Ethical challenges in the provision of end-of-life care in Norwegian nursing homes

Social Science and Medicine

Volumn 71, Issue 4, 2010, Pages 677-684

  Gjerberg, Elisabeth ^a   Førde, Reidun ^a   Pedersen, Reidar ^a   Bollig, Georg ^b  

^a UNIVERSITY OF OSLO   (Norway)

^b Bergen Red Cross Nursing Home   (Norway)

Author keywords

End of life care; Ethical challenges; Norway; Nursing home staff; Nursing homes; Survey

Indexed keywords

ELDERLY CARE; ELDERLY POPULATION; ETHICS; HEALTH WORKER; SURVEY;

ARTICLE; CONTROLLED STUDY; MEDICAL ETHICS; NORWAY; NURSING HOME; NURSING HOME PERSONNEL; PATIENT AUTONOMY; PREVALENCE; QUESTIONNAIRE; TERMINAL CARE;

ADAPTATION, PSYCHOLOGICAL; AGED, 80 AND OVER; ATTITUDE OF HEALTH PERSONNEL; FEMALE; HEALTH RESOURCES; HOMES FOR THE AGED; HUMANS; INTERPROFESSIONAL RELATIONS; MALE; NORWAY; NURSING HOMES; NURSING STAFF; PERSONAL AUTONOMY; PROFESSIONAL-FAMILY RELATIONS; QUALITY OF HEALTH CARE; QUESTIONNAIRES; TERMINAL CARE; WITHHOLDING TREATMENT;

NORWAY;

EID: 77955091097     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2010.03.059     Document Type: Article

References (57)

1. Aroskar M.A. Community health nurses. Their most significant ethical decision-making problems. Nursing Clinics of North America 1989, 24(4):967-975.
2. Bauer M., Nay R. Family and staff partnerships in long-term care. A review of the literature. Journal of Gerontological Nursing 2003, 29(10):46-53.
3. Bollig G., Pedersen R., Forde R. Sykepleien Forskning 2009, 4(3):186-196.
4. Buchanan J.L., Murkofsky R.L., O'Malley A.J., Karon S.L., Zimmerman D., Caudry D.J., et al. Nursing home capabilities and decisions to hospitalize: a survey of medical directors and directors of nursing. Journal of the American Geriatrics Society 2006 Mar, 54(3):458-465.
5. Carlson A.L. Death in the nursing home: resident, family, and staff perspectives. Journal of Gerontological Nursing 2007, 33(4):32-41.
6. Casarett D., Karlawish J., Morales K., Crowley R., Mirsch T., Asch D.A. Improving the use of hospice services in nursing homes: a randomized controlled trial. JAMA: Journal of the American Medical Association 2005 Jul 13, 294(2):211-217.
7. Corley M.C. Nurse moral distress: a proposed theory and research agenda. Nursing Ethics 2002, 9(6):636-650.
8. Egan M., Kadushin G. The social worker in the emerging field of home care: professional activities and ethical concerns. Health and Social Work 1999, 24(1):43-55.
9. Engedal K. Tidsskr Nor Laegeforen 2005, 125(9):1188-1190.
10. Ersek M., Kraybill B.M., Hansberry J. Assessing the educational needs and concerns of nursing home staff regarding end-of-life care. Journal of Gerontological Nursing 2000 Oct, 26(10):16-26.
11. Forchuk C. Ethical problems encountered by mental health nurses. Issues in Mental Health Nursing 1991, 12(4):375-383.
12. Forde R., Aasland O.G. Moral distress among Norwegian doctors. Journal of Medical Ethics 2008, 34(7):521-525.
13. Forde R., Pedersen R., Nortvedt P., Aasland O.G. Tidsskr Nor Laegeforen 2006, 126(15):1913-1916.
14. Forde R., Vandvik I.H. Clinical ethics, information, and communication: review of 31 cases from a clinical ethics committee. Journal of Medical Ethics 2005, 31(2):73-77.
15. Gjerberg E., Bjørndal A. Sykepleien Forskning 2007, (3):175-180.
16. Glasberg A.L., Eriksson S., Dahlqvist V., Lindahl E., Strandberg G., Soderberg A., et al. Development and initial validation of the stress of conscience questionnaire. Nursing Ethics 2006, 13(6):633-648.
17. Gold C., Chambers J., Dvorak E.M. Ethical dilemmas in the lived experience of nursing practice. Nursing Ethics 1995, 2(2):131-142.
18. Goodridge D., Bond J.B., Cameron C., McKean E. End-of-life care in a nursing home: a study of family, nurse and healthcare aide perspectives. International Journal of Palliative Nursing 2005 May, 11(5):226-232.
19. Haddad A.M. Ethical problems in home healthcare. Journal of Nursing Administration 1992, 22(3):46-51.
20. Harrison J.K., Roth P.A. Ethical dilemmas faced by directors of nursing. Journal of Long Term Care Administration 1992, 20(2):13-16.
21. Hill T.E., Ginsburg M., Citko J., Cadogan M. Improving end-of-life care in nursing facilities: the community state partnership to improve end-of-life care - California. Journal of Palliative Medicine 2005 Apr, 8(2):300-312.
22. Hogstel M.O., Curry L.C., Walker C.A., Burns P.G. NGNA: ethics committees in long-term care facilities. Geriatric Nursing 2004 Nov-Dec, 25(6):364-369.
23. Hurst S.A., Perrier A., Pegoraro R., Reiter-Theil S., Forde R., Slowther A.M., et al. Ethical difficulties in clinical practice: experiences of European doctors. Journal of Medical Ethics 2007, 33(1):51-57.
24. Hurst S.A., Reiter-Theil S., Perrier A., Forde R., Slowther A.M., Pegoraro R., et al. Physicians' access to ethics support services in four European countries. Health Care Analysis 2007, 15(4):321-335.
25. Husebo B.S., Husebo S. Tidsskrift for Den Norske Laegeforening 2005, 125(10):1352-1354. [Norwegian].
26. Kalvemark S., Hoglund A.T., Hansson M.G., Westerholm P., Arnetz B. Living with conflicts-ethical dilemmas and moral distress in the health care system. Social Science & Medicine 2004, 58(6):1075-1084.
27. Kalvemark-Sporrong S., Arnetz B., Hansson M.G., Westerholm P., Hoglund A.T. Developing ethical competence in health care organizations. Nursing Ethics 2007, 14(6):825-837.
28. Katz J.S., Sidell M., Komaromy C. Dying in long-term care facilities: support needs of other residents, relatives, and staff. American Journal of Hospice and Palliative Care 2001 Sep-Oct, 18(5):321-326.
29. Kvale S. Interviews. An introduction to qualitative research interviewing 1996, SAGE Publications, London.
30. Malterud K. Qualitative methods in medical research. An introduction 1996, Tano Aschehoug, Oslo.
31. Miles M., Huberman A.M. Qualitative data analysis. An expanded sourcebook 1994, SAGE Publications, London.
32. Miller S.C., Teno J.M., Mor V. Hospice and palliative care in nursing homes. Clinics in Geriatric Medicine 2004 Nov, $20(4):717-734.
33. Norwegian Directorate of Health Norwegian directorate of health 2008, 1-44. Oslo.
34. Nygaard H.A. Tidsskr Nor Laegeforen 2002, 122(8):823-825.
35. Ostby L. Samfunnsspeilet 2004, 18(1):2-8.
36. Patton M.Q. Qualitative research & evaluation methods 2002, Sage Publications, Thousand Oaks.
37. Paulsen B.H.T.H.T. Bemanning og tjenestetilbud 2004, Sintef Helse, Trondheim.
38. Pedersen R., Nortvedt P., Nordhaug M., Slettebo A., Grothe K.H., Kirkevold M., et al. In quest of justice? Clinical prioritisation in healthcare for the aged. Journal of Medical Ethics 2008, 34(4):230-235.
39. Powers B.A. Ethnographic analysis of everyday ethics in the care of nursing home residents with dementia: a taxonomy. Nursing Research. 2001, 50(6):332-339.
40. Reiter-Theil S., Mertz M., Meyer-Zehnder B. The complex roles of relatives in end-of-life decision-making: an ethical analysis. HEC Forum 2007, 19(4):341-364.
41. Rice K.N., Coleman E.A., Fish R., Levy C., Kutner J.S. Factors influencing models of end-of-life care in nursing homes: results of a survey of nursing home administrators. Journal of Palliative Medicine 2004, 7(5):668-675.
42. Robillard H.M., High D.M., Sebastian J.G., Pisaneschi J.I., Perritt L.J., Mahler D.M. Ethical issues in primary health care: a survey of practitioners' perceptions. Journal of Community Health 1989, 14(1):9-17.
43. Schaffer M.A. Ethical problems in end-of-life decisions for elderly Norwegians. Nursing Ethics 2007, 14(2):242-257.
44. Slettebo A., Hestetun M. Ethical challenges when realizing a value document in a nursing home. Norsk Tidsskrift for Sykepleierforskning 2003, 5(4):225-243.
45. Somers A.R. Nursing homes and ethics committees. New Jersey Medicine. 1989, 86(1):45-49.
46. Stabell A., Naden D. Patients' dignity in a rehabilitation ward: ethical challenges for nursing staff. Nursing Ethics 2006, 13(3):236-248.
47. Statistics Norway (2006). [Deaths by place of occurrence 2006].
48. Svantesson M., Lofmark R., Thorsen H., Kallenberg K., Ahlstrom G. Learning a way through ethical problems: Swedish nurses' and doctors' experiences from one model of ethics rounds. Journal of Medical Ethics 2008, 34(5):399-406.
49. Teno J.M., Clarridge B.R., Casey V., Welch L.C., Wetle T., Shield R., et al. Family perspectives on end-of-life care at the last place of care. JAMA 2004, 291(1):88-93. [see comment].
50. Ulrich C., O'Donnell P., Taylor C., Farrar A., Danis M., Grady C. Ethical climate, ethics stress, and the job satisfaction of nurses and social workers in the United States. Social Science & Medicine 2007, 65(8):1708-1719.
51. Vohra J.U., Brazil K., Szala-Meneok K. The last word: family members' descriptions of end-of-life care in long-term care facilities. Journal of Palliative Care 2006, 22(1):33-39.
52. VonDras D.D., Flittner D., Malcore S.A., Pouliot G. Workplace stress and ethical challenges experienced by nursing staff in a nursing home. Educational Gerontology 2009, 35(4):321-339.
53. Wagner N., Ronen I. Ethical dilemmas experienced by hospital and community nurses: an Israeli survey. Nursing Ethics 1996, 3(4):294-304.
54. Weiner C., Tabak N., Bergman R. The Use of Physical restraints for patients suffering from dementia. Nursing Ethics 2003, 10(5):512-525.
55. Weston C.M., O'Brien L.A., Goldfarb N.I., Roumm A.R., Isele W.P., Hirschfeld K. The NJ SEED project: evaluation of an innovative initiative for ethics training in nursing homes. Journal of the American Medical Directors Association 2005, 6(1):68-75.
56. Wetle T., Shield R., Teno J., Miller S.C., Welch L. Family perspectives on end-of-life care experiences in nursing homes. Gerontologist 2005 Oct, 45(5):643-650.
57. Zuzelo P.R. Exploring the moral distress of registered nurses. Nursing Ethics 2007, 14(3):344-359.