A consideration of medicalisation: Choice, engagement and other responsibilities of parents of children with autism spectrum disorder

Social Science and Medicine

Volumn 71, Issue 5, 2010, Pages 950-957

  Valentine, Kylie ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

Author keywords

Australia; Autism; Choice; Decision making; Medicalisation; Parenting; Treatment

Indexed keywords

ADVOCACY; DECISION MAKING; DISEASE TREATMENT; EDUCATION; NERVOUS SYSTEM DISORDER; PARENTAL CARE;

APPLIED BEHAVIORAL ANALYSIS; ARTICLE; ATTITUDE TO MENTAL ILLNESS; AUTISM; CHILD; CLINICAL ARTICLE; COST; DECISION MAKING; EARLY CHILDHOOD INTERVENTION; HUMAN; OCCUPATIONAL THERAPY; PARENT; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; SPEECH THERAPY;

AUSTRALIA;

EID: 77955093650     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2010.06.010     Document Type: Article

References (42)

1. Baker D. Neurodiversity, neurological disability and the public sector: notes on the autism spectrum. Disability & Society 2006, 21(1):15-29.
2. Chamak B. Autism and social movements: French parents' associations and international autistic individuals' organisations. Sociology of Health and Illness 2008, 30(1):76-96.
3. Conrad P. The shifting engines of medicalization. Journal of Health and Social Behavior 2005, 3-14.
4. Conrad P., Leiter V. Medicalization, markets and consumers. Journal of Health and Social Behavior 2004, 158-176.
5. Epstein S. Activism, drug regulation, and the politics of therapeutic evaluation in the AIDS era: a case study of ddC and the 'surrogate markers' debate. Social Studies of Science 1997, 27(5):691-726.
6. Fitzgerald R. Biological citizenship at the periphery: parenting children with genetic disorders. New Genetics and Society 2008, 27(3):251-266.
7. Gray D. Negotiating autism: relations between parents and treatment staff. Social Science & Medicine 1993, 36(8):1037-1046.
8. Green S.E. "We're tired, not sad": benefits and burdens of mothering a child with a disability. Social Science & Medicine 2007, 64(1):150-163.
9. Hacking I. Rewriting the soul: Multiple personality and the sciences of memory 1995, Princeton University Press, New Jersey.
10. Hacking I. Inaugural lecture: chair of philosophy and history of scientific concepts at the Collège de France, 16 January 2001. Economy and Society 2002, 31(1):1-14.
11. Hacking I. Humans, aliens and autism. Daedalus 2009, 138(3):44-59.
12. Howlin P., Kwon H. Evaluating interventions for children with autism and intellectual disabilities. Cambridge textbook of effective treatments in psychiatry 2008, 775-781. Cambridge University Press, Cambridge. P. Tyrer, K. Silk (Eds.).
13. Jepson R.G., Hewison J., Thompson A., Weller D. Patient perspectives on information and choice in cancer screening: a qualitative study in the UK. Social Science & Medicine 2007, 65(5):890-899.
14. Kelly S. Choosing not to choose: reproductive responses of parents of children with genetic conditions or impairments. Sociology of Health and Illness 2009, 31(1):81-97.
15. Lambert H. Accounting for EBM: notions of evidence in medicine. Social Science & Medicine 2006, 62(11):2633-2645.
16. Landsman G. Mothers and models of disability. Journal of Medical Humanities 2005, 26(2):121-139.
17. Leiter V. "Nobody's just normal, you know": the social creation of developmental disability. Social Science & Medicine 2007, 65(8):1630-1641.
18. Lord J., Hutchison P. Individualised support and funding: Building blocks for capacity building and inclusion. Disability & Society 2003, 18(1):71-86.
19. MacDermott S., Williams K., Ridley G., Glasson E., Wray J. The prevalence of autism in Australia: Can it be established from existing data? 2006, Australian Advisory Board on Autism Spectrum Disorders, Forestville NSW.
20. Mandell D.S., Stahmer A.C., Brodkin E.S. Autism spectrum disorders in childhood. Handbook of childhood behavioral issues: Evidence-based approaches to prevention and treatment 2007, Routledge, London and New York. T.P. Gullotta, G.M. Blau (Eds.).
21. McEachin J.J., Smith T., Lovaas O.I. Long-term outcome for children with autism who received early intensive behavioural treatment. American Journal on Mental Retardation 1993, 97:359-372.
22. Munford R. An examination of current practices in the provision of care: exploring these practices in social work education. Social Work Education 1998, 17(1):57-75.
23. Newschaffer C., Croen L., Daniels J., Giarelli E., Grether J., Levy S., et al. The epidemiology of autism spectrum disorders. Annual Review of Public Health 2007, 28:235-258.
24. Poltorak M., Leach M., Fairhead J., Cassell J. 'MMR talk' and vaccination choices: an ethnographic study in Brighton. Social Science & Medicine 2005, 61(3):709-719.
25. Raising Children Network Choosing interventions for autism spectrum disorder Retrieved 3 September, 2009, from. http://raisingchildren.net.au/articles/autism_spectrum_disorder_choosing_interventions.html/context/918%23choosing.
26. Roberts C., Valentine K., Fraser S. Rationalities and non-rationalities in clinical encounters: methadone maintenance treatment and hormone replacement therapy. Science As Culture 2009, 18(2):165-181.
27. Roberts J., Prior M. A review of the research to identify the most effective models of practice in early intervention for children with autism spectrum disorders 2006, Australian Government Department of Health and Ageing, Canberra.
28. Rofes E. Dry bones breathe: Gay men creating post-AIDS identities and cultures 1998, Haworth Press, New York.
29. Rose N., Novas C. Biological citizenship. Global assemblages: Technology, politics and ethics as anthropological problems 2005, [electronic version], Blackwell, Malden, MA. A. Ong, S. Collier (Eds.).
30. Rutter M. Incidence of autism spectrum disorders: changes over time and their meaning. Acta Paediatrica 2005, 94(1):2-15.
31. Ryan S., Cole K.R. From advocate to activist? Mapping the experiences of mothers of children on the autism spectrum. Journal of Applied Research in Intellectual Disabilities 2009, 22(1):43-53.
32. Sackett D.L., Rosenberg W.M.C., Gray J.A.M., Haynes R.B., Richardson W.S. Evidence based medicine: what it is and what it isn't. BMJ 1996, 312:71-72.
33. Samerski S. Genetic counseling and the fiction of choice: taught self-determination as a new technique of social engineering. Signs: Journal of Women in Culture and Society 2009, 34(4):735-761.
34. Singh I. Doing their jobs: mothering with Ritalin in a culture of mother-blame. Social Science & Medicine 2004, 59(6):1193-1205.
35. Skellern C., Schluter P., McDowell M. From complexity to category: responding to diagnostic uncertainties of autistic spectrum disorders. Journal of Paediatrics and Child Health 2005, 41:407-412.
36. The Editors of The Lancet Retraction-Ileal-lymphoid-nodular hyperplasia, non-specific colitis, and pervasive developmental disorder in children. The Lancet 2010, 375(9713):445. 10.1016/S0140-6736(10)60175-4.
37. Timimi S. Pathological child psychiatry and the medicalization of childhood 2002, Routledge, London.
38. Tomes N. Patient empowerment and the dilemmas of late-modern medicalisation. The Lancet 2007, 369(9562):698-700.
39. Tong A., Lowe A., Sainsbury P., Craig J. Experiences of parents who have children with chronic kidney disease: a systematic review of qualitative studies. Pediatrics 2008, 121(2):349.
40. Valentine, K., Rajkovic, M., Dinning, B., Thompson, D. (2009). Post diagnosis support for children with autism spectrum disorder, their families and carers: Final report. Prepared for the Department of Families, Housing, Community Services and Indigenous Affairs (unpublished). Sydney: Social Policy Research Centre, University of New South Wales.
41. Williams C., Alderson P., Farsides B. Too many choices? Hospital and community staff reflect on the future of prenatal screening. Social Science & Medicine 2002, 55(5):743-753.
42. Williams K., Tuck M., Helmer M., Bartak L., Mellis C., Peat J.K. Diagnostic labelling of autism spectrum disorders in NSW. Journal of Paediatrics and Child Health 2008, 44:108-113.