'Doctor google' ending the diagnostic odyssey in lysosomal storage disorders: Parents using internet search engines as an efficient diagnostic strategy in rare diseases

Archives of Disease in Childhood

Volumn 95, Issue 8, 2010, Pages 642-644

  Bouwman, Machtelt G ^a   Teunissen, Quirine G A ^a   Wijburg, Frits A ^a   Linthorst, Gabor E ^a  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CASE REPORT; CHILD; ENZYME ANALYSIS; ENZYME REPLACEMENT; FABRY DISEASE; FAMILIAL MEDITERRANEAN FEVER; HEMANGIOKERATOMA; HUMAN; HYDROCEPHALUS; HYPERIMMUNOGLOBULINEMIA D AND PERIODIC FEVER SYNDROME; INTERNET; JUVENILE RHEUMATOID ARTHRITIS; LYSOSOME STORAGE DISEASE; MACROCEPHALY; MALE; PHYSICAL EXAMINATION; PRIORITY JOURNAL; SCHOOL CHILD; TUMOR NECROSIS FACTOR RECEPTOR ASSOCIATED PERIODIC SYNDROME; HEALTH EDUCATION; INFANT; LYSOSOMAL STORAGE DISEASES; PARENT; PROCEDURES; RARE DISEASES; SEARCH ENGINE;

CHILD; HEALTH EDUCATION; HUMANS; INFANT; INTERNET; LYSOSOMAL STORAGE DISEASES; MALE; PARENTS; RARE DISEASES; SEARCH ENGINE;

EID: 77955249004     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/adc.2009.171827     Document Type: Article

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