Time demands of caring for children with autism: What are the implications for maternal mental health

Journal of Autism and Developmental Disorders

Volumn 40, Issue 5, 2010, Pages 620-628

  Sawyer, Michael G ^b   Bittman, Michael ^c   La Greca, Annette M ^d   Crettenden, Angela D ^e   Harchak, Taylor F ^a   Martin, Jon ^f  

^a UNIVERSITY OF ADELAIDE   (Australia)

^b UNIVERSITY OF ADELAIDE   (Australia)

^c UNIVERSITY OF NEW ENGLAND   (Australia)

^d Department of Biology   (United States)

^e UNIVERSITY OF SOUTH AUSTRALIA   (Australia)

^f NONE

Author keywords

Autism; Caregiving time; Mental health problems; Mothers; Time use

Indexed keywords

ADOLESCENT; AGE DISTRIBUTION; ARTICLE; AUTISM; BEHAVIOR DISORDER; CHILD; CHILDHOOD DISEASE; EMOTIONAL DISORDER; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MATERNAL WELFARE; MENTAL HEALTH; PRESCHOOL CHILD; PRIORITY JOURNAL; QUESTIONNAIRE; SCHOOL CHILD; SOCIAL SUPPORT; TASK PERFORMANCE; ADULT; CAREGIVER; ETIOLOGY; HOME CARE; MENTAL STRESS; MOTHER; MOTHER CHILD RELATION; NURSING; PSYCHOLOGY; TIME;

ADULT; AUTISTIC DISORDER; CAREGIVERS; CHILD; FEMALE; HOME NURSING; HUMANS; MALE; MATERNAL WELFARE; MENTAL HEALTH; MOTHER-CHILD RELATIONS; MOTHERS; STRESS, PSYCHOLOGICAL; TIME FACTORS;

EID: 77956228139     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-009-0912-3     Document Type: Article

References (58)

1. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text revision). Washington, DC: Author.
2. Arono, P., Levine, C., & Memmnott, M. (1999). The economic value of informal caregiving. Health Affairs, 18, 182-188.
3. Australian Bureau of Statistics. (1998). Time Use Survey, Australia: A user's guide (ABS Cat. No. 4150.0). Canberra: Commonwealth of Australia.
4. Australian Bureau of Statistics. (2008). A profile of carers in Australia (catalogue no. 4448.0). Canberra: Commonwealth of Australia.
5. Australian Institute of Health and Welfare. (2007). Australia's welfare 2007. (catalogue no. Aus 93). Canberra: Australian Institute of Health and Welfare.
6. Bailey, D. B., Golden, R. N., Roberts, J., & Ford, A. (2007). Maternal depression and developmental disability: Research Critique. Mental Retardation and Developmental Disabilities, 13, 321-329.
7. Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217-230.
8. Barnes, G. E., & Prosen, H. (1984). Depression in Canadian general practice attenders. Canadian Journal of Psychiatry, 29(1), 2-10.
9. Bitsika, V., & Sharpley, C. F. (2004). Stress, anxiety and depression among parents of children with Autism Spectrum Disorder. Australian Journal of Guidance & Counselling, 14(2), 151-161.
10. Bittman, M. (2004). Parenting and employment: What time-use surveys show. In N. Folbre & M. Bittmen (Eds.), Family time: The social organizations of care (pp. 152-169). New York: Routledge.
11. Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism, 8(4), 409-423.
12. Brookings, J. B., & Bolton, B. (1988). Confirmatory factor analysis of the Interpersonal Support Evaluation List. American Journal of Community Psychology, 16, 137-147.
13. Cohen, J., & Cohen, P. (1983). Applied multiple regression/ correlation analysis for the behavioural sciences. Hillsdale, NJ: Lawrence Erlbaum Associates.
14. Cohen, S., Mermelstein, R., Kamarck, T., & Hoberman, H. (1985). Measuring the functional components of social support. In I. G. Sarason & B. R. Sarason (Eds.), Social support: Theory, research and application. The Hague, Holland: Martinus Nijhoff.
15. Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98(2), 310-357.
16. Craig, L., & Bittman, M. (2008). The incremental time costs of children: An analysis of children's impact on adult time use in Australia. Feminist Economics, 14, 59-88.
17. Crowe, T. K. (1993). Time use of mothers with young children: The impact of a child's disability. Developmental Medicine and Child Neurology, 35, 621-630.
18. Crowe, T. K., & Florez, S. I. (2006). Time use of mothers with school-age children: A continuing impact of a child's disability. American Journal of Occupational Therapy, 60, 194-203.
19. Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with Autism Spectrum Disorder: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278-1291.
20. Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with Autism. Community Mental Health Journal, 37(1), 39-52.
21. Dunst, C. J., & Trivette, C. M. (1986). Mediating influences of social support: Personal, family, and child outcomes. American Journal of Mental Deficiency, 90(4), 403-417.
22. Edwards, B., Higgins, D. J., Gray, M. Zmijewski, N., & Kingston, M. (2008). The nature and impact of caring for family members with a disability in Australia. Australian Institute of Family Studies, research report no. 16. Melbourne: Australian Institute of Family Studies.
23. Fombonne, E., Simmons, H., Ford, T., Meltzer, H., & Goodman, R. (2001). Prevalence of pervasive developmental disorders in the British nationwide survey of child mental health. Journal of the American Academy of Child and Adolescent Psychiatry, 40(7), 820-827.
24. Galea, S., & Tracy, M. (2007). Participation rates in epidemiological studies. Annals of Epidemiology, 17, 643-653.
25. Gill, M. J., & Harris, S. L. (1991). Hardiness and social support as predictors of psychological discomfort in mothers of children with Autism. Journal of Autism and Developmental Disorders, 21(4), 407-416.
26. Goldberg, D. (1978). Manual of the General Health Questionnaire. Windsor, England: Nfer-Nelson Publishing Company.
27. Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Psychology and Psychiatry, 38, 581-586.
28. Goodman, R. (2001). Psychometric properties of the Strengths and Difficulties Questionnaire. Journal of the American Academy of Child and Adolescent Psychiatry, 40(11), 1337-1345.
29. Hastings, R. P., Kovshoff, H., Ward, N. J., Degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with Autism. Journal of Autism and Developmental Disorders, 35(5), 635-644.
30. Hawes, D. J., & Dadds, M. R. (2004). Australian data and psychometric properties of the Strengths and Difficulties Questionnaire. Australian and New Zealand Journal of Psychiatry, 38, 644-651.
31. Hennessy, P. (1997). The growing risk of dependency in old age: What role for families and for social security? International Social Security Review, 50, 23-39.
32. Hill, T., & Thomson, C. (2007). The impact of caring on informal carers' employment, income and earnings: A longitudinal approach. Australian Journal of Social Issues, 42(2), 255-272.
33. Horton, T. V., & Wallander, J. L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46(4), 382-399.
34. Ireys, H. T., & Silver, E. J. (1996). Perception of the impact of a child's chronic illness: Does it predict maternal mental health? Journal of Developmental and Behavioral Pediatrics, 17(2), 77-83.
35. Jarbrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service and cost impacts of children with Autistic Spectrum Disorder: A pilot study. Journal of Autism and Developmental Disorders, 33(4), 395-402.
36. Johnson, C. B., & Deitz, J. C. (1985). Time use of mothers with preschool children: A pilot study. American Journal of Occupational Therapy, 39, 578-583.
37. Juster, F. T. (1985). The validity and quality of time use estimates obtained from recall diaries. In F. T. Juster & F. P. Stafford (Eds.), Time goods and well being (pp. 63-92). Ann Arbor: Institute for Social Research, University of Michigan.
38. Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorder. Journal of Intellectual Disability Research, 50, 172-183.
39. Leonard, B. J., Johnson, A. L., & Brust, J. D. (1993). Caregivers of children with disabilities: A comparison of those managing 'OK' and those needing more help. Children's Health Care, 22, 93-105.
40. Mellor, D. (2005). Normative data for the Strengths and Difficulties Questionnaire in Australia. Australian Psychologist, 40, 215-222.
41. Niemi, I. (1993). Systematic error in behavioural measurement: Comparing results from interview and time budget studies. Social Indicators Research, 30, 229-244.
42. Pallié, B. (1993). Estimating the volume of unpaid activities in Canada, 1992: An evaluation of data from the General Social Survey. General social survey working paper no. 10. Statistics Canada, Ottawa.
43. Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385-401.
44. Robinson, J. P. (1985). The validity and reliability of diaries versus alternative time use measures. In F. T. Juster & F. P. Stafford (Eds.), Time, goods and well-being. Ann Arbor: University of Michigan.
45. Robinson, J. P. (1991). Your money or your time. American Demographics, 13(11), 22-24.
46. Robinson, J. P., & Gershuny, J. (1994). Measuring hours of paid work: Time-diary versus estimate questions. Bulletin of Labour Statistics. International Labour Organisation, Geneva.
47. Robinson, J. P., & Godbey, G. (1997). Time for life. The surprising ways Americans use their time. Pennsylvania: The Pennsylvania State University Press.
48. Rogers, S. E., Anthony, W., & Lyass, A. (2004). The nature and dimensions of social support among individuals with severe mental illnesses. Community Mental Health Journal, 40, 437-450.
49. Roxburgh, S. (2004). 'There just aren't enough hours in the day': The mental health consequences of time pressure. Journal of Health and Social Behavior, 45, 115-131.
50. Schopler, E., Reichler, R. J., DeVellis, R. F., & Daly, K. (1980). Toward objective classification of childhood Autism: Childhood Autism Rating Scale (CARS). Journal of Autism and Developmental Disorders, 10(1), 91-103.
51. Singer, G. H. S. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation, 111(3), 155-169.
52. StataCorp. (2007). Stata Statistical Software (Release 10) [Computer Software]. College Station, TX: StataCorp, LP.
53. Statistics Canada. (1999). The 1998 general social survey-cycle 12: Time use. Public use microdata file documentation and users guide. Ottawa: Statistics Canada.
54. Tarnopolsky, A., Hand, D. J., McLean, E. K., Roberts, H., & Wiggins, R. D. (1979). Validity and uses of a screening questionnaire (GHQ) in the community. British Journal of Psychiatry, 134, 508-515.
55. Van Engeland, H., & Buitelaar, J. K. (2008). Autism spectrum disorders. In M. Rutter, D. V. M. Bishop, D. S. Pine, S. Scott, J. Stevenson, E. Taylor, & A. Thapar (Eds.), Rutter's child and adolescent psychiatry (5th ed., pp. 759-781). Carlton, Victoria, Australia: Blackwell.
56. Wethington, E., & Kessler, R. C. (1986). Perceived support, received support, and adjustment to stressful life events. Journal of Health and Social Behavior, 27, 78-79.
57. Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. Journal of the American Medical Assosication, 289(1), 49-55.
58. Zukewich, N. (2003). Work, parenthood and the experience of time scarcity (catalogue no. 89-584). Ottawa: Statistics Canada.