Attitudes of genetic counselors towards genetic susceptibility testing in children

Journal of Genetic Counseling

Volumn 19, Issue 4, 2010, Pages 402-416

  MacKoff, Rishona L ^a   Iverson, Ellen F ^b   Kiekel, Preston ^b   Dorey, Frederick ^b   Upperman, Jeffrey S ^b   Metzenberg, Aida B ^a  

^a CALIFORNIA STATE UNIVERSITY   (United States)

^b UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

Author keywords

Attitudes; Autonomy; Children; Discrimination; Genetic counselors; Genetic testing; Guidelines; Susceptibility

Indexed keywords

ACCESS TO INFORMATION; ADULT; ARTICLE; CHILD; FEMALE; GENETIC COUNSELING; GENETIC PREDISPOSITION; GENETIC SCREENING; HEALTH PERSONNEL ATTITUDE; HUMAN; INFORMATION PROCESSING; MALE; MANPOWER; MIDDLE AGED;

ACCESS TO INFORMATION; ADULT; ATTITUDE OF HEALTH PERSONNEL; CHILD; DATA COLLECTION; FEMALE; GENETIC COUNSELING; GENETIC PREDISPOSITION TO DISEASE; GENETIC TESTING; HUMANS; MALE; MIDDLE AGED;

EID: 77956403878     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-010-9298-9     Document Type: Article

References (22)

1. K Acharya P Ackerman L Ross 2005 Pediatricians' attitudes toward expanding newborn screening Pediatrics 116 4 e476 e484 10.1542/peds.2005-0453 16199673 (Pubitemid 44542786)
2. L Acheson KC Strange S Zyzanski 2005 Clinical genetics issues encountered by family physicians Genetics in Medicine 7 7 501 508 10.1097/01.gim. 0000177418.24176.9b 16170242 (Pubitemid 41447474)
3. B Bernhardt E Tambor G Fraser L Wissow G Geller 2003 Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consent American Journal of Medical Genetics Part A 116 4 315 323
4. M Bharadwaj 2006 Looking back, looking beyond: revisiting the ethics of genome generation Journal of Biosciences 31 1 167 176 10.1007/BF02705245 16595885
5. P Borry JP Fryns P Schotsmans K Dierickx 2005 Attitudes towards carrier testing in minors: a systematic review Genetic Counseling 16 4 341 352 1:STN:280:DC%2BD28%2Fls1Kgug%3D%3D 16440876
6. E Campbell L Ross 2003 Parental attitudes regarding newborn screening of PKU and DMD American Journal of Medical Genetics Part A 120 2 209 214
7. E Campbell L Ross 2005 Parental attitudes and beliefs regarding the genetic testing of children Community Genetics 8 2 94 102 10.1159/000084777 15925885 (Pubitemid 40827617)
8. A Cariou J Chiche J Charpentier J Dhainaut J Mira 2002 The era of genomics: impact on sepsis clinical trial design Critical Care Medicine 30 5 Suppl S341 S348 10.1097/00003246-200205001-00026 12004257
9. Creswell, J. (2002). Qualitative, quantitative, and mixed methods approaches (2nd ed.). Thousand Oaks: Sage Publications, Inc.
10. A Del Vecchio N Laforgia M Capasso A Iolascon G Latini 2004 The role of molecular genetics in the pathogenesis and diagnosis of neonatal sepsis Clinics in Perinatology 31 1 53 67 10.1016/j.clp.2004.03.012 15183656 (Pubitemid 38748591)
11. C Fisher 2006 Privacy and ethics in pediatric environmental health research-part II: protecting families and communities Environmental Health Perspectives 114 10 1622 1625 10.1289/ehp.9004 17035154 (Pubitemid 44509666)
12. S Hiraki K Ormond K Kim L Ross 2006 Attitudes of genetic counselors towards expanding newborn screening and offering predictive genetic testing to children American Journal of Medical Genetics Part A 140 21 2312 2319 10.1002/ajmg.a.31485 17036312 (Pubitemid 44684957)
13. J Koopmans S Hiraki L Ross 2006 Attitudes and beliefs of pediatricians and genetic counselors regarding testing and screening for CF and G6PD: implications for policy American Journal of Medical Genetics Part A 140 21 2305 2311 10.1002/ajmg.a.31463 17022079 (Pubitemid 44684956)
14. Laegsgaard, M., & Mors, O. (2007). Psychiatric genetic testing: attitudes and intentions among future users and providers. American Journal of Medical Genetics. Part B, Neuropsychiatric Genetics.
15. National Society of Genetic Counselors (1995-2008). Position Statements Retrieved April 6, 2008, from http://www.nsgc.org/about/position.cfm#Prenatal- two.
16. Nussbaum, R., McInnes, R., & Willard, H. (2007). Thompson & Thompson: Genetics in medicine (7th ed.). Philadelphia: Saunders Elsevier.
17. Parrott, S., & Del Vecchio, M. (2007). Professional status survey 2006.
18. P Saukko S Ellard S Richards M Shepherd J Campbell 2007 Patients' understanding of genetic susceptibility testing in mainstream medicine: qualitative study on thrombophilia BMC Health Services Research 7 82 10.1186/1472-6963-7-82 17565670 (Pubitemid 47029966)
19. R Sifri R Myers T Hyslop B Turner J Cocroft T Rothermel, et al. 2003 Use of cancer susceptibility testing among primary care physicians Clinical Genetics 64 355 360 10.1034/j.1399-0004.2003.00131.x 1:STN:280:DC%2BD3svos1ersA%3D%3D 12974741 (Pubitemid 37236136)
20. M Viken H Sollid G Joner K Dahl-Jørgensen K Rønningen D Undlien, et al. 2007 Polymorphisms in the cathepsin L2 (CTSL2) gene show association with type 1 diabetes and early-onset myasthenia gravis Human Immunology 68 9 748 755 10.1016/j.humimm.2007.05.009 1:CAS:528: DC%2BD2sXhtVeru7vI 17869649 (Pubitemid 47379976)
21. J Villar N Maca-Meyer L Pérez-Méndez C Flores 2004 Bench-to-bedside review: understanding genetic predisposition to sepsis Critical Care 8 3 180 189 10.1186/cc2863 15153236 (Pubitemid 38735697)
22. J Winning R Claus K Huse M Bauer 2006 Molecular biology on the ICU. From understanding to treating sepsis Minerva Anestesiologica 72 5 255 267 1:STN:280:DC%2BD283ltFWhtw%3D%3D 16675935