidence. Health Policy Plan 2007;22:193-215.
29. Daniels N. Just health. New York: Cambridge University Press, 2008.
30. Persad G, Wertheimer A, Emanuel EJ. Principles for allocation of scarce medical interventions. Lancet 2009;373:423-31.
31. Mangham LJ, Petrou S, Doyle LW, et al. The cost of preterm birth throughout childhood in England and Wales. Pediatrics 2009;123:e312-27.
32. Tsuchiya A. QALYs and ageism: philosophical theories and age weighting. Health Econ 2000;9:57-68.
33. Murray C, Lopez A, eds. The global burden of disease. Cambridge Mass: Harvard School of Public Health, WHO, World Bank, 1996:57
34. Goldenberg RL, Culhane JF, Iams JD, et al. Epidemiology and causes of preterm birth. Lancet 2008;371:75-84.
35. Darmstadt GL, Walker N, Lawn JE, et al. Saving newborn lives in Asia and Africa: cost and impact of phased scale-up of interventions within the continuum of care. Health Policy Plan 2008;23:101-17.