A partnership approach to service needs assessment with family caregivers of an aging relative living at home: A qualitative analysis of the experiences of caregivers and practitioners

International Journal of Nursing Studies

Volumn 47, Issue 7, 2010, Pages 876-887

  Lévesque, Louise ^a   Ducharme, Francine ^a   Caron, Chantal ^b   Hanson, Elizabeth ^c   Magnusson, Lennart ^d   Nolan, Janet ^e   Nolan, Mike ^f  

^a CENTRE DE RECHERCHE   (Canada)

^b UNIVERSITY INSTITUTE OF GERIATRICS OF SHERBROOKE   (Canada)

^c UNIVERSITY OF BORÅS   (Sweden)

^d LINNAEUS UNIVERSITY   (Sweden)

^e SHEFFIELD HALLAM UNIVERSITY   (United Kingdom)

^f UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Assessment tool; Elders; Family caregivers; Homecare support and services; Partnership working

Indexed keywords

AGED; ARTICLE; CANADA; CAREGIVER; FAMILY; FRAIL ELDERLY; HOME CARE; HUMAN; MANPOWER; NEEDS ASSESSMENT;

AGED; AGED, 80 AND OVER; CAREGIVERS; FAMILY; FRAIL ELDERLY; HOME CARE SERVICES; HUMANS; NEEDS ASSESSMENT; QUEBEC;

EID: 77955876469     PISSN: 00207489     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijnurstu.2009.12.006     Document Type: Article

References (50)

1. Allen D. I'll tell you what suits me best if you don't mind me saying" : " lay participation" in health-care. Nursing Inquiry 2000, 7(3):182-190.
2. Audit Commission, 2004. Support for Carers of Older People. Audit Commission, (accessed 20 July 2008). http://www.audit-commission.gov.uk/.
3. Berg-Weger M., Rubio D.M., Tebbe S. Strengths-based practice with family caregivers of the chronically ill: qualitative insights. Families in Society 2001, 82(3):263-272.
4. Brechin A. What makes for good care?. Care Matters: Concepts, Practice and Research in Health and Social Care 1998, 170-187. Sage Publications, London. A. Brechin, J. Walmsley, J. Katz, S. Pearse (Eds.).
5. Brodaty H., Thomson C., Thompson C., Fine M. Why caregivers of people with dementia and memory loss don't use services. International Journal of Geriatric Psychiatry 2005, 20:537-546.
6. Charlesworth G.M. Reviewing psychological interventions for family cargivers of people with dementia. Aging & Mental Health 2001, 5(2):104-106.
7. Denis J.-L., Lomas J. Convergent evolution: the academic and the policy roots of collaborative research. Journal of Health Services Research Policy 2003, 8(Supplement 2):S1-S6.
8. Dozier R.M., Hics M.W., Cornille T.A., Peterson G.W. The effect of Tomm's therapeutic questioning styles on therapeutic alliance: a clinical analog study. Family Process 1998, 37:189-200.
9. Ducharme, F., 2006. Famille et soins aux personnes âgées, enjeux, défis et stratégies [The Family and Eldercare: Issues, Challenges and Strategies]. Beauchemin, Chenelière éducation, Montréal.
10. Ducharme F., Lévesque L., Caron C., Hanson E., Magnusson L., Nolan M., Nolan J. Validation transculturelle d'un outil d'évaluation des besoins en services des proches-aidants de personnes âgées à domicile [Transcultural validation of a tool for assessing the service needs of family caregivers of elders living at home]. Recherche en soins infirmiers no 2009, 97:63-72.
11. Ducharme F., Lévesque L., Lachance L., Gangbès M., Zarit S.H., Vézina J., Caron C. Older husbands as caregivers: factors associated with health and the intention to end home caregving. Research on Aging 2007, 29(1):3-31.
12. Ducharme, F., Lévesque, L., Caron, C., Hanson, E., Magnusson, L., Nolan, M., Nolan, J., in press. Mise à l'essai d'un outil d'évaluation des besoins de soutien des proches-aidants d'un parent âgé à domicile [Feild testing of a tool to assess the support needs of family caregivers of an aging relative living at home]. Recherche en soins infirmiers.
13. Duffy A. A concept analysis of reflexive practice: determing its value to nurses. British Journal of Nursing 2007, 16(22):1400-1407.
14. Family Caregiver Alliance Caregiver assessment: principles, guidelines and strategies for change. Report from a National Consencus Development Conference 2006.
15. Folgheraiter F. Relational Social Work: Towards Networking and Societal Practices 2004, Jessica Kingsley, London.
16. Goode K.T., Haley W.E., Roth D.L., Ford G.R. Predicting longitudinal changes in caregiver physical and mental health: a stress process Model. Health Psychology 1998, 17:190-198.
17. Guberman N., Keefe J., Fancey P., Barylak L. " Not another form" : lessons for implementing care assessment in health and social services. Health and Social Care in the Community 2007, 15(6):577-587.
18. Guberman N., Lavoie J.-P., Pepin J., Lauzon S., Montejo M.-E. Formal service practitioners' views of family caregivers' responsibilities and difficulties. Canadian Journal on Aging/La revue canadienne du vieillissement 2006, 25(1):43-53.
19. Hanson E., Magnusson L., Nolan J. Swedish experience of a negotiated approach to carer assessment: the Carers Outcome Agreement Tool. Journal of Research in Nursing 2008, 13(5):391-407.
20. Hanson, E., Nolan, J., Magnusson, L., Sennemark, E., Johansson, L., Nolan, M., 2006. COAT: The Carers Outcome Agreement Tool: a new approach to working with family carers. Getting Research into Practice (GRIP) Report No. 1, University of Sheffield, Sheffield.
21. Harvath T.A., Archbold P.G., Stewart B.J., Godow S., Kirschling J.M., Miller L.L., Hogan J., Brody K., Schook J. Establishing partnerships with family carergivers: local and cosmopolitan knowledge. Journal of Gerontological Nursing 1994, 20(2):29-35.
22. e éd) 2003, de Boeck, Bruxelles.
23. Jonsdottir H., Lichfield M., Pharris M.D. The relational core of nursing practice as partnership. Journal of Advanced Nursing 2004, 47(3):241-250.
24. Jonsdottir H., Lichfield M., Pharris M.D. Partnership in practice. Research and Theory for Nursing Practice 2003, 17(1):51-63.
25. Lévesque L., Cossette S., Potvin L., Benigeri M. Community services and caregivers of demented relative: users and those perceiving a barrier to their use. Canadian Journal on Aging/revue canadienne du vieillissement 2000, 19(2):186-209.
26. Lévesque L., Gendron C., Vézina J., Hébert R., Ducharme F., Lavoie J.-P., Gendron M., Voyer L., Préville M. The process of a group intervention for caregivers of demented persons living at home: conceptual framework, components, and characteristics. Aging & Mental Health 2002, 6(3):239-247.
27. Lundh U., Nolan M. I wasn't aware of that" : creating dialogue between family and professional carers. Parternships in Family Care: Understanding the Caregiving Career 2003, 108-127. Open University Press, Maidenhead. M. Nolan, U. Lundh, G. Grant, J. Keady (Eds.).
28. Magusson, L., Hanson, E., Nylén, B., 2009. The implementation of a partnership model and instrument to explore family carers' needs and to plan and follow up individualized support for family carers in Jönköping municipality-final report to the Jönköping County Administrative Board, Jönköping municipality and ÄldreVäst Sjuhärad, University College of Boräs, Böras (In Swedish, English summary available, ). http://www.aldrevast.hb.se/.
29. Magnusson L., Nolan M., Hanson E., Berthold H., Andersson B. Developing parterships with older people and their family carers: the ÄldreVäst Sjuhärad model. Quality in Ageing-Policy, Practice and Research 2001, 2(2):32-38.
30. Mason A., Weatherly H., Spolsbury K., Golder S., Arksey H., Damson J., Drummond M. The effectiveness and cost-effectiveness of respite for caregivers of frail older people. Journal of the American Geriatric Association 2007, 55:290-299.
31. Mestheneos E., Triantafillou J. Supporting Family Carers of Older People in Europe. The Pan-European Background Report. Published on Behalf of the EUROFAMCARE Group 2005, LIT Verlag Munster, Berlin.
32. Nankervis J., Schofield H., Herrman H., Bloch S. Home-based assessment for family carers: a preventive stategy to identify and meet services needs. International Journal of Geriatric Psychiatry 1997, 12:193-201.
33. Nicholas E. An outcomes focus in carer assessment and review: value and challenge. British Journal of Social Work 2003, 33(1):31-47.
34. Nolan M., Grant G., Keady J., Lundh U. New directions for partnership: relationship-centered care. Parternships in Family Care: Understanding the Caregiving Career 2003, 257-291. Open University Press, Maidenhead. M. Nolan, U. Lundh, G. Grant, J. Keady (Eds.).
35. Nolan M., Hanson E., Magusson L., Andersson B.-A. Gauging quality in constructivist reseach. The ÄldreVäst Sjuhärad model revisited. Quality in Ageing-Policy, Practice and Research 2003, 4(2):22-27.
36. Nolan M., Grant G., Keady J. Understanding Family Care 1996, Open University Press, Buckingham.
37. Qureshi H., Bamford C., Nicholas E., Patmore C., Harris J.C. Outcomes in Social Care Practice: Developing an Outcome Focus in Care Management and Use Surveys 2000, Social Policy Research Unit, University of York, York.
38. Resnicow K., Baranowski T., Ahluwalia J., Braithwaite R. Cultural sensitivity in public health: defined and demystified. Health Education Research 1999, 17(5):10-21.
39. Scottish Executive/Office of Public Management, 2005a. The Future of Unpaid Care in Scotland. Headline Report and Recommendations. Scottish Executive/OPM, London.
40. Scottish Executive/Office of Public Management, 2005b. The Future of Unpaid Care in Scotland. Appendix 2: Review of Research and Institutional Case Studies. Scottish Executive/OPM, London.
41. Scottish Executive/Office of Public Management, 2005c. The Future of Unpaid Care in Scotland. Appendix 4: Voices of Carers; Report of Focus Group and Interviews with Unpaid Carers in Scotland. Scottish Executive/OPM, London.
42. Shaw C., McNamara R., Abrams K., Cannings-John R., Hood K., Longo M., Myles S., O'Mahony S., Roe B., Williams K. Systematic review of respite care in the frail elderly. NIHR Health Techonology Assessment Programme 2009, 13(20):1-246.
43. Thompson C.A., Spilsbury K., Hall J., Birks Y., Barnes C., Adamson J. Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatrics 2007, 7:1-12.
44. Tomm K. Interventive interviewing: Part III. Intending to ask lineal, circular, strategic, or reflexive questions?. Family Process 1988, 27:1-15.
45. Tomm K. Interventive interviewing: Part II. Reflexive questioning as a mean to enable self-healing. Family Process 1987, 26:167-183.
46. World Health Organization Alma-Ata: Primary Health Care " Health for all" , Series, No 1 1978, WHO, Geneva.
47. Wright L.M., Leahey M. The three most common errors in family nursing: how to avoid or sidestep. Journal of Family Nursing 2005, 11(2):90-101.
48. Zarit S.H., Leitsch S. Developing and evaluating community based intervention programs for Alzheimer's patients and their caregivers. Aging & Mental Health 2001, 5(Supplement 1):S84-S98.
49. Zarit S.H., Orr N.K., Zarit J.M. The Hidden Victims of Alheimer's Disease 1985, New York University Press, New York.
50. Zeiss A.M., Gallagher-Thompson D., Lovett S., Rose J., McKibbin C. Self-efficacy as a mediator of caregiver coping: development and testing of an assessment model. Journal of Clinical Gerosychology 1999, 5:221-230.