Development and validation of participation and positive psychologic function measures for stroke survivors

Archives of Physical Medicine and Rehabilitation

Volumn 91, Issue 9, 2010, Pages 1347-1356

  Bode, Rita K ^a   Heinemann, Allen W ^a,b   Butt, Zeeshan ^a   Stallings, Jena ^a   Taylor, Caitlin ^b   Rowe, Morgan ^b   Roth, Elliot J ^a,b  

^a NORTHWESTERN UNIVERSITY   (United States)

^b REHABILITATION INSTITUTE OF CHICAGO   (United States)

Author keywords

Outcome measures; Quality of life; Rehabilitation; Stroke

Indexed keywords

ADULT; AGED; ARTICLE; CONSTRUCT VALIDITY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL FUNCTION; PATIENT PARTICIPATION; PSYCHOMETRY; QUALITY OF LIFE; RELIABILITY; SATISFACTION; SECONDARY ANALYSIS; SOCIAL BEHAVIOR; STROKE; SURVIVOR; NEUROPSYCHOLOGICAL TEST; PSYCHOLOGIC TEST; PSYCHOLOGY; REPRODUCIBILITY; SOCIAL ADAPTATION; TREATMENT OUTCOME; UNITED STATES; VALIDATION STUDY;

AGED; CHICAGO; FEMALE; HUMANS; INTERVIEW, PSYCHOLOGICAL; MALE; NEUROPSYCHOLOGICAL TESTS; PSYCHOMETRICS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SOCIAL ADJUSTMENT; STROKE; SURVIVORS; TREATMENT OUTCOME;

EID: 77956237059     PISSN: 00039993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.apmr.2010.06.020     Document Type: Article

References (36)

1. World Health Organization International Classification of Functioning, Disability, and Health (ICF) 2001 WHO Geneva
2. P.J. Atherton, and J.A. Sloan Rising importance of patient-reported outcomes Lancet Oncol 7 2006 883 884
3. N.K. Leidy, K. Beusterien, E. Sullivan, R. Richner, and N.I. Muni Integrating the patient's perspective into device evaluation trials Value Health 9 2006 394 401
4. J.E. Ware Jr, and C.D. Sherbourne The MOS 36-Item Short-Form Health Survey (SF-36) I. Conceptual framework and item selection Med Care 30 1992 473 483
5. E.B. Lynch, Z. Butt, and A. Heinemann A qualitative study of quality of life after stroke: the importance of social relationships J Rehabil Med 40 2008 518 523
6. B. Hamilton, C. Granger, F. Sherwin, M. Zielezny, and J. Tashman A uniform national data system for medical rehabilitation M. Fuhrer, Rehabilitation outcomes: analysis and measurements 2003 Brookes Baltimore 137 147
7. J. Schuling, R. de Haan, M. Limburg, and K.H. Groenier The Frenchay Activities Index Assessment of functional status in stroke patients Stroke 24 1993 1173 1177
8. M.C. Visser, P.J. Koudstaal, and R.A. Erdman Measuring quality of life in patients with myocardial infarction or stroke: a feasibility study of four questionnaires in the Netherlands J Epidemiol Community Health 49 1995 513 517
9. M. Carlsson, and E. Hamrin Measurement of quality of life in women with breast cancer Development of a Life Satisfaction Questionnaire (LSQ-32) and a comparison with the EORTC QLQ-C30 Qual Life Res 5 1996 265 274
10. E.B. Lynch, Z. Butt, and A.W. Heinemann Stroke-related quality of life: insight from focus groups with patients and caregivers J Rehabil Med 40 2008 518 523
11. P.M. Rothwell, A.J. Coull, and M.F. Giles Change in stroke incidence, mortality, case-fatality, severity, and risk factors in Oxfordshire, UK from 1981 to 2004 (Oxford Vascular Study) Lancet 363 2004 1925 1933
12. K.L. Salter, N.C. Foley, J.W. Jutai, and R.W. Teasell Assessment of participation outcomes in randomized controlled trials of stroke rehabilitation interventions Int J Rehabil Res 30 2007 339 342
13. L. Noreau, J. Desrosiers, L. Robichaud, P. Fougeyrollas, A. Rochette, and C. Viscogliosi Measuring social participation: reliability of the LIFE-H in older adults with disabilities Disabil Rehabil 26 2004 346 352
14. K. Daniel, C.D. Wolfe, M.A. Busch, and C. McKevitt What are the social consequences of stroke for working-aged adults? A systematic review Stroke 40 2009 e431 e440 Epub 2009 Apr 23
15. K.L. Salter, N.C. Foley, J.W. Jutai, and R.W. Teasell Assessment of participation outcomes in randomized controlled trials of stroke rehabilitation interventions Int J Rehabil Res 30 2007 339 342
16. R.D. Hays, L.S. Morales, and S.P. Reise Item response theory and health outcomes measurement in the 21st century Med Care 38 Suppl II 2000 II28 II42
17. D. Cella, and C.H. Chang A discussion of item response theory and its applications in health status assessment Med Care 38 2000 II66 II72
18. S.E. Embretson, and S.P. Reise Item response theory for psychologists 2000 Erlbaum Mahwah
19. S.E. Embretson The continued search for nonarbitrary metrics in psychology Am Psychol 61 2006 50 55
20. D.J. Weiss Computerized adaptive testing for effective and efficient measurement in counseling and education Meas Eval Counseling Dev 37 2004 70 84
21. K.J. Ottenbacher, Y. Hsu, C.V. Granger, and R.C. Fiedler The reliability of the Functional Independence Measure: a quantitative review Arch Phys Med Rehabil 77 1996 1226 1232
22. A.W. Heinemann, J.M. Linacre, B.D. Wright, B.B. Hamilton, and C.V. Granger Measurement characteristics of the Functional Independence Measure Top Stroke Rehabil 1 1994 1 15
23. R.J. Petrella, T. Overend, and B. Chesworth FIM after hip fracture: is telephone administration valid and sensitive to change? Am J Phys Med Rehabil 81 2002 639 644
24. M.W. Post, and L.P. de Witte Good inter-rater reliability of the Frenchay Activities Index in stroke patients Clin Rehabil 17 2003 548 552
25. C. Wann-Hansson, R. Klevsgard, and P. Hagell Cross-diagnostic validity of the Nottingham Health Profile Index of Distress (NHPD) Health Qual Life Outcomes 6 2008 47 59
26. N. von Steinbuechel, S. Richter, C. Morawetz, and R. Riemsma Assessment of subjective health and health-related quality of life in persons with acquired or degenerative brain injury Curr Opin Neurol 18 2005 681 691
27. A. Hartman-Maeir, N. Soroker, H. Ring, N. Avni, and N. Katz Activities, participation and satisfaction one-year post stroke Disabil Rehabil 29 2007 559 566
28. M. Carlsson, E. Hamrin, and R. Lindqvist Psychometric assessment of the Life Satisfaction Questionnaire (LSQ) and a comparison of a randomised sample of Swedish women and those suffering from breast cancer Qual Life Res 8 1999 245 253
29. G. Rasch Probabilistic models for some intelligence and attainment tests 1960 Danmarks Paedogogiske Institut Copenhagen
30. B.D. Wright, and G. Masters Rating scale analysis 1982 MESA Pr Chicago
31. J.M. Linacre Dimensionality: contrasts and variance WINSTEPS Online User Manual www.winsteps.com Accessed September 16, 2009
32. T.G. Bond, and C.M. Fox Applying the Rasch model: fundamental measurement in the human sciences 1st ed. 2001 Lawrence Erlbaum Mahwah
33. Bode R, Hahn E, DeVellis R, Cella D. Measuring social participation: the PROMIS experience. Presented to the Measurement of Participation in Rehabilitation Research Symposium, October 15, 2008, Toronto, Canada; 2008.
34. S. Cahill, and E. Foa Psychological theories of PTSD M. Friedman, T. Keane, P. Resick, Handbook of PTSD: science and practice 2007 Guilford Pr New York 55 77
35. E. Diener, E. Suh, R. Lucas, and H. Smith Subjective well-being: three decades of progress Psychol Bull 125 1999 276 302
36. R.K. Bode, K. Rychlik, A.W. Heinemann, L. Lovell, and L. Modla Reconceptualizing poststroke activity level using the Frenchay Activities Index Top Stroke Rehabil 9 2003 82 91