Challenges and opportunities: Recruitment and retention of African Americans for Alzheimer disease research: Lessons learned

Alzheimer Disease and Associated Disorders

Volumn 24, Issue SUPPL. 1, 2010, Pages

  Ballard, Edna L ^a   Gwyther, Lisa P ^b   Edmonds, Henry L ^a  

^a DUKE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b DUKE UNIVERSITY MEDICAL CENTER   (United States)

Author keywords

Alzheimer; guidelines; minorities; mistrust; recruitment; retention

Indexed keywords

ABUSE; AFRICAN AMERICAN; ALZHEIMER DISEASE; ARTICLE; CLINICAL RESEARCH; HUMAN; LANGUAGE; METHODOLOGY; PATIENT PARTICIPATION; PRACTICE GUIDELINE; PRIORITY JOURNAL; TRUST; UNITED STATES;

AFRICAN AMERICANS; ALZHEIMER DISEASE; BIOMEDICAL RESEARCH; COMMUNICATION; COMMUNITY-INSTITUTIONAL RELATIONS; HUMANS; NORTH CAROLINA; PATIENT SELECTION; TRUST;

EID: 77956440348     PISSN: 08930341     EISSN: None     Source Type: Journal    
DOI: 10.1097/WAD.0b013e3181f12432     Document Type: Article

References (15)

1. Ballard EL, Nash F, Raiford K, et al. Recruitment of Black elderly for clinical research studies of dementia: the CERAD experience. Gerontologist, 1993;33:561-565.
2. Welsh KA, Ballard E, Nash F, et al. Issues affecting minority participation in research studies of Alzheimers disease. Alzheimers Dis Associated Disorders, 1994;8(suppl. 4), 38-48.
3. Epstein, Steven. Inclusion. The Politics of Difference in Medical Research. Chicago: The University of Chicago Press; 2007.
4. Lavizzo-Mourey R, Knickman JR. Racial disparities: the need for research and action (Editorial). N Engl J Med. 2003; 349: 1379-1380.
5. Curry L, Jackson J. Recruitment and retention of diverse ethnic and racial groups in health research: An evolving science. In: Curry L, Jackson JS. Eds. The Science of Inclusion: Recruiting and Retaining Racial and Ethnic Elders in Health Research. Washington, DC: Gerontological Society of America; 2003.
6. Willowbrook Study. www.kwu.eud/irb/Module1htm.
7. Ballard EL. Social work perspectives: issues in caregiver research: the family. Alzheimers Dis Associated Disorder. 1999; 13(suppl): S88-S92.
8. Wendler D, Kington R, Madans J, et al. Are racial and ethnic minorities less willing to participate in health research?. PLoS Medicine. 2006;3:201-210.
9. Bullard RD. Dumping in Dixie: Race, Class, and Environmental Quality. Boulder, CO: Westview Press; 1990.
10. Janevic MR, Connell CM. Racial, ethnic, and cultural differences in the dementia caregiving experience: Recent findings. Gerontologist. 2001;41:334-347.
11. Earp JAL, Altpeter M, Mayne L, et al. The North Carolina breast cancer screening program: foundations and design of a model for reaching older, minority, rural women. Breast Cancer Res Treatment. 1995;35:7-22. [Chicago. Chicago, Illinois: 2007].
12. Institute of Medicine. Health Literacy: A Prescription to End Confusion. Washington, DC: National Academies Press; 2004.
13. Wrobel AJ, ShapiroWEK. Conducting research with urban elders: issues for recruitment, data collection and home visits. Alzheimers Disease Associated Disorders. 1999;13(suppl. 1), S34-S38.
14. Alvarez RA, Vasquez E, Mayorga CC, et al. Increasing Minority Research Participation Through Community Organization Outreach. Western Journal of Nursing Research: Sage Publications; 2006;28:541-560.
15. Tsang AKT. Representation of ethnic identity in North American social work literature: a dossier of the Chinese people. Social Work 2001;46:229-243.