Disability burden due to stroke in Western Australia: New insights from linked data sources

International Journal of Stroke

Volumn 5, Issue 4, 2010, Pages 269-277

  Katzenellenbogen, Judith M ^a,b,c   Begg, Stephen ^d,e   Somerford, Peter ^a,b   Anderson, Craig S ^f   Semmens, James B ^a   Codde, James P ^a,b   Vos, Theo ^d  

^a CURTIN UNIVERSITY   (Australia)

^b Health Department of Western Australia   (Australia)

^c UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

^d UNIVERSITY OF QUEENSLAND   (Australia)

^e Queensland Health   (Australia)

^f UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Chronic disease; DALY; Disability; Epidemiology; Methodology; Stroke

Indexed keywords

ACCURACY; ADOLESCENT; ADULT; AGED; ARTICLE; AUSTRALIA; DAILY LIFE ACTIVITY; DISABILITY; DISEASE DURATION; DISEASE SEVERITY; FEMALE; HUMAN; INCIDENCE; MALE; MORTALITY; PRIORITY JOURNAL; STROKE; AGE; BRAIN HEMORRHAGE; BRAIN ISCHEMIA; COMPLICATION; COST OF ILLNESS; DISABLED PERSON; MIDDLE AGED; SEX DIFFERENCE; STATISTICAL ANALYSIS; STATISTICS AND NUMERICAL DATA; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGE FACTORS; AGED; AGED, 80 AND OVER; BRAIN ISCHEMIA; CEREBRAL HEMORRHAGE; COST OF ILLNESS; DATA INTERPRETATION, STATISTICAL; DISABILITY EVALUATION; DISABLED PERSONS; FEMALE; HUMANS; MALE; MIDDLE AGED; SEX FACTORS; STROKE; WESTERN AUSTRALIA; YOUNG ADULT;

EID: 77955170443     PISSN: 17474930     EISSN: 17474949     Source Type: Journal    
DOI: 10.1111/j.1747-4949.2010.00439.x     Document Type: Article

References (57)

1. The Global Burden of Disease: A Comprehensive Assessment of Mortality and Disability from Diseases, Injuries, and Risk Factors in 199 and Projected to 2020 1996, Murray CLLopez AD. (eds), Cambridge, Harvard School of Public Health
2. Barendregt JJ, Oortmarssen GJ, Vos T, Murray CJL. A generic model for the assessment of disease epidemiology: the computational basis of DisMod II. Population Health Metrics 2003, 1:4. doi, 10.1186/1478-7954-1-4
3. Nord E. The person trade-off approach to valuing health care programs. Med Decis Making 1995, 15:201-8.
4. Stouthard M, Essink-Bot M, Bonsel GJ. Disability weights for diseases: a modified protocol and results for a western European region. Eur J Public Health 2000, 10:24-30.
5. Bonita R, Anderson CS, Broad JB. Stroke incidence and case fatality in Australasia. A comparison of the Auckland and Perth population based stroke registers. Stroke 1994, 25:552-7.
6. Bronnum-Hansen H, Davidsen M, Thorvaldsen P, Danish MSG. Long-term survival and causes of death after stroke. Stroke 2001, 32:2131-6.
7. Dennis MS. Long-term survival after first-ever stroke: the Oxford Shire community stroke project. Stroke 1993, 24:796-800.
8. Hardie K, Hankey GJ, Jamrozik K, Broadhurst RJ, Anderson C. Ten-year risk of first recurrent stroke and disability after first-ever stroke in the Perth community stroke study. Stroke 2004, 35:731-5.
9. Feigin VL, Lawes CM, Bennett DA, Anderson CS. Stroke epidemiology: a review of population-based studies of incidence, prevalence, and case fatality in the late 20th century. Lancet Neurol 2003, 2:43-53.
10. Hankey GJ, Jamrozik K, Broadhurst RJ. Five-year survival after first-ever stroke and related prognostic factors in the Perth Community Stroke Study. Stroke 2000, 31:2080-6.
11. Hardie K, Hankey GJ, Jamrozik K, Broadhurst RJ, Anderson C. Ten-year survival after first-ever stroke in the Perth Community Stroke Study. Stroke 2003, 34:1842-6.
12. Begg S, Vos T, Goss J. The Burden of Disease and Injury in Australia 2007, Canberra, AIHW
13. Lopez AD, Mathers CD, Ezzati M, Jamison DT, Murray CJL. Global and regional burden of disease and risk factors, 2001: systematic analysis of population health data. Lancet 2006, 367:1747-57.
14. Mathers C, Iburg K, Begg S. Adjusting for dependent comorbidity in the calculation of healthy life expectancy. Popul Health Metrics 2006, 4. doi, 10.1186/1478-7954-4-4
15. Holman CD, Bass AJ, Rouse IL, Hobbs MS. Population-based linkage of health records in western Australia: development of a health services research linked database. Aust N Z J Public Health 1999, 23:453-9.
16. Islam M, Anderson C, Hankey GJ. Trends in stroke incidence and outcome in Perth, Western Australia during 1989 to 2001, the Perth Community Stroke Study. Stroke 2008, 39:776-82.
17. Jamrozik K, Broadhurst RJ, Lai N, Hankey GJ, Burvill PW, Anderson CS. Trends in the incidence, severity, and short-term outcome of stroke in Perth, Western Australia. Stroke 1999, 30:2105-11.
18. Anderson CS, Jamrozik KD, Burvill PW, Chakera TM, Johnson GA, Stewart-Wynne EG. Ascertaining the true incidence of stroke: experience from the Perth Community Stroke Study, 1989-1990. Med J Aust 1993, 158:80-4.
19. Sudlow CL, Warlow CP. Comparing stroke incidence worldwide: what makes studies comparable? Stroke 1996, 27:550-8.
20. Anderson C. The epidemiology of stroke-related disability: frequency, patterns and determinants of care. PhD thesis, University of Western Australia, Perth, 1995
21. Jamrozik K, Dobson A, Hobbs MS. Monitoring the Incidence of Cardiovascular Disease in Australia 2001, Canberra, Australian Institute of Health and Welfare
22. Brameld KJ, Holman CD, Lawrence DM, Hobbs MS. Improved methods for estimating incidence from linked hospital morbidity data. Int J Epidemiol 2003, 32:617-24.
23. @RISK: Advanced Risk Analysis for Spreadsheets 2004, Palisade., New York, Palisade
24. Katzenellenbogen JM. Use of data linkage to enhance burden of disease estimates in Western Australia: the example of stroke. PhD thesis, University of Western Australia, Perth, 2009
25. Mathers C, Vos T, Stevenson C. The Burden of Disease and Injury in Australia 1999, Canberra, Australian Institute of Health and Welfare
26. Vos T, Begg S. The Victorian Burden of Disease Study: Morbidity 1999, Melbourne, Department of Human Services
27. Krabbe PF, Stouthard ME, Essink-Bot ML, Bonsel GJ. The effect of adding a cognitive dimension to the EuroQol multiattribute health-status classification system. J Clin Epidemiol 1999, 52:293-301.
28. EuroQol: a new facility for the measurement of health-related quality of life. Health Policy 1990, 16:199-208. EuroQol-Group.
29. Mahoney F, Barthel D. Functional evaluation: the Barthel index. Md State Med J 1965, 14:61-5.
30. Holbrook M, Skilbeck CE. An activities index for use with stroke patients. Age Ageing 1983, 12:166-70.
31. Folstein M, Folstein S, McHugh P. 'Mini-mental state': a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975, 12:189-98.
32. Burvill P, Johnson G, Jamrozik K, Anderson C, Stewart-Wynne E, Chakera T. Prevalence of depression after stroke: the Perth Community Stroke Study. Br J Psychiatry 1995, 166:320-7.
33. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983, 67:361-70.
34. Yesavage JA. Geriatric depression scale. Psychopharmacol Bull 1988, 24:709-11.
35. Goldberg DP, Hillier VF. A scaled version of the general health questionnaire. Psychol Med 1979, 9:139-45.
36. Dean C, Surtees PG, Sashidharan SP. Comparison of research diagnostic systems in an Edinburgh community sample. Br J Psychiatry 1983, 142:247-56.
37. Gamble GE, Barberan E, Laasch HU, Bowsher D, Tyrrell PJ, Jones AK. Poststroke shoulder pain: a prospective study of the association and risk factors in 152 patients from a consecutive cohort of 205 patients presenting with stroke. Eur J Pain 2002, 6:467-74.
38. Ratnasabapathy Y, Broad J, Baskett J, Pledger M, Marshall J, Bonita R. Shoulder pain in people with a stroke: a population-based study. Clin Rehabil 2003, 17:304-11.
39. Murray CCJ, Gakidou EEE, Frenk JJ. Health inequalities and social group differences: what should we measure? Bull World Health Organ 1999, 77:537-43.
40. Katzenellenbogen JM, Somerford P, Serafino S. Western Australian Burden of Disease Study: Mortality 2000 2003, Perth, Department of Health
41. Holman CDJ. The Analysis of Linked Health Data - Principles and Hands - On Applications 2002, Perth, University of Western Australia
42. Katzenellenbogen JM, Somerford P, Semmens JB, Codde JP. Effect of clearance periods on hospital stroke incidence using linked administrative data. Int J Stroke 5:336-37.
43. Thrift AG, Dewey HM, Macdonell RA, McNeil JJ, Donnan GA. Stroke incidence on the east coast of Australia: the North East Melbourne Stroke Incidence Study (NEMESIS). Stroke 2000, 31:2087-92.
44. Anderson CS, Carter KN, Hackett ML. Trends in stroke incidence in Auckland, New Zealand, during 1981 to 2003. Stroke 2005, 36:2087-93. Auckland Regional Community Stroke Study Group.
45. Murray CJ. Quantifying the burden of disease: the technical basis for disability-adjusted life years. Bull World Health Organ 1994, 72:429-45.
46. Sturm JW, Donnan GA, Dewey HM. Quality of life after stroke: the North East Melbourne Stroke Incidence Study (NEMESIS). Stroke 2004, 35:2340-5.
47. Post PN, Stiggelbout AM, Wakker PP. The utility of health states after stroke: a systematic review of the literature. Stroke 2001, 32:1425-9.
48. Hankey GJ, Jamrozik K, Broadhurst RJ, Forbes S, Anderson CS. Long-term disability after first-ever stroke and related prognostic factors in the Perth Community Stroke Study, 1989-1990. Stroke 2002, 33:1034-40.
49. Hankey GJ. Stroke Treatment and Prevention: An Evidence-Based Approach 2005, Melbourne, Cambridge University Press
50. Hackett ML, Yapa C, Parag V, Anderson CS. Frequency of depression after stroke: A systematic review of observational studies. Stroke 2005, 36:1330-1340.
51. Burvill P, Johnson G, Jamrozik K, Anderson C, Stewart-Wynne E, Chakera T. Anxiety disorders after stroke: results from the Perth Community Stroke Study. Br J Psychiatry 1995, 166:328-32.
52. House A, Dennis M, Mogridge L, Warlow C, Hawton K, Jones L. Mood disorders in the year after first stroke. Br J Psychiatry 1991, 158:83-92.
53. Bonita R, Mendis S, Truelsen T, Bogousslavsky J, Toole J, Yatsu F. The global stroke initiative. Lancet Neurol 2004, 3:391-3.
54. Kumaranayake L, Walker D. Cost-effectiveness analysis and priority-setting: global approach without local meaning? Health Policy in a Globalising World 2002, 140-156. Lee K, Buse KFustukian S., Cambridge, Cambridge University Press
55. Truelsen T, Begg S, Mathers C. Global Burden of Cerebrovascular Disease in the Year 2000 2002, http://www.who.int/healthinfo/statistics/bod_cerebrovasculardiseasestroke.pdf, Geneva, WHO, Available at
56. Vos T, Barker B, Stanley L, Lopez A. The Burden of Disease and Injury in Aboriginal and Torres Strait Islander Peoples 2003 2008, Brisbane, Centre for Burden of Disease and Cost Effectiveness, School of Population Health, University of Queensland
57. Vos T, Begg S. The Burden of Cardiovascular Disease in Australia for the Year 2003: Consultancy Report for the National Heart Foundation 2006, Brisbane, Centre for Burden of Disease and Cost-Effectiveness