Narratives of transformation: Family discourse, autism and trajectories of hope

Discourse and Society

Volumn 21, Issue 5, 2010, Pages 544-564

  Sirota, Karen Gainer ^a  

^a RUTGERS UNIVERSITY   (United States)

Author keywords

autism; autism spectrum disorders; children; disability; family discourse; language socialization; mental health; narrative; self; transformation; United States

Indexed keywords

EID: 77956486881     PISSN: 09579265     EISSN: 14603624     Source Type: Journal    
DOI: 10.1177/0957926510373992     Document Type: Article

References (50)

1. American Psychiatric Association (2000) Diagnostic and Statistical Manual of Mental Disorders, 4th edn. Washington, DC: American Psychiatric Association.
2. Atkinson, J.M. and Heritage, J. (eds) (1984) Structures of Social Action. Cambridge: Cambridge University Press.
3. Berger, B.M. (1986) Foreword, in E. Goffman (ed.) Frame Analysis: An Essay on the Organization of Experience, pp. xi-xviii. Boston, MA: Northeastern University Press.
4. Berko-Gleason, J. and Melzi, G. (1997) The Mutual Construction of Narrative by Mothers and Children: Cross-Cultural Observations, Journal of Life History 7: 217-22.
5. Berman, R.A. and Slobin, D.I. (1994) Relating Events in Narrative: A Crosslinguistic Developmental Study. Hillsdale, NJ: Lawrence Erlbaum Associates.
6. Blum-Kulka, S. (1997) Dinner Talk: Cultural Patterns of Sociability and Socialization in Family Discourse. Mahwah, NJ: Lawrence Erlbaum Associates.
7. Bruner, J. (2002) Making Stories: Law, Literature, Life. New York: Farrar, Straus, and Giroux.
8. Bruner, J. (2004) Life as Narrative, Social Research 71(3): 691-710.
9. Davis, J. and Watson, N. (2002) Challenging the Stereotypes: Disabled Children and Resistance, in M. Coker and T. Shakespeare (eds) Disability/Postmodernity: Embodying Disability Theory, pp. 159-74. London: Cassell.
10. Fivush, R. (1994) Constructing Narrative, Emotion, and Self in Parent-Child Conversations about the Past, in U. Neisser and R. Fivush (eds) The Remembering Self: Construction and Accuracy in the Self-Narrative, pp. 136-57. Cambridge: Cambridge University Press.
11. Fombonne, E. (2005) Epidemiological Studies of Pervasive Developmental Disorders, in F.R. Volkmar, R. Paul, A. Klin and D. Cohen (eds) Handbook of Autism and Pervasive Developmental Disorders, 3rd edn, pp. 42-69. Hoboken, NJ: John Wiley & Sons.
12. Foucault, M. (1988) Technologies of the Self, in L.H. Martin, H. Gutman and P.H. Hutton (eds) Technologies of the Self, pp. 16-49. Amherst, MA: University of Massachusetts Press.
13. Frank, A.W. (2004) Moral Non-Fiction: Life Writing and Children's Disability, in P.J. Eakin (ed.) The Ethics of Life Writing, pp. 174-94. Ithaca, NY: Cornell University Press.
14. Goffman, E. (1974) Frame Analysis: An Essay on the Organization of Experience. New York: Harper and Row.
15. Goodwin, C. (ed.) (2003) Conversation and Brain Damage. Oxford: Oxford University Press.
16. Goodwin, M.H. (1990) He-Said-She-Said: Talk as Social Organization among Black Children. Bloomington, IN: Indiana University Press.
17. Goodwin, M.H. (2006) The Hidden Life of Girls: Games of Stance, Status, and Exclusion. Malden, MA: Blackwell.
18. Grandin, T. (2005) A Personal Perspective of Autism, in F.R. Volkmar, R. Paul, A. Klin and D. Cohen (eds) Handbook of Autism and Pervasive Developmental Disorders, 3rd edn, pp. 1276-86. Hoboken, NJ: John Wiley & Sons.
19. Heath, S.B. (1983) Ways with Words: Language, Life, and Work in Communities and Classrooms. Cambridge: Cambridge University Press.
20. Jenkins, J.H. and Carpenter-Song, E. (2005) The New Paradigm of Recovery from Schizophrenia: Cultural Conundrums of Improvement without Cure, Culture, Medicine, and Psychiatry 29(4): 379-413.
21. Jensen, P.S. (2003) Foreword, in S. Ozonoff, S.J. Rogers and R.L. Hendren (eds) Autism Spectrum Disorders: A Research Review for Practitioners, pp. xv-xix. Washington, DC: American Psychiatric Publishing, Inc.
22. Leichtman, M.D., Wang, Q. and Pillemer, D.B. (2003) Cultural Variations in Interdependence and Autobiographical Memory: Lessons from Korea, China, India, and the United States, in R. Fivush and C.A. Haden (eds) Autobiographical Memory and the Construction of a Narrative Self: Developmental and Cultural Perspectives, pp. 73-98. Mahwah, NJ: Lawrence Erlbaum Associates.
23. LeVine, R.A. (2007) Ethnographic Studies of Childhood: A Historical Overview, American Anthropologist 109(2): 247-60.
24. Losh, M. and Capps, L. (2003) Narrative Ability in High-Functioning Children with Autism or Asperger's Syndrome, Journal of Autism and Developmental Disorders 33(3): 239-51.
25. Mattingly, C. (1998) Healing Dramas and Clinical Plots: The Narrative Structure of Experience. Cambridge: Cambridge University Press.
26. Mattingly, C. and Garro, L.C. (eds) (2000) Narrative and the Cultural Construction of Illness and Healing. Berkeley, CA: University of California Press.
27. Miller, P.J. (1982) Amy, Wendy, and Beth: Learning Language in South Baltimore. Austin, TX: University of Texas Press.
28. Miller, P.J. and Sperry, L.L. (1988) Early Talk about the Past: The Origins of Conversational Experience about the Past, Journal of Child Language 15(2): 293-315.
29. Miller, P.J., Fung, H. and Mintz, J. (1996) Self-Construction through Narrative Practices: A Chinese and American Comparison of Early Socialization, Ethos 24(2): 237-80.
30. Miller, P.J., Potts, R., Fung, H., Hoogstra, L. and Mintz, J. (1990) Narrative Practices and the Social Construction of Self in Childhood, American Ethnologist 17(2): 292-311.
31. Minami, M. and McCabe, A. (1995) Rice Balls and Bear Hunts: Japanese and North American Family Narrative Patterns, Journal of Child Language 22(2): 423-45.
32. Nelson, H.L. (2001) Damaged Identities, Narrative Repair. Ithaca, NY and London: Cornell University Press.
33. Nelson, K. (1989) Narratives from the Crib. Cambridge, MA: Harvard University Press.
34. Nelson, K. (1990) The Psychological and Social Origins of Autobiographical Memory, Psychological Science 4(1): 7-14.
35. Ochs, E. and Capps, L. (1995) Constructing Panic: The Discourse of Agoraphobia. Cambridge, MA: Harvard University Press.
36. Ochs, E. and Capps, L. (1996) Narrating the Self, Annual Review of Anthropology 25: 19-43.
37. Ochs, E. and Capps, L. (2001) Living Narrative: Creating Everyday Lives in Storytelling. Cambridge, MA: Harvard University Press.
38. Ochs, E. and Schieffelin, B.B. (1984) Language Acquisition and Socialization: Three Developmental Stories and their Implications, in R.A. Shweder and R.A. LeVine (eds) Culture Theory: Essays on Mind, Self, and Emotion, pp. 276-320. New York: Cambridge University Press.
39. Ochs, E. and Solomon, O. (2005) Practical Logic and Autism, in C. Casey and R.B. Edgerton (eds) A Companion to Psychological Anthropology: Modernity and Psychocultural Change, pp. 140-67. Malden, MA: Blackwell.
40. Ochs, E., Smith, R. and Taylor, C. (1989) Detective Stories at Dinnertime: Problem-Solving through Co-narration, Cultural Dynamics 2(2): 238-57.
41. Ochs, E., Kremer-Sadlik, T., Sirota, K.G. and Solomon, O. (2004) Autism and the Social World: An Anthropological Perspective, Discourse Studies 6(2): 147-83.
42. Ochs, E., Taylor, C., Rudolph, D. and Smith, R. (1992) Storytelling as a Theory-Building Activity, Discourse Processes 15(1): 37-52.
43. Rogoff, B. (2003) The Cultural Nature of Human Development. Oxford: Oxford University Press.
44. Rose, N. (1990) Governing the Soul: The Shaping of the Private Self. London and New York: Routledge.
45. Sacks, O. (1993) 'An Anthropologist on Mars', New Yorker, 27 December: 106-25.
46. Schieffelin, B.B. and Ochs, E. (eds) (1986) Language Socialization Across Cultures. New York: Cambridge University Press.
47. Tager-Flusberg, H., Paul, R. and Lord, C. (2005) Language and Communication in Autism, in F.R. Volkmar, R. Paul, A. Klin and D. Cohen (eds) Handbook of Autism and Pervasive Developmental Disorders, 3rd edn, pp. 335-64. Hoboken, NJ: John Wiley & Sons.
48. Taylor, C.E. (1995) You Think It Was a Fight? Co-Constructing (the Struggle for) Meaning, Face, and Family in Everyday Narrative Activity, Research on Language and Social Interaction 28(3): 283-317.
49. Wechsler, D. (1992) Manual for the Wechsler Intelligence Scale for Children, 3rd edn. New York: Psychological Corporation.
50. Wetherby, A.M., Prizant, B.M. and Schuler, A.L. (2000) Understanding the Nature of Communication and Language Impairments, in A.M. Wetherby and B.M. Prizant (eds) Autism Spectrum Disorders: A Transactional Developmental Perspective, pp. 109-41. Baltimore, MD: Paul H. Brookes.