Symptoms in the month before death for stage 5 chronic kidney disease patients managed without dialysis

Journal of Pain and Symptom Management

Volumn 40, Issue 3, 2010, Pages 342-352

  Murtagh, Fliss E ^a   Addington Hall, Julia ^b   Edmonds, Polly ^c   Donohoe, Paul ^c   Carey, Irene ^d   Jenkins, Karen ^e   Higginson, Irene J ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^c KING'S COLLEGE HOSPITAL NHS FOUNDATION TRUST   (United Kingdom)

^d GUY'S AND ST THOMAS' NHS FOUNDATION TRUST   (United Kingdom)

^e KENT AND CANTERBURY HOSPITAL   (United Kingdom)

Author keywords

chronic kidney disease; end of life; end stage kidney disease; noncancer palliative care; prevalence study; Symptoms

Indexed keywords

ADVANCED CANCER; AGE DISTRIBUTION; AGED; ARM SWELLING; ARTICLE; CHRONIC KIDNEY DISEASE; CLINICAL ASSESSMENT; CONSERVATIVE TREATMENT; CONSTIPATION; DEATH; DECREASED APPETITE; DISEASE ACTIVITY; DISEASE SEVERITY; DISTRESS SYNDROME; DROWSINESS; DYSPNEA; ENERGY; FEMALE; FOLLOW UP; GLOMERULUS FILTRATION RATE; HEALTH SURVEY; HUMAN; KIDNEY FAILURE; LEG SWELLING; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MEMORIAL SYMPTOM ASSESSMENT SCALE SHORT FORM; MENTAL CONCENTRATION; NAUSEA; PAIN; PALLIATIVE THERAPY; PATIENT CARE; PREVALENCE; PRURITUS; PUBLISHING; SAMPLE SIZE; SYMPTOM; TERMINAL CARE; TREATMENT RESPONSE; UNITED KINGDOM; WEAKNESS; WITHOUT DIALYSIS; XEROSTOMIA;

AGED; DISEASE PROGRESSION; FEMALE; GREAT BRITAIN; HUMANS; KIDNEY FAILURE, CHRONIC; KIDNEY FUNCTION TESTS; LONGITUDINAL STUDIES; MALE; NEOPLASMS; PALLIATIVE CARE; RENAL DIALYSIS; SOCIOECONOMIC FACTORS;

EID: 77956375171     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2010.01.021     Document Type: Article

References (38)

1. D. Ansell, T. Feest, R. Rao, A. Williams, and C. Winearls UK Renal Registry Report 2005 2006 UK Renal Registry Bristol, UK
2. C. Smith, M. Silva-Gane, and S. Chandna Choosing not to dialyse: evaluation of planned non-dialytic management in a cohort of patients with end-stage renal failure Nephron Clin Pract 95 2 2003 c40 c46
3. A. Burns Conservative management of end-stage renal failure: masterly inactivity or benign neglect? Nephron Clin Pract 95 2 2003 c37 c39
4. F.E. Murtagh, J.E. Marsh, and P. Donohoe Dialysis or not? A comparative survival study of patients over 75 years with chronic kidney disease stage 5 Nephrol Dial Transplant 22 7 2007 1955 1962
5. S.K. Munshi, N. Vijayakumar, and N.A. Taub Outcome of renal replacement therapy in the very elderly Nephrol Dial Transplant 16 1 2001 128 133
6. E. Burgess Conservative treatment to slow deterioration of renal function: evidence-based recommendations Kidney Int Suppl 70 1999 S17 S25
7. F.E. Murtagh, E. Murphy, and K.A. Shepherd End-of-life care in end-stage renal disease: renal and palliative care Br J Nurs 15 1 2006 8 11
8. C.H. Chan, H. Noble, and S.H. Lo Palliative care for patients with end-stage renal disease: experiences from Hong Kong Int J Palliat Nurs 13 7 2007 310 314
9. H. Noble, and K. Rees Caring for people who are dying on renal wards: a retrospective study EDTNA ERCA J 32 2 2006 89 92
10. H. Noble, A. Chesser, and D. Kelly The cessation of dialysis in patients with end-stage renal disease: developing an appropriate evidence base for practice EDTNA ERCA J 31 4 2005 208 211
11. F. Murtagh, J. Addington-Hall, and I.J. Higginson The prevalence of symptoms in end-stage renal disease: a systematic review Adv Chronic Kidney Dis 14 1 2007 82 99
12. L.M. Cohen, M.J. Germain, and D.M. Poppel Dying well after discontinuing the life-support treatment of dialysis Arch Intern Med 160 16 2000 2513 2518
13. S. Chater, S.N. Davison, M.J. Germain, and L.M. Cohen Withdrawal from dialysis: a palliative care perspective Clin Nephrol 66 5 2006 364 372
14. F. Murtagh, J. Addington-Hall, and P. Edmonds Symptoms in advanced renal disease - a cross-sectional survey of symptom prevalence in stage 5 chronic kidney disease managed without dialysis J Palliat Med 10 6 2007 1266 1276
15. A.S. Levey, J.P. Bosch, and J.B. Lewis A more accurate method to estimate glomerular filtration rate from serum creatinine: a new prediction equation. Modification of Diet in Renal Disease Study Group Ann Intern Med 130 6 1999 461 470
16. V.T. Chang, S.S. Hwang, M. Feuerman, B.S. Kasimis, and H.T. Thaler The Memorial Symptom Assessment Scale Short Form (MSAS-SF) Cancer 89 5 2000 1162 1171
17. J.E. Tranmer, D. Heyland, and D. Dudgeon Measuring the symptom experience of seriously ill cancer and non cancer hospitalized patients near the end of life with the Memorial Symptom Assessment Scale J Pain Symptom Manage 25 5 2003 420 429
18. S.D. Weisbord, L.F. Fried, and R.M. Arnold Development of a symptom assessment instrument for chronic hemodialysis patients: The Dialysis Symptom Index J Pain Symptom Manage 27 3 2004 226 240
19. F. Anderson, G.M. Downing, J. Hill, L. Casorso, and N. Lerch Palliative performance scale (PPS): a new tool J Palliat Care 12 1 1996 5 11
20. D. Ansell, T. Feest, A. Ahmad, and R. Rao UK Renal Registry Report 2004 2005 UK Renal Registry Bristol, UK
21. S.J. Davies, L. Phillips, P.F. Naish, and G.I. Russell Quantifying comorbidity in peritoneal dialysis patients and its relationship to other predictors of survival Nephrol Dial Transplant 17 6 2002 1085 1092
22. J.G. Van Manen, J.C. Korevaar, and F.W. Dekker How to adjust for comorbidity in survival studies in ESRD patients: a comparison of different indices Am J Kidney Dis 40 1 2002 82 89
23. J.G. Van Manen, J.C. Korevaar, and F.W. Dekker Adjustment for comorbidity in studies on health status in ESRD patients: which comorbidity index to use? J Am Soc Nephrol 14 2 2003 478 485
24. S.M. Chandna, J. Schulz, C. Lawrence, R.N. Greenwood, and K. Farrington Is there a rationale for rationing chronic dialysis? A hospital based cohort study of factors affecting survival and morbidity BMJ 318 7178 1999 217 223
25. M.P. Merkus, K.J. Jager, and F.W. Dekker Predictors of poor outcome in chronic dialysis patients: The Netherlands Cooperative Study on the Adequacy of Dialysis. The NECOSAD Study Group Am J Kidney Dis 35 1 2000 69 79
26. M. Maltoni, A. Caraceni, and C. Brunelli Prognostic factors in advanced cancer patients: evidence-based clinical recommendations - a study by the Steering Committee of the European Association for Palliative Care J Clin Oncol 23 25 2005 6240 6248
27. R.K. Portenoy, H.T. Thaler, and A.B. Kornblith The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress Eur J Cancer 30A 9 1994 1326 1336
28. S.D. Weisbord, S.S. Carmody, and F.J. Bruns Symptom burden, quality of life, advance care planning and the potential value of palliative care in severely ill haemodialysis patients Nephrol Dial Transplant 18 7 2003 1345 1352
29. S.S. Hwang, V.T. Chang, D.L. Fairclough, J. Cogswell, and B. Kasimis Longitudinal quality of life in advanced cancer patients: pilot study results from a VA medical cancer center J Pain Symptom Manage 25 3 2003 225 235
30. S.C.C.M. Teunissen, W. Wesker, and C. Kruitwagen Symptom prevalence in patients with incurable cancer: a systematic review J Pain Symptom Manage 34 1 2007 94 104
31. T. Morita, J. Tsunoda, S. Inoue, and S. Chihara Contributing factors to physical symptoms in terminally-ill cancer patients J Pain Symptom Manage 18 5 1999 338 346
32. C. Conill, E. Verger, and I. Henriquez Symptom prevalence in the last week of life J Pain Symptom Manage 14 6 1997 328 331
33. J.S. Kutner, L.L. Bryant, B.L. Beaty, and D.L. Fairclough Symptom distress and quality-of-life assessment at the end of life: the role of proxy response J Pain Symptom Manage 32 4 2006 300 310
34. L.M. Cohen, J.D. McCue, M. Germain, and C.M. Kjellstrand Dialysis discontinuation. A "good" death? Arch Intern Med 155 1 1995 42 49
35. L.M. Cohen, M. Germain, D.M. Poppel, A. Woods, and C.M. Kjellstrand Dialysis discontinuation and palliative care Am J Kidney Dis 36 1 2000 140 144
36. D. Field, and J. Addington-Hall Extending specialist palliative care to all? Soc Sci Med 48 9 1999 1271 1280
37. J. Addington-Hall, W. Fakhoury, and M. McCarthy Specialist palliative care in nonmalignant disease Palliat Med 12 6 1998 417 427
38. J.B. Levy, E.J. Chambers, and E.A. Brown Supportive care for the renal patient Nephrol Dial Transplant 19 6 2004 1357 1360