From inventory to benchmark: Quality of psychiatric case registers in research

British Journal of Psychiatry

Volumn 197, Issue 1, 2010, Pages 8-10

  Morgan, Vera A ^a   Jablensky, Assen V ^b  

^a UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

^b UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

CHILD; CLINICAL RESEARCH; DATA BASE; DISEASE REGISTRY; EVALUATION RESEARCH; HUMAN; PRACTICE GUIDELINE; PRIVACY; PUBLICATION; QUALITY CONTROL; REVIEW;

BENCHMARKING; BIOMEDICAL RESEARCH; CONFIDENTIALITY; HUMANS; MENTAL DISORDERS; REGISTRIES;

EID: 77954617270     PISSN: 00071250     EISSN: 14721465     Source Type: Journal    
DOI: 10.1192/bjp.bp.109.076588     Document Type: Review

References (24)

1. Perera G, Soremekun M, Breen G, Stewart R. The psychiatric case register: noble past, challenging present, but exciting future. Br J Psychiatry 2009; 195: 191-3.
2. Allebeck P. The use of population based registers in psychiatric research. Acta Psychiatr Scand 2009; 120: 386-91.
3. Ten Horn G, Giel R, Gulbinat W, Henderson J. Psychiatric Case Registers in Public Health. Elsevier, 1986.
4. Mortensen P. The untapped potential of case registers and record linkage studies in psychiatric epidemiology. Epidemiol Rev 1995; 17: 205-9.
5. Jablensky A, Morgan VA, Zubrick S, Bower C, Yellachich L. Pregnancy, delivery, and neonatal complications in a population cohort of women with schizophrenia and major affective disorders. Am J Psychiatry 2005; 162: 79-91. (Pubitemid 40095676)
6. Morgan VA, Castle D, Page A, Fazio S, Gurrin L, Burton P, et al. Influenza epidemics and the incidence of schizophrenia, affective disorders and mental retardation in Western Australia: no evidence of a major effect. Schizophr Res 1997; 26: 25-39.
7. Valuri G, Croft M, Morgan VA, Jablensky A. The high risk children of mothers with schizophrenia and other severe mental illness: modelling risk from conception to disease. Schizophr Res 2008; 102 (suppl 2): 169.
8. Australian Bureau of Statistics. 1996 Census of Population and Housing. Socio-Economic Indexes for Areas. Catalogue No. 2039.0. ABS, 1998.
9. Byrne N, Regan C, Howard L. Administrative registers in psychiatric research: a systematic review of validity studies. Acta Psychiatr Scand 2005; 112: 409-14.
10. Ruschena D, Mullen P, Burgess P, Cordner S, Barry-Walsh J, Drummer O, et al. Sudden death in psychiatric patients. BMJ 1998; 172: 331-6.
11. Wallace C, Mullen P, Burgess P, Palmer S, Ruschena D, Browne C. Serious criminal offending and mental disorder. Case linkage study. Br J Psychiatry 1998; 172: 477-84. (Pubitemid 28247479)
12. Sigurdsson E, Fombonne E, Sayal K, Checkley S. Neurodevelopmental antecedents of early-onset bipolar affective disorder. Br J Psychiatry 1999; 174: 121-7. (Pubitemid 29089285)
13. Morgan VA, Jablensky A, Castle D. Season of birth in schizophrenia and affective psychoses in Western Australia 1916-1961. Acta Psychiatr Scand 2001; 104: 138-47.
14. Kirkby KC, Hay DA, Daniels BA, Jones IH, Mowry BJ. Comparison between register and structured interview diagnoses of schizophrenia: a case for longitudinal diagnostic profiles. Aust N Z J Psychiatry 1998; 32: 333-7.
15. Lichtenstein P, Björk C, Hultman CM, Solnick E, Sklar P, Sullivan PF. Recurrence risks for schizophrenia in a Swedish National Cohort. Psychol Med 2006; 36: 1417-25.
16. World Health Organization. International Statistical Classification of Diseases and Related Health Problems, Ninth Revision (ICD-9). WHO, 1977.
17. World Health Organization. International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM). WHO, 1979.
18. Holman CDAJ, Bass AJ, Rosman D, Smith M, Semmens J, Glasson E, et al. A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system. Aust Health Rev 2008; 32: 766-77.
19. Korzeniewski SJ, Grigorescu V, Copeland G, Gu G, Thoburn KK, Rogers JD, et al. Methodological innovations in data gathering: newborn screening linkage with live births records, Michigan, 1/2007-3/2008. Matern Child Health J 2009; Apr 8 [Epub ahead of print].
20. Sibthorpe B, Kliewer E, Smith L. Record linkage in Australian epidemiological research: health benefits, privacy guards and future potential. Aust J Public Health 1995; 19: 250-6.
21. Altman DG, Schulz KF, Moher D, Egger M, Davidoff F, Elbourne D, et al. The revised CONSORT statement for reporting randomized trials: explanation and elaboration. Ann Intern Med 2001; 134: 663-94.
22. Liberati A, Altman DG, Tetzlaff J, Mulrow C, Gotzsche PC, Ioannidis JPA, et al. The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate healthcare interventions: explanation and elaboration. BMJ 2009; 339: b2700.
23. Higgins JPT, Green S (eds). Cochrane Handbook for Systematic Reviews of Interventions 4.2.6. The Cochrane Collaboration, 2006 (http:// www2.cochrane.org/resources/handbook/Handbook4.2.6Sep2006.pdf?q=resources/ handbook/Handbook4.2.6Sep2006.pdf).
24. Miles MB, Huberman AM. Qualitative Data Analysis (2nd edn). Sage Publications, 1994.