Communicating disclosure risk in informed consent statements

Journal of Empirical Research on Human Research Ethics

Volumn 5, Issue 3, 2010, Pages 1-8

  Singer, Eleanor ^a   Couper, Mick P ^a  

^a UNIVERSITY OF MICHIGAN   (United States)

Author keywords

Communicating risk; Confidentiality; Confidentiality assurance; Disclosure; Informed consent; Risk; Survey research

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL TRIAL; CONFIDENTIALITY; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; FEMALE; HUMAN; INFORMATION PROCESSING; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; PATIENT SELECTION; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; REGRESSION ANALYSIS; RISK ASSESSMENT; UNITED STATES;

ADULT; AGED; COMMUNICATION; CONFIDENTIALITY; DATA COLLECTION; DISCLOSURE; FEMALE; HUMANS; MALE; MICHIGAN; MIDDLE AGED; PATIENT SELECTION; QUESTIONNAIRES; REGRESSION ANALYSIS; RISK ASSESSMENT;

EID: 77956643352     PISSN: 15562646     EISSN: 15562654     Source Type: Journal    
DOI: 10.1525/jer.2010.5.3.1     Document Type: Article

References (6)

1. Callegaro, M. & DiSogra, C. (2008). Computing response metrics for online panels. Public Opinion Quarterly, 72(5), 1008-1032.
2. Couper, M. P., Singer, E., Conrad, F. G., & Groves, R. M. (2008). Risk of disclosure, perceptions of risk, and concerns about privacy and confidentiality as factors in survey participation. Journal of Official Statistics, 24(2), 255-275.
3. Couper, M. P., Singer, E., Conrad, F. G., & Groves, R. M. (2010). Experimental studies of disclosure risk, disclosure harm, topic sensitivity, and survey participation. Journal of Official Statistics, 26(2), 287-300.
4. Kish, L. (1987). Statistical Design for Research. New York, NY: John Wiley.
5. Porst, R. & von Briel, C. (1995). Wären Sie vielleicht bereit, sich gegebenenfalls noch einmal befragen zu lassen? Oder: Gründe für die Teilnahme an Panelbefragungen. ZUMA-Arbeitsbericht, 95(4).
6. Singer, E. (2010). Why people respond to surveys: A costbenefit theory of survey participation. JPSM Distinguished Lecture, College Park, MD, March 12.