Causes and place of death in Italian patients with amyotrophic lateral sclerosis

Acta Neurologica Scandinavica

Volumn 122, Issue 3, 2010, Pages 217-223

  Spataro, R ^a   Lo Re, M ^a   Piccoli, T ^a   Piccoli, F ^a   La Bella, V ^a,b  

^a UNIVERSITY OF PALERMO   (Italy)

^b DiNEC   (Italy)

Author keywords

ALS; deaths; epidemiology

Indexed keywords

ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; COHORT ANALYSIS; CULTURAL FACTOR; DEATH; FEMALE; HEALTH CARE PLANNING; HEART INFARCTION; HOSPICE CARE; HUMAN; ITALY; MAJOR CLINICAL STUDY; MALE; NURSING HOME; PALLIATIVE THERAPY; PNEUMONIA; RESPIRATORY FAILURE; SEDATION; SLEEP; SUDDEN DEATH; TERMINAL CARE;

AGED; AMYOTROPHIC LATERAL SCLEROSIS; CAUSE OF DEATH; CHI-SQUARE DISTRIBUTION; COHORT STUDIES; FEMALE; HUMANS; ITALY; KAPLAN-MEIER ESTIMATE; MALE; MIDDLE AGED; RESIDENCE CHARACTERISTICS; RESPIRATORY INSUFFICIENCY; RETROSPECTIVE STUDIES;

EID: 77955291687     PISSN: 00016314     EISSN: 16000404     Source Type: Journal    
DOI: 10.1111/j.1600-0404.2009.01290.x     Document Type: Article

References (32)

1. Haverkamp LJ, Appel V, Appel SH. Natural history of amyotrophic lateral sclerosis in a database population. Validation of a scoring system and a model for survival prediction. Brain 1995 118 : 707 719.
2. Mitsumoto H, Chad DA, Pioro EP. Clinical features: signs and symptoms. In : Mitsumoto H, Chad DA, Pioro EP, eds. Amyotrophic lateral sclerosi. Philadelphia : FA Davis Co, 1998 47 64.
3. Jokelainen M. The epidemiology of amyotrophic lateral sclerosis in Finland. A study based on the death certificates of 421 patients. J Neurol Sci 1976 29 : 55 63.
4. Leone M, Chandra V, Schoenberg BS. Motor neuron disease in the United States, 1971 and 1973-1978: patterns of mortality and associated conditions at the time of death. Neurology 1987 37 : 1339 1343.
5. Caroscio JT, Mulvihill M, Sterling R, Abrams B. Amyotrophic lateral sclerosis: its natural history. Neurol Clin 1987 5 : 1 8.
6. Gil J, Funalot B, Verschueren A et al. Causes of death amongst French patients with amyotrophic lateral sclerosis: a prospective study. Eur J Neurol 2008 15 : 1245 1251.
7. Corcia P, Pradat P-F, Calachas F et al. Causes of death in a post-mortem series of ALS patients. ALS Other MND 2008 9 : 59 62.
8. Neudert C, Oliver D, Wasner M, Borasio GD. The course of the terminal phase in patients with amyotrophic lateral sclerosis. J Neurol 2001 248 : 612 616. (Pubitemid 32700299)
9. Mandler RN, Anderson FA, Miller RG et al. The ALS Patient Care Database: insights into end-of-life care in ALS. Amyotroph Lateral Scler Other Motor Neuron Disord 2001 2 : 203 208.
10. Brooks BR, Miller RG, Swash M, Munsat TL. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord 2000 1 : 293 299.
11. Mannino M, Cellura E, Grimaldi G et al. Telephone follow-up for patients with amyotrophic lateral sclerosis. Eur J Neurol 2007 14 : 79 84.
12. Jemal A, Ward E, Hao Y, Thun M. Trends in the leading causes of death in the United States, 1970-2002. JAMA 2005 294 : 1255 1259.
13. Groh WJ, Grow MR, Saha C et al. Electrocardiographic abnormalities and sudden death in myotonic dystrophy type 1. N Engl J Med 2008 358 : 2688 2697.
14. Clemens KE, Klaschik E. Morphine in the management of dyspnoea in ALS. A pilot study. Eur J Neurol 2008 15 : 445 450.
15. Chiò A, Logroscino G, Hardiman O et al. Prognostic factors in ALS: a critical review. Amyotrophic Lateral Sclerosis 2008 5 : 1 14.
16. Logroscino G, Traynor BJ, Hardiman O et al. Descriptive epidemiology of amyotrophic lateral sclerosis: new evidence and unsolved issues. J Neurol Neurosurg Psychiatr 2008 79 : 6 11.
17. Traynor BJ, Alexander M, Corr B et al. Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study, 1996-2000. J Neurol Neurosurg Psychiatr 2003 74 : 1258 1261.
18. Qureshi M, Cudkowicz ME, Zhang H, Raynor E. Increased incidence of deep venous thrombosis in ALS. Neurology 2007 68 : 76 7.
19. Kvapilova H, Kocova J. Sudden death in venous diseases. Phlebologie 1986 39 : 149 155.
20. Asai H, Hirano M, Ukada F et al. Sympathetic disturbances increase risk of sudden cardiac arrest and death in sporadic ALS. J Neurol Sci 2007 254 : 78 83.
21. Marchese E, Tuttolomondo A, Lo Re M et al. Electrocardiographic findings in patients with amyotrophic lateral sclerosis. XXXIX Congress of the Italian Neurological Society, Naples. Neurol Sci 2008 29 (Suppl. 1 S334.
22. Baltadzheiva R, Gurevich T, Korczyn AD. Autonomic impairment in amyotrophic lateral sclerosis. Curr Opin Neurol 2005 18 : 487 493.
23. Rabkin JG, Albert SM, Del Bene ML et al. Prevalence of depressive disorders and change over time in late stage ALS. Neurology 2005 65 : 62 67.
24. Meyer T, Dullinger JS, Munch C et al. Elective termination of respiratory therapy in amyotrophic lateral sclerosis. Nervenarzt 2008 79 : 684 690.
25. Clemens KE, Klaschik E. Morphine in the management of dyspnoea in ALS. A pilot study. Eur J Neurol 2008 15 : 445 450.
26. Oliver D. Ethical issues in palliative care - an overview. Pall Med 1993 7 (Suppl. 2 15 20.
27. Higginson IJ, Sen-Gupta GJ. Place of care in advanced cancer: a qualitative systematic literature review of patients preferences. J Palliat Med 2000 3 : 287 300.
28. van der Heide A, Deliens L, Faisst K et al. End-of-life decision-making in six European countries: descriptive study. Lancet 2003 361 : 345 350. (Pubitemid 36945056)
29. Goy ER, Carter J, Ganzini L. Neurologic disease at the end of life: caregiver descriptions of Parkinson disease and amyotrophic lateral sclerosis. J Palliat Med 2008 11 : 548 554.
30. Beccaro M, Costantini M, Giorgi Rossi P et al. Actual and preferred place of death of cancer patients. Results from the Italian survey of the dying of cancer (ISDOC). J Epidemiol Community Health 2006 60 : 412 416.
31. Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with patients with amyotrophic lateral sclerosis. J Neurol Sci 1997 152 (Suppl. 1 S82 89.
32. Miyashita M, Narita Y, Sakamoto A et al. Care burden and depression in caregivers caring for patients with intractable neurological diseases at home in Japan. J Neurol Sci 2009 276 : 148 152.