An exploration of the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities

Palliative Medicine

Volumn 24, Issue 6, 2010, Pages 566-572

  Ryan, Karen ^a   McEvoy, John ^b   Guerin, Suzanne ^c   Dodd, Philip ^c,d  

^a St Francis Hospice   (Ireland)

^b DUNDALK INSTITUTE OF TECHNOLOGY   (Ireland)

^c UNIVERSITY COLLEGE DUBLIN   (Ireland)

^d St Michael's House   (Ireland)

Author keywords

focus groups; intellectual disability; learning disability; palliative care; questionnaires

Indexed keywords

ARTICLE; ATTITUDE TO DISABILITY; CONTROLLED STUDY; EXPERIENCE; EXPLORATORY BEHAVIOR; HEALTH ASSESSMENT QUESTIONNAIRE; HEALTH CARE DELIVERY; HEALTH CARE SURVEY; HEALTH PERSONNEL ATTITUDE; HEALTH SERVICE; HOSPITAL ADMINISTRATOR; HUMAN; INTELLECTUAL IMPAIRMENT; IRELAND; MEDICAL STAFF; PALLIATIVE THERAPY; PROFESSIONAL PRACTICE; SAMPLE;

ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CLINICAL COMPETENCE; FOCUS GROUPS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; IRELAND; MENTAL RETARDATION; PALLIATIVE CARE; QUESTIONNAIRES;

EID: 77956819534     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1177/0269216310371413     Document Type: Article

References (18)

1. Tuffrey-Wijne I. The palliative care needs of people with intellectual disabilities: a literature review. Palliat Med 2003 ; 17: 55-62.
2. Tuffrey-Wijne I., Hogg J. and Curfs L. End of life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: a review of the literature and available resources. J Appl Res Intellect Disabil 2007 ; 20: 331-344.
3. Brown H., Burns S. and Flynn M. Supporting people though terminal illness and death. In: Today and tomorrow: the report of the Growing Older with Learning Disabilities Programme. London: The Foundation for People with Learning Disabilities, 2002.
4. Tuffrey-Wijne I. The palliative care needs of people with intellectual disabilities: a case study. Int J Palliat Nurs 2002 ; 8: 222-232.
5. Davies E, Higginson IJ (eds) The solid facts: palliative care. Denmark: World Health Organization, 2004. Available from: http://www.euro.who.int/ document/E82931.pdf.
6. Report of the National Advisory Committee on Palliative Care. Department of Health and Children. Dublin: Brunswick Press Ltd, 2001.
7. Kelly F., Kelly C. and Craig S. Annual report of the National Intellectual Disability Database Committee. Dublin: Health Research Board, 2007.
8. Jancar J. Cancer and mental handicap: a further study (1976-85). Br J Psychiatry 1990 ; 156: 531-533.
9. Patja K., Iivanainen M., Vesala H., Oksanen H. and Ruoppila I. Life expectancy of people with intellectual disability: a 35-year follow-up study. J Intellect Disabil Res 2000 ; 44: 591-599.
10. Ritchie J. and Spencer L. Qualitative data analysis for applied policy research. In: Bryman A and Burgess R (eds) Analysing qualitative data. London: Routledge, 1993, pp. 173-194.
11. Tuffrey-Wijne I., Whelton R., Curfs L. and Hollins S. Palliative care provision for people with intellectual disabilities: a questionnaire survey of specialist palliative care professionals. Palliat Med 2008 ; 22: 281-290.
12. Department of Health. Valuing people: a new strategy for learning disabilities for the 21st century. London: Department of Health, 2003.
13. Wilkinson H., Kerr D., Cunningham C. and Rae C. Home for good? Models of good practice for supporting people with a learning disability and dementia. York: Joseph Rowntree Foundation, 2004.
14. Ng J. and Li S. A survey exploring the educational needs of care practitioners in learning disability (LD) settings in relation to death, dying and people with learning disabilities. Eur J Cancer Care (Engl) 2003 ; 12: 12-19.
15. Bycroft L. Care of a handicapped woman with metastatic breast cancer. Br J Nurs 1994 ; 3: 126-128, 130-133.
16. National Institute for Clinical Excellence. Improving supportive and palliative care for adults with cancer. London: National Institute for Clinical Excellence, March 2004.
17. Irish Hospice Foundation, Health Service Executive. Palliative care for all: integrating palliative care into disease management frameworks. Dublin: Health Service Executive, 2008.
18. Holtom M. The partnership imperative: joint working between social services and health. J Manag Med 2001 ; 15: 430-445.