Multiple sclerosis: Patients' information sources and needs on disease symptoms and management

Patient Preference and Adherence

Volumn 4, Issue , 2010, Pages 157-161

  Matti, Albert I ^a   McCarl, Helen ^b   Klaer, Pamela ^b   Keane, Miriam C ^a   Chen, Celia S ^a  

^a FLINDERS MEDICAL CENTRE   (Australia)

^b The Multiple Sclerosis Society of South Australia and Northern Territory   (Australia)

Author keywords

Information needs; Information sources; MS patients; Optic neuritis

Indexed keywords

EID: 77954588759     PISSN: None     EISSN: 1177889X     Source Type: Journal    
DOI: 10.2147/ppa.s10824     Document Type: Article

References (11)

1. Somerset M, Sharp D. Campbell R. Multiple sclerosis and quality of life: a qualitative investigation. J Health Serv Res Policy. 2002;7:151-159.
2. Forbes A, While A, Taylor M. What people with multiple sclerosis perceive to be important to meeting their needs. J Adv Nurs. 2007;58:11-22.
3. Kersten P, McLellan DL, Gross-Paju K, et al. A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries. Clin Rehabil. 2000;14:42-49.
4. Somerset M, Campbell R, Sharp DJ, Peters TJ. What do people with MS want and expect from health-care services? Health Expect. 2001;4:29-37.
5. Heesen C, Köpke S, Richter T, Kasper J. Shared decision making and self management in multiple sclerosis - a consequence of evidence. J Neurol. 2007;254 Suppl 2:II/116-II/121.
6. Vickrey BG, Shatin D, Wolf SM, et al. Management of multiple sclerosis across managed care and fee-for service systems. Neurology. 2000;55:1341-1349.
7. Box V, Hepworth M, Harrison J. Identifying information needs of people with multiple sclerosis. Nurs Times. 2003;99:32-36.
8. MacLean R, Russell A. Innovative ways of responding to the information needs of people with MS. Br J Nurs. 2005;14:754-757.
9. Arnold AC. Evolving management of optic neuritis and multiple sclerosis. Am J Ophthalmol. 2005;139:1101-1108.
10. Defriez M, Griffiths D, Millett C, Thakrar DN, Winterbotham M. The perception of the current provision of care for multiple sclerosis sufferers in the community. Prim Health Care Res Dev. 2003;4:233-243.
11. Forbes A, While A, Dyson L, Grocott T, Griffiths P. Impact of clinical nurse specialists in multiple sclerosis - synthesis of the evidence. J Adv Nurs. 2003;42:442-462.