A qualitative study of coping in mothers of children with an autism spectrum disorder

Physical and Occupational Therapy in Pediatrics

Volumn 30, Issue 4, 2010, Pages 340-350

  Kuhaneck, Heather Miller ^a   Burroughs, Tajhma ^b   Wright, Jamie ^c   Lemanczyk, Theresa ^d   Darragh, Amy Rowntree ^e  

^a SACRED HEART UNIVERSITY   (United States)

^b Yale New Haven Psychiatric Hospital   (United States)

^c Kindred Healthcare   (United States)

^d Sunharbor Manor   (United States)

^e OHIO STATE UNIVERSITY   (United States)

Author keywords

Autistic spectrum disorders; coping strategies; mothers; parenting stress; qualitative

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; AUTISM; CHILD; FEMALE; HUMAN; INTERVIEW; MIDDLE AGED; MOTHER; MOTHER CHILD RELATION; PSYCHOLOGICAL ASPECT;

ADAPTATION, PSYCHOLOGICAL; ADULT; AUTISTIC DISORDER; CHILD; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MIDDLE AGED; MOTHER-CHILD RELATIONS; MOTHERS;

EID: 77958048911     PISSN: 01942638     EISSN: 15413144     Source Type: Journal    
DOI: 10.3109/01942638.2010.481662     Document Type: Article

References (29)

1. Abelson, A. G. (1999). Respite care needs of parents of children with developmental disabilities. Focus on Autism and Other Developmental Disabilities, 14, 96-100.
2. Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51, 702-714.
3. Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208-215.
4. Bristol, M. M. (1987). Mothers of children with autism or communication disorders: Successful adaptation and the double ABCX model. Journal of Autism and Developmental Disorders, 17(4), 469-486.
5. Creswell, J. W. (1994). Research design: Qualitative and quantitative approaches. Thousand Oaks, CA: Sage Publications.
6. Darragh, A. R., Krieger, S., &Sample, P. (2001). Tears inmy eyes, cause somebody finally understood: client perceptions of practitioners following brain injury. The American Journal of Occupational Therapy, 55(2), 191-199.
7. DeGrace, B. W. (2004). The everyday occupation of families with children with autism. The American Journal of Occupational Therapy, 58(5), 543-550.
8. Gray, D. E. (2006). Coping over time: The parents of children with autism. Journal of Intellectual Disability Research, 50, 970-976.
9. Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Espinosa, F. D., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school age children with autism. Autism, 9, 377-391.
10. Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9(2), 125-137.
11. Kaye, J., & Raghavan, S. K. (2002). Spirituality in disability and illness. Journal of Religion and Health, 41(3), 231-242.
12. Kuhn, J. C., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mother of children with autism. The American Journal of Orthopsychiatry, 76(4), 564-575.
13. Luther, E. H., Canham, D. L., & Cureton, V. Y. (2005). Coping and social support for parents of children with autism. The Journal of School Nursing, 21(1), 40-47.
14. Lysack, C., Luborsky, M., & Dillaway, H. (2006). Gathering qualitative data. In G. Kielfhofner (Ed.), Scholarship in occupational therapy: Methods of inquiry for enhancing practice. Philadelphia, PA: F.A. Davis.
15. McCubbin, M. A., & McCubbin, H. I. (1996). Resiliency in families: A conceptual model of family adjustment and adaptation in response to stress and crises. In H. I. McCubbin, A. I. Thompson, & M. A. McCubbin (Eds.). Family assessment: Resiliency, coping and adaptation inventories for research and practice (pp. 1-64). Madison, WI: University of Wisconsin System.
16. Mesibov, G. B., Browder, D. M., & Cameron, K. (2002). Using individualized schedules as a compo¬nent of positive behavioral support for students with developmental disabilities. Journal of Positive Behavior Interventions, 4, 73-79.
17. Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: An expanded sourcebook (2nd ed.). Thousand Oaks, CA: Sage Publications.
18. Miller-Kuhaneck, H. & Watling, R. (2010). Autism: A comprehensive occupational therapy approach (3rd ed.). Bethesda, MD: AOTA Press.
19. Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of chil¬dren with autism: A population based study. Pediatrics, 119, e1040-e1046. Retrieved November 21, 2007, from www.pediatrics.org.
20. Montes, G., & Halterman, J. S. (2008). Association of childhood autism spectrum disorders and loss of family income. Pediatrics, 121, e821-e826.
21. Patton, M. Q. (1990). Qualitative evaluation and research methods (2nd ed.). Newbury Park, CA: Sage Publications.
22. Penendo, F. J., & Dahn, J. R. (2005). Exercise and well-being: A review of mental and physical health benefits associated with physical activity. Current Opinion in Psychiatry, 18, 189-193.
23. Shu, B. C., & Lung, F. W. (2005). The effect of support group on the mental health and quality of life for mothers with autistic children. Journal of Intellectual Disability Research, 49(1), 47-53.
24. Tai-Seale, M., McGuire, T. G., & Zhang, W. (2007). Time allocation in primary care office visits. Health Services Research, 42, 1871-1894.
25. Tunali, B., & Power, T. G. (2002). Coping by redefinition: Cognitive appraisals in mothers of children with autism and children without autism. Journal of Autism and Developmental Disorders, 32(1), 25-34.
26. Twoy, R., Connolly, P. M., & Novak, J. M. (2007). Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners, 19, 251-260.
27. Weisner, T. S., Matheson, C., Coots, J., and Bernheimer, L. (2005). Sustainability of daily routines as a family outcome. In A. Maynard & M. Martini (Eds.), The psychology of learning in cultural context (pp. 41-73). New York: Kluwer/Plenum.
28. Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6(1), 115-130.
29. Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18, 1075-1083.