What they say versus what we see: "Hidden" distress and impaired quality of life in heart transplant recipients

Journal of Heart and Lung Transplantation

Volumn 29, Issue 10, 2010, Pages 1142-1149

  Ross, Heather ^a   Abbey, Susan ^a   De Luca, Enza ^a   Mauthner, Oliver ^a   McKeever, Patricia ^b   Shildrick, Margrit ^c   Poole, Jennifer ^d  

^a UNIVERSITY HEALTH NETWORK   (Canada)

^b University of Toronto   (Canada)

^c QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

^d RYERSON UNIVERSITY   (Canada)

Author keywords

distress; heart transplantation; identity; phenemoenology

Indexed keywords

ADULT; AGED; ARTICLE; AUDIOVISUAL EQUIPMENT; BODY POSTURE; CLINICAL ARTICLE; CROSS-SECTIONAL STUDY; DATA ANALYSIS SOFTWARE; DESCRIPTIVE RESEARCH; DISTRESS SYNDROME; FACIAL EXPRESSION; FEMALE; GESTURE; GRAFT RECIPIENT; HEART TRANSPLANTATION; HUMAN; INTERVIEW; MALE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUALITY OF LIFE; VIDEORECORDING; VOCALIZATION;

EID: 77957241857     PISSN: 10532498     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.healun.2010.05.009     Document Type: Article

References (55)

1. D.O. Taylor, L.B. Edwards, and P. Aurora Registry of the International Society for Heart and Lung Transplantation: twenty-fifth official adult transplant report-2008 J Heart Lung Transplant 27 2008 943 956 (Pubitemid 47199081)
2. M. Dew, L. Myaskovsky, and G.E. Switzer Profiles and predictors of the course of psychological distress across four years after heart transplantation Psychol Med 35 2005 1215 1217 (Pubitemid 41103013)
3. W. Paris, and C. White-Williams Social adaptation after cardiothoracic transplantation: a review of the literature J Cardiovasc Nurs 20 suppl 2005 S67
4. W. Paris, A. Woodbury, and S. Thompson Returning to work after heart transplantation J Heart Lung Transplant 12 1993 46 53 (Pubitemid 23099857)
5. D. Tylor, L.B. Edwards, and M.M. Boucek Registry of the International Society for Heart and Lung Transplantation: twenty-third official adult heart transplantation report-2006 J Heart Lung Transplant 25 2006 869 879 (Pubitemid 44143013)
6. M. Dew, and A.F. DiMartini Psychological disorders and distress after adult cardiothoracic transplantation J Cardiovasc Nurs 20 suppl 2005 S51 S66
7. K.L. Grady, D.C. Naftel, and J. Kobashigawa Patterns and predictors of quality of life at 5 to 10 years after heart transplantation J Heart Lung Transplant 26 2007 535 543 (Pubitemid 46602014)
8. K. Abbot, L.Y. Agodoa, and P.G. O'Malley Hospitalized psychoses after renal transplantation in the United States: incidence, risk factors, and prognosis J Am Soc Nephrol 14 2003 1628 1635
9. B. Brosig, and R. Woidera 'The three of us must hold together': psychoanalytic considerations of experiences of heartlung transplantation Psyche 47 1993 1063 1079
10. B. Bunzel, K. Laederach-Hofmann, and G.M. Wieselthaler Posttraumatic stress disorder after implantation of a mechanical assist device followed by heart transplantation: evaluation of patients and partners Transplant Proc 37 2005 1365 1368 (Pubitemid 40590889)
11. B. Bunzel, G. Wollenek, and A. Grundbock The hyperventilation syndrome as a psychosomatic component of cardiac transplantation [in German] Psychother Psychosom Med Psychol 40 1990 57 63 (Pubitemid 20067889)
12. L. Evangelista, L.V. Doering, and K. Dracup Hope, mood states and quality of life in female heart transplant recipients J Heart Lung Transplant 22 2003 681 686 (Pubitemid 36773680)
13. K. Laederach-Hofmann, S. Begre, and B. Bunzel Integration process and organ-related fantasies in patients undergoing organ transplantation Psychother Psychosom Med Psychol 52 2002 32 40 (Pubitemid 34478181)
14. L. Salvucci Solid organ transplantation and post traumatic stress disorder Dissertation Abstr Int B Sci Eng 64 2004 4061
15. J. Triffaux, J.C. Demoulin, and R. Limet 'Take this heart away!': From fear of rejection to post-transplant delirium [in French] Rev Med Liege 57 2002 389 392
16. E. Kop Role of psychological factors in the clinical course of heart transplant patients J Heart Lung Transplant 29 2010 257 260
17. A. Stukas, M.A. Dew, and G. Switzer PTSD in heart transplant recipients and their primary caregivers Psychosomatics 40 1998 212 221
18. C. Waldby, and R. Mitchell Tissue economies: blood, organs, and cell lines in late capitalism 2006 Duke University Press Durham, NC
19. M. Lock Twice dead: organ transplants and the reinvention of death 2002 University of California Press Berkeley, CA
20. M. Shildrick The critical turn in feminist bioethics: the case of heart transplantation Int J Feminist Approach Bioethics 2008 28 47
21. M. Shildrick, P. McKeever, and S. Abbey Troubling dimensions of heart transplantation Med Humanities 35 2009 35 38
22. J. Poole, M. Shildrick, and P. McKeever 'You might not feel like yourself': on heart transplants, identity and ethics S.J. Murray, D. Holmes, Critical interventions in the ethics of healthcare 2009 Ashgate Press London 33 44
23. M. Merleau-Ponty Phenomenology of perception translator C. Smith, Phnomnologie de la perception 1989 Routledge London [originally published 1945]
24. D. Moss Brain, body, and world: body image and the psychology of the body R.S. Valle, S. Halling, Existentialphenomenological perspectives in psychology 1989 Plenum Press New York 63 82
25. C. Heath The analysis of activities in face to face interaction in using video D. Silvermann, Qualitative research: theory, method and practice 1997 Sage London
26. K. Usher, and C. Holmes Ethical aspects of phenomenological research with mentally ill people Nurs Ethics 4 1997 49 56 (Pubitemid 127458364)
27. W. Shrum, R. Duque, and T. Brown Digital video as research practice: methodology for the millennium J Res Pract 1 2005 1 19
28. G. Albrech Videotape safaris: entering the field with a camera Qual Sociol 8 1985 325 344
29. F. Erikson, and J. Schultz The counselor as gatekeeper: social interaction in interviews E. Hammel, Language, thought and culture: advances in the study of cognition 1981 Academic Press New York
30. M. Gotterdiener Field research and video tape Sociol Inquiry 49 1979 59 66
31. A. Grimshaw Sound-image data records for research on social interaction: some questions answered Sociol Methods Res 11 1982 121 144
32. C. Heath Body movement and speech in medial interaction 1986 University Press Cambridge
33. L. Berstrom, J. Roberts, and L. Skillman You'll feel me touching you sweetie: vaginal examinations during second stage of labour Birth 19 1992 10 18
34. R. Starr Clinical judgement of abuse-proness based on parent-child interactions Child Abuse Neglect 11 1987 87 92
35. M. Vihman, and M. Greenlee Individual differences in phonological development: ages one and three years J Speech Hearing Res Q 30 1987 503 521 (Pubitemid 18033314)
36. S. Vuchinich On attenuation in verbal family conflict Social Psychol Q 49 1986 281 293
37. Heider K. Ethnographic film. Austin, TX: University of Texas Press.
38. I. Eibl-Eibesfeldt, and H. Hass Film studies in human ethology Curr Anthropol 8 1974 477 479
39. L. Carpenter, and T. Merkel The effects of three methods of observation on couples in interactional resesearch Am J Family Ther 16 1988 144 157
40. E. Arborelius, and T. Timpka General practitioners comments on video recorded consultations as an aid to understanding the doctorpatient relationship Family Pract 7 1990 84 90 (Pubitemid 20376011)
41. H. Lomax, and N. Casey Recording social life: reflexivity and video methodology Sociol Res Online http://www.socresonline.org.uk/socresonline/3/2/ xxxx.html 1998 accessed February 26, 2010
42. H. Graham Surveying through stories Researching: politics, problems, practice C. Bell, H. Roberts, 1984 Routledge London 104 124
43. B. Poland, and A. Pederson Reading between the lines: interpreting silences in qualitative research Qual Inquiry 4 1998 293
44. B. Poland Transcription quality J.F. Gubrium, J.A. Holstein, Handbook of interview research 2001 Sage Press Newbury Park, CA 629 649
45. S. Pink Doing visual ethnography 2006 Sage Press London
46. K. Charmaz Stories and silence: disclosure and self in chronic illness Qual Inquiry 8 2002 302 328 (Pubitemid 34135623)
47. D. Heath Demonstrative suffering: the gestural (re)embodiment of symptoms J Communication 52 2002 597 616
48. S. Pink More visualising, more methodologies: on video, reflexivity and qualitative research Sociol Rev 59 2001 586 599 (Pubitemid 33367703)
49. D. Gauntlett, and P. Holzwarth Creative and visual methods for exploring identities Visual Studies 21 2006 82 92
50. B. Harrison Seeing health and illness worldsusing visual methodologies in a sociology of health and illness: a methodological review Sociol Health Illness 24 2002 856 872 (Pubitemid 36172537)
51. R.J. Sampson, and S.W. Raudenbush Systematic social observation of public spaces: a new look at disorder in urban neighborhoods Am J Sociol 105 1999 603 651
52. L. Sharp Organ transplantation as a transformative experience: anthropological insights into the restructuring of the self Med Anthropol Q New Series 9 1995 357 389
53. J.L. Nancy L'Intrus 2000 Galilee Paris
54. B.A. Koenig Organ transplantation (re)examined? Med Anthropol Q New Series 9 1995 393 397
55. M. Merleau-Ponty The visible and the invisible 1968 Northwestern University Press Evanston, IL