-
1
-
-
77955597271
-
A measure to assess the impact of Huntington's disease on the quality of life of spousal carers
-
Aubeeluck, A., & Buchanan, H. (2006). A measure to assess the impact of Huntington's disease on the quality of life of spousal carers. British Journal of Neuroscience Nursing, 2(2), 88-95.
-
(2006)
British Journal of Neuroscience Nursing
, vol.2
, Issue.2
, pp. 88-95
-
-
Aubeeluck, A.1
Buchanan, H.2
-
2
-
-
0035942320
-
Retest effects and cognitive decline in longitudinal follow-up of patients with early HD
-
Bachoud-Levi, A. C., Maison, P., Bartolomeo, P., Boisse, M. F., Dalla Barba, G., Ergis, A. M., et al. (2001). Retest effects and cognitive decline in longitudinal follow-up of patients with early HD. Neurology, 56, 1052-1058.
-
(2001)
Neurology
, vol.56
, pp. 1052-1058
-
-
Bachoud-Levi, A.C.1
Maison, P.2
Bartolomeo, P.3
Boisse, M.F.4
Dalla Barba, G.5
Ergis, A.M.6
-
3
-
-
0033194940
-
Development and psychometric testing of the Bakas caregiving outcomes scale
-
Bakas, T., & Champion, V. (1999). Development and psychometric testing of the Bakas caregiving outcomes scale. Nursing Research, 48(5), 250-259.
-
(1999)
Nursing Research
, vol.48
, Issue.5
, pp. 250-259
-
-
Bakas, T.1
Champion, V.2
-
4
-
-
29144485926
-
ScoreRel CI: Software for computation of confidence intervals for commonly used score reliability coefficients
-
Barnette, J. J. (2005). ScoreRel CI: Software for computation of confidence intervals for commonly used score reliability coefficients. Educational and Psychological Measurement, 65, 980-983.
-
(2005)
Educational and Psychological Measurement
, vol.65
, pp. 980-983
-
-
Barnette, J.J.1
-
5
-
-
0033926497
-
United Kingdom experience with presymptomatic testing of individuals with 25% risk for Huntington's disease
-
Benjamin, C. M., & Lashwood, A. (2000). United Kingdom experience with presymptomatic testing of individuals with 25% risk for Huntington's disease. Clinical Genetics, 58, 41-49.
-
(2000)
Clinical Genetics
, vol.58
, pp. 41-49
-
-
Benjamin, C.M.1
Lashwood, A.2
-
7
-
-
0028022712
-
Psychological costs and benefits of predictive testing for Huntington's disease
-
Codori A. M., & Brandt, J. (1994). Psychological costs and benefits of predictive testing for Huntington's disease. American Journal of Medical Genetics, 54(3), 174-184.
-
(1994)
American Journal of Medical Genetics
, vol.54
, Issue.3
, pp. 174-184
-
-
Codori, A.M.1
Brandt, J.2
-
8
-
-
0035149588
-
Behavioral changes in Huntington disease
-
Craufurd, D., Thompson, J. C., & Snowden, J. S. (2001). Behavioral changes in Huntington disease. Neuropsychiatry, Neuropsychology, and Behavioral Neurology, 14(4), 219-226.
-
(2001)
Neuropsychiatry, Neuropsychology, and Behavioral Neurology
, vol.14
, Issue.4
, pp. 219-226
-
-
Craufurd, D.1
Thompson, J.C.2
Snowden, J.S.3
-
9
-
-
25144481551
-
Development and validation of the needs inventory for caregivers of the hospitalized elderly
-
Cummings, S. M., Kelly, T., Holland, T. P., & Peterson-Hazan, S. (1998). Development and validation of the needs inventory for caregivers of the hospitalized elderly. Research on Social Work Practice, 8(1), 120-132.
-
(1998)
Research on Social Work Practice
, vol.8
, Issue.1
, pp. 120-132
-
-
Cummings, S.M.1
Kelly, T.2
Holland, T.P.3
Peterson-Hazan, S.4
-
10
-
-
0030670601
-
The caregiver activity survey (CAS): Development and validation of a new measure for caregivers of persons with Alzheimer's disease
-
Davis, K. L., Marin, D. B., Kane, R., Patrick, D., Peskind, E. R., Raskind, M. A., et al. (1997). The caregiver activity survey (CAS): Development and validation of a new measure for caregivers of persons with Alzheimer's disease. International Journal of Geriatric Psychiatry, 12, 978-988.
-
(1997)
International Journal of Geriatric Psychiatry
, vol.12
, pp. 978-988
-
-
Davis, K.L.1
Marin, D.B.2
Kane, R.3
Patrick, D.4
Peskind, E.R.5
Raskind, M.A.6
-
11
-
-
27244446475
-
Partners of mutation-carriers for Huntington's disease: Forgotten persons?
-
Decruyenaere, M., Evers-Kiebooms, G., Boogaerts, A., Demyttenaere, K., Dom, R., & Fryns, J. P. (2005). Partners of mutation-carriers for Huntington's disease: Forgotten persons? European Journal of Human Genetics, 13(9), 1077-1085.
-
(2005)
European Journal of Human Genetics
, vol.13
, Issue.9
, pp. 1077-1085
-
-
Decruyenaere, M.1
Evers-Kiebooms, G.2
Boogaerts, A.3
Demyttenaere, K.4
Dom, R.5
Fryns, J.P.6
-
13
-
-
0037490199
-
Cognitive interviewing: Verbal data in the design and pretesting of questionnaires
-
Drennan, J. (2003). Cognitive interviewing: Verbal data in the design and pretesting of questionnaires. Journal of Advanced Nursing, 42(1), 57-63.
-
(2003)
Journal of Advanced Nursing
, vol.42
, Issue.1
, pp. 57-63
-
-
Drennan, J.1
-
15
-
-
34447316702
-
Genetics of Alzheimer's disease
-
Ertekin-Taner, N. (2007). Genetics of Alzheimer's disease. Neurology Clinics, 25(3), 611-667.
-
(2007)
Neurology Clinics
, vol.25
, Issue.3
, pp. 611-667
-
-
Ertekin-Taner, N.1
-
16
-
-
36649035723
-
The genetics of very early onset Alzheimer disease
-
Filley, C. M., Rollins, Y. D., Anderson, C. A., Arciniegas, D. B., Howard, K. L., Murrell, J. R., et al. (2007). The genetics of very early onset Alzheimer disease. Cognitive and Behavioral Neurology, 20, 149-156.
-
(2007)
Cognitive and Behavioral Neurology
, vol.20
, pp. 149-156
-
-
Filley, C.M.1
Rollins, Y.D.2
Anderson, C.A.3
Arciniegas, D.B.4
Howard, K.L.5
Murrell, J.R.6
-
17
-
-
4944254013
-
Qualitative methods and development of clinical assessment tools
-
Gilgun, J. F. (2004). Qualitative methods and development of clinical assessment tools. Qualitative Health Research, 14(7), 1008-1019.
-
(2004)
Qualitative Health Research
, vol.14
, Issue.7
, pp. 1008-1019
-
-
Gilgun, J.F.1
-
18
-
-
0031154925
-
Selection and use of content experts for instrument development
-
Grant, J. S., & Davis, L. O. (1997). Selection and use of content experts for instrument development. Research in Nursing and Health, 20, 269-274.
-
(1997)
Research in Nursing and Health
, vol.20
, pp. 269-274
-
-
Grant, J.S.1
Davis, L.O.2
-
19
-
-
33749260289
-
A framework for the study of self-and family management of chronic conditions
-
Grey, M., Knafl, K., & McCorkle, R. (2006). A framework for the study of self-and family management of chronic conditions. Nursing Outlook, 54, 278-286.
-
(2006)
Nursing Outlook
, vol.54
, pp. 278-286
-
-
Grey, M.1
Knafl, K.2
McCorkle, R.3
-
20
-
-
33751250197
-
Genetics of familial and sporadic amytrophic lateral sclerosis
-
Gros-Louis, F., Gaspar, C., & Rouleau, G. A. (2006). Genetics of familial and sporadic amytrophic lateral sclerosis. Biochimica et Biophysica Acta, 1762(11-12), 956-972.
-
(2006)
Biochimica et Biophysica Acta
, vol.1762
, Issue.11-12
, pp. 956-972
-
-
Gros-Louis, F.1
Gaspar, C.2
Rouleau, G.A.3
-
22
-
-
34248560852
-
Patients with Huntington's disease have impaired awareness of cognitive, emotional, and functional abilities
-
Hoth, K. F., Paulsen, J. S., Moser, D. J., Tranel, D., Clark, L. A., & Bechara, A. (2007). Patients with Huntington's disease have impaired awareness of cognitive, emotional, and functional abilities. Journal of Clinical and Experimental Neuropsychology, 29(4), 365-376.
-
(2007)
Journal of Clinical and Experimental Neuropsychology
, vol.29
, Issue.4
, pp. 365-376
-
-
Hoth, K.F.1
Paulsen, J.S.2
Moser, D.J.3
Tranel, D.4
Clark, L.A.5
Bechara, A.6
-
23
-
-
0027480960
-
A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington's disease chromosomes
-
Huntington's Disease Research Collaborative Group
-
Huntington's Disease Research Collaborative Group. (1993). A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington's disease chromosomes. Cell, 72, 971-983.
-
(1993)
Cell
, vol.72
, pp. 971-983
-
-
-
24
-
-
0024676578
-
Caregiving hassles scale: Assessing the daily hassles of caring for a family member with dementia
-
Kinney, J. M., & Stephens, M. A. P. (1989). Caregiving hassles scale: Assessing the daily hassles of caring for a family member with dementia. The Gerontologist, 29(3), 328-332.
-
(1989)
The Gerontologist
, vol.29
, Issue.3
, pp. 328-332
-
-
Kinney, J.M.1
Stephens, M.A.P.2
-
25
-
-
34247203639
-
The analysis and interpretation of cognitive interviews for instrument development
-
Knafl, K., Deatrick, J., Gallo, A., Holcombe, G. Bakitas, M., Dixon, J., et al. (2007). The analysis and interpretation of cognitive interviews for instrument development. Research in Nursing and Health, 30(2), 224-234.
-
(2007)
Research in Nursing and Health
, vol.30
, Issue.2
, pp. 224-234
-
-
Knafl, K.1
Deatrick, J.2
Gallo, A.3
Holcombe, G.4
Bakitas, M.5
Dixon, J.6
-
26
-
-
33644823143
-
Uncommon dementia and the carer's perspective
-
LoGiudice, D., & Hassett, A. (2005). Uncommon dementia and the carer's perspective. International Psychogeriatrics, 17(Suppl.), S223-S231.
-
(2005)
International Psychogeriatrics
, vol.17
, Issue.SUPPL
-
-
LoGiudice, D.1
Hassett, A.2
-
27
-
-
0022970868
-
Determination and quantification of content validity
-
Lynn, M. R. (1986). Determination and quantification of content validity. Nursing Research, 35, 382-385.
-
(1986)
Nursing Research
, vol.35
, pp. 382-385
-
-
Lynn, M.R.1
-
28
-
-
0037277096
-
The caregiver vigilance scale: Application and validation in the Resources for Enhancing Alzheimer's Caregiver Health (REACH) project
-
Mahoney, D. F., Jones, R. N., Coon, D. W., Mendelsohn, A. B., Gitlin, L., & Ory, M. (2003). The caregiver vigilance scale: Application and validation in the Resources for Enhancing Alzheimer's Caregiver Health (REACH) project. American Journal of Alzheimer's Disease and Other Dementias, 18(1), 39-48.
-
(2003)
American Journal of Alzheimer's Disease and Other Dementias
, vol.18
, Issue.1
, pp. 39-48
-
-
Mahoney, D.F.1
Jones, R.N.2
Coon, D.W.3
Mendelsohn, A.B.4
Gitlin, L.5
Ory, M.6
-
30
-
-
84958907452
-
Caregiving and the experience of subjective and objective burden
-
Montgomery, R. J. V., Bonyea, J. G., & Hooyman, N. R. (1985). Caregiving and the experience of subjective and objective burden. Family Relations, 34, 19-26.
-
(1985)
Family Relations
, vol.34
, pp. 19-26
-
-
Montgomery, R.J.V.1
Bonyea, J.G.2
Hooyman, N.R.3
-
31
-
-
0033051689
-
Measuring both negative and positive reactions to giving care to cancer patients: Psychometric qualities of the Caregiver Reaction Assessment (CRA)
-
Nijboer, C., Triemstra, M., Tempelaar, R., Sanderman, R., & vandenBos, G. A. M. (1999). Measuring both negative and positive reactions to giving care to cancer patients: Psychometric qualities of the Caregiver Reaction Assessment (CRA). Social Science and Medicine, 48, 1259-1269.
-
(1999)
Social Science and Medicine
, vol.48
, pp. 1259-1269
-
-
Nijboer, C.1
Triemstra, M.2
Tempelaar, R.3
Sanderman, R.4
vandenBos, G.A.M.5
-
32
-
-
0024785449
-
Application of a multidimensional Caregiver Burden Inventory
-
Novak, M., & Guest, C. (1989). Application of a multidimensional Caregiver Burden Inventory. Gerontologist, 29, 798-803.
-
(1989)
Gerontologist
, vol.29
, pp. 798-803
-
-
Novak, M.1
Guest, C.2
-
34
-
-
33644843402
-
Cognitive changes in Huntington's disease
-
Paulsen, J. S., & Conybeare, R. A. 2005. Cognitive changes in Huntington's disease. Advances in Neurology, 96, 209-225.
-
(2005)
Advances in Neurology
, vol.96
, pp. 209-225
-
-
Paulsen, J.S.1
Conybeare, R.A.2
-
35
-
-
0031151167
-
Development and testing of a measure of perceived caregiver rewards in adults
-
Picot, S. J. F., Youngblut, J. A., & Zeller, R. (1997). Development and testing of a measure of perceived caregiver rewards in adults. Journal of Nursing Measurement, 5(1), 33-52.
-
(1997)
Journal of Nursing Measurement
, vol.5
, Issue.1
, pp. 33-52
-
-
Picot, S.J.F.1
Youngblut, J.A.2
Zeller, R.3
-
36
-
-
0003775727
-
-
(6th ed.) Philadelphia: Lippincott, Williams and Wilkins
-
Polit, D. F., & Beck, C. T. (2005). Essentials of nursing research: Methods, appraisal, and utilization (6th ed.). Philadelphia: Lippincott, Williams, and Wilkins.
-
(2005)
Essentials of nursing research: Methods, appraisal, and utilization
-
-
Polit, D.F.1
Beck, C.T.2
-
37
-
-
0029007707
-
Exploration of the effects of predictive testing for Huntington disease on intimate relationships
-
Quaid, K. A., & Wesson M. K. (1995). Exploration of the effects of predictive testing for Huntington disease on intimate relationships. American Journal of Medical Genetics, 57(1), 46-51.
-
(1995)
American Journal of Medical Genetics
, vol.57
, Issue.1
, pp. 46-51
-
-
Quaid, K.A.1
Wesson, M.K.2
-
38
-
-
0020585425
-
Validation of a Caregiver Strain Index
-
Robinson, B. C. (1983) Validation of a Caregiver Strain Index. Journal of Gerontology, 38(3), 344-348.
-
(1983)
Journal of Gerontology
, vol.38
, Issue.3
, pp. 344-348
-
-
Robinson, B.C.1
-
39
-
-
16244422307
-
Toward a biopsychosocial model for 21st century genetics
-
Rolland, J. S., & Williams, J. K. (2006). Toward a biopsychosocial model for 21st century genetics. Family Process, 44(1), 2-24.
-
(2006)
Family Process
, vol.44
, Issue.1
, pp. 2-24
-
-
Rolland, J.S.1
Williams, J.K.2
-
40
-
-
0003839810
-
-
New York: Huntington's Disease Society of America
-
Rosenblatt, A., Ranen, N., Nance, M., & Paulsen, J. S. (1999). A physician's guide to the management of Huntington's disease. New York: Huntington's Disease Society of America.
-
(1999)
A physician's guide to the management of Huntington's disease
-
-
Rosenblatt, A.1
Ranen, N.2
Nance, M.3
Paulsen, J.S.4
-
41
-
-
0034241415
-
Whatever happened to qualitative description?
-
Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing and Health, 23(4), 334-340.
-
(2000)
Research in Nursing and Health
, vol.23
, Issue.4
, pp. 334-340
-
-
Sandelowski, M.1
-
42
-
-
0031863380
-
Multidimensional measures of caregiver burden: A replication and extension of the caregiver burden inventory
-
Schwiebert, V. L., Gieordano, F., Zhang, G., & Sealander, K. (1998). Multidimensional measures of caregiver burden: A replication and extension of the caregiver burden inventory. Journal of Mental Health and Aging, 4(1), 47-57.
-
(1998)
Journal of Mental Health and Aging
, vol.4
, Issue.1
, pp. 47-57
-
-
Schwiebert, V.L.1
Gieordano, F.2
Zhang, G.3
Sealander, K.4
-
43
-
-
0033194542
-
Development and testing of the Family Caregiving Consequences Inventory for home nursing assessment in Taiwan
-
Shyu, Y. L., Lee, H., & Chen, M. (1999). Development and testing of the Family Caregiving Consequences Inventory for home nursing assessment in Taiwan. Journal of Advanced Nursing, 30(3), 646-654.
-
(1999)
Journal of Advanced Nursing
, vol.30
, Issue.3
, pp. 646-654
-
-
Shyu, Y.L.1
Lee, H.2
Chen, M.3
-
44
-
-
0033989352
-
Impact of genetic testing for Huntington disease on the family system
-
Sobel, S. K., & Cowan, D. B. (2000). Impact of genetic testing for Huntington disease on the family system. American Journal of Medical Genetics, 90(1), 49-59.
-
(2000)
American Journal of Medical Genetics
, vol.90
, Issue.1
, pp. 49-59
-
-
Sobel, S.K.1
Cowan, D.B.2
-
45
-
-
77952935260
-
A new scale to measure a family member's perception of community health care services for persons with Huntington disease
-
Sousa, V., Williams, J. K., Barnette, J. J., & Reed, D. A new scale to measure a family member's perception of community health care services for persons with Huntington disease. Journal of Evaluation and Clinical Practice, 16(3), 470-475.
-
Journal of Evaluation and Clinical Practice
, vol.16
, Issue.3
, pp. 470-475
-
-
Sousa, V.1
Williams, J.K.2
Barnette, J.J.3
Reed, D.4
-
46
-
-
34447096609
-
Clinical, genetic, and pathologic characteristics of patients with Frontotemporal dementia and progranulin mutations
-
Van Deerlin, V. M., Wood, E. M., Moore, P., Yuan, W., Forman, M. S., Clark, C. M., et al. (2007). Clinical, genetic, and pathologic characteristics of patients with Frontotemporal dementia and progranulin mutations Archives of Neurology, 64(8), 1148-1153.
-
(2007)
Archives of Neurology
, vol.64
, Issue.8
, pp. 1148-1153
-
-
Van Deerlin, V.M.1
Wood, E.M.2
Moore, P.3
Yuan, W.4
Forman, M.S.5
Clark, C.M.6
-
47
-
-
0025980515
-
The screen for caregiving burden
-
Vitaliano, P. P., Russo, J., Young, H. M., Becker, J., & Maiuro, R. D. (1991). The screen for caregiving burden. The Gerontologist, 31(1), 76-83.
-
(1991)
The Gerontologist
, vol.31
, Issue.1
, pp. 76-83
-
-
Vitaliano, P.P.1
Russo, J.2
Young, H.M.3
Becker, J.4
Maiuro, R.D.5
-
48
-
-
0003812304
-
-
Thousand Oaks, CA: Sage
-
Weisberg, H. F., Krosnick, J. A., & Bowen, B. D. (1996). An introduction to survey research, polling, and data analysis. Thousand Oaks, CA: Sage.
-
(1996)
An introduction to survey research, polling, and data analysis
-
-
Weisberg, H.F.1
Krosnick, J.A.2
Bowen, B.D.3
-
49
-
-
0036779765
-
Capturing the insights of family caregivers: Survey item generation with a coupled interview/focus group process
-
Wackerbarth, S. B., Streams, M. E., & Smith, M. K. (2002). Capturing the insights of family caregivers: Survey item generation with a coupled interview/focus group process. Qualitative Health Research, 12(8), 1141-1154.
-
(2002)
Qualitative Health Research
, vol.12
, Issue.8
, pp. 1141-1154
-
-
Wackerbarth, S.B.1
Streams, M.E.2
Smith, M.K.3
-
50
-
-
0642370967
-
Using focus groups to develop culturally relevant instruments
-
Willgerodt, M. A. (2003). Using focus groups to develop culturally relevant instruments. Western Journal of Nursing Research, 25(7), 798-814.
-
(2003)
Western Journal of Nursing Research
, vol.25
, Issue.7
, pp. 798-814
-
-
Willgerodt, M.A.1
-
51
-
-
46249104711
-
I'm like you: Establishing, confirming and contesting common ground in focus groups with Huntington disease caregivers
-
Williams, J. K., & Ayres, L. (2007). I'm like you: Establishing, confirming and contesting common ground in focus groups with Huntington disease caregivers. Journal of Research in Nursing, 12(6), 655-664.
-
(2007)
Journal of Research in Nursing
, vol.12
, Issue.6
, pp. 655-664
-
-
Williams, J.K.1
Ayres, L.2
-
52
-
-
34447562912
-
"No one else sees the difference": Family members' perceptions of changes in persons with preclinical Huntington disease
-
Williams, J. K., Hamilton, R. J., Nehl, C., McGonigal-Kenney, M., Schutte, D. L., Sparbel, K. J. H., et al. (2007). "No one else sees the difference": Family members' perceptions of changes in persons with preclinical Huntington disease. American Journal of Medical Genetics Part B, 144B(5), 636-641.
-
(2007)
American Journal of Medical Genetics Part B
, vol.144 B
, Issue.5
, pp. 636-641
-
-
Williams, J.K.1
Hamilton, R.J.2
Nehl, C.3
McGonigal-Kenney, M.4
Schutte, D.L.5
Sparbel, K.J.H.6
-
53
-
-
0034640679
-
Psychosocial impact of predictive testing for Huntington disease on support persons
-
Williams, J. K., Schutte, D. L., Holkup, P. A., Evers, C., & Muilenburg, A. (2000). Psychosocial impact of predictive testing for Huntington disease on support persons. American Journal of Medical Genetics, 96(3), 353-359.
-
(2000)
American Journal of Medical Genetics
, vol.96
, Issue.3
, pp. 353-359
-
-
Williams, J.K.1
Schutte, D.L.2
Holkup, P.A.3
Evers, C.4
Muilenburg, A.5
-
54
-
-
61649083506
-
The emotional experiences of family carers in Huntington disease
-
Williams, J. K., Skirton, H., Paulsen, J. S., Tripp-Reimer, T., Jarmon, L., McGonigal-Kenney, M., et al. (2009). The emotional experiences of family carers in Huntington disease. Journal of Advanced Nursing, 65(4), 789-798.
-
(2009)
Journal of Advanced Nursing
, vol.65
, Issue.4
, pp. 789-798
-
-
Williams, J.K.1
Skirton, H.2
Paulsen, J.S.3
Tripp-Reimer, T.4
Jarmon, L.5
McGonigal-Kenney, M.6
|