Evolving information priorities of hematologic cancer survivors, caregivers, and other relatives

Journal of Cancer Education

Volumn 25, Issue 3, 2010, Pages 302-311

  Gansler, Ted ^a   Kepner, James ^a   Willacy, Erika ^b   Soloe, Cindy ^b   Rupert, Douglas ^b   Jarblum, Meredith ^b   Driscoll, David ^b   Orr, Alex ^b   Fitzgerald, Tania ^b   Esparza, Angelina ^a  

^a AMERICAN CANCER SOCIETY   (United States)

^b RTI INTERNATIONAL   (United States)

Author keywords

Caregivers; Future outlook; Hematologic cancer; Hematologic cancer survivors; Information priorities

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; CONSUMER HEALTH INFORMATION; EDUCATION; FAMILY; HEALTH CARE PLANNING; HEALTH PERSONNEL ATTITUDE; HUMAN; LEUKEMIA; LYMPHOMA; MIDDLE AGED; NEEDS ASSESSMENT; PSYCHOLOGICAL ASPECT; SURVIVOR;

ADULT; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CAREGIVERS; CONSUMER HEALTH INFORMATION; FAMILY; HEALTH PRIORITIES; HEALTH RESOURCES; HUMANS; LEUKEMIA; LYMPHOMA; MIDDLE AGED; NEEDS ASSESSMENT; SURVIVORS; YOUNG ADULT;

EID: 77957917011     PISSN: 08858195     EISSN: 15430154     Source Type: Journal    
DOI: 10.1007/s13187-009-0034-9     Document Type: Conference Paper

References (16)

1. JH Chelf P Agre A Axelrod L Cheney DD Cole K Conrad S Hooper I Liu A Mercurio K Stepan L Villejo C Weaver 2001 Cancer-related patient education: an overview of the last decade of evaluation and research Oncol Nurs Forum 28 1139 1147 1:STN:280:DC%2BD3MvnsVKmtg%3D%3D 11517847
2. Ankem K. Use of information sources by cancer patients: results of a systematic review of the research literature. Inform Res 2006; 11 paper 254 [Available at http://InformationR.net/ir/11-3/paper254.html ].
3. A Cox V Jenkins S Catt C Langridge L Fallowfield 2006 Information needs and experiences: an audit of UK cancer patients Eur J Oncol Nurs 10 263 272 10.1016/j.ejon.2005.10.007 16376146
4. BA Vogel J Bengel AW Helmes 2008 Information and decision making: patients' needs and experiences in the course of breast cancer treatment Patient Educ Couns 71 79 85 10.1016/j.pec.2007.11.023 18191933
5. L Squiers LJ Finney Rutten K Treiman MA Bright B Hesse 2005 Cancer patients' information needs across the cancer continuum: evidence from the cancer information service J Health Commun 10 S1 15 34 10.1080/10810730500263620 16377598
6. LJ Finney Rutten NK Arora AD Bakos N Aziz J Rowland 2005 Information needs and sources of information among cancer patients: a systematic review of research (1980-2003) Patient Educ Couns 57 250 261 10.1016/j.pec.2004.06.006
7. Bernard HR, Ryan GW (1998) Text analysis: qualitative and quantitative methods. In: Bernard HR (ed) Handbook of methods in cultural anthropology. Altamira Press, Walnut Creek, CA, pp 595-646
8. Miles MB, Huberman AM (1994) Qualitative data analysis, 2nd edn. Sage, Thousand Oaks, CA
9. Hollander M, Wolfe D (1999) Nonparametric statistical methods, 2nd edn. Wiley, New York, NY, Chapter 7
10. BR Cassileth RV Zupkis K Sutton-Smith V March 1980 Information and participation preferences among cancer patients Ann Intern Med 92 832 836 1:STN:280:DyaL3c3hvVCquw%3D%3D 7387025
11. B Hoffman Stovall Stovall 2006 Survivorship perspectives and advocacy J Clin Oncol 24 5154 5159 10.1200/JCO.2006.06.5300 17093279
12. P McGrath 2000 Taking control: findings of a prospective study of an educational course for patients with leukaemia Support Care Cancer 8 377 384 1:STN:280:DC%2BD3M%2Fmt1Ogtw%3D%3D 10.1007/s005200050006 10975687
13. ME Mills K Sullivan 1999 The importance of information giving for patients newly diagnosed with cancer: a review of the literature J Clin Nurs 8 631 642 1:STN:280:DC%2BD3czosVKkug%3D%3D 10.1046/j.1365-2702.1999.00296.x 10827609
14. CG Vivar A McQueen 2005 Informational and emotional needs of long-term survivors of breast cancer J Adv Nurs 51 520 528 10.1111/j.1365-2648.2005.03524. x 16098169
15. NA Hawkins LA Pollack S Leadbetter WR Steele J Carroll JG Dolan EP Ryan JL Ryan GR Morrow 2008 Informational needs of patients and perceived adequacy of information available before and after treatment of cancer J Psychosoc Oncol 26 1 16 10.1300/J077v26n02-01 18285297
16. ML Richins PH Bloch 1991 Post-purchase product satisfaction: incorporating the effects of involvement and time J Bus Res 23 145 158 10.1016/0148-2963(91)90025-S