Caregiver burden

Supporting the Caregiver in Dementia: A Guide for Health Care Professionals

Volumn , Issue , 2006, Pages 63-81

  Molinar, Victor A ^a  

^a NONE

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EID: 77957855781     PISSN: None     EISSN: None     Source Type: Book    
DOI: None     Document Type: Chapter

References (76)

1. Acton, G. J. 2002. Self-transcendent views and behaviors: Exploring growth in caregivers of adults with dementia. Journal of Gerontological Nursing 28(12):22-30.
2. Baltes, P. 1997. On the incomplete architecture of human ontogeny: Selection, optimization, and compensation as foundation of developmental theory. American Psychologist 52(4): 366-80.
3. Belle, S. H., Zhang, S., Czaja, S. J., Burns, R., and Schulz, R. 2004. Use of cognitive enhancement medication in persons with Alzheimer disease who have a family caregiver; results from the Resources for Enhancing Alzheimer Caregiver health (REACH) project. American Journal of Geriatric Psychiatry 12(3):250-57.
4. Boss, P., Caron, W., Horbal, J., and Mortimer, J. 1990. Predictors of depression in caregivers of dementia patients: Boundary ambiguity and mastery. Family Process 29(3):245-54.
5. Braithwaite, V. 2000. Contextual or general stress outcomes: Making choices through caregiving appraisals. Gerontologist 40:706-17.
6. Burns, R., Nichols, L. O., Martindale-Adams, J., Graney, M. J., and Lummus, A. 2003. Primary care interventions for dementia caregivers: Two-year outcomes from the REACH study. Gerontologist 43:547-55.
7. Calvez, A., Joel, M. E., Ponton-Sanchez, A., and Roper, A. C. 2002. Health status and work burden of Alzheimer patients' informal caregivers: Comparisons of five different care programs in the European Union. Health Policy 60(3):219-33.
8. Cavallo, M. C., and Fattore, G. 1997. The economic and social burden of Alzheimer disease on families in the Lombardy region of Italy. Alzheimer Disease and Associated Disorders 11(4):184-90.
9. Cavanaugh, J. C. 1999. Caregiving to adults: A life event challenge. In I. H. Nordhus, G. R. Vandenbos, S. Berg, and P. Fromholt (Eds.), Clinical Geropsychology (pp. 131-35). Washington, D.C.: American Psychological Association.
10. Cavanaugh, J. C., and Blanchard-Fields, F. 2002. Adult development and aging (4th ed.). Wadsworth: United States.
11. Chappell, N. L. 2001. Caregiving in old age. In N. J. Smelsen and P. B. Baltes (Eds.), International encyclopedia of social and behavioral sciences (pp. 1479-81). Oxford, England: Pergamon Press.
12. Chappell, N. L., and Reid, R. C. 2002. Burden and well-being among caregivers: Examining the distinction. Gerontologist 42:772-80.
13. Chiriboga, D. A., Yee, B. W. K., and Weiler, P. G. 1992. Stress and coping in the context of caring. In L. Montada, A. H. Filipp, and M. J. Lerner (Eds.), Life crises and experiences of loss in adulthood (pp. 95-118). Hillsdale, N.J.: Lawrence Erlbaum Associates.
14. Clyburn, L. D., Stones, M. J., Hadjistavropoulos, T., and Tuokko, H. 2000. Predicting caregiver burden and depression in Alzheimer's disease. Journal of Gerontology and Psychological Sciences 55(1):S2-13.
15. Coen, R. F., O'Boyle, C. A., Coakley, D., and Lawlor, B. A. 2002. Individual quality of life factors distinguishing low-burden and high-burden caregivers of dementia patients. Dementia and Geriatric Cognitive Disorders 13(3):164-70.
16. Cohen, C. A., Colantonio, A., Vernich, L. 2002. Positive aspects of caregiving: Rounding out the caregiver experience. International Journal of Geriatric Psychiatry 17(2):184-88.
17. Coon, D. W., Rubert, M., Solano, N., Mausbach, B., Kraemer, H., Arguelles, T., Haley, W. E., Thompson, L. W., and Gallagher-Thompson, D. 2004. Well-being, appraisal, and coping in Latina and Caucasian female dementia caregivers: Findings from the REACH study. Aging and Mental Health 8(4):330-45.
18. Daire, A. 2002. The influence of parental bonding on emotional distress in caregiving sons for a parent with dementia. Gerontologist 42:766-71.
19. Doty, P., Jackson, M. E., and Crown, W. 1998. The impact of female caregivers' employment status on patterns of formal and informal eldercare. Gerontologist 38:331-41.
20. Dougherty, L. M., and Chamblin, B. 1999. Assessment as an adjunct to psychotherapy. In P. Lichtenberg (Ed.), Handbook of assessment in clinical gerontology (pp. 91-110). New York: John Wiley & Sons.
21. Dunkin, J. J., and Anderson-Hanley, C. 1998. Dementia caregiver burden: A review of the literature and guidelines for assessment and intervention. Neurology 51(Suppl 1):S53-60.
22. Farran, C. J., Miller, B. H., Kaufman, J. E., Donner, E., and Fogg, L. 1999. Finding meaning through caregiving: Development of an instrument for family caregivers of persons with Alzheimer's disease. Journal of Clinical Psychology 55(9):1107-1125.
23. Fox, P., Newcomer, R., Yordi, C., and Arnsberger, P. 2000. Lessons learned from the Medicare Alzheimer Disease Demonstration. Alzheimer's Disease and Associated Disorders 14(2):87-93.
24. Gaugler, J. E., Davey, A., Pearlin, L. I., and Zarit, S. H. 2000. Modeling caregiver adaptation over time: The longitudinal impact of behavior problems. Psychology and Aging 15(3): 437-50.
25. Glaser, R., and Kiecolt-Glaser, J. K. 1997. Chronic stress modulates the virus-specific immune response to latent herpes simplex type 1. Annals of Behavioral Medicine 19:78-82.
26. Goode, K. T., Haley, W. E., Roth, D. L., and Ford, G. R. 1998. Predicting longitudinal changes in caregiver physical and mental health: A stress process model. Health Psychology 17: 190-98.
27. Hadjistavropoulos, T., Taylor, S., Tuokko, H., and Beattie, B. L. 1994. Neuropsychological deficits, caregivers' perception of deficits and caregiver burden. Journal of the American Geriatrics Society 42:308-14.
28. Haley, W. E., LaMonde, L. A., Han, B., Narramore, S., and Schonwetter, R. 2001. Family caregiving in hospice: Effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia. Hospice Journal 15(4):1-18.
29. Haley, W. E., and Pardo, K. M. 1987. Relationship of stage of dementia to caregiver stress and coping. Paper presented at 95th annual convention of the American Psychological Association, New York.
30. Harwood, D. G., Barker, W. W., Cantilon, M., Loewenstein, D. A., Ownby, R., and Duara, R. 1998. Depressive symptomatology in first-degree family caregivers of Alzheimer-disease patients: A cross-ethnic comparison. Alzheimer's Disease and Associated Disorders 12:340-46.
31. Harwood, D. G., Barker, W. W., Ownby, R. L., and Duara, R. 2000. Caregiver self-rated health in Alzheimer's disease. Clinical Gerontologist 21:19-33.
32. Hirono, N., Tsukamoto, N., Inoue M., Moriwaki, Y., and Mori, E. 2002. Predictors of long term institutionalization in patients with Alzheimer's disease: Role of caregiver burden. No To Shinkei 54(9):812-18.
33. Huang, L., Cartwright, W. S., and Hu, T. 1988. The economic cost of senile dementia in the United States. 1985. Public Health Reports 103(1):3-7.
34. Hughes, S. L., Gobbie-Hurder, A., Weaver, F. M., Kubal, J. D., and Henderson, W. 1999. Relationship between caregiver burden and health-related quality of life. Gerontologist 39: 534-45.
35. Ingersoll-Dayton, B., Morgan, D., and Antonucci, T. 1997. The effects of positive and negative social exchanges on aging adults. Journal of Gerontology: Social Sciences 52(4):S190-99.
36. Karlawish, J. H. T., Casarett, D., Klocinski, J., and Clark, C. M. 2001. The relationship between caregivers' global ratings of Alzheimer disease patients' quality of life, disease severity, and the caregiver experience. Journal of the American Geriatrics Society 49:1066-70.
37. Karlin, N. J., Bell, P. A., and Noah, J. L. 2001. Long-term consequences of the Alzheimer's caregiver role: A qualitative analysis. American Journal of Alzheimer's Disease and Other Dementias 16(3):177-82.
38. Kiecolt-Glaser, J. K., and Glaser, R. 1990. Caregiving, mental health, and immune function. In E. Light and B. D. Lebowitz (Eds.), Alzheimer's disease: Treatment and family stress (pp. 245-66). New York: Hemisphere Publishing.
39. Knight, B. G., Silverstein, M., McCallum, T. J., and Fox, L. S. 2000. A socio-cultural stress and coping model for mental health outcomes among African-American caregivers in southern California. Journals of Gerontology: Psychological and Social Sciences 55(3): 142-50.
40. Lachman, M. E. 2003. Negative interactions in close relationships: Introduction to a special section. Journal of Gerontology: Psychological Sciences 58B(2):69.
41. Lawton, M. P., Kleban, M. H., Moss, M., Rovine, M., and Glicksman, A. 1989. Measuring caregiver appraisal. Journal of Gerontology: Psychological Sciences 44(3):61-71.
42. Lawton, M. P., Moss, M., Hoffman, C., and Perkinson, M. 2000. Two transitions in daughters' caregiving careers. Gerontologist 40:437-48.
43. Lieberman, M. A., and Fisher, L. 2001. The effects of nursing home placement on family caregivers of patients with Alzheimer's disease. Gerontologist 41:819-26.
44. Meshefedjian, G., McCusker, J., Bellavance, F., and Baumgarten, M. 1998. Factors associated with symptoms of depression among informal caregivers of demented elders in the community. Gerontologist 38:247-53.
45. Moeller, J. W., and Shuell, H. 1988. Elder care: Caregiving in the workplace. Berkeley, Calif.: Summer Series on Aging, American Society on Aging.
46. Moritz, D. J., Kasl, S. V., and Ostfeld, A. M. 1992. The health impact of living with a cognitively impaired elderly spouse. Journal of Aging and Health 4:244-67.
47. Motenko, A. K. 1989. The frustrations, gratifications, and well-being of dementia caregivers. Gerontologist 29(2):166-72.
48. Newcomer, R., Yordi, C., DuNah, R., Fox, P., and Wilkinson, A. 1999. Effects of the Medicare Alzheimer's Disease Demonstration on caregiver burden and depression. Health Services Research 34(3):669-89.
49. Nissel, M. 1984. The family costs of looking after handicapped elderly relatives. Aging and Society 4(2):185-204.
50. Novak, M., and Guest, C. 1989. Application of a multidimensional caregiver burden inventory. Gerontologist 19:798-803.
51. Ory, M. G., Hoffman, R. R. 3rd, Yee, J. L., Tennstedt, S., and Schulz, R 1999. Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. Gerontologist 39:177-85.
52. Ory, M. G., Yee, J. L., Tennstedt, S. L., and Schulz, R. 2000. The extent and impact of dementia care: Unique challenges experienced by family caregivers. In R. Schulz (Ed.), Handbook on dementia caregiving: Evidence-based interventions for family caregivers. New York: Springer.
53. Pariante, C. M., Carpiniello, B., Orru, M. G., Sitzia, R., Piras, A., Farci, A. M. G., Del Giacco, G. S., Piludu, G., and Miller, A. H. 1997. Chronic caregiving stress alters peripheral blood immune parameters: The role of age and severity of stress. Psychotherapy and Psychosomatics 66:199-207.
54. Pearlin, L. I., Mullan, J. T., Semple, S. J., Skaff, M. M. 1990. Caregiving and the stress process: An overview of concepts and their measures. Gerontologist 30:583-94.
55. Pillemer, K., and Suitor, J. J. 1996. It takes one to help one: Status similarity and well-being of family caregivers to relatives with dementia. Journal of Gerontology: Social Sciences 51B: S250-57.
56. Pillemer, K., Suitor, J. J., and Wethington, E. 2003. Integrating theory, basic research, and intervention: Two case studies from caregiving research. Gerontologist 43(Special Issue):19-28.
57. Pruchno, R. A., and Resch, N. L. 1989. Husbands and wives as caregivers: Antecedents of depression and burden. Gerontologist 29:159-65.
58. Rice, D. P., Fox, P. J., Max, W., Webber, P. A., Lindeman, D. A., Hauck, W. W., and Segura, E. 1993. The economic burden of Alzheimer's disease care. Health Affairs 12:164-76.
59. Ryan, A. A., and Scullion, H. F. 2000. Nursing home placement: An exploration of the experiences of family carers. Journal of Advanced Nursing 32(5):1187-95.
60. Schulz, R., Biegel, D., Morycz, R., and Visintainer, P. 1990. Psychological paradigms for understanding caregiving. In E. Light and B. D. Lebowitz (Eds.), Alzheimer's disease: Treatment and family stress (pp. 106-121). New York: Hemisphere Publishing.
61. Schulz, R., O'Brien, A. T., Bookwala, J., and Fleissner, K. 1995. Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. Gerontologist 35: 771-91.
62. Seeman, T. E., Kaplan, G. A., Knudsen, L., Cohen, R., and Guralnik, J. 1987. Social network ties and mortality among the elderly in the Alameda County Study. American Journal of Epidemiology 126(4):714-23.
63. Stephens, M. A. P., and Franks, M. M. 1999. Intergenerational relationships in late-life families: Adult daughters and sons as caregivers to aging parents. In J. Cavanaugh and S. K. Whitbourne (Eds.), Gerontology: An interdisciplinary perspective (pp. 329-354). New York: Oxford University Press.
64. Tarrier, N., Barrowclough, C., Ward, J., Donaldson, C., Burns, A., and Gregg, L. 2002. Expressed emotion and attribution in the cares of patients with Alzheimer's disease: The effect on carer burden. Journal of Abnormal Psychology 111(2):340-49.
65. Teri, L., Gibbons, L. E., McCurry, S. M., Logsdon, R., G., Buchner, D. M., Barlow, W. E., Kukull, W. A., LaCroix, A. Z., McCormick, W., and Larson, E. B. 2003. Exercise plus behavior management in patients with Alzheimer's disease: A randomized control trial. JAMA 290(15):2015-22.
66. Teri, L., Logsdon, R. G., and McCurry, S. M. 2002. Nonpharmacologic treatment of behavioral disturbance in dementia. Medical Clinics of North America 86(3):641-56.
67. Teri, L., Logsdon, R. G., Peskind, E., Raskind, M., Weiner, M. F., Tractenberg, R. E., Foster, N. L., Scneider, L. S., Sano, M., Whitehouse, P., Tariot, P., Mellow, A. M., Auchus, A. P., Grundman, M., Thomas, R. G., Schafer, K., and Thal, L. J., Alzheimer Disease Cooperative Study. 2000. Treatment of agitation in AD: A randomized, placebo-controlled clinical trial. Neurology 55(9):1271-78.
68. Tornatore, J. B., and Grant, L. A. 2002. Burden among family caregivers of persons with Alzheimer's disease in nursing homes. Gerontologist 42:497-506.
69. Vitaliano, P. P., Maiuro, R. D., Ochs, H., and Russo, J. 1990. A model of burden in caregivers in DAT patients. In E. Light and B. D. Lebowitz (Eds.), Alzheimer's disease: Treatment and family stress (pp. 267-291). New York: Hemisphere Publishing.
70. Vitaliano, P. P., Young, H. M., and Russo, J. 1991. Burden: A review of measures used among caregivers of individuals with dementia. Gerontologist 31:67-75.
71. Waldman, K. 1998. Benefits of caregiving. In-service presented to the Mental Health Care Line at the Veterans Affairs Medical Center, Houston, Texas.
72. Weiner, M. F., Tractenberg, R. E., Sano, M., Logsdon, R., Teri, L., Glasko, D., Gamst, A., Thomas, R., and Thal, L. J. 2002. No long-term effect of behavioral treatment on psychotropic drug use for agitation in Alzheimer's disease patients. Journal of Geriatric Psychiatry and Neurology 15(2):95-98.
73. Yaffe, K., Fox, P., Newcomer, R., Sands, L., Lindquist, K., Dane, K., and Covinsky, K. E. 2002. Patient and caregiver characteristics and nursing home placement in patients with dementia. JAMA 287(16):2090-97.
74. Yeh, S. H., Johnson, M. A., and Wang, S. T. 2002. The changes in caregiver burden following nursing home placement. International Journal of Nursing Studies 39(6):591-600.
75. Zarit, S. H., Reever, K. E., and Bach-Peterson, J. 1980. Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist 20:649-55.
76. Zarit, S. H., and Zarit, J. M. 1982. Families under stress: Interventions for caregivers of senile dementia patients. Psychotherapy: Theory, Research, and Practice 19(4):461-71.