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Volumn 36, Issue 4, 2010, Pages 211-216

Children in health research: A matter of trust

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CANADA; CHILD; CHILD WELFARE; DOCTOR PATIENT RELATION; ETHICS; HUMAN; INFORMATION PROCESSING; MEDICAL RESEARCH; MIDDLE AGED; PARENT; PATIENT PARTICIPATION; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; TRUST;

EID: 77955289827     PISSN: 03066800     EISSN: 14734257     Source Type: Journal    
DOI: 10.1136/jme.2009.031609     Document Type: Article
Times cited : (22)

References (36)
  • 1
    • 1642458580 scopus 로고    scopus 로고
    • Determining the appropriateness of including children in clinical research: how thick is the ice?
    • Sugarman J. Determining the appropriateness of including children in clinical research: how thick is the ice? JAMA 2004;291:494-6.
    • (2004) JAMA , vol.291 , pp. 494-496
    • Sugarman, J.1
  • 2
    • 1642458616 scopus 로고    scopus 로고
    • How to institutional review boards apply the federal risk and benefit standards for pediatric research?
    • Shah S, Whittle A, Wilfond B, et al. How to institutional review boards apply the federal risk and benefit standards for pediatric research? JAMA 2004;291:476-82.
    • (2004) JAMA , vol.291 , pp. 476-482
    • Shah, S.1    Whittle, A.2    Wilfond, B.3
  • 3
    • 0027569844 scopus 로고
    • In loco parentis: minimal risk standard as an ethical threshold for research upon children
    • Freedman B, Fuks A. In loco parentis: minimal risk standard as an ethical threshold for research upon children. Hastings Cent Rep 1993;23:13-20.
    • (1993) Hastings Cent Rep , vol.23 , pp. 13-20
    • Freedman, B.1    Fuks, A.2
  • 5
    • 17844395718 scopus 로고    scopus 로고
    • What factors are important to parents making decisions about neonatal research?
    • Hoehn K, Wernovsky G, Rychik J, et al. What factors are important to parents making decisions about neonatal research? Arch Dis Child Fetal Neonatal Ed 2005;90:F267-9.
    • (2005) Arch Dis Child Fetal Neonatal Ed , vol.90
    • Hoehn, K.1    Wernovsky, G.2    Rychik, J.3
  • 6
    • 0037373103 scopus 로고    scopus 로고
    • Do they understand? Part I: parental consent for children participating in clinical anesthesia and surgery research
    • Tait A, Voepel-Lewis T, Malviya S. Do they understand? Part I: parental consent for children participating in clinical anesthesia and surgery research. Anesthesiology 2003;98:603-8.
    • (2003) Anesthesiology , vol.98 , pp. 603-608
    • Tait, A.1    Voepel-Lewis, T.2    Malviya, S.3
  • 7
    • 0037370305 scopus 로고    scopus 로고
    • Do they understand? Part II: assent of children participating in clinical anesthesia and surgical research
    • Tait A, Voepel-Lewis T, Malviya S. Do they understand? Part II: assent of children participating in clinical anesthesia and surgical research. Anesthesiology 2003;98:609-14.
    • (2003) Anesthesiology , vol.98 , pp. 609-614
    • Tait, A.1    Voepel-Lewis, T.2    Malviya, S.3
  • 8
    • 4344596053 scopus 로고    scopus 로고
    • Comparison of the informed consent process for randomized clinical trials in pediatric and adult oncology
    • Simon CM, Siminoff LA, Kodish ED, et al. Comparison of the informed consent process for randomized clinical trials in pediatric and adult oncology. J Clin Oncol 2004;22:2708-17.
    • (2004) J Clin Oncol , vol.22 , pp. 2708-2717
    • Simon, C.M.1    Siminoff, L.A.2    Kodish, E.D.3
  • 9
    • 14944357163 scopus 로고    scopus 로고
    • Information and informed consent in a longitudinal screening involving children: a questionnaire survey
    • Stolt UG, Helgesson G, Liss P, et al. Information and informed consent in a longitudinal screening involving children: a questionnaire survey. Eur J Hum Genet 2005;13:376-83.
    • (2005) Eur J Hum Genet , vol.13 , pp. 376-383
    • Stolt, U.G.1    Helgesson, G.2    Liss, P.3
  • 10
    • 9144271021 scopus 로고    scopus 로고
    • Communication of randomization in childhood leukemia trials
    • Kodish E, Eder M, Noll RB, et al. Communication of randomization in childhood leukemia trials. JAMA 2005;291:470-5.
    • (2005) JAMA , vol.291 , pp. 470-475
    • Kodish, E.1    Eder, M.2    Noll, R.B.3
  • 11
    • 0029058996 scopus 로고
    • Parental perceptions and attitudes about informed consent in clinical research involving children
    • Harth SC, Thong YH. Parental perceptions and attitudes about informed consent in clinical research involving children. Soc Sci Med 1995;40:1573-7.
    • (1995) Soc Sci Med , vol.40 , pp. 1573-1577
    • Harth, S.C.1    Thong, Y.H.2
  • 12
    • 0031985017 scopus 로고    scopus 로고
    • Factors that influence parents' decisions to consent to their children's participation in clinical anesthesia research
    • Tait AR, Voepel-Lewis T, Siewer M, et al. Factors that influence parents' decisions to consent to their children's participation in clinical anesthesia research. Anesth Analg 1998;86:50-3.
    • (1998) Anesth Analg , vol.86 , pp. 50-53
    • Tait, A.R.1    Voepel-Lewis, T.2    Siewer, M.3
  • 13
    • 0036094597 scopus 로고    scopus 로고
    • Priorities for disclosure of the elements of informed consent for research: a comparison between parents and investigators
    • Tait AR, Voepel-Lewis T, Robinson A, et al. Priorities for disclosure of the elements of informed consent for research: a comparison between parents and investigators. Paediatr Anaesth 2002;12:332-6.
    • (2002) Paediatr Anaesth , vol.12 , pp. 332-336
    • Tait, A.R.1    Voepel-Lewis, T.2    Robinson, A.3
  • 14
    • 0141543854 scopus 로고    scopus 로고
    • Participation of children in clinical research: factors that influence a parent's decision to consent
    • Tait AR, Voepel-Lewis T, Malviya S. Participation of children in clinical research: factors that influence a parent's decision to consent. Anesthesiology 2003;99:918-25.
    • (2003) Anesthesiology , vol.99 , pp. 918-925
    • Tait, A.R.1    Voepel-Lewis, T.2    Malviya, S.3
  • 15
    • 1842534052 scopus 로고    scopus 로고
    • Factors that influence parents' assessments of the risks and benefits of research involving their children
    • Tait AR, Voepel-Lewis T, Malviya S. Factors that influence parents' assessments of the risks and benefits of research involving their children. Pediatrics 2004;113:727-32.
    • (2004) Pediatrics , vol.113 , pp. 727-732
    • Tait, A.R.1    Voepel-Lewis, T.2    Malviya, S.3
  • 16
    • 35348837154 scopus 로고    scopus 로고
    • Risk perception and decision processes underlying informed consent to research participation
    • Reynolds W, Nelson R. Risk perception and decision processes underlying informed consent to research participation. Soc Sci Med 2007;65:2105-15.
    • (2007) Soc Sci Med , vol.65 , pp. 2105-2115
    • Reynolds, W.1    Nelson, R.2
  • 18
    • 0002528395 scopus 로고
    • Grounded theory: an overview
    • Denzin N, Lincoln Y, eds Thousand Oaks, California: Sage
    • Strauss A, Corbin J. Grounded theory: an overview. In: Denzin N, Lincoln Y, eds. Handbook of Qualitative Research. Thousand Oaks, California: Sage, 1994: 273-85.
    • (1994) Handbook of Qualitative Research , pp. 273-285
    • Strauss, A.1    Corbin, J.2
  • 20
    • 0002679733 scopus 로고    scopus 로고
    • Person-centred interviewing and observation
    • Bernard HR, ed Walnut Creek, California: AltaMira Press
    • Levy R, Hollan D. Person-centred interviewing and observation. In: Bernard HR, ed. Handbook of methods in cultural anthropology. Walnut Creek, California: AltaMira Press, 1998:333-64.
    • (1998) Handbook of methods in cultural anthropology , pp. 333-364
    • Levy, R.1    Hollan, D.2
  • 21
    • 0002514886 scopus 로고
    • The group effect in focus groups: planning, implementing, and interpreting focus group research
    • Morse J, ed. Thousand Oaks, California: Sage
    • Carey M. The group effect in focus groups: planning, implementing, and interpreting focus group research. In: Morse J, ed. Critical issues in qualitative research methods. Thousand Oaks, California: Sage, 1994:225-41.
    • (1994) Critical issues in qualitative research methods , pp. 225-241
    • Carey, M.1
  • 22
    • 84973794760 scopus 로고
    • Using focus groups to discuss sensitive topics with children
    • Hoppe M, Wells E, Morrison D, et al. Using focus groups to discuss sensitive topics with children. Eval Rev 1995;19:102-14.
    • (1995) Eval Rev , vol.19 , pp. 102-114
    • Hoppe, M.1    Wells, E.2    Morrison, D.3
  • 24
    • 84936823913 scopus 로고
    • Trust and antitrust
    • Baier A. Trust and antitrust. Ethics 1986;96:231-60.
    • (1986) Ethics , vol.96 , pp. 231-260
    • Baier, A.1
  • 25
    • 33646850015 scopus 로고    scopus 로고
    • Qualitative analysis of mothers' decisionmaking about vaccines for infants: the importance of trust
    • Benin A, Wisler-Scher D, Colson E, et al. Qualitative analysis of mothers' decisionmaking about vaccines for infants: the importance of trust. Pediatrics 2006;117:1532-41.
    • (2006) Pediatrics , vol.117 , pp. 1532-1541
    • Benin, A.1    Wisler-Scher, D.2    Colson, E.3
  • 26
    • 33847026471 scopus 로고    scopus 로고
    • The role familiarity with science and medicine plays in parents' decision making about enrolling a child in vaccine research
    • Chantler T, Lees A, Moxon E, et al. The role familiarity with science and medicine plays in parents' decision making about enrolling a child in vaccine research. Qual Health Res 2007;17:311-22.
    • (2007) Qual Health Res , vol.17 , pp. 311-322
    • Chantler, T.1    Lees, A.2    Moxon, E.3
  • 27
    • 0033205091 scopus 로고    scopus 로고
    • Guarded alliance relationships between hemodialysis patients and their health care providers
    • Sloan R. Guarded alliance relationships between hemodialysis patients and their health care providers. ANNA J 1999;26:503-5.
    • (1999) ANNA J , vol.26 , pp. 503-505
    • Sloan, R.1
  • 28
    • 0024730082 scopus 로고
    • Guarded alliance: health care relationships in chronic illness
    • Thorne S, Robinson C. Guarded alliance: health care relationships in chronic illness. Image 1989;21:153-7.
    • (1989) Image , vol.21 , pp. 153-157
    • Thorne, S.1    Robinson, C.2
  • 29
    • 0030227764 scopus 로고    scopus 로고
    • Trust: the fragile foundation of contemporary biomedical research
    • Kass N, Sugarman J, Faden R, et al. Trust: the fragile foundation of contemporary biomedical research. Hastings Cent Rep 1996;26:25-9.
    • (1996) Hastings Cent Rep , vol.26 , pp. 25-29
    • Kass, N.1    Sugarman, J.2    Faden, R.3
  • 30
    • 63249132274 scopus 로고    scopus 로고
    • Clinical trials: chasing recruits
    • Silversides A. Clinical trials: chasing recruits. CMAJ 2009;180:375-8.
    • (2009) CMAJ , vol.180 , pp. 375-378
    • Silversides, A.1
  • 31
    • 84865921861 scopus 로고    scopus 로고
    • What patients say about medical research
    • Sugarman J, Kass N, Goodman S, et al. What patients say about medical research. IRB 1998;20:1-7.
    • (1998) IRB , vol.20 , pp. 1-7
    • Sugarman, J.1    Kass, N.2    Goodman, S.3
  • 32
    • 70949099918 scopus 로고    scopus 로고
    • Trust in health research relationships: accounts of human subjects
    • McDonald M, Townsend A, Cox S, et al. Trust in health research relationships: accounts of human subjects. J Empir Res Hum Res Ethics 2008;3:35-47.
    • (2008) J Empir Res Hum Res Ethics , vol.3 , pp. 35-47
    • McDonald, M.1    Townsend, A.2    Cox, S.3
  • 33
    • 33748972418 scopus 로고    scopus 로고
    • Measuring trust in medical researchers
    • Hall M, Camacho F, Lawlor J, et al. Measuring trust in medical researchers. Med Care 2006;44:1048-53.
    • (2006) Med Care , vol.44 , pp. 1048-1053
    • Hall, M.1    Camacho, F.2    Lawlor, J.3
  • 34
    • 35548968368 scopus 로고    scopus 로고
    • Parent and child perspectives on physician communication in pediatric palliative care
    • Hsiao J, Evan E, Zeltzer L. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care 2007;5:355-65.
    • (2007) Palliat Support Care , vol.5 , pp. 355-365
    • Hsiao, J.1    Evan, E.2    Zeltzer, L.3
  • 35
    • 54949153030 scopus 로고    scopus 로고
    • Development of a Children's Trust in General Physicians Scale
    • Rotenberg K, Cunningham J, Hayton N, et al. Development of a Children's Trust in General Physicians Scale. Child Care Health Dev 2008;34:748-56.
    • (2008) Child Care Health Dev , vol.34 , pp. 748-756
    • Rotenberg, K.1    Cunningham, J.2    Hayton, N.3
  • 36
    • 40649123598 scopus 로고    scopus 로고
    • Beyond informed consent: the therapeutic misconception and trust
    • de Melo-Martin I, Ho A. Beyond informed consent: the therapeutic misconception and trust. J Med Ethics 2008;34:202-5.
    • (2008) J Med Ethics , vol.34 , pp. 202-205
    • de Melo-Martin, I.1    Ho, A.2


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